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The Juggle is Real - Navigating Parenthood and Rare Disease Leadership with Kim Nye and Mike Graglia

ONCE UPON A GENE - EPISODE 211

The Juggle is Real - Navigating Parenthood and Rare Disease Leadership with Kim Nye and Mike Graglia

Rare disease parents and front line advocates, Kim Nye and Mike Graglia, join this episode for a discussion about the unseen struggles of rare disease parenthood and the delicate balance of operating an advocacy organization.

EPISODE HIGHLIGHTS

Kim, can you share your perspective on how much work it is to lead an advocacy organization and the impact it has on balancing your role as a parent?

At first, it seemed like something to do on the side, not a job or…

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