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The Farron Dozier Show: Quality of Life vs. a Cure · Military Broadcast Radio | MBR Talk

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dot. US how did.
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I do. Was that a good thing?
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It might work all right. Good evening.
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Welcome to the Frondosi Show on KCAA Radio on O 6.5 FM 1050 AM.
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Also streamer from the KCAA radio.com website and NBR Radio
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dot US. We got to bless the show.
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Before we get started, let's go. When it was in my mother's womb,
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I had a calling on my life to do something in the glory of God
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and marry it like a wife, commit myself to His Word and never be
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LED astray. And when it's all over, when He
1:12
comes, I'll be glad to see that day in the morning time.
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Hey, what's up man? How you doing?
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I'm. Blessed my brother.
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I'm good, man, I'm good. Hey, did you see the game last
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night? Oh.
1:43
How was your game? But did you see the?
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Shot. I lost money from that.
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Oh, man, That shot was old man. But it was good, yeah.
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What's the note? You really want to know.
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I do. Exhaustion, muscle spasm,
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Asthmatic issues, Unexpected sickle cell trait type.
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Are. You serious?
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When I was young I found out I had sickle cell trait.
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My mom's told me but I didn't have no knowledge of it.
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But when I got older, I had a child and the doctor told me my
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daughter had sickle cell trait. You know, the fact that both
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parents have sickle cell trait, there's a 50% chance the child
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may have the trait and 25% chance the child may have the
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disease. And that's what's the count.
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Do you know that 225,000,000 people in the United States have
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sickle cell trait? 300 million people globally.
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I didn't find out I had sickle cell trait until I was in the
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Army 10 years. Next thing you know I had a
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sickle cell trait exertion site. April cell.
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I thought that was a. Black Gen.
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Or something. Nah man, the black community is
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number 21 out of 36,000 babies are being born with sickle cell
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disease. You could be Caucasian,
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Mediterranean, European. You gotta wear your bloodline,
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man. There is an inherited gene in
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our community that has been forgotten.
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The name is Sickle Cell trait. WDCONSCT, also known as What's
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the Count, is out to bring awareness, education and
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prevention to people all over the globe.
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Want more information? Call us now at 323-215-5384 or
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visit WWW dot WDCON sct.org. Mr. Red, White and Blue, welcome
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to the Frondosi show on the Military Broadcast Radio
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network. That's right.
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That's MB Radio. dot US. Thank you for tuning listening
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today as always, we have a very important show for you here on
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Wednesdays at 4:00 PM Pacific Time, 7:00 on the East Coast.
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Make sure you catch us streaming also at KCA Radio on Tuesdays at
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6:00 PM Pacific Time over there. Another version of Rondo's issue
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here. We do a lot of our military
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talks, causes, of course, my sickle cell trade talk, which is
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what you're going to some of today as we are educating
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veterans and celebrating veterans.
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But yeah, today is a special edition.
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It is Sickle Cell Awareness Month.
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And if you've been listening and watching the PSA's in the
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beginning, that is APSA that was able to produce in 2016.
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When I came into this community 16 years ago, there was a lot of
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conversations about, oh, there's no, we don't have no pre essays
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and nothing. And so a guy that put on my
8:01
heart somewhere around 2012 or so, this idea and it was like
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this, it was what you saw. It was a bus stop, 2 guys
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talking and then this girl walks by and I think Genuine had a
8:15
song any any more room for me in those jeans?
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It's a genuine inspired song by that.
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And so taking that idea, that song, and then putting that in
8:22
the PSA few years later, I was able to produce that and edit
8:26
it. And there you have it.
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So that's been around for a little bit.
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I'm blessed to have that. And then they're just some other
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things that we're doing. So I wanted today to be a
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special day for us to bring some conversations forward with the
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people that I have met on this journey, very, very important
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people that you're going to meet tonight that are close and near
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and dear to my heart. Because when I came on the scene
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with this sickle cell trade conversation, I was lost.
