Latest / Martin Animations / I read bedtime stories to my little brother every night for 2 years_ he was completely deaf
Transcript
- 0:00Speaker 1: I read bedtime stories to my little brother every night
- 0:02Speaker 1: for two years before learning he was completely deaf. It
- 0:05Speaker 1: started the night mom and dad brought Liam home from
- 0:07Speaker 1: the hospital when I was eight years old. He was
- 0:09Speaker 1: this tiny red-faced thing that cried constantly, and I remember
- 0:13Speaker 1: feeling annoyed that everyone was making such a big deal
- 0:15Speaker 1: about him. Mom asked me if I wanted to help
- 0:17Speaker 1: with the baby, and I said no because I was
- 0:19Speaker 1: in the middle of reading my favorite book about dragons
- 0:21Speaker 1: and knights. But then dad pulled me aside and told
- 0:24Speaker 1: me that being a big brother was the most important
- 0:26Speaker 1: job I'd ever have, and that Liam would look up
- 0:28Speaker 1: to me for everything. he said I could teach him
- 0:30Speaker 1: things and protect him and be his best friend. Something
- 0:33Speaker 1: about the way dad said it made me feel like
- 0:34Speaker 1: I'd been given a secret mission, so I agreed to try.
- 0:37Speaker 1: That first week was chaos with mom barely sleeping and
- 0:40Speaker 1: dad taking time off work to help with feedings and
- 0:42Speaker 1: diaper changes. Liam cried so much that I started wearing
- 0:45Speaker 1: my headphones around the house just to block out the noise.
- 0:47Speaker 1: But one evening when everyone was exhausted and overwhelmed, mom
- 0:50Speaker 1: handed Liam to me while she took a shower. He
- 0:52Speaker 1: was fussing and turning red, and I didn't know what
- 0:54Speaker 1: to do. I sat in the rocking chair in his
- 0:56Speaker 1: nursery and and just started reading out loud from the
- 0:58Speaker 1: dragon book I'd been holding. Within minutes, Liam stopped crying
- 1:02Speaker 1: and just stared at me with these huge dark eyes.
- 1:04Speaker 1: I kept reading even though I knew he couldn't understand
- 1:06Speaker 1: the words, and he stayed calm the entire time. When
- 1:09Speaker 1: mom came back, she found us like that, and actually cried.
- 1:12Speaker 1: She said I was a natural big brother, and that
- 1:14Speaker 1: Liam clearly loved my voice already. After that night, it
- 1:17Speaker 1: became our routine. Every evening before Liam's bedtime, I'd sit
- 1:20Speaker 1: in the rocking chair and read to him for at
- 1:22Speaker 1: least 30 minutes. At first, I just read whatever books
- 1:24Speaker 1: I was into, fantasy adventures and mystery stories that were
- 1:27Speaker 1: way too advanced for a baby, but Liam seemed to
- 1:29Speaker 1: love it regardless. He'd focus on my face with this
- 1:32Speaker 1: intense concentration, occasionally reaching up to grab at my shirt
- 1:34Speaker 1: or touch my cheek. Mom said babies responded to the
- 1:37Speaker 1: sound of voices and the rhythm of speech, that it
- 1:39Speaker 1: helped their brain development, even if they couldn't understand the
- 1:42Speaker 1: actual words yet. As Liam got older and could sit
- 1:45Speaker 1: up on his own, I started picking books specifically for him.
- 1:48Speaker 1: Picture books with animals and colors, simple stories about trucks
- 1:51Speaker 1: and trains. I'd show him the pictures while reading. pointing
- 1:54Speaker 1: at different things and making sound effects. When the book
- 1:56Speaker 1: had a cow, I'd moo loudly. When there was a train,
- 1:59Speaker 1: I'd make the whistle noise. Liam would laugh and clap
- 2:02Speaker 1: his hands, sometimes trying to grab the book from me
- 2:04Speaker 1: to look at the pictures closer. Those reading sessions became
- 2:07Speaker 1: my favorite part of the day, this special time that
- 2:09Speaker 1: was just for the two of us. Mom and Dad
- 2:11Speaker 1: would peek in sometimes and smile at us, but they
- 2:13Speaker 1: mostly left us alone. It was our thing, our bond.
- 2:16Speaker 1: By the time Liam turned one, he still wasn't talking
- 2:19Speaker 1: or even babbling much, but the pediatrician said some kids
- 2:22Speaker 1: were just slower with language development. Mom seemed worried during
- 2:25Speaker 1: those doctor visits, asking lots of questions about milestones and
- 2:28Speaker 1: developmental delays. But the doctor kept reassuring her that boys
- 2:31Speaker 1: often talked later than girls, and that there was a
- 2:33Speaker 1: wide range of normal. I didn't think much about it
- 2:35Speaker 1: because Liam seemed perfectly fine to me. He was happy
- 2:38Speaker 1: and interactive, always smiling and laughing during our reading time.
- 2:42Speaker 1: He'd gotten really good at turning pages, and he'd bounce
- 2:44Speaker 1: excitedly when I picked up one of his favorite books.
- 2:46Speaker 1: We had this one about a caterpillar that ate through
- 2:48Speaker 1: different foods, and Liam would try to poke his finger
- 2:51Speaker 1: through the holes in the pages every single time. When
- 2:53Speaker 1: his first birthday came around, we had a small party
- 2:56Speaker 1: with family and a few of mom's friends who had
- 2:58Speaker 1: kids around Liam's age. I remember watching the other babies,
- 3:01Speaker 1: noticing how some of them were saying mama or dada,
- 3:04Speaker 1: or at least making more sounds than Liam did. One
- 3:06Speaker 1: toddler was even putting two words together. But when it
- 3:08Speaker 1: came time for cake, Liam was the happiest kid there,
- 3:11Speaker 1: smashing his face into the frosting and laughing silently in
- 3:14Speaker 1: that way he did. I didn't see anything wrong with him.
- 3:17Speaker 1: He was perfect. The reading routine continued through Liam's second year.
- 3:20Speaker 1: By then, I'd started fourth grade and had more homework,
- 3:23Speaker 1: but I never skipped our bedtime stories. It was the
- 3:25Speaker 1: one part of my day I looked forward to, no
- 3:27Speaker 1: matter how stressful school got. Liam had developed these little
- 3:30Speaker 1: rituals during our reading time that I found adorable. He'd
- 3:32Speaker 1: climb into my lap and pat the book to tell
- 3:34Speaker 1: me he was ready. When I got to his favorite pages,
- 3:37Speaker 1: he'd put his hand on my chest, almost like he
- 3:39Speaker 1: was checking that I was still there. If I tried
- 3:41Speaker 1: to skip pages to finish faster, he'd frantically flip back
- 3:43Speaker 1: to the ones I'd missed. He knew these books so
- 3:45Speaker 1: well that he could tell when I was cheating. I
- 3:47Speaker 1: started noticing that Liam would watch my face constantly during
- 3:50Speaker 1: the reading. His eyes never left my mouth and expressions,
- 3:53Speaker 1: tracking every word even though I assumed he was just
- 3:55Speaker 1: fascinated by the movement. When I did different voices for characters,
- 3:58Speaker 1: making them high or low or silly, Liam would smile
- 4:01Speaker 1: or laugh. I thought he could hear the differences in
- 4:04Speaker 1: my voice and found them funny. It never occurred to
- 4:06Speaker 1: me that he might be reading my facial expressions and
- 4:08Speaker 1: emotional cues instead. Looking back now, there were so many
- 4:11Speaker 1: signs I completely missed because I didn't know what to
- 4:13Speaker 1: look for. Mom took Liam to another doctor appointment right
- 4:16Speaker 1: after he turned two. and this time she came home
- 4:18Speaker 1: looking shaken. Dad got home from work, and they went
- 4:21Speaker 1: into their bedroom to talk privately, but I could hear
- 4:23Speaker 1: Mom crying through the walls. I stood outside their door
- 4:26Speaker 1: feeling scared because I'd never heard Mom cry like that before.
