Latest / Dataministeriet - A data protection and privacy podcast / 83. Vulnerability, sensitive data, and ADM. II Guest: Gianclaudio Malgieri (ENG)
Transcript
- 0:00Hello and welcome to another episode of Dota Ministeriat with
- 0:05me, your host Philip Jonson. And today I'm really happy to
- 0:10have another guest, Jean Claudio Maglieri.
- 0:15Hello and welcome. Hi Philip, Thank you for having
- 0:18me. And you are associate professor
- 0:20of Low and technology at Lighting University.
- 0:24You're also managing editor of Computer Low and Security Review
- 0:28and you coordinate VULNERA, the International Observatory of
- 0:33Vulnerability in data protection.
- 0:35You published huge number of articles.
- 0:39It's more than 60 now and not the least monograph
- 0:43vulnerability and data protection law.
- 0:46Yes, correct. So it's not an overstatement to
- 0:51say you have very deep knowledge in some of the most important
- 0:56topics in data protection, if you ask me.
- 1:00Hopefully so. Normally I will always start
- 1:03with. One question is in how did you
- 1:05even get into this area of Lua? That's, that's not a simple
- 1:10question actually, because I've, I've been wondering myself and I
- 1:14think there are two answers. One is the more scientific
- 1:18answer and one is the more personal answer.
- 1:21We start with the personal answer, which is also a way for
- 1:24me to open more my, my personal aspects.
- 1:27That is always a good way to start.
- 1:29So vulnerability and data protection are topics very dear
- 1:34to me because I've I'm usually an outlier.
- 1:37I'm usually a minority in several contexts where I've
- 1:41been, so I am an expert. I work as a Mediterranean
- 1:47person, I work in the Netherlands, and as a queer
- 1:52person. I was a minority in my village
- 1:55when I was born, and then also in general in Italy.
- 1:59So I would say that being a group, being part of groups at
- 2:04higher risk of marginalization was always interesting for me to
- 2:07explore what vulnerability of marginalization means.
- 2:10But talking about the more scientific reason why data
- 2:13protection and why vulnerability, I think the
- 2:16reason is I was following more private law and consumer
- 2:21protection, but in years where the world's big data or, you
- 2:27know, the data protection directive were really taking
- 2:30flight. And so it was really a great
- 2:33momentum for me to look at this. And I think all these aspects
- 2:40pushed me more and more towards the data economy, the data low.
- 2:45And then the GDPR came and it was a big tornado for research.
- 2:50And once you're in, you're in. When did you decide, instead of
- 2:54like being a practitioner, to be an academic?
- 2:58Oh yeah, that's also a good point.
- 3:00I think I've always felt in me the need for being an academic.
- 3:04So for me the most beautiful thing is to think and to write
- 3:09and to read. So when I pose and I, when I,
- 3:13when I cannot sleep or when I walk, ideas come to my mind and
- 3:18I think I, I, I feel the, the, the urge to write or to engage
- 3:22with literature and to read. So, and also because academia
- 3:26gives the possibility to work on, on your own intellectual
- 3:30profile and not just to work for someone else.
- 3:34Then of course there are pros and cons, right?
- 3:36If you work for a company, then when you are on holiday, you're
- 3:40on holiday. When you work for yourself and
- 3:42for your intellectual profile, you're always thinking, always
- 3:46mumbling. But I think that's part of the
- 3:49trade off and I accepted it. Yeah, and I'm a little bit like
- 3:53you because I can't stop my brain working even though I work
- 3:56in a private corporation. My brain is working during
- 3:59vacations and and nights and evenings.
- 4:02But I try not to bore my family too much.
- 4:05Sure, same. But getting into this
- 4:07vulnerability concept, because you've wrote, as I said, you've
- 4:11written a book and you've written an extensive number of
- 4:14papers on the on the subjects. And when I started reading what
- 4:20you have written, maybe I was a little bit nerved like it's,
- 4:23it's really so complicated. And then I eventually ended up,
- 4:27yeah, it is kind of complicated. So what what were you were like
- 4:31you you mentioned how you why you got into this area, specific
- 4:35area, but what did you find? Yeah, well, I keep finding
- 4:40stuff. And when I published my book, I
- 4:42think the best ideas came after. It's always like that, right?
- 4:48You write something and then more ideas come.
- 4:50Also because when you present a book, you have the opportunity
- 4:54to watch your work from a more distant position, from a more
- 4:57external position. So in a nutshell, vulnerability
- 5:02in data protection law is a topic that is extremely fruitful
- 5:07also because it's ambiguous. We use in the law the concept of
- 5:11vulnerability. Usually we have been using
- 5:14vulnerability under two different perspectives.
- 5:18The first was consumer protection law.
- 5:20So we have had the concept of vulnerable consumers or
- 5:24vulnerability in consumer protection law for many years.
- 5:29The I'm for Commercial Practices Directive of 2005, but also the
- 5:32Court of Justice had been already defining vulnerability
- 5:35before. Usually in that case,
- 5:38vulnerability really refers to mental capacity, mental
- 5:40competence, age, mental disability, credulity.
- 5:47And it's a very situated aspect now liberal approach to
- 5:51vulnerability, vulnerability as skills, lack of skills.
- 5:55Then you have the other great thread on vulnerability, which
- 6:00is vulnerability to marginalization, vulnerability,
- 6:04non discrimination law, so historical vulnerability.
- 6:08Then this two thread have been quite separated during the last
- 6:13decades. But then the technological
- 6:16revolution, the data economy came and they blurred the
- 6:20borderline between these two. Why?
- 6:23Because online we are all customers, consumers, so with
- 6:27vulnerability to our mental skills to give consent and so
- 6:30on. But also we are extremely
- 6:33exposed as citizens and extremely exposed because
- 6:38sometimes minorities, marginal oppressed groups.
- 6:43Then combining these two things brought to the topic of
- 6:48vulnerability and data protection law.