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I had just found out I was a trade carrier.
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I had collapsed in the military with the trade exertion in the
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random myelosis and depressed and suicide ideations and
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everything was it was over. And then it wasn't until one of
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my my platoon leader during the war over 5, we served together
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and we never talked about any of sickle cell nothing, no health
9:13
and Wellness talks, nothing. I had actually had some
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complications during that deployment.
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I was in pain, my hand had swollen up.
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I could barely walk. And so wasn't until almost four
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years after I collapsed that I run into him on the military
9:28
base and he's like, how you been?
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Like, you don't want to know. It's like, tell me like, man, I
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could barely walk. You know, I'm going through
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these mental health appointments.
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Think I'm losing my mind. He says, man, my muscles locked
9:40
up on me one time, but I got sickle cell trade.
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So I have to drink extra water, take these vitamins and I'm
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standing there like, why does that sound familiar?
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And then I remember in 19 nine, I did my second physical in the
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Army with the Air Force Base and the Air Force found my sickle
9:55
cell trade. Call me in a panic.
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So I run back to the clinic like what's going on?
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And he's like, do you know you have sickle cell trade?
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No. OK, just want to let you know,
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not the disease. So you should have nothing to
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worry about. Don't make another person.
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That's all they tell us. And oh, I'm good.
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I'm 29 years old at the time. I'm moving it.
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I'm moving my family to Michigan to be a supply Sergeant for
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infantry company. So I'm like, OK, cool, nothing
10:18
to worry about. OK, boom, I'm out.
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And never thought about it again until he mentioned that in 2010.
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So from 99 until 2010, that conversation popped up again and
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I went back into the clinic, grab my documentation, got that
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physical and I'm reading, flipping the pages and there it
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was positive, a yes, sickle cell trait.
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And so I take that to my rheumatologist and UCLA Medical
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Center because now I'm dealing with arthritis, diagnosed with
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arthritis, my whole body is inflamed.
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And so she takes that paper, retest my blood and find out
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that there's 40% of my red blood cells, a sickle cell trait.
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And then we did some more research and she found that the
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rhythm myelosis and the sickle cell trait was the factor in the
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connection of my collapsing in 2006.
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And so that gave me some insights of what happened to me
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after all those years. And that take that Med paperwork
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to the, the military doctors and they find me not fit for
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service. And that forced my military
11:19
retirement after fighting for that for three years, all my
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pills, they were like, not you got to go, especially with the
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arthritis and the the shots that I was taking for that, they were
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like, you got to go. And so my, my point is the power
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of a conversation, the power of information.
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I, if he, if I had not seen Captain Adams that day, at that
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time, what I have found, I mean, I don't, I don't want to play
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that game of what ifs, but you can see how important the
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conversation can be for people to find out information just to
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plant that seed just for knowledge, right?
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And so I'm very appreciative of that.
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So during that time frame, when I started doing my research, I
12:00
found Doctor Tim, the Randolph. I was found the as one
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foundation and then was trying to e-mail them and Doctor Austin
12:06
had just took over. So I had missed her in the same
12:10
process. Lupita and and Raimundo, I met
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them from a guy that was helping me build my website for my
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sickle subrate in in 2014. And, and so all these people
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that you're going to see that are, that are available today
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are key components to this conversation around sickle cell
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trait because there's so many different aspects.
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That's why I called it the aspects of sickle cell trait,
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because there's so many dynamics to this conversation, because it
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does lead to sickle cell, right? When those two parents have that
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inherited gene and they pass that gene to that child, whether
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it's s s or SC or SD or sickle beta thiol, right?
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So for me as a trade care, we have to be responsible for those
12:52
other traits, but then we have to also be responsible for
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sickle cell trade itself. So for me, sickle cell trade has
12:59
its own awareness, education and prevention conversations because
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of how it's inherited. And if we're going to be able to
13:09
focus on sickle cell trade, because if you, for me, it's
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it's been drowned out. And when you pull up, even if
13:16
you Google sickle cell trade, sickle cell disease pops up
13:19
ahead of that. And and so it's like, OK, at
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what point do we break this conversation so that people can
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get the awareness that they need that are trait carriers.