- 4:29Speaker 1: These deep sobs that sounded like something was broken inside her.
- 4:32Speaker 1: When they finally came out, both their eyes were red,
- 4:35Speaker 1: and Dad's jaw was clenched in that way it got
- 4:38Speaker 1: when he was trying not to show emotion. They sat
- 4:40Speaker 1: me down at the kitchen table and told me the
- 4:42Speaker 1: doctor had some concerns about Liam's development. specifically his lack
- 4:45Speaker 1: of speech, and his responses to sound. They'd scheduled an
- 4:49Speaker 1: appointment with a specialist called an audiologist for the following week.
- 4:52Speaker 1: I asked what that meant, and Dad explained it was
- 4:54Speaker 1: a doctor who checked hearing. My stomach dropped because even
- 4:57Speaker 1: at nine years old, I understood what they were implying.
- 5:00Speaker 1: You think Liam can't hear? I asked, and Mom nodded
- 5:03Speaker 1: while wiping her eyes. We don't know for sure yet,
- 5:05Speaker 1: but the pediatrician noticed that Liam doesn't respond to sounds
- 5:08Speaker 1: behind him or react to loud noises the way he should.
- 5:11Speaker 1: There are some other signs that suggest he might have
- 5:13Speaker 1: a hearing impairment. The words, hearing impairment, sounded so clinical
- 5:16Speaker 1: and scary. I immediately thought about all our reading sessions,
- 5:19Speaker 1: wondering if they'd been pointless this whole time if Liam
- 5:22Speaker 1: couldn't actually hear the stories. That night, I went to
- 5:25Speaker 1: read to Liam as usual, but everything felt different. I
- 5:27Speaker 1: kept testing him without meaning to, clapping behind his head
- 5:30Speaker 1: or dropping a book to see if he'd turn toward
- 5:32Speaker 1: the sound. He didn't react to any of it. He
- 5:34Speaker 1: just sat in my lap waiting for me to start reading,
- 5:36Speaker 1: patting the book like always. When I finally began the story,
- 5:39Speaker 1: Liam settled in with his hand on my chest and
- 5:41Speaker 1: his eyes locked on my face. I tried to focus
- 5:43Speaker 1: on the words, but my voice kept cracking because I
- 5:46Speaker 1: was suddenly crying. If Liam really couldn't hear, did that
- 5:49Speaker 1: mean all these nights of reading to him had been
- 5:50Speaker 1: for nothing? Had I been talking to myself for two
- 5:53Speaker 1: years while he just tolerated it because he liked being held?
- 5:55Speaker 1: The thought made me feel stupid and sad in a
- 5:57Speaker 1: way I couldn't fully explain. When I finished the story,
- 6:00Speaker 1: Liam kissed my cheek the way he always did before
- 6:02Speaker 1: bed and I held him tighter than usual. He felt
- 6:05Speaker 1: so small and fragile in my arms and I was
- 6:07Speaker 1: terrified about what the audiologist might tell us. The week
- 6:10Speaker 1: leading up to that appointment was the longest of my life.
- 6:13Speaker 1: I found myself watching Liam constantly, looking for signs I'd
- 6:16Speaker 1: somehow missed. I tested him with sounds when mom wasn't watching,
- 6:19Speaker 1: calling his name from behind or shaking a rattle next
- 6:22Speaker 1: to his ear. He never turned toward any of it
- 6:24Speaker 1: unless he could see me moving in his peripheral vision first.
- 6:26Speaker 1: The audiologist appointment was scheduled for a Thursday morning, and
- 6:29Speaker 1: mom pulled me out of school to come along. She
- 6:31Speaker 1: said it was important for the whole family to be there,
- 6:33Speaker 1: to understand what Liam needed. The clinic was in a
- 6:36Speaker 1: medical building downtown, and the waiting room had toys scattered
- 6:39Speaker 1: around for kids. Liam immediately went for a set of
- 6:41Speaker 1: blocks and started stacking them, completely content to play while
- 6:44Speaker 1: we waited. When they called us back, the audiologist was
- 6:47Speaker 1: a woman named Dr. Patricia Ashford, who had kind eyes
- 6:50Speaker 1: and spoke in a calm voice that somehow made me
- 6:52Speaker 1: feel worse instead of better. She explained they'd be doing
- 6:55Speaker 1: several tests to measure Liam's hearing ability, including something called
- 6:59Speaker 1: an ABR test that would check the electrical responses in
- 7:02Speaker 1: his auditory nerve. Some of the tests would require Liam
- 7:05Speaker 1: to be very still or even sedated, which scared Mom
- 7:08Speaker 1: so much that Dad had to hold her hand the
- 7:09Speaker 1: entire time Dr. Ashford explained the procedures. The first test
- 7:13Speaker 1: was simple, just Dr. Ashford making various sounds and watching
- 7:16Speaker 1: to see if Liam responded. She used a bell, a whistle,
- 7:19Speaker 1: and her voice at different volumes and frequencies. Liam didn't
- 7:21Speaker 1: react to any of them unless he was looking directly
- 7:23Speaker 1: at her face. She pulled out a toy that made
- 7:25Speaker 1: a loud siren sound and activated it right next to
- 7:28Speaker 1: Liam's ear. Nothing. Not even a flinch. Dr. Ashford's expression
- 7:31Speaker 1: grew more serious as the testing continued. She brought out
- 7:34Speaker 1: special headphones and tried to get Liam to indicate when
- 7:36Speaker 1: he heard tones, but he was too young to understand
- 7:38Speaker 1: the game. Finally, She set up the ABR test, which
- 7:42Speaker 1: required Liam to be very still, so they gave him
- 7:44Speaker 1: a mild sedative that made him drowsy. They attached electrodes
- 7:47Speaker 1: to his head and played sounds while measuring his brain's
- 7:50Speaker 1: electrical responses. Mom held my hand so tight during this
- 7:53Speaker 1: test that my fingers went numb, but I didn't pull away.
- 7:56Speaker 1: We watched the computer screen showing wavy lines that meant
- 7:58Speaker 1: nothing to me, but Dr. Ashford's face told me everything
- 8:01Speaker 1: I needed to know. After about 40 minutes, she removed
- 8:03Speaker 1: the electrodes and let Liam wake up naturally from the sedative.
- 8:07Speaker 1: We went back to her office while Liam dozed in
- 8:09Speaker 1: Mom's arms. and Dr. Ashford pulled up results on her
- 8:11Speaker 1: computer screen. I'm very sorry to tell you this, she began,
- 8:15Speaker 1: and I felt like the floor disappeared beneath my chair.
- 8:17Speaker 1: Liam has profound bilateral sensorineural hearing loss. In simpler terms,
- 8:21Speaker 1: he's completely deaf in both ears. The ABR test showed
- 8:24Speaker 1: no response at any frequency or volume level, which indicates
- 8:27Speaker 1: the damage is in the inner ear or auditory nerve.