- 6:49If you ask around who is a vulnerable data subject, usually
- 6:53some people will tell you children or the elderly or
- 6:58people with lack of capacity to get consent.
- 7:01But other people will tell you, well, vulnerable data subjects
- 7:05are racial minorities because there are at high risk
- 7:08discrimination. Then there there should have
- 7:10been something to connect these two things, a more general
- 7:14abstract theory. And that was my interest to find
- 7:17for the bigger picture on why the mentally incapable and the
- 7:22racialized or marginalized group, what they had in common
- 7:27and what they had in common, in a nutshell, was two things,
- 7:32dependence and different levels of resilience.
- 7:36So dependence and resilience are really the two elements of
- 7:39vulnerability. Dependence is is a human thing.
- 7:42When we were born, we were dependent on our guardians.
- 7:48We were dependent on the hospital we were dependent on.
- 7:51We cannot, we are not made to live in a cave.
- 7:53Some of us are, but in general human beings are dependent on
- 7:57others, and this dependency can reach levels of great asymmetry
- 8:02sometimes when when for the exercise of our fundamental
- 8:06rights and so for the satisfaction of our fundamental
- 8:10needs, we rely on one or two or very few entities.
- 8:14In that case it's a very asymmetrical unilateral
- 8:18dependency. I depend on, I don't know, the
- 8:21hospital for my health. I depend on the national
- 8:24healthcare Service because I don't have any insurance.
- 8:26I depend on my employer here in a reality where there is very
- 8:30little very closed job market. So this dependency is extremely
- 8:36high in the data economy because we have today, let's say the the
- 8:41five biggest economy and the five biggest companies in the
- 8:44world, four of them have to do with data and have to do with
- 8:48digital platforms and the 50s media, so also producing chips
- 8:52for the AI. So in a, in a way, we, there are
- 8:55this great monopolies of data and that's how fundamental rise
- 8:59today. If I want to be in touch with my
- 9:00family, I use apps of Meta. If I want to be, if I want to
- 9:05express my ideas, if I want to professionally express my idea,
- 9:08I use an app by Microsoft, which is LinkedIn and so on.
- 9:12So this great dependency is 1 great element.
- 9:15The second element is resilience.
- 9:17Resilience is our capacity to react after harm to our
- 9:21fundamental right happens. And resilience is also very
- 9:26personal and it changes. And it's not just a personal
- 9:28element, it's also structural. If the society is ready or is
- 9:34well equipped to protect after a harm occurs or to make systems
- 9:39accountable after problems happen, then the system makes me
- 9:43more resilient and not just my personal resilience is at is at
- 9:47issue. So in a nutshell, I would say we
- 9:51generally consider vulnerability as something belonging to
- 9:54personal characteristics. So for example, I'm vulnerable
- 9:58because of my age, I'm vulnerable because of my sexual
- 10:00orientation. And this is the traditional
- 10:02approach that labels people. But if we broaden the picture,
- 10:08in addition to that, in addition to this element of personal
- 10:11characteristics, dependence and vulnerability are made of
- 10:15another aspect, which is the relationality.
- 10:17So I'm not vulnerable to I'm not vulnerable in general, but I'm
- 10:21vulnerable to someone, I'm vulnerable to my employer, to
- 10:25the state, to the border officer and so and so on.
- 10:28And 3rd, an important aspect that lawyers should never
- 10:32forget, we are embedded in a system socio economic,
- 10:36political, historical system. So the level of oppression in
- 10:39society, the level of marginalization, the openness of
- 10:42the market, the level of competition or monopolies, the
- 10:45level of technological advancement, the level of civil
- 10:48rights movements, and so on define the encounter between my
- 10:52personal characteristics and the power of the counterparts.
- 10:56And in data protection, this is this is very true.
- 10:59I will just conclude with two representations in data
- 11:02protection. One is vulnerability during data
- 11:06processing. So to whatever refers to data
- 11:09processing, for example, I'm vulnerable to consent or to
- 11:12understand the policies if I am in a certain situation of
- 11:16dependency. For example, can I really say no
- 11:20to cookie policies in an airport of a foreign land where I'm just
- 11:23landed, that I have no network and I want to communicate with
- 11:26my family. So in that case, I will give a
- 11:29very fake consent and that's a form of dependence and
- 11:32vulnerability during the data processing.
- 11:35And there are other examples like reading long privacy notice
- 11:38or not understanding how to exercise my rights and so on.
- 11:43The second data processing vulnerability is vulnerability
- 11:46to the effects of data processing.
- 11:48So for for example, I'm vulnerable because to to to
- 11:51discrimination after they process data bounce my sexual
- 11:54orientation by certain data controller in a certain
- 11:57political economic context. So in that case it's
- 12:01vulnerability as a consequence of data processing and not just
- 12:04during the data processing. So how would you if you were a
- 12:08controller like about? Do you have to identify the
- 12:12specific individuals or groups that you are processing?
- 12:17That's a very good question, whether we should really or not
- 12:22profile people more as vulnerable.
- 12:26It's a, it's a big of a, it's a bit of a paradox of this, of
- 12:29this the field because we would say, OK, I want to protect you,
- 12:32but for privacy, data protection, I should not
- 12:35understand if you're so vulnerable.
- 12:38Well, I would say that in general, there's a layer where
- 12:42everybody is vulnerable with when we, when we deal with
- 12:46certain aspects of technologies and certain aspects of society.
- 12:50So we can simply, we can clearly say that when we deal with big
- 12:55social networks and social media, there's a level of
- 12:58general vulnerability that should impose restrictions of
- 13:02certain practices. For example, the practices that
- 13:06the European Commission just found as problematic or
- 13:10addictive driven, like addictive for example, infamous scrolling
- 13:14or autoplay push notification, etcetera.
- 13:18That's just one aspect, but your question was more if we should
- 13:21identify specific groups. Then of course, it's not easy
- 13:26because it would require a higher processing of a sensitive
- 13:30data, special categories of data to identify why and whether a
- 13:33certain person is in a situation of higher dependence and
- 13:36vulnerability. I would say that there are
- 13:39several options, several possibilities to do that.