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And of course, if the patient, if the patient has sickle cell,
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then that means the parents are sickle cell trait carriers.
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So there is a connection in that.
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But for me and the work that I do, I have to separate the
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sickle cell trait conversation because it's had, it has its own
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awareness, education, prevention measures and conversations.
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So it's not that we're separate, but there is a part that we have
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to focus for the trade carriers because there are a lot of
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things that I discovered when I found out that it was even trade
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related to find in the medical books that pain crisis, high
14:02
altitudes, the exertion, blood clots, that the the rare kidney
14:07
cancer, all that stuff has been in the medical books.
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Most of that stuff has been there, but it hadn't been talked
14:13
about. And so I'm here to deliver that
14:16
message. All right, so we're going to get
14:18
that show started. I do see my first guest.
14:21
I'm going to bring him up because we do talk about sports
14:25
here. There was a sports segment,
14:26
sports collective, TV, media and radio.
14:29
And this guy right here, because there's so many different
14:31
sports. I, I, I, I titled them
14:33
different, you know, segments. So big Dre is here.
14:37
We're going to be talking about the bags, the canvas, which is a
14:40
boxing segment, bags the canvas. And then I got panel here.
14:44
I'm waiting for Doctor Maisha to show and then we're just going
14:47
to get started. And if you have any questions,
14:49
follow me along at Ferron Dosier on all your platforms.
14:52
If you want to be a guest, you can welcome to be a guest here
14:55
as well. So I'm going to play one more
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couple more PS as come back with big Dre with the bags of canvas
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segment. And then we're going to get
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right into this aspects of sickle cell trade.
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Oh, and by the way, I was asked to to help lead by Felice the
15:11
grief portion of our sickle cell community conversation.
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And so if you, we're going to be having more segments about that,
15:18
about grief. So we've had we've lost a lot
15:21
of, I want to say a lot. We lost a few key advocates in
15:25
this past year so far. And it just, it's, it's fun this
15:29
conversation. And so because Felice knows me
15:32
from back in the day since I started, she asked me if I would
15:35
take the lead on having this conversation around grief.
15:38
And it's important to me in my transition of losing my father
15:43
seven years ago and, and actually doing the work around
15:46
grief. I would say that, you know,
15:47
grief, some people want to leave it to time.
15:50
I mean, there's no wrong answer. But for me, I'm like, I know
15:54
principles work. If you apply these principles to
15:57
your life, there's transformation.
15:59
There's Peace of Mind on the other side of those principles.
16:02
And so when I saw that with my dad and, and, and his passing
16:05
and how I felt and what I made it mean about myself, I knew
16:08
that if I go take these grief counseling classes or these
16:11
grief support groups, I'm going to find some tools to help,
16:14
right? So when I did go to those
16:17
classes, and I did take those grief counseling and I did share
16:20
my story and listen to other people, share their experiences
16:23
and what they were caring and dealing with, I was able to
16:26
understand that in grief, there's three sections.
16:29
There's loss, there's mourning, and there's grieving.
16:32
And so I had to look at those from each category and find my
16:36
peace in breathing, find my peace in the morning.
16:41
And then the last piece that I discovered was the loss.
16:44
And the loss was for me. I kept holding on to, I mean, my
16:49
dad were complete. We were complete.
16:51
There's no resentment, there's no regret.
16:53
We reconciled, we healed. He passed away unexpectedly in
16:56
his sleep. I didn't get a chance to say bye
16:58
or none of that. But I know that in my heart that
17:01
we were complete. I had said everything.
17:03
There was no unforgiveness present that we were.
17:06
We were always clear when we talked to each other.
17:09
But there was a part of that in this transition that I didn't
17:13
realize that I made it mean something about who I was now.