- 8:30Speaker 1: Mom started crying immediately, and Dad put his arm around
- 8:32Speaker 1: her shoulders while trying to keep his own composure. I
- 8:35Speaker 1: sat there frozen, unable to process what I'd just heard,
- 8:38Speaker 1: completely deaf. not hard of hearing or partially deaf, but
- 8:41Speaker 1: completely unable to hear anything at all, Dr. Ashford gave
- 8:44Speaker 1: us tissues and waited patiently for Mom to collect herself
- 8:46Speaker 1: before continuing. She explained that Liam's deafness was likely congenital,
- 8:50Speaker 1: meaning he'd been born with it. Sometimes it was genetic,
- 8:53Speaker 1: sometimes caused by infections during pregnancy or complications at birth.
- 8:57Speaker 1: They'd need to do more tests to determine the specific cause,
- 8:59Speaker 1: but that wouldn't change the reality of his condition. The
- 9:02Speaker 1: good news, Dr. Ashford said, though nothing felt good about
- 9:05Speaker 1: this situation, is that we've caught this relatively early. Liam
- 9:08Speaker 1: is at a crucial age for language development, and there
- 9:10Speaker 1: are many options available to help him communicate and thrive.
- 9:13Speaker 1: He can learn American Sign Language, and depending on the
- 9:16Speaker 1: specifics of his hearing loss, he might be a candidate
- 9:18Speaker 1: for hearing aids or even cochlear implants. She handed my
- 9:21Speaker 1: parents a thick folder of information about deaf education, early
- 9:25Speaker 1: intervention programs, and support groups for families with deaf children.
- 9:29Speaker 1: I stared at that folder like it was a bomb
- 9:31Speaker 1: that had just exploded our normal life into pieces. Everything
- 9:33Speaker 1: I thought I knew about my little brother had been wrong.
- 9:36Speaker 1: Every story I'd read to him Every song I'd sung,
- 9:38Speaker 1: every time I'd called his name or told him I
- 9:40Speaker 1: loved him, he'd heard nothing. Absolutely nothing. The drive home
- 9:44Speaker 1: was silent, except for Mom's occasional sniffles. When we pulled
- 9:47Speaker 1: into the driveway, I went straight to my room and
- 9:49Speaker 1: didn't come out for dinner. I couldn't stop thinking about
- 9:51Speaker 1: how stupid I'd been, reading to Liam every single night
- 9:54Speaker 1: like it mattered, like he was listening and learning from
- 9:56Speaker 1: the stories. I felt betrayed, even though Liam hadn't done
- 10:00Speaker 1: anything wrong. That night, Mom knocked on my door and
- 10:03Speaker 1: came in carrying Liam. It's bedtime story time, she said softly.
- 10:07Speaker 1: I shook my head and told her I didn't want
- 10:08Speaker 1: to read anymore, because what was the point if Liam
- 10:11Speaker 1: couldn't hear me? Mom sat down on my bed and
- 10:13Speaker 1: adjusted Liam in her lap so he could see both
- 10:15Speaker 1: of us. The point, she said firmly, is that Liam
- 10:18Speaker 1: loves this time with you. He might not be able
- 10:20Speaker 1: to hear the words, but he can feel your presence
- 10:23Speaker 1: and see your expressions and sense how much you care
- 10:25Speaker 1: about him. That matters more than the actual sounds. I
- 10:28Speaker 1: argued that I'd been wasting my time and his, that
- 10:31Speaker 1: all those hours could have been spent doing something useful
- 10:33Speaker 1: instead of reading stories he couldn't even hear. Mom reached
- 10:36Speaker 1: out and touched my face, making me look at her.
- 10:38Speaker 1: Do you think Liam looked forward to story time every night?
- 10:41Speaker 1: I nodded because I knew he did. He'd get excited
- 10:43Speaker 1: when he saw me pick up a book, climbing into
- 10:45Speaker 1: my lap before I even sat down. Then it wasn't
- 10:48Speaker 1: a waste. Those moments built the bond between you two.
- 10:51Speaker 1: You became his favorite person, his safe place. That's not nothing, honey.
- 10:55Speaker 1: Her words made sense, logically. But emotionally, I still felt
- 10:58Speaker 1: like I'd been living a lie. I thought we were
- 11:00Speaker 1: sharing stories and adventures, building his vocabulary and imagination through books.
- 11:04Speaker 1: Now I knew he'd just been sitting there in silence
- 11:06Speaker 1: while I talked to myself. Mom convinced me to do
- 11:08Speaker 1: the bedtime story that night, even though I was reluctant.
- 11:11Speaker 1: When I opened the book, Liam immediately perked up and
- 11:13Speaker 1: patted my chest like he always did. I started reading,
- 11:16Speaker 1: but my voice was flat and lifeless. I didn't do
- 11:18Speaker 1: the character voices or the sound effects, I just went
- 11:21Speaker 1: through the motions, turning pages mechanically. Halfway through, Liam put
- 11:24Speaker 1: his small hand on my cheek and made me look
- 11:26Speaker 1: at him. He was frowning, his eyebrows scrunched together in concern.
- 11:29Speaker 1: Then he kissed my nose, something he rarely did, and
- 11:32Speaker 1: smiled at me so genuinely that I started crying again.
- 11:35Speaker 1: This tiny two-year-old who couldn't hear a single word I
- 11:37Speaker 1: was saying was trying to comfort me because he could
- 11:39Speaker 1: sense my sadness. I pulled him closer and finished the
- 11:42Speaker 1: story properly, doing all the voices and expressions even though
- 11:46Speaker 1: I knew he couldn't hear the differences in my tone.
- 11:48Speaker 1: When I got to the end, Liam clapped his hands
- 11:50Speaker 1: the way he always did, and I realized Mom was right.
- 11:53Speaker 1: This ritual had never been about the words at all.
- 11:56Speaker 1: It had been about us spending time together, about the
- 11:58Speaker 1: connection we'd built through routine and presence. The hearing loss
- 12:01Speaker 1: didn't erase any of that. Over the next few weeks,
- 12:04Speaker 1: our house transformed into a learning center for sign language.
- 12:07Speaker 1: Mom bought books and DVDs about ASL, and we all
- 12:09Speaker 1: started taking classes at a deaf community center downtown. The
- 12:13Speaker 1: instructor was a deaf woman named Olivia who'd been signing
- 12:15Speaker 1: since childhood, and she was patient with our clumsy attempts
- 12:18Speaker 1: to form words with our hands. I was surprised by
- 12:20Speaker 1: how complex and beautiful sign language was, how it wasn't
- 12:23Speaker 1: just hand movements, but also involved facial expressions and body language.
- 12:27Speaker 1: Everything I'd been doing unconsciously while reading to Liam, the
- 12:29Speaker 1: expressions and gestures, had actually been a form of communication
- 12:32Speaker 1: he could understand. Olivia explained that deaf children often became
- 12:35Speaker 1: very good at reading faces and picking up on emotional
- 12:37Speaker 1: cues because they couldn't rely on vocal tone or inflection.
- 12:40Speaker 1: Liam had been doing that with me all along. understanding
- 12:43Speaker 1: my moods and reactions through visual information rather than auditory.
- 12:46Speaker 1: It made me see our reading sessions in a completely
- 12:48Speaker 1: new light. I hadn't been wasting my time at all.
- 12:51Speaker 1: I'd been teaching Liam about emotions and storytelling through my
- 12:53Speaker 1: expressions and body language, even if he couldn't hear the
- 12:56Speaker 1: actual words. That realization helped ease some of the guilt
- 12:58Speaker 1: and sadness I'd been carrying. I threw myself into learning
- 13:01Speaker 1: sign language with an intensity that surprised even my parents.