- 13:42First of all, impact assessments should be made participatory.
- 13:46So when we do a data protection impact assessment, we should
- 13:49understand who is at higher risk, who is more vulnerable.
- 13:53And we don't need to identify single individuals, but we can
- 13:55identify clusters based on participation of a
- 13:58representative of different groups, representative of
- 14:01children who are using my services, representatives of
- 14:05people with disability. And then we have in mind that we
- 14:08should always include more people at the table at the next
- 14:11round. So the question, like the
- 14:13question on the wall should be always who is missing at the
- 14:16table. And then we keep adding people.
- 14:18This is 1 approach to make sure that different forms of
- 14:21vulnerability can be protected, but to avoid that every data
- 14:26controller has this big passport too for analysing
- 14:31vulnerabilities that might also be exploited.
- 14:35I think there are also other ways, for example we could have
- 14:37third parties that can help to identify clusters of dependency.
- 14:41We have already third parties for social media, for example,
- 14:44the trusted flaggers for misinformation and
- 14:47disinformation and so on. Why couldn't we have some
- 14:50external auditors that might help to analyse who are people
- 14:55in higher risks of vulnerability in certain services and then
- 14:58propose a certain solutions for these people?
- 15:01For example, you don't ask for consent to these people because
- 15:04their consent will not be free. And so you have for example to
- 15:08rely on legitimate interest, which means to have higher
- 15:10safeguards in the balancing. Or you make some rights
- 15:14extremely more accessible, like right to be forgotten.
- 15:17You keep asking these people, you wanted your data are
- 15:19deleted, you wanted the data are deleted.
- 15:21So to make things easier or last but not, we could focus also on
- 15:26rebalancing the power of people. For example, with data
- 15:30representatives like data unions, we have something
- 15:34already in the law, but it's not really well connected.
- 15:37So we have the figure of data representatives in the GDPR.
- 15:41We have the figure of data cooperatives in the Data
- 15:44Governance Act. And for me it's extremely
- 15:48interesting because it's like labour unions for data subjects.
- 15:52So to to have also a bottom up protection and a rebalancing of
- 15:57power imbalance from let's say union perspective.
- 16:00There's not much at the moment. You have just some NGOs or, you
- 16:03know, data protection advocates, but I'm sure we can work on
- 16:08that. So I'm thinking about that with
- 16:10the dependencies is 1 aspect of being vulnerable.
- 16:15Then you're obviously, as you said, you're, you're dependent
- 16:17on the government on the on the big side, but you could narrow
- 16:21it down. You, you're also dependent on
- 16:23basically all services. If, if you don't live in a city,
- 16:27you're dependent on the grocery store because there's only one
- 16:30and maybe they have video surveillance.
- 16:32But are you vulnerable in all of the situations even you don't
- 16:36have this threats, young, old and so on?
- 16:40Yeah, dependency is really contextual.
- 16:44So the examples that you made are very clear examples of how
- 16:48contextual things are. A person with limited
- 16:51infrastructure, even though it's not a minority group, can be
- 16:56extremely dependent, but perhaps might be more resilient or
- 17:00perhaps there might be other mechanisms that help that person
- 17:03to cope with their, with her or their needs anyway.
- 17:08But what is interesting is that the personal characteristics
- 17:11matter anyway. So for example, if you are abled
- 17:15privileged person, then even in a situation of high dependency,
- 17:20perhaps there's lower risk of discrimination or lower risk of
- 17:24manipulation. It's really, it's really
- 17:26extremely contextual. The, the first thing would be
- 17:29for me to look at the bigger companies that have in
- 17:33unanimously an extreme driven business model.
- 17:39And then of course we could look at the small groceries etcetera.
- 17:42But in that case it's also the the, the trade off between
- 17:46benefits and so the cost, the cost benefit analysis would also
- 17:51bring to the continuation of companies as they are.
- 17:55We need the grocery to do CCT, camera, whatever because they
- 18:00might need to protect their property and so on.
- 18:04So, yeah, I think, I think it's it has a lot to do also with the
- 18:07economic model that we live in. And how about like services that
- 18:12you don't actually know? You mentioned LinkedIn for
- 18:14example. I mean, you don't have to use
- 18:16LinkedIn. Would that play into being
- 18:19vulnerable, that you show something?
- 18:22Yeah, that brings to the, that brings to a very important
- 18:25research we are conducting now within a project that I lead.
- 18:29The project is called Resocial and it's a project funded by the
- 18:32Dutch Research Agenda. And in this project we are
- 18:36analyzing vulnerability on social media.
- 18:39And so you mentioned LinkedIn, which is also social media, and
- 18:43we try to understand how people perceive their dependency on
- 18:49social media. There are two forms of
- 18:50dependency and I think it's important to look at them.
- 18:54One is functional or structural dependency.
- 18:57So I need something and I, for example, I, as you said, I need
- 19:02the grocery, I need my mother when I'm a kid, I need the
- 19:07hospital, I need my doctor. I need LinkedIn because it's the
- 19:11most and perhaps unique way to be known by the academic
- 19:16community. Before we had Twitter and now
- 19:18Twitter has been a bit abandoned by the scholars, for example, or
- 19:22the predictioners of law, ETC. Then this is functional
- 19:26dependency. The other dependency is
- 19:29addiction. So it's psychological
- 19:31dependency, problematic use, compulsive use.
- 19:34And we noticed in our study. So we did this big survey on a
- 19:37950 people and we try to understand how people perceive
- 19:41their dependency and their vulnerability.
- 19:44We noticed that people in higher risk of functional dependency
- 19:48are also people in higher risk of psychological dependency.
- 19:53So all people that gave us good motivations for using social
- 19:56media, being in touch with my family, growing with my business
- 20:00or art, producing ideas, expressing my views,
- 20:04entertainment, are also people that throw other questions, show
- 20:09the high level of psychological dependence on the social media.