17:17
And so in the lost category for some people, you have to look at
17:21
the identity. And the identity was I wish that
17:25
I had more time with my dad Now we were good.
17:27
But he and I, he should be on this sickle cell trade talk
17:30
today, right? Because I got the gene from him.
17:32
So as I'm living my life and doing these conversations of
17:35
this to be a son and father relationship with father, like
17:38
all those things that we have planned to do together, now he's
17:42
gone. I was holding on to that.
17:44
And and I talked to myself like I wish I had more time with him.
17:48
Like he should be here. He should be doing these talk
17:50
shows. He should be speaking with me,
17:51
sharing his part of the story and in the loss, when I read the
17:55
book, the grief book about that chapter, it said that yes, for
17:59
some, for some, it's who who are we now when that person is no
18:04
longer here, which is the identity?
18:06
Who am I now without my dad here on earth, my earthly father?
18:11
And so when I saw that and I read that, I was like, Oh my
18:13
gosh, that's right. That's how I feel.
18:15
I feel like I wish he was here. We should be doing this, but
18:18
he's not here. He's gone.
18:19
He ain't coming back. So am I going to keep my, my
18:23
ideas and my will about that conversation or I'm going to
18:26
allow God's will be done? And, and because that's, that's
18:31
what that's what soul, he's not coming back.
18:33
So after I put myself in that frame and, and, and looked at it
18:36
and told the truth to myself, I was able to let that identity go
18:40
and figure out, OK, now I don't have my dad.
18:44
After 49 years, I don't have my dad anymore.
18:47
But now who am I? Oh, I'm, I'm a dad, I'm a
18:49
grandfather. So now it's my turn.
18:51
So then I had to be able to look at that for myself with my
18:54
identity without my earthly father and be OK.
18:57
And honestly, those emotions, that identity, it, it, it, I was
19:03
able to let it go. And I, I've, I've been at
19:05
another level of peace in my grief.
19:07
I still think about him. I, I experienced missing him
19:10
every day. I look in the mirror, I see his
19:11
face that hasn't gone away, but my emotional attachment to the
19:15
identity of Faron and his father and who I am without my dad was
19:20
a key point for me to be able to let that go and be at peace with
19:24
like, OK, I believe in God and I believe it's your will.
19:27
If I believe that your will be done in my life, then then
19:30
that's another aspect of that that I have to let go.
19:33
And so for us as a, as a community, whether it's sickle
19:36
cell or whatever the cause or whatever around life and death
19:40
that we see on the news, I mean, we see it every day.
19:43
That's what they published. That's what they, they show us
19:45
life and death. It's my opinion.
19:48
I only get, I only get an opinion when, where, why, how
19:50
people die. We only get an opinion and it,
19:53
and it's important because again, with the sickle cell
19:56
trade and people passing away from trade exertion and die,
19:59
it's like the burden is there. Yes, we care.
20:02
That's why we're here today to have this conversation, because
20:05
we care. And I don't even know if I can
20:08
say that we can prevent a premature death.
20:10
You know, because if we believe in God and it's God's will, then
20:14
these conversations just remind us that we need to have these
20:18
conversations as much as I can share and tell and talk about
20:20
that. So I'm grateful to be a part of
20:22
that grief aspect of the show. And so again, we'll be talking
20:25
about those dynamics around grief.
20:28
So again, thank you for tune listening in.
20:30
If you are streaming on either YouTube or Roku TV X wherever
20:37
you watching the side. We appreciate you for today.
20:39
Again, I'm going to play this PSA and come back and get with
20:43
big Dre on the backs of canvas segment.
20:46
This is the Frondos issue on military broadcast radio network
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21:23
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Sickle Cell Trait Prevention is here to bring you awareness,
21:29
education and prevention conversations around the risk
21:31
factors of this inherited gene. Visit WDCON sct.org.
21:44
Where you at? Where you at?
21:45
Where you at? What's up, man?