- 13:04Speaker 1: While they learned the basics for everyday communication, I went deeper,
- 13:07Speaker 1: studying grammar rules and practicing until my fingers ached. I
- 13:10Speaker 1: wanted to be fluent so I could really talk to
- 13:12Speaker 1: Liam so we could have actual conversations instead of just
- 13:15Speaker 1: me reading at him. Within three months, I could sign
- 13:17Speaker 1: simple stories and hold basic conversations. Liam was like a sponge,
- 13:20Speaker 1: absorbing signs faster than any of us. By his second birthday,
- 13:24Speaker 1: he knew over 50 signs and was starting to combine
- 13:26Speaker 1: them into short phrases. The first time he signed love
- 13:28Speaker 1: you to me, I cried happy tears instead of sad ones.
- 13:31Speaker 1: We modified our bedtime routine to include sign language. I'd
- 13:34Speaker 1: still read the words out loud, partly out of habit
- 13:37Speaker 1: and partly because mom said it was good for my
- 13:38Speaker 1: reading skills. But now I'd also sign keywords and show
- 13:41Speaker 1: Liam the pictures while explaining what was happening using ASL.
- 13:44Speaker 1: He'd sign questions or comments, and we'd have these amazing
- 13:47Speaker 1: discussions about the stories. He had opinions about which characters
- 13:50Speaker 1: were good or bad, and he'd predict what might happen next.
- 13:53Speaker 1: All the things I'd thought we were missing out on
- 13:55Speaker 1: were actually possible, just in a different language. One night,
- 13:58Speaker 1: about six months after the diagnosis, Liam signed something new
- 14:02Speaker 1: after our story. It was clumsy because his motor skills
- 14:04Speaker 1: were still developing, but I understood it clearly. Why you
- 14:07Speaker 1: sad before? He asked. referring to those weeks when I'd
- 14:10Speaker 1: been processing his deafness. I thought carefully about how to
- 14:13Speaker 1: explain it in terms a two-year-old could understand. I signed
- 14:16Speaker 1: back slowly, making sure he could follow. I was sad
- 14:19Speaker 1: because I didn't understand yet. I thought you couldn't hear
- 14:22Speaker 1: me so our stories didn't matter. But now I know
- 14:24Speaker 1: they always mattered. You could always see me and feel me.
- 14:27Speaker 1: That's just as good. Liam considered this seriously, then signed,
- 14:30Speaker 1: I love stories. I love you. Then he climbed out
- 14:33Speaker 1: of my lap and went to his bookshelf, pulling out
- 14:35Speaker 1: the dragon book I'd been reading the very first night
- 14:37Speaker 1: I ever read to him. This one, he signed, bringing
- 14:40Speaker 1: it back to me. I was shocked because I hadn't
- 14:42Speaker 1: read that book to him in over a year, since
- 14:44Speaker 1: it was way too advanced for a toddler. You remember
- 14:46Speaker 1: this book? I signed. He nodded enthusiastically and patted it.
- 14:50Speaker 1: First book. You read. I was baby. I didn't think
- 14:53Speaker 1: two-year-olds could have memories from when they were infants, but
- 14:55Speaker 1: Liam clearly remembered something about that book and those early
- 14:58Speaker 1: reading sessions. Maybe it was the feeling of being held
- 15:01Speaker 1: and safe, or maybe he remembered watching my face tell
- 15:03Speaker 1: the story, even if he couldn't hear the words. Either way,
- 15:07Speaker 1: it meant everything to me. I read him the Dragon
- 15:09Speaker 1: Book that night, signing what I could and fingerspelling the
- 15:12Speaker 1: words I didn't know signs for yet. Liam watched with
- 15:15Speaker 1: complete attention, and when I finished, he signed, more stories tomorrow.
- 15:19Speaker 1: Starting school was complicated because we had to decide between
- 15:21Speaker 1: mainstream education with an interpreter or a school specifically for
- 15:25Speaker 1: deaf children. Mom and dad visited several programs, weighing the
- 15:28Speaker 1: benefits of each option. The mainstream school would give Liam
- 15:31Speaker 1: exposure to both deaf and hearing children, teaching him to
- 15:33Speaker 1: navigate the hearing world. But the deaf school would immerse
- 15:36Speaker 1: him in ASL and deaf culture, surrounding him with people
- 15:39Speaker 1: who shared his experience. They ultimately chose a deaf school
- 15:41Speaker 1: for his early years, with the plan to transition to
- 15:44Speaker 1: mainstream school later if that's what Liam wanted. I was
- 15:46Speaker 1: nervous about him going to school, worried that he'd forget
- 15:49Speaker 1: about our reading time or that other kids would become
- 15:51Speaker 1: more important than me. But Liam's teacher, Mr. Holloway, actually
- 15:54Speaker 1: encouraged parents and siblings to continue reading at home, saying
- 15:57Speaker 1: it built literacy skills regardless of hearing status. He suggested
- 16:00Speaker 1: we get books specifically designed for deaf children, ones that
- 16:03Speaker 1: emphasized visual storytelling and included sign language in the illustrations.
- 16:07Speaker 1: We started collecting a whole new library of these books,
- 16:09Speaker 1: and our reading time evolved again. Now Liam would tell
- 16:12Speaker 1: me about what he learned at school, signing excitedly about
- 16:15Speaker 1: his friends and teachers. He'd teach me new signs he'd
- 16:17Speaker 1: picked up, correcting my hand. Shapes, when I got them wrong.
- 16:21Speaker 1: Our roles had shifted slightly. I was still the big
- 16:23Speaker 1: brother reading stories, but now Liam was also teaching me
- 16:26Speaker 1: about his world and his language. By the time Liam
- 16:29Speaker 1: turned four, he was completely fluent in ASL and starting
- 16:32Speaker 1: to learn written English. The reading sessions now involved him
- 16:35Speaker 1: following along with the text while I signed the story,
- 16:38Speaker 1: making connections between the written words and their signed equivalents.
- 16:41Speaker 1: He'd point at words and ask me to show him
- 16:43Speaker 1: the sign, building his vocabulary in both languages simultaneously. His
- 16:47Speaker 1: teacher said Liam was one of the strongest readers in
- 16:49Speaker 1: his class, and I felt proud knowing our nightly ritual
- 16:52Speaker 1: had contributed to that. One evening, Liam brought home a
- 16:55Speaker 1: book from his school library that was illustrated by a
- 16:57Speaker 1: deaf artist. The pictures were beautiful and detailed, and the
- 17:00Speaker 1: story was about a deaf bunny learning to communicate with
- 17:02Speaker 1: his hearing family. As I read it, I realized it
- 17:04Speaker 1: was basically our story, just with animal characters. When I
- 17:07Speaker 1: got to the part where the bunny teaches his brother
- 17:09Speaker 1: sign language so they can talk about their dreams, Liam signed,
- 17:12Speaker 1: like us. I nodded and signed back, exactly like us.
- 17:16Speaker 1: You taught me how to really talk to you. Liam
- 17:18Speaker 1: smiled and hugged me, and I felt grateful for everything
- 17:20Speaker 1: we'd been through. The diagnosis that had seemed like a
- 17:23Speaker 1: tragedy at first had actually opened up a whole new
- 17:25Speaker 1: world for our family. I was in middle school when
- 17:27Speaker 1: Liam started asking questions about why he was deaf and
- 17:30Speaker 1: whether it could be fixed. Mom and dad had taken
- 17:32Speaker 1: him to several specialists over the years, exploring options like
- 17:35Speaker 1: hearing aids and cochlear implants. The audiologists all said the
- 17:38Speaker 1: same thing. Liam's hearing loss was profound enough that traditional
- 17:41Speaker 1: hearing aids wouldn't help much, but he was a candidate
- 17:44Speaker 1: for cochlear implants if the family chose to pursue that route.