- 20:12For example, people that say yeah, but I open Instagram.
- 20:15I don't know why. I just it's very automatic to
- 20:17open it. So this is, this is very
- 20:20interesting and makes us understand that this design, the
- 20:23systems are designed in a way that's really trap our attention
- 20:27even when we need them for a genuine use.
- 20:31But to go back to your question, you said perhaps I'm not obliged
- 20:34to go on LinkedIn or whatever. And I, I think this is an
- 20:39important question. So the, the personal resilience
- 20:42to say no, but all these systems are based on network effect.
- 20:46So we are the more we are, the more people want to be and the
- 20:50more people are online and the more we feel that we need to be
- 20:53there. And when I ask students, why
- 20:56don't you delete Instagram? Why don't you delete Tiktok,
- 20:58even if you know that it's extremely harmful.
- 21:00I teach privacy, need protection, but I teach also
- 21:03fundamental rights in digital technologies.
- 21:05So these questions come in both courses.
- 21:07And I, I ask people, how many of you are not on Instagram?
- 21:10And this year I had for the first time one student that is
- 21:13on zero social media. Maybe there's also generational
- 21:16change for Gen. Z, but most of them respond to
- 21:19one simple with one simple word, which is formal fear of missing
- 21:24out. So I would say it's not true
- 21:26that I can live without LinkedIn.
- 21:28Yes, I can, but I'm also embedded in a society made of
- 21:31networks, made of links. And so my psychological and
- 21:35functional urge to be connected to central social media and to
- 21:39be online, I wouldn't consider it as just a simple vicious
- 21:45thing. It's being part of a society
- 21:48that is built in a certain way. And so in a way, I would say,
- 21:51yes, you can live without certain social media, but at the
- 21:55same time you cannot live without it, which is a nice
- 21:58paradox. So I say it's becoming a little
- 22:00bit like the grocery store. You need to to have a grocery
- 22:03store or something to, to buy you groceries.
- 22:06And what you're saying is, I think that for example, if you
- 22:11are operating a hospital, all the people with coming in as
- 22:16patients, not the doctors and so on, should probably be treated
- 22:20as vulnerable because at least if you're up for a surgery,
- 22:25because you will be left out for the doctors.
- 22:29Yeah, yeah, totally. And also the GDPR refers to
- 22:33examples of relationship between doctors and patients and
- 22:39relationship between employer and employees, and relationship
- 22:41between public administration and citizens when referring to
- 22:47problems, for example, of consent, freedom of consent or
- 22:50autonomy. Some of these examples are
- 22:52mostly elaborations of the European Data Protection Board.
- 22:56But yes, I think most of there are very sensitive areas where
- 23:00we are in a situation of higher risk that should be considered
- 23:04always vulnerability, yes. And then there are other
- 23:08controllers that may be more needs to kind of look at the
- 23:13groups of people they have as customers or whatever and maybe
- 23:16say like, yes, we actually do have children, They should be
- 23:20treated as vulnerable. Yes, we actually do have people
- 23:23with less mental capacity. They should be treated as
- 23:26vulnerability. Then we have a general person
- 23:30with middle-aged white men. They in most cases should not be
- 23:35treated as vulnerable, but there will be exceptions.
- 23:38Yeah. And of course we need to
- 23:40understand that all these exercises are approximations and
- 23:45it's better to have a safer Internet for everybody than a
- 23:49safer Internet just for somebody.
- 23:51And this brings also to the point of banning social media
- 23:54for our children. We want a safer Internet for
- 23:57everybody, including children. We don't want that we banning
- 24:01children. We create an environment which
- 24:03is less safe for the adults in a way.
- 24:07So yes, I think and the the very important point is the
- 24:10circularity of this process. We should wonder every year and
- 24:15data protection impact assessments are made for that on
- 24:17a regular basis. We wonder what's changing are
- 24:20the new risks are the new groups.
- 24:23And the reference to affected groups is also in the
- 24:25description of impact assessments in other laws like
- 24:29the AI Act or the 3F and the mental right impact assessment
- 24:32as a reference to the affected groups.
- 24:34And that the effects on this group should the analysis during
- 24:37the free and also the DSA risk assessment.
- 24:41So in a way, it's already there, but of course, it's just trying.
- 24:46It's not the perfect solution. So when I read some of your
- 24:49places, that's a very good point of view because I think that
- 24:53some privacy lawyers or professionals in general like
- 24:56focus very much on GDPR and not that you have a lot of tools.
- 25:00You mentioned the Digital Services Act or the AI Act GDPR
- 25:05is previously directive and they're like a whole package of
- 25:10different digital acts. This do you find that some
- 25:15privacy professional maybe are too narrowed focused and and not
- 25:19using all the tools in the box? Yeah, it's the case, but it's
- 25:24also true that it's difficult just to to kind of defend some
- 25:27of them. It's very difficult now to
- 25:29navigate in such a big ocean of different laws where the
- 25:34overlaps and interplays are also a bit problematic.
- 25:37But yes, I think it's, it would be very important that every
- 25:41practitioners, lawyers or callers has in mind that there
- 25:45are so many connections between the GDPR to TSA to DMA, the GDPR
- 25:50to sorry, the AI Act, the Data Governance Act, the Data Act,
- 25:54etcetera. And why I say that and because
- 25:58the to make fluid of some of the elements of the GDPR, sometimes
- 26:02we need other laws. I made the example before of how
- 26:05data representatives might be connected to data Co operatives
- 26:08in the DGA in the Data Governance Act, but there might
- 26:11be other examples. You cannot really understand
- 26:13consent under the GDPR if you don't understand the limits for
- 26:17consent for gatekeepers in the DMA in the Digital Markets Act
- 26:22and if you don't understand the privacy directive with all the
- 26:26relevance to consent to cookies and implicit consent and if you
- 26:30don't connected with data altruism in the Data Governance
- 26:34Act. So there are so many links that
- 26:36should be investigated. And another example, very, very
- 26:41good example is sensitive data. So special categories of data,
- 26:45we think the special categories of data are something that is
- 26:49very well situated in the GDPR Article 9.