21:47
I'm in a. I'm in a.
21:48
Undisclosed hotel right now. No, There you go.
21:53
Undisclosed. Hey, where you at?
21:54
Where you at? Where you.
21:55
At I'm, I'm out in the valley right now, I had to take a a
21:58
client's car to get a bumper put on.
22:00
So it's going to be going back to 8 speed.
22:03
I decided to come out and stay out here and stay out in the
22:06
North North Hills, you know what I mean?
22:08
All right, all right. You ain't got to say what you
22:09
ain't got to say where you at? You ain't got to say where you.
22:12
At So hey for all you people out there, big drink president
22:19
operations for Jeff promotions, Jeff's keep with Jeff Davis
22:22
promotions. I'm in charge of helping to get
22:25
the fighters information to our matchmaker.
22:30
We have an event November 7th at Thunder Studios where people are
22:35
familiar with the area. See a Long Beach borderline.
22:38
November 7th 12:00 open. The doors open at 1:30.
22:42
First bout we'll be some 70 feet and come there.
22:45
It's our first ever bout by Mr. Jeff Davis Promotions and we got
22:49
a wonderful out of boxing man. We got 8 phenomenal cards for
22:52
the main event. Still names still be determined.
22:56
We're still matchmaking right now.
22:58
What can I say about my boy right here, Harrah?
23:02
I give thanks to God, my boy, you know, being, you know,
23:05
advocate for, you know, for for our vets and for us and being an
23:09
advocate for the sickest self man you get them with on a
23:12
day-to-day. It's just, you know, back to
23:15
canvas thing. It's just going to go to another
23:17
level now. It's all in God's timing.
23:19
Now we hear back. It's crazy.
23:22
And I know, I know. I I talked to him about since we
23:25
talked about last night, he's Hunterson in OK, he said you,
23:30
you, you, you, you know, you're the president of the operation
23:32
is making it happen. So we're looking for those
23:34
fighters out there who, who, who, who, who have that you
23:38
know, they have that that that ambitions and and want to be
23:41
champions. Come over to Jeff Davis
23:43
promotions. We can, we will promise you, not
23:48
the world, but we'll promise you that we'll be the best of the
23:52
best of business to do what you have to do to show that you're a
23:55
true champion and just to follow your dreams, you know, And we're
23:58
looking for four different weight classes, middle weight,
24:01
welterweight, bantamweight, lightweight, junior, Superboy.
24:05
We're looking for a couple more fighters.
24:07
If you get what it takes, you're up and coming.
24:09
Need to get yourself out there. Give us a call.
24:12
The web is no safecorner.com. That's NOSAFE Corner CORNE r.com
24:24
and you see the website, the information from Mr. Jeff Davis,
24:28
his number there. You can give me a call.
24:29
You reach out to me if you're a fighter.
24:31
I'm at 442-475-7833. One SO, and I appreciate you,
24:37
man, I appreciate you. And you know, again, the, the
24:41
whole sports piece for me connects back to you again
24:44
because of the exercise, the Rabdo and the exertion.
24:47
And so a lot of fighters, again, people aren't aware we're
24:50
playing sports, we're being active and, and, and you and so
24:53
we want people to make sure that they understand their health and
24:56
safety conversations. So to be a part of that with
24:58
you, man, and then to interview these fighters and just to be
25:01
there. I'm, I'm excited, man.
25:03
So thank you for allowing me to be a part of that.
25:06
The bags of canvas and he. Will be and he will.
25:09
He will be on. We promise he would.
25:10
Oh, he promised he will be a guest.
25:11
OK. All right, all.
25:12
Right, we'll be a guest and we're going.
25:14
We got our first couple of files.
25:15
We have them come on and talk about who they are and what they
25:18
found. We got a Long Beach.
25:19
We had a Long Beach favorite. His name is Aaron Whitehurst.
25:24
He's going to be a hill two and one.
25:26
He just sat on. We we match them right now.