- 17:47Speaker 1: The decision was complicated and controversial. Some members of the
- 17:49Speaker 1: deaf community viewed cochlear implants as an attempt to fix
- 17:52Speaker 1: something that wasn't broken, arguing that deafness was a cultural
- 17:55Speaker 1: identity rather than a disability. Others saw the implants as
- 17:58Speaker 1: a tool that could give deaf children more options in life.
- 18:01Speaker 1: Mom and dad researched extensively, attending seminars and talking to
- 18:04Speaker 1: families who'd chosen different paths. They ultimately decided to let
- 18:07Speaker 1: Liam make the choice himself when he was old enough
- 18:10Speaker 1: to understand the implications. In the meantime, they focused on
- 18:13Speaker 1: giving him a rich life in both deaf and hearing worlds,
- 18:15Speaker 1: teaching him that his deafness wasn't something to be ashamed
- 18:18Speaker 1: of or something that needed fixing. It was just part
- 18:20Speaker 1: of who he was, like having brown eyes or being left-handed.
- 18:23Speaker 1: I agreed with this approach because I'd come to see
- 18:25Speaker 1: Liam's deafness not as a tragedy, but as a difference
- 18:28Speaker 1: that made him unique and special. When Liam was six,
- 18:31Speaker 1: something happened at school that made me realize how much
- 18:33Speaker 1: he'd grown. A hearing kid in his neighborhood made fun
- 18:36Speaker 1: of the way Liam moved his hands, calling it weird
- 18:38Speaker 1: flapping and saying he looked stupid. Liam came home upset,
- 18:42Speaker 1: signing angrily about the encounter. I expected him to be
- 18:45Speaker 1: hurt or embarrassed, but instead, he was mostly frustrated that
- 18:48Speaker 1: the other kid was ignorant. He doesn't know sign language
- 18:51Speaker 1: is real language, Liam signed. He thinks only voice talking counts.
- 18:55Speaker 1: That's wrong. I was impressed by his confidence. and his
- 18:57Speaker 1: understanding that the problem was the other kid's ignorance rather
- 19:00Speaker 1: than his own deafness. We talked about how to handle
- 19:03Speaker 1: situations like that, role-playing different responses. I taught him some comebacks,
- 19:07Speaker 1: like signing. I can speak two languages, how many can
- 19:10Speaker 1: you speak? Mom wasn't sure about encouraging confrontation, but Dad
- 19:13Speaker 1: said it was important for Liam to learn to stand
- 19:15Speaker 1: up for himself. The next time someone made fun of
- 19:17Speaker 1: his signing, Liam apparently handled it so well that the
- 19:20Speaker 1: kid apologized and asked to learn some signs. Liam came
- 19:23Speaker 1: home beaming, proud that he'd educated someone instead of just
- 19:26Speaker 1: feeling bad about himself. That confidence and self-advocacy was something
- 19:30Speaker 1: I greatly admired about my little brother. He never saw
- 19:32Speaker 1: himself as less than or broken. He knew he was different,
- 19:35Speaker 1: but never let that difference define his worth. Our bedtime
- 19:38Speaker 1: reading tradition continued through Liam's elementary school years, evolving as
- 19:41Speaker 1: he got older and could read more independently. By second grade,
- 19:44Speaker 1: he was reading chapter books on his own, but he
- 19:46Speaker 1: still wanted me to read to him at night. We'd
- 19:48Speaker 1: take turns now, with him reading a page in sign
- 19:51Speaker 1: language and me reading the next page aloud while signing it.
- 19:54Speaker 1: Sometimes we'd watch movies together with captions, pausing to discuss
- 19:57Speaker 1: the plot or predict what would happen next. Other times
- 19:59Speaker 1: we'd just hang out in comfortable silence, which I'd learned
- 20:02Speaker 1: was its own form of communication. I'd gone from being
- 20:04Speaker 1: terrified of silence to appreciating it as a space where
- 20:07Speaker 1: Liam and I could just exist together and without pressure
- 20:09Speaker 1: to perform or entertain. The silence wasn't empty or awkward.
- 20:13Speaker 1: It was full of presence and understanding. When I started
- 20:15Speaker 1: high school, my schedule got busier with homework and extracurricular activities.
- 20:19Speaker 1: I worried about having less time for Liam, but he
- 20:21Speaker 1: was understanding about it. We adjusted our routine to fit
- 20:23Speaker 1: my schedule, sometimes reading earlier in the evening or doing
- 20:26Speaker 1: shorter sessions on particularly busy nights. The important thing was
- 20:29Speaker 1: maintaining the connection, not the exact timing or duration. Liam
- 20:32Speaker 1: started having friends sleep over, and I was surprised when
- 20:35Speaker 1: he asked if I'd read to all of them before bed.
- 20:37Speaker 1: I felt awkward at first. signing stories to a group
- 20:39Speaker 1: of deaf eight-year-olds who probably thought I was old and boring,
- 20:42Speaker 1: but they loved it, laughing at my dramatic expressions and
- 20:45Speaker 1: asking questions about the stories. One of Liam's friends, a
- 20:48Speaker 1: girl named Sophie, told him I was the coolest big
- 20:51Speaker 1: brother ever because I could sign so well. Liam beamed
- 20:54Speaker 1: with pride and signed, I taught him everything. It wasn't
- 20:56Speaker 1: exactly true since I'd learned from classes, and books too,
- 21:00Speaker 1: but I let him have that moment. To him, we'd
- 21:02Speaker 1: learned sign language together, teaching each other in the process.
- 21:05Speaker 1: That was more accurate than saying either of us had
- 21:07Speaker 1: taught the other. We'd been partners in this journey from
- 21:10Speaker 1: the start. High school brought new challenges as I dealt
- 21:12Speaker 1: with typical teenager stuff like dating and friend drama and
- 21:15Speaker 1: college applications. Sometimes I got frustrated with the extra responsibilities
- 21:19Speaker 1: of having a deaf brother, like having to interpret for
- 21:21Speaker 1: him at family gatherings or explain things that hearing people
- 21:24Speaker 1: took for granted. There were moments when I resented how
- 21:26Speaker 1: much of my childhood had been shaped by Liam's needs,
- 21:29Speaker 1: how our family's decisions always had to factor in his deafness.
- 21:32Speaker 1: But those moments passed quickly, usually followed by guilt for
- 21:35Speaker 1: even thinking such things. Liam didn't ask to be deaf.
- 21:38Speaker 1: and he handled his challenges with more grace than I
- 21:40Speaker 1: handled my much smaller problems. Watching him navigate a world
- 21:43Speaker 1: not built for him with such confidence and joy put
- 21:45Speaker 1: my own struggles in perspective. When I was applying to colleges,
- 21:48Speaker 1: Liam got upset because he didn't want me to leave.
- 21:50Speaker 1: He was ten by then, and old enough to understand
- 21:53Speaker 1: that college meant I'd be living somewhere else, coming home
- 21:55Speaker 1: only for breaks and holidays. Who will read to me?