- 26:52And then you have other references for the safeguards
- 26:55and duties, but it's totally incomplete now because the
- 27:00biggest implication of sensitive of data in the digital market in
- 27:03the digital economy today come from other laws.
- 27:06For example, the Digital Services Act forbids the
- 27:10profiling based on forbids digital advertisement based on
- 27:16profiling based on sensitive data.
- 27:18And this is a big implication. It means I I should never
- 27:22receive an advertisement on meta on instrument because I'm gay or
- 27:27because I am of my nationality. But this is not really the case,
- 27:31right? We we sometimes perceive that
- 27:33our sensitive data are there. So this is 1 big implication.
- 27:36Another link for social sorry for sensitive data is the AI
- 27:40act. All AI providers need to put in
- 27:45place systems to debias algorithms, perhaps using more
- 27:48sensitive data. So these are all things that
- 27:51make us understand that the GDPR is kind of a skeleton on which
- 27:56many other things are added. Some years ago with the quote or
- 28:01we said that these were silent reforms of the GDPR.
- 28:04So even before the digital omnibus, actually all these
- 28:08small changes, deviations, parentheses and appendixes and
- 28:13spin offs were really important elements that were kind
- 28:18reforming the GDPR already. Yeah, and I think we we
- 28:21definitely need you researchers to to help us practitioners in,
- 28:26in this aspect. But I'm glad that you brought in
- 28:29the sensitive personal data because that was a topic I
- 28:32wanted to touch upon with you because obviously something you
- 28:36also done some extensive work on.
- 28:39So I mean, as you said, it's clearly defined in, in, in
- 28:43Article 9 like health data, sexual orientation and so on.
- 28:48On the other hand, it's we say Kells law that kind of it's also
- 28:52if you only infer the sensitivity that should be
- 28:55included with like with names. So what's your opinion right
- 29:00now? In a nutshell, my opinion is
- 29:03that sensitive data are a spectrum.
- 29:06Even though the law needs a yes or no and the law needs black
- 29:09and white because we need to understand whether something is
- 29:12sensitive data or is not. Actually sensitivity is a
- 29:15spectrum. We have some data that many
- 29:18years ago with the code to write defined quasi sensitive data.
- 29:21And we have other data that a few years ago in a blog post I
- 29:25defined super sensitive data and I will make some examples.
- 29:29My name is a quasi sensitive data because refers that I have
- 29:34Italian origins and national nationality and origins is
- 29:39sensitive data. It's a special category of data.
- 29:41But you know, we could also need to use my name for many purposes
- 29:46and would be very difficult to say that just using my name is
- 29:50sensitive data. But if we really look at the
- 29:53inference power, it's clear that from just a couple of data,
- 29:58yeah, I can apparently non sensitive data, I can infer so
- 30:02many sensitive characteristics. And so from an from a contextual
- 30:06point of view, the more data we have, the more generative power
- 30:11we have, the more computational power we have around.
- 30:15And in particular, if a company is particularly strong in
- 30:18inferences because it has huge amount of data, all quasi
- 30:23sensitive data might become sensitive data.
- 30:26There are very very practical examples that were used in the
- 30:30case law. For example, just naming if
- 30:35someone is married or not. It might also reveal a sexual
- 30:38life and sexual orientation if we understand the name or the
- 30:41gender of the partner. And something interesting is
- 30:45that the definition of sensitive data is not just for minority
- 30:49groups, it's neutral. So even being heterosexually
- 30:53sensitive data, even being healthy is sensitive data,
- 30:57pregnant or non pregnant. All all things that refer to
- 31:00these aspects are sensitive data.
- 31:03So I would say it's important to remember the the characteristics
- 31:09of the spectrum also because it's a cultural.
- 31:11So the sensitive data are really cultural.
- 31:13So the, the categories, there are categories that are based on
- 31:17what we think are taboos in our society.
- 31:21And I always do this exercise with students.
- 31:24I always ask them, what do you think is missing in the list of
- 31:27sensitive data? It's, it's a very funny exercise
- 31:30because they always come with great ideas.
- 31:32For example, they say the income, why don't we?
- 31:36Why? It's not a sensitive, it's a
- 31:37taboo. How much I have in my bank
- 31:39account. I never, I never disclose it,
- 31:41not even with my family members. Why should I disclose it?
- 31:44Why is not sensitive data? And the answer is cultural
- 31:47because some of the Nordic countries disclose many of this
- 31:51data for tax reasons on publicly available web pages.
- 31:55And so there's a different culture of showing things and
- 31:58also belongs to different religious and cultural reasons
- 32:02in Europe, like Calvinism versus Catholicism versus other the
- 32:07kind of cultures. The same goes with sexual life.
- 32:10Some cultures are extremely protective of anything that
- 32:14might be sexual life data and others are much more relaxed.
- 32:18But if we just keep these categories and we'll look at the
- 32:21spectrum, the other I mentioned quasi sensitive data, but on the
- 32:25other parts of the spectrum there are for example, the Super
- 32:27sensitive data. I will make an example, a
- 32:30diagnosis of a sexual transmissible disease.
- 32:33It's per SE contains at least three or two or three categories
- 32:37of sensitive data all together. It's health, it's sexual life
- 32:41and sometimes sexual orientation.
- 32:43So just to show, and it's extremely a source of stigma.
- 32:48But the same goes with the psychiatric diagnosis.
- 32:52There's a big stigma because we see in society that if someone
- 32:56has psychiatric diagnosis, there's a well, lower level of
- 33:01autonomy. And so, you know, there are,
- 33:02there are so many reasons. So in a nutshell, this was kind
- 33:06of theoretical, but in a nutshell I would say that the
- 33:09definition of sensitive data is expanding.