- 21:58Speaker 1: He signed, his eyes welling up with tears. I pulled
- 22:01Speaker 1: him into a hug and promised that we'd video chat
- 22:03Speaker 1: every night so I could still read to him, even
- 22:05Speaker 1: if I couldn't be there physically. And you're such a
- 22:07Speaker 1: good reader now, I signed. You can read yourself to
- 22:10Speaker 1: sleep on the nights when I'm too busy, but I'll
- 22:12Speaker 1: try to never be too busy for our stories. That
- 22:14Speaker 1: seemed to comfort him somewhat, though he was still sad
- 22:16Speaker 1: about me leaving. The night before I left for college
- 22:19Speaker 1: was hard for both of us. We read three books
- 22:21Speaker 1: instead of our usual one, and Liam kept hugging me
- 22:23Speaker 1: between stories. When it was finally time for bed, he signed,
- 22:26Speaker 1: Promise you won't forget me. I signed back firmly. Impossible.
- 22:30Speaker 1: You're my best friend. Nothing will change that. I moved
- 22:32Speaker 1: into my dorm in August and kept my promise about
- 22:35Speaker 1: video chatting. Most nights around 9 o'clock, Liam would call
- 22:38Speaker 1: me on FaceTime and we'd read together. He'd show me
- 22:40Speaker 1: the book he'd chosen, and I'd read it aloud while signing,
- 22:43Speaker 1: just like always. Sometimes my roommate would walk in and
- 22:45Speaker 1: see me signing to my phone, and I'd have to
- 22:47Speaker 1: explain about Liam. Most people thought it was sweet, though
- 22:50Speaker 1: a few seemed confused about why I'd bother reading to
- 22:52Speaker 1: a deaf kid. Those people didn't get it, and I
- 22:54Speaker 1: didn't waste energy trying to explain something they couldn't understand.
- 22:57Speaker 1: The video chat reading sessions worked well most of the time,
- 23:00Speaker 1: but there were nights when I was too busy or
- 23:01Speaker 1: too tired and would cancel on Liam. He'd be understanding
- 23:04Speaker 1: about it, but I could see the disappointment on his
- 23:06Speaker 1: face through the screen. I started feeling guilty about those
- 23:08Speaker 1: missed nights, realizing how much Liam still depended on our
- 23:11Speaker 1: routine for comfort and connection. During winter break, when I
- 23:14Speaker 1: came home, Liam barely left my side. He wanted to
- 23:18Speaker 1: do everything together, like he was trying to store up
- 23:20Speaker 1: time with me before I left again. We read together
- 23:23Speaker 1: every single night of that break, sometimes multiple times a day.
- 23:26Speaker 1: When it was time to go back to school, Liam
- 23:28Speaker 1: cried harder than he had when I first left, and
- 23:30Speaker 1: Mom told me later that he'd been having nightmares about
- 23:33Speaker 1: me not coming back. I felt terrible, and promised to
- 23:35Speaker 1: be better about keeping our reading schedule consistent. Spring semester
- 23:39Speaker 1: I was much more reliable about our nightly video chats,
- 23:41Speaker 1: turning down social invitations if they conflicted with Liam's reading time.
- 23:45Speaker 1: My friends started joking that I had a 9 o'clock
- 23:47Speaker 1: curfew because of my bedtime story date, but I didn't
- 23:49Speaker 1: care what they thought. This time with Liam was sacred,
- 23:52Speaker 1: a thread connecting us despite the physical distance. I noticed
- 23:55Speaker 1: that our conversations during these video chats went beyond just
- 23:58Speaker 1: reading now. We'd talk about our days, our problems, our dreams.
- 24:02Speaker 1: Liam would tell me about school drama and friend issues.
- 24:04Speaker 1: asking for advice about how to handle situations. I'd tell
- 24:07Speaker 1: him about my classes and college life, translating my experiences
- 24:10Speaker 1: into signs he could understand. One night during finals week
- 24:13Speaker 1: of my freshman year, I was particularly stressed about an
- 24:15Speaker 1: exam and almost cancelled our reading session. But when Liam
- 24:18Speaker 1: called right on schedule, I decided to answer and just
- 24:21Speaker 1: explain that I needed to study. Before I could sign anything,
- 24:23Speaker 1: Liam held up a book and signed, I'm going to
- 24:25Speaker 1: read to you tonight. You need a break. He'd chosen
- 24:28Speaker 1: a simple picture book that he could read easily, and
- 24:30Speaker 1: he signed the entire story to me with dramatic expressions
- 24:33Speaker 1: and character voices. It was such a role reversal from
- 24:35Speaker 1: those early nights when I'd read to him as a baby,
- 24:38Speaker 1: and I found myself relaxing despite my stress. When he finished,
- 24:41Speaker 1: he signed, Feel better? I nodded and signed back, Much better.
- 24:44Speaker 1: Thank you for taking care of me. He grinned and signed,
- 24:47Speaker 1: That's what brothers do. That moment crystallized something I'd been
- 24:50Speaker 1: slowly realizing. Our relationship had evolved from me being the
- 24:53Speaker 1: caretaker to us being true equals who supported each other.
- 24:56Speaker 1: The bedtime stories had started as something I did for Liam,
- 24:59Speaker 1: but they'd become something we did together. A space where
- 25:01Speaker 1: we could both be vulnerable and comforted. Summer after freshman year,
- 25:05Speaker 1: I got an internship in the city near my college,
- 25:07Speaker 1: which meant I wouldn't be coming home much. Liam was
- 25:10Speaker 1: devastated when he found out, and we had our first
- 25:12Speaker 1: real fight about it. He accused me of abandoning him
- 25:15Speaker 1: and not caring about our time together anymore. I tried
- 25:17Speaker 1: to explain that the internship was important for my career,
- 25:20Speaker 1: but he didn't want to hear it. We didn't talk
- 25:22Speaker 1: for three days, which was the longest we'd ever gone
- 25:25Speaker 1: without communicating. Finally, Mom intervened and made us sit down together.
- 25:29Speaker 1: Through tears and angry signs, we worked through the hurt feelings.
- 25:32Speaker 1: Liam admitted he was scared that I'd found new priorities
- 25:35Speaker 1: and would gradually phase him out of my life. I
- 25:37Speaker 1: admitted that I'd been so focused on building my future
- 25:40Speaker 1: that I hadn't considered how my choices affected him. We
- 25:43Speaker 1: came up with a compromise. I'd come home at least
- 25:45Speaker 1: one weekend a month, and we'd maintain our nightly video
- 25:48Speaker 1: chat reading sessions no matter what. Additionally, I'd send him
- 25:51Speaker 1: postcards and letters throughout the summer, giving him something physical
- 25:54Speaker 1: to hold onto when he missed me. That summer was
- 25:56Speaker 1: hard being away from home and from Liam, but the
- 25:59Speaker 1: daily video chats helped. We'd branched out from just children's
- 26:01Speaker 1: books to reading young adult novels together, alternating chapters. Liam
- 26:05Speaker 1: was twelve now, and his reading level was impressive. His
- 26:08Speaker 1: teachers said he was reading at a high school level,
- 26:10Speaker 1: partly because of all the practice we'd given him over
- 26:12Speaker 1: the years. I felt proud knowing that our nightly ritual
- 26:15Speaker 1: had contributed to his academic success. The postcards I sent
- 26:18Speaker 1: became a thing, too. I'd find ones with interesting pictures
- 26:20Speaker 1: and write about what I was doing, describing the city
- 26:23Speaker 1: and my internship in detail. Liam kept them all in
- 26:25Speaker 1: a special box, and when I came home for visits,
- 26:28Speaker 1: he'd show me how he'd organized them chronologically. creating a
- 26:30Speaker 1: visual timeline of my summer. When Liam started middle school,
- 26:34Speaker 1: things got complicated for him socially. He was mainstreamed into
- 26:36Speaker 1: a hearing school for the first time, with an interpreter
- 26:39Speaker 1: in his classes. While this gave him more opportunities academically,
- 26:42Speaker 1: it also meant being one of the only deaf kids
- 26:44Speaker 1: in a building full of hearing students. He struggled with
- 26:46Speaker 1: feeling isolated and different, and our nightly reading sessions became
- 26:49Speaker 1: less about the actual books and more about him processing
- 26:52Speaker 1: his experiences. He'd sign about kids who stared at him
- 26:55Speaker 1: or teachers who forgot to face him when talking. He'd
- 26:57Speaker 1: express frustration about always being left out of casual conversations
- 27:01Speaker 1: because his interpreter couldn't be everywhere at once. I listened
- 27:04Speaker 1: and offered what support I could, but I knew my
- 27:06Speaker 1: advice was limited since I couldn't truly understand what he
- 27:08Speaker 1: was going through. One night he signed something that broke
- 27:11Speaker 1: my heart. Sometimes I wish I could hear so I
- 27:13Speaker 1: could be normal like everyone else. I didn't know how
- 27:15Speaker 1: to respond to that. Part of me wanted to tell
- 27:17Speaker 1: him that hearing wasn't better, just different, and that his
- 27:20Speaker 1: deafness made him special. But I also knew that platitudes
- 27:24Speaker 1: wouldn't help. Instead, I signed, I can't imagine how hard
- 27:27Speaker 1: that must be, but I want you to know that
- 27:29Speaker 1: you're perfect, exactly as you are, and anyone who makes
- 27:32Speaker 1: you feel otherwise is wrong. You're not less than anyone else.
- 27:35Speaker 1: You're just navigating a world that wasn't built for you,
- 27:38Speaker 1: and that takes incredible strength. He cried, and I wished
- 27:41Speaker 1: I could reach through the screen to hug him. The
- 27:43Speaker 1: next day, I called Mom and told her about the conversation.
- 27:46Speaker 1: She'd noticed Liam's struggles too, and had already been looking
- 27:49Speaker 1: into support groups for deaf teens. She found a program
- 27:51Speaker 1: that met monthly, where deaf students from different schools could
- 27:55Speaker 1: connect and socialize. Liam was hesitant at first, but after
- 27:58Speaker 1: attending one meeting, he came home energized and happy. He'd
- 28:01Speaker 1: met other kids who understood exactly what he was going through,
- 28:04Speaker 1: and they'd exchanged numbers to text throughout the month. Having
- 28:07Speaker 1: those friendships made a huge difference in Liam's confidence and happiness.
- 28:10Speaker 1: He stopped talking about wishing he could hear, and instead
- 28:13Speaker 1: started advocating for better accommodations at his school. He educated
- 28:16Speaker 1: his classmates about deaf culture and taught several of them
- 28:18Speaker 1: basic signs. By the end of seventh grade, he had
- 28:21Speaker 1: a solid friend group that included both deaf and hearing
- 28:23Speaker 1: kids who'd made the effort to learn ASL. I was
- 28:26Speaker 1: so proud of how he'd turned his struggle into advocacy
- 28:28Speaker 1: and education. During winter break of my junior year, something
- 28:31Speaker 1: shifted in our reading routine. Liam had been reading a
- 28:34Speaker 1: book about a deaf teenager who got cochlear implants, and
- 28:36Speaker 1: it brought up the conversation that mom and dad had
- 28:38Speaker 1: been waiting for. Liam asked me what I thought about
- 28:41Speaker 1: him getting implants, if I thought it would change who
- 28:43Speaker 1: he was or make him less deaf. I chose my
- 28:45Speaker 1: words carefully, signing, I think it's completely your choice. Cochlear
- 28:49Speaker 1: implants might give you access to sound, but they won't
- 28:52Speaker 1: make you hearing. You'll always be deaf, and that's not bad.
- 28:55Speaker 1: it's just who you are. If you want to try
- 28:57Speaker 1: implants because you're curious about sound or think they'll help
- 28:59Speaker 1: you navigate the hearing world, that's valid. If you don't
- 29:02Speaker 1: want them because you're happy with who you are and
- 29:04Speaker 1: don't need to change, that's also valid. Liam thought about
- 29:07Speaker 1: this for a long time before signing. What if I
- 29:09Speaker 1: get them and they change our reading time? What if
- 29:11Speaker 1: I stop needing you? That question revealed what this was
- 29:14Speaker 1: really about. He wasn't scared of the surgery or uncertain
- 29:17Speaker 1: about wanting to hear. He was scared that cochlear implants
- 29:20Speaker 1: would somehow damage our bond. that our special connection built
- 29:23Speaker 1: on sign language and visual communication would become unnecessary if
- 29:26Speaker 1: he could hear. I signed firmly. Nothing could ever change
- 29:30Speaker 1: what we have. Even if you got implants tomorrow and
- 29:32Speaker 1: could suddenly hear perfectly, I'd still sign with you. I'd
- 29:35Speaker 1: still read to you every night. The implants wouldn't erase
- 29:37Speaker 1: 14 years of us being brothers and best friends. They'd
- 29:40Speaker 1: just be another tool you could use, like wearing glasses
- 29:42Speaker 1: to see better. That seemed to ease his worries, and
- 29:45Speaker 1: over the next few months, he worked with mom and
- 29:47Speaker 1: dad to research the surgery and recovery process. They met
- 29:50Speaker 1: with audiologists and surgeons, talked to other families who'd chosen implants,
- 29:54Speaker 1: and learned about what to expect. In the end, Liam
- 29:56Speaker 1: decided to get the surgery done during the summer before
- 29:59Speaker 1: eighth grade, giving him time to heal and adjust before
- 30:01Speaker 1: school started again. I took time off from my summer
- 30:04Speaker 1: internship to be home for the surgery, wanting to support
- 30:06Speaker 1: him through the process. The day of the procedure, our
- 30:08Speaker 1: whole family sat in the hospital waiting room for hours
- 30:11Speaker 1: while surgeons implanted the device under Liam's skin. When they
- 30:15Speaker 1: finally let us see him in recovery, he looked so
- 30:17Speaker 1: small and vulnerable with bandages wrapped around his head. He
- 30:20Speaker 1: was groggy from anesthesia, but signed weekly. Did it work?
- 30:24Speaker 1: I had to explain that the implants wouldn't be activated
- 30:26Speaker 1: for several weeks, giving his surgical site time to heal.
- 30:29Speaker 1: He'd still be deaf for now, living in his familiar
- 30:32Speaker 1: silent world for just a bit longer. The recovery process
- 30:35Speaker 1: was harder than any of us expected. Liam had pain
- 30:37Speaker 1: and dizziness, and he couldn't do most of his normal activities.
- 30:40Speaker 1: He got frustrated and bored, especially since he couldn't even
- 30:43Speaker 1: read comfortably with the headaches he was experiencing. I stayed
- 30:46Speaker 1: with him most days, and we'd watch captioned movies or
- 30:48Speaker 1: just sit together. He couldn't handle our usual reading sessions,
- 30:52Speaker 1: so instead, I'd sign him short stories I made up,
- 30:54Speaker 1: simple tales about brave kids going on adventures. One story
- 30:57Speaker 1: became a running series about a deaf detective who solved
- 30:59Speaker 1: mysteries using his exceptional observation skills. Liam loved that character
- 31:03Speaker 1: and would sign suggestions for future cases. Slowly, he healed.