- 33:13The digital omnibus on the GDPR tried in a in a leaked version
- 33:19before the official one, they wanted to reduce it to known
- 33:23inferences, so just to directly sensitive data.
- 33:27But this would have contradicted the course of justice which
- 33:31three years ago mentioned that also inferences should be
- 33:34considered sensitive data. So in a nutshell, I would say
- 33:38that we need the definition to be brought, but it's also
- 33:42important that not every data is sensitive.
- 33:45Why? Because otherwise we would lose
- 33:47the protection, special protection of sensitive data in
- 33:50a way. So there will be the so-called
- 33:52data inflation. So yeah, the let's say it's
- 33:55difficult to say yes or no to the question of sensitive data,
- 33:59but we should have a very contextual approach too.
- 34:03I know that in in at least one article on the last point, like
- 34:07the devaluation of sensitive data, are we approaching that
- 34:13limit now that the concept is expanding, expanding further and
- 34:19further out? I I don't think we are at the
- 34:23level of total inflation of sensitive data or the evaluation
- 34:27of sensitive data. It's true that this data and
- 34:32characteristics are much more than we think.
- 34:35But if we look at the specific protections they have, of
- 34:38course, of course, there are some aspects in which the risk
- 34:42of not taking them seriously is very concrete.
- 34:45For example, generative AI training data for general
- 34:48purpose AI and generative AI when there's big data scraping
- 34:53from online, social media, etcetera, to train AI models
- 34:57for, for example, large language models, it's full of sensitive
- 35:02data. Come on.
- 35:02When we share data on Facebook or Instagram, it's a lot about
- 35:06our political beliefs, religious beliefs, philosophical beliefs,
- 35:09health conditions, sometimes even having some eyeglasses as
- 35:13health condition, right? Or not having them in another
- 35:16way. So and then there should be a
- 35:18specific or lawful basis for that.
- 35:21But and and so specific consent. We don't give specific consent
- 35:25for data scraping. It's impossible, right?
- 35:28You should ask consent to 1,000,000 person for just one
- 35:31data set or even more than you ask.
- 35:35So what other bases could be there?
- 35:37Substantial public interest. Is there a substantial public
- 35:39interest in training generative AI?
- 35:42Yeah, Well, maybe only if general TVI is for, I don't
- 35:45know, curing cancer and it's a health, National Health program,
- 35:50whatever. Then that's a clear example
- 35:53where exactly there's a risk of devaluation or inflation of the
- 35:57concept. Because since sensitive are so
- 36:01everywhere and since training data sets is kind of based
- 36:06really on also indifferentiate collection of data also, for
- 36:12example, sensitive data, then of course the protections of
- 36:16Article 9, paragraph 2. So the specific cases are not
- 36:20there. But it's also true that two
- 36:24things. First, there are some
- 36:26technological tools to reduce the amount of sensitive data in
- 36:31a data set, even though it's open to debate.
- 36:36So there are papers in particular ACM fact papers or
- 36:40other papers in computer science journals that underline how
- 36:46desensitize, if we can use that word, desensitize personal data
- 36:50is extremely limited, a limited exercise.
- 36:54And on the other hand, the legislator is aware of this.
- 36:58And so in the digital ominibus on AI, so the reform of the AI
- 37:01that has been approved just few days ago, the one of the
- 37:05compromised, then we will see how the final text will be.
- 37:08We are still waiting for the final text, but the there is
- 37:13this acknowledgement of how sensitive data are impossible to
- 37:17be deselected from training data sets for AI systems.
- 37:21And so there is a specific fuel that they want to add, which
- 37:26will will make sensitive data, will make always lawful to use
- 37:32sensitive data as long as they are not removable from the data
- 37:37set to train AI. And in a way this is a way to
- 37:41avoid the hypocrisy that OK, it's sensitive data, but what
- 37:46can I do? I will just process it.
- 37:47I don't care. So in a way, and I'm not saying
- 37:51it's good to what the digital omnibus on AI is doing, I'm just
- 37:53saying that taking a position was anyhow expected.
- 37:56So. In one of your pieces on
- 37:59sensitive data, you were talking about the purpose of the
- 38:02controller, why you're processing the data and whether
- 38:05or not that should be accounted for.
- 38:08And I think that's really interesting as well.
- 38:11And partly what you mentioned about AI like your train, but
- 38:15you're not actually interested in that there is sensitive data.
- 38:19And then if you go look at the biometric part of it, it's
- 38:23actually a photo. It's not biometric, even though
- 38:26you might have some personal trait that you're actually that
- 38:31you personally could do biometrics with your brain.
- 38:35But being a bank also we we have a lot of transactions and from
- 38:39the transactions, you might actually say what you paid.
- 38:43Maybe you paid a hospital psychiatrist and then you will
- 38:47know, but we're not interested in that.
- 38:49Should it matter? Yeah, this is the there are
- 38:52these two parallel approaches to consider sensitive data, either
- 38:55contextual or purpose based. The contextual is, yeah, from
- 38:59whatever I can infer something. So it's sensitive data.
- 39:02So the fact that the bank uses my photographs with my
- 39:05eyeglasses means that contextually the bank could
- 39:09process health data of me about my eye functions.
- 39:13And then that's the contextual approach.
- 39:15But the purpose approach is more to look at really what is the
- 39:19purpose of the data processing. And we might tend to think that
- 39:24the second approach is less protective, but there are cases
- 39:26in which the purpose can define more.
- 39:29For example, I'm using some data that apparently are not
- 39:31sensitive at all, but the purpose is to infer your sexual
- 39:36orientation. So for example, I want to know
- 39:38your music or the the the songs that you like or things like
- 39:41that, but they have. But the purpose is not to just
- 39:44understand your music preferences, but to infer
- 39:46something about your sexual orientation or sexual life.
- 39:49So in a way, I would say that also purpose matters.