- 31:07Speaker 1: The bandages came off, revealing the external processor that would
- 31:10Speaker 1: need to be attached when the implant was activated. The
- 31:13Speaker 1: surgeon explained that activation day would be emotional and overwhelming,
- 31:16Speaker 1: that Liam shouldn't expect to immediately understand speech or music.
- 31:19Speaker 1: It would take time and therapy for his brain to
- 31:21Speaker 1: learn how to interpret the electrical signals as sound. The
- 31:23Speaker 1: day they activated the implants, I went with Liam and
- 31:25Speaker 1: Mom to the audiologist's office. Dr. Ashford, who'd diagnosed Liam
- 31:29Speaker 1: 13 years ago, was there to oversee the process. She
- 31:32Speaker 1: attached the external processor to Liam's head and explained what
- 31:35Speaker 1: would happen when she turned it on. You're going to
- 31:37Speaker 1: hear sound for the first time, she signed. It might
- 31:40Speaker 1: be strange or uncomfortable at first. If it's too much,
- 31:42Speaker 1: let me know immediately. Liam nodded, looking both excited and terrified.
- 31:47Speaker 1: I sat next to him and held his hand while Dr.
- 31:49Speaker 1: Ashford activated the processor. Liam's eyes went wide and he
- 31:52Speaker 1: grabbed my hand so tight it hurt. His face cycled
- 31:54Speaker 1: through several emotions. Surprise. Confusion. Discomfort. Wonder. Dr. Ashford was speaking,
- 32:00Speaker 1: and Liam was clearly hearing something, though it probably didn't
- 32:02Speaker 1: sound like normal speech yet. After a few minutes, she
- 32:05Speaker 1: turned it off to give him a break, and Liam
- 32:07Speaker 1: immediately started signing frantically. That was so weird. Everything was
- 32:11Speaker 1: beeps and buzzes and my own breathing was so loud,
- 32:13Speaker 1: and I could hear my heart beating and it was
- 32:14Speaker 1: too much and also amazing and I don't know what
- 32:16Speaker 1: anything was, but I heard something, and oh my god.
- 32:19Speaker 1: His signs were rapid and excited, and I found myself
- 32:22Speaker 1: crying happy tears. This was a huge moment for him,
- 32:25Speaker 1: his first experience with sound after 13 years of silence.
- 32:28Speaker 1: Over the next few months, Liam worked with a speech
- 32:30Speaker 1: therapist and audiologist to train his brain to interpret the
- 32:33Speaker 1: implant's signals. It was frustrating for him because hearing through
- 32:37Speaker 1: an implant wasn't like natural hearing. Sounds were mechanical and
- 32:40Speaker 1: distorted at first, and he had to learn to distinguish
- 32:43Speaker 1: between different noises and voices. But gradually, things started clicking.
- 32:47Speaker 1: He could identify common sounds like doorbells and car horns.
- 32:50Speaker 1: He could tell when someone was speaking, Though understanding the
- 32:53Speaker 1: words was still difficult, his speech therapist said he was
- 32:55Speaker 1: progressing remarkably well, probably because his strong language foundation in
- 32:59Speaker 1: ASL made it easier for him to connect sounds to concepts.
- 33:02Speaker 1: The first time Liam heard my voice, really heard it
- 33:04Speaker 1: and understood it as speech, was about four months post-activation.
- 33:08Speaker 1: We were doing our usual video chat reading session, and
- 33:10Speaker 1: I was signing while also reading aloud like I always did. Suddenly,
- 33:14Speaker 1: Liam signed, Wait, stop, say that again. I repeated the
- 33:17Speaker 1: sentence I'd just read, and his face lit up with
- 33:20Speaker 1: the most beautiful smile I'd ever seen. I understood you.
- 33:23Speaker 1: I heard your voice and understood the words. Say my name.
- 33:25Speaker 1: Say it out loud. I spoke his name clearly, and
- 33:28Speaker 1: he started crying. That's what I sound like? That's my
- 33:31Speaker 1: name as a sound? I nodded, my own throat tight
- 33:33Speaker 1: with emotion. Say you love me, he signed. Out loud,
- 33:36Speaker 1: so I can hear it. I spoke the words clearly.
- 33:39Speaker 1: I love you, Liam. He signed back, I love you too,
- 33:42Speaker 1: and then tried to say it out loud with his voice.
- 33:44Speaker 1: His speech was rough and unclear, but I understood it perfectly.
- 33:47Speaker 1: We spent the rest of that night with me saying
- 33:49Speaker 1: things out loud while he practiced listening. both of us
- 33:51Speaker 1: amazed by this new dimension to our communication. But here's
- 33:54Speaker 1: the thing. Even though Liam could hear now with the implants,
- 33:57Speaker 1: we never stopped signing. He still preferred ASL for deep
- 34:00Speaker 1: conversations and emotional topics, saying that sign language felt more
- 34:03Speaker 1: natural and expressive to him. The implants were a tool
- 34:06Speaker 1: he used in hearing environments, but at home with family,
- 34:09Speaker 1: he often took the processors off and existed in comfortable silence.
- 34:12Speaker 1: Our reading routine continued mostly unchanged. I'd sign and speak simultaneously,
- 34:17Speaker 1: and he'd listen with the processors on but still watch
- 34:19Speaker 1: my face and hands the way he always had. The
- 34:21Speaker 1: core of our bond had never been about sound, anyway.
- 34:23Speaker 1: It was about presence and connection and shared ritual. When
- 34:27Speaker 1: I graduated college, Liam gave a speech at my graduation party.
- 34:30Speaker 1: He used his voice, speaking slowly and carefully so everyone
- 34:32Speaker 1: could understand him. My brother has been reading to me
- 34:35Speaker 1: every night since I was a baby, he said, his
- 34:37Speaker 1: words clear enough despite the mechanical quality of deaf speech.
- 34:40Speaker 1: He didn't know I couldn't hear him for the first
- 34:42Speaker 1: two years, but when he found out he didn't stop.
- 34:44Speaker 1: He learned my language so we could keep telling stories together.
- 34:47Speaker 1: He taught me that love isn't about words or sounds.
- 34:49Speaker 1: It's about showing up every day and being present. He
- 34:51Speaker 1: showed up for me every single day for 16 years,
- 34:54Speaker 1: and I'm the person I am today because of that.
- 34:56Speaker 1: There wasn't a dry eye in the room when he finished.
- 34:58Speaker 1: And when I hugged him, he signed against my back.
- 35:01Speaker 1: Thank you for never giving up on our stories. I
- 35:03Speaker 1: signed back. Thank you for teaching me what communication really means.
- 35:07Speaker 1: Now I'm 24, and Liam is 16, and we still
- 35:10Speaker 1: have our reading time. He's in high school now, navigating
- 35:13Speaker 1: teenage drama and thinking about colleges. Sometimes weeks pass where
- 35:16Speaker 1: we're both too busy and only manage one or two
- 35:18Speaker 1: video chat sessions. but we always come back to it,
- 35:21Speaker 1: this ritual that's been the foundation of our relationship. Recently,
- 35:24Speaker 1: Liam told me he wants to become a teacher for
- 35:26Speaker 1: deaf children. He wants to help other deaf kids learn
- 35:28Speaker 1: to love reading and learning the way our nightly stories
- 35:31Speaker 1: taught him. I couldn't be more proud. Thanks for hanging
- 35:33Speaker 1: out till the end. If you want more stories, make
- 35:36Speaker 1: sure to subscribe and leave your take below.