- 39:52In the GDPR, the only explicitly purpose based category of
- 39:57sensitive data is biometric, because it's biometric for the
- 40:00purpose of uniquely identifying individuals.
- 40:02But for example, the AI Act has kind of redefined biometric data
- 40:06in a broader way because we have a broader definition of
- 40:09biometrics and also broader limits of biometric.
- 40:13For example, there's a prohibition in the AI Act to do
- 40:16biometric inferences. Biometric categorisation on the
- 40:20basis of sensitive data, for example, or or protective
- 40:23categories. So yeah, in a nutshell, I would
- 40:26say it's it's it's, it's always good to look at the context and
- 40:31the purpose. And I would not assume that any
- 40:36possible data can refer to any possible sensitivity sensitive
- 40:40aspects depending on the data controller.
- 40:43It's then there a challenge to prove that they didn't process
- 40:48in a sensitive way also. OK.
- 40:49Thank you. And I wanted to lastly discuss
- 40:54automatic decision making because I know that's an
- 40:57interest of you. And actually it's one of a
- 41:01favorite topic right now for me as well.
- 41:04And not the least that with AI algorithm.
- 41:07More and more I think actual automatic decisions are made in
- 41:12light of like the show for case and so on.
- 41:14Maybe there are more automatic decisions making going on than
- 41:18we are aware of. That is not like decisions as we
- 41:22think of them normally, but actually some some part of a
- 41:27process like the show for case is automatic decisions.
- 41:31Yeah. So I mean, you've done some
- 41:33research on this as well. And today sometimes you talk
- 41:37about not you, but in general, like AI being a black box and
- 41:41you build to build to be transparent as a controller,
- 41:45obviously. And how, how?
- 41:47How should you? And is it possible to like
- 41:50fulfil all the requirements? Yeah, yeah, that's, that's never
- 41:57ending topic, of course, because we, because there was this Court
- 42:01of Justice case law recently, not just SHUFA, but we also, so
- 42:06we had also done in Bradstreet about the right to explanation
- 42:10and so on. And also the digital omnibus
- 42:14wants to change Article 22 of the GDPR, extending it not just
- 42:20to when it's necessary for a contract and for consent or
- 42:23member state law, but also for any time there's a contract.
- 42:27So this will extend the possibility ability to do
- 42:30automated decisions also to cases that are do doable by
- 42:34humans, for example, counter moderation.
- 42:37If there's a terms and terms and condition, I could say yes for
- 42:40that. For the purpose of this
- 42:41contract, then I will use automated decision making.
- 42:45But also a contract is the contract between students and
- 42:49universities. So in a way that's also a way to
- 42:52open the door to more AI on students or on employees in a
- 42:57way. Of course, there are some
- 42:58restrictions in the yeah. Now your question was whether
- 43:01it's. So whether also fragments of
- 43:04automated decisions can matter. So for example, in the SHUFA
- 43:07case was taking the advice of an automated system about the
- 43:11credit liability or credit worthiness of something and of
- 43:15someone and then taking the decisions on that.
- 43:17And this was, this was a very important case because when the
- 43:20GDPR was approved and then published, we were all uncertain
- 43:25about how to interpret that solely automated basis.
- 43:28So it's yeah, automated decision making is decision based solely
- 43:34on automated basis. And the the point is what solely
- 43:39automated means at the beginning, the work papers
- 43:43saying also important scholars saying the solely automated
- 43:46means that any human intervention should be excluded
- 43:49to be in the scope of the article. 22 and I was one with
- 43:54some colleagues and co-authors to say no.
- 43:57I mean, it would be so easy to circumvent the system if, for
- 44:01example, you put a useless human in the in the in the system.
- 44:06And we always made the example, which is not banks, but very
- 44:09similar insurances. So for example, you have an
- 44:13algorithm saying that Philip is at risk 8 out of 10, and then
- 44:18there's a powerless insurance employee who says, OK, risk 8
- 44:25means that this person will pay more than others.
- 44:29It seems to a human decision because there's a human at the
- 44:32end of the loop, but that human had no decision making power and
- 44:36no epistemic power, we could say.
- 44:38So in a nutshell, I'm very happy that the court in SHUFA said
- 44:42made this analysis saying, look, 80% of the decisions of the
- 44:47Shufa data set and of the automated systems in Germany is
- 44:53taken into serious consideration by banks.
- 44:55So for the 80% of cases, decisions are based on what are
- 44:59confirming what Shufa says for whether to, to, to give or not
- 45:04to give a mortgage to someone alone or whatever.
- 45:07Then the court set this 80% standard, which I, I'm not sure
- 45:12it's a standard that can be applied forever and in the
- 45:15future or if, even if it's a binding standard, but it gives
- 45:21us an idea. It's more, it means it's more
- 45:25than not. So it's more convincing than
- 45:28not. It's more so it's the majority
- 45:31of cases are relying on that automated decision.
- 45:35So in that case, I would say that it's we should really look
- 45:39at the substance and also at the possibility of humans to take
- 45:45other decisions. There was some very beautiful
- 45:48human computer interaction studies conducted some years ago
- 45:53about quasi automated decisions and semi automated decisions,
- 45:57for example, for judges. And what they realized was that
- 46:01usually there's this confirmation bias.
- 46:04So we want to confirm what the machine says, right?
- 46:07And so even though there's not a specific duty to conform with
- 46:12automated decision, it's it's very often the case that we
- 46:16conform with it. And a way to avoid this
- 46:20automatism might be to say, OK, I give a very detailed human
- 46:25based explanation on why I agree with the machine.
- 46:27The problem is that today you can write this explanation with
- 46:30generative AI. So today you can say, please
- 46:34tell me what to do. And then you say, OK, please
- 46:36explain to me why in very specific ways this might be a
- 46:40good way, a good position. And that's why we don't need
- 46:43just explanation, we need justification.
- 46:47So we need to show how certain decision is reasonable, but it's
- 46:51also rooted on lawfulness, fairness and purpose, limitation
- 46:56and other principles. So I was thinking about this
- 46:59human in the lope. If you have a few more minutes,
- 47:03as you said, it needs to be a person that actually
- 47:06knowledgeable in the subject obviously might have the right
- 47:09to kind of take a new decision. But if you are an, it's really
- 47:15hard to actually understand how algorithm work and explain it
- 47:22and challenge the outcome, especially if you have used the
- 47:27same algorithm like for a year and you had the human envelope,
- 47:32it never made an error. So that's one of the risks with
- 47:35a lie that you're kind of getting very comfortable with a
- 47:39lie to do the right thing and you kind of lower your awareness
- 47:44of that. It might make a mistake one day.
- 47:47That's a very, very true point. And this brings also the passion
- 47:52of liability, whether following or not following the advice of
- 47:56AI might be a source of liability.
- 47:58For example, you committed a mistake following it, so it was
- 48:01your fault that you didn't do a good human intervention exercise
- 48:05or you didn't follow it, so it was your fault because it was
- 48:08already there, it was so clear and you didn't follow the
- 48:10advice. So of course this is a, this is
- 48:13a big question. The answer in one word might be
- 48:16literacy. So what the Artificial
- 48:19Intelligence Act already suggests that we should have AI
- 48:23literacy. So we should all companies that
- 48:26use AI in any way should have programs for employees, for
- 48:31workers and also contractors to learn about the functioning but
- 48:37also the risks. So also legal literacy and I
- 48:41would add something also emotional literacy.
- 48:44Having to deal with the AI is really also in particular
- 48:48generative AI and chat bots and so on, brings really the problem
- 48:52of how we emotionally are intelligent and capable, capable
- 48:55to deal with something that is extremely new and is non human
- 48:58but resembles humanity a lot by design.
- 49:01But now going back to your point, the AI act requires that
- 49:04there is human intervention for a high risk system.
- 49:07So in a way, it would be always the case that some humans are
- 49:11able to intervene in the system and also interpretability
- 49:15Article 13. So of the so we should be able
- 49:18to always interpret the IA system.
- 49:20And that's also something that would always create a tension.
- 49:25I mean, in an ideal word, in an utopistic word, there wouldn't
- 49:28be this passive reliance on the algorithm that has always been
- 49:32used in that way. But there should be a waste of
- 49:34questioning. Is it correct?
- 49:36Should we continue? Should we deal with that?
- 49:39So this kind of approach, so this is one thing and in general
- 49:43literacy is very important. In this very specific case the
- 49:47the European institutions want to downgrade literacy from a
- 49:51duty to a recommendation and even the duty had no sanctions
- 49:55in case was violated. So if you don't do literacy
- 50:00under the current AI Act, you don't have any sanction.
- 50:02But if you have a duty to do literacy and then you are not
- 50:06able to do right explanation, human intervention, human
- 50:10interpretability, then the fact that you had no literacy
- 50:13programming a tissue would amplify your liability, I would
- 50:17say, and your negligence. So in, in tort law, I think the
- 50:21idea of literacy could be used, but now they want to downgrade
- 50:24it to a mere recommendation, which is, I don't know why we
- 50:27should have a low with some just recommendations.
- 50:30I mean, other systems do that. Other countries do that.
- 50:33I don't think it's the best way to proceed.
- 50:35But by the way, I think that would be a very important
- 50:39aspects to, to, to, to focus on and to never give algorithms for
- 50:43granted just just for the sake of questioning, right?
- 50:47These are not perfect systems. They're full of structural
- 50:49biases. They're full of structural
- 50:51mistakes and errors. So just relying on it is not the
- 50:54case. And I also tell this to my
- 50:56student, they use a lot of generative AI, as you can
- 50:59imagine. And sometimes they they are not
- 51:01even able to critically analyse what's written there.
- 51:05So the point would be at least be a very nasty reviewer of what
- 51:10AI is doing. It's the basis, right?
- 51:12Yeah, I completely agree that I, I am a little bit worried about
- 51:16the future because if you as as you said, if you are brought up
- 51:22with AI, are you losing critical thinking?
- 51:24Are you losing some of the like basic threads to actually
- 51:28questioning the output? That's something for the future.
- 51:32I have two kids myself and I let them play around with it under
- 51:38my supervision and tell them like it's not a person, it's a
- 51:42machine and it's guessing what the next word is all the time.
- 51:46Exactly, exactly. It's a probabilistic tool.
- 51:49Mostly yes. So I am so grateful for you
- 51:53taking the time today and I encourage all the listeners to
- 51:58go to your web page or Google your name and find the most
- 52:02interesting papers, articles, and the book.
- 52:06Thank you. Because I've written so much, I
- 52:08think it's here to like first narrow down the scope.
- 52:11Do you want to read what Jean Claudia has written about LDM or
- 52:17is it about vulnerable vulnerability?
- 52:19So you focus on where in the area?
- 52:21Otherwise we will be overwhelmed.
- 52:23And I want to send out the big thank for all you researchers or
- 52:28academia for, for bringing up so much interesting topics and
- 52:31actually taking the time to dig deep dive, jump down the rabbit
- 52:36hole. Sometimes you, it seems like
- 52:39you're never coming out on the other end, but it's so
- 52:43interesting. And I think it's more of
- 52:45practitioners should read not only what you have written, but
- 52:49your colleagues as well, because it it's it creates a deep for
- 52:54understanding of the protection of JD PR and the interplay with
- 52:57other digital legislations. So big thank you for
- 53:02participating today and all the hard work.
- 53:04Thank you so much. Thank you for reading, for
- 53:06taking the time to read. It's not something that you give
- 53:09for granted. And I also would say that also
- 53:12scholars should sometimes talk more to practitioners to get
- 53:17from the clouds to reality. So thank you so much.
- 53:20And I also, I also thank you for this podcast, which is an
- 53:24important source of connection between practitioners and
- 53:27scholars. So thank you so much.
- 53:29And thank you all to the listeners.