25:29
He's trained by the world famous Cannon Brandon to Cannon Adams.
25:33
Wait, wait, wait, wait. That's he trains over there.
25:36
I know then. Yes, yes, over there, Over
25:40
there. Yeah.
25:40
Long Beach Boy, he's going to be on on.
25:42
Our I know coach Cameron. Oh, yeah, Brandon to Cannon
25:46
Adams, this is fighter Aaron Whitehart.
25:48
I'll be coaching him. Akiba, He's treating him.
25:51
He's treating him the way he needs to be.
25:52
Let it, you know, let him know that you can't be a a victim to
25:55
this game, you know, of the boxing world.
25:59
And Jeff got it was on with Jeff to talk to the the and there
26:03
King of all promoters, Don King and Don King gave us that thumbs
26:07
up and we get a shout out to Sam watching from PVC, seeing that
26:11
we have what the person put our first show on.
26:13
So remember November 7th, say the date 12O clock start doors
26:18
open tickets on sale. Now you can go on a website
26:21
which you know a bags of boxes guy Don has a number.
26:26
He'll shoot up again later on the show for sure.
26:28
So it's no corner set. You know, you know, I
26:33
interviewed, I interviewed, you know, him and Coach Cam on my
26:36
show before they opened up the gym.
26:38
They were. They were in the.
26:39
Yeah, yeah, yeah. He had a female partner.
26:41
Yeah, yeah, yeah. Coach Cam?
26:43
Oh yeah, she had with the meds, yeah.
26:45
I interviewed them. Yes, yes, wow.
26:48
So. That's full.
26:48
Circle finally doing it. So you know, of course we're
26:50
going we're going to make this partnership happen with no bags
26:52
of canvas. And most likely you'll, you'll
26:55
see for Ryan, you'll come check him out on November 7th.
26:57
He'll probably be out there with his live broadcast bags of
27:01
canvas. Thank you.
27:04
Let's make sure the veterans remind the veterans of who you
27:06
are. Give some of your.
27:07
Background. I'm DeAndre Adams.
27:10
You know, I'm the man of the plan, former bodyguard, and I'm
27:14
still running for City Council when I have time, but I'm now
27:17
engaged to get married, so yeah. You know.
27:22
The lovely Miss Kimberly. I was.
27:25
Stuck to the band. I'm I'm so happy I'm planning
27:28
that right there and, and just all these years of doing it
27:31
without doing for the world and looking out for our vets and all
27:34
the good thing we're doing with the vets.
27:35
And it's a blessing that for you vets who want to come out there
27:38
and we represent you guys. I'm sure Jeff will do something
27:41
good with the vets when it comes to this military ID and
27:45
everything just come out there and support.
27:47
So local finders are looking for that support and you got to come
27:50
check them out. He's at Thunder studios November
27:53
2nd. No corner safe.
27:55
Look out, Jeff. Davis, big Dre, man, thank you
27:58
for your time today, man, for for coming and sharing that
28:01
information with us. I got I I saw Robert yesterday
28:03
on the show, but I didn't drop it to him.
28:04
I wanted to wait because I was like, let me, let me go tell
28:07
Robert. Yeah.
28:09
Let me wait so he'll I missed that fight and I was in Vegas
28:12
for the pep bull cruise fight. Yeah, but now we'll fight and
28:16
yes, we we probably picked a couple of finals on.
28:18
It's going to be on the on the show that fall in their cards.
28:22
That was a great main event that bull put out a great Jermaine's
28:27
knockout and he was in the second round.
28:30
Yeah, well, I did like the fourth round because the first
28:33
two rounds was a wrestling match.
28:34
WWE stick was on the ground. I won't do it.
28:37
But after that he took out and pulled it back.
28:39
Bam, there it was. Yeah.
28:41
Yeah. So be a dream, man.
28:43
Thanks man. Good seeing you, man.
28:44
I appreciate for hanging out today and again, I'll be in
28:46
communication with you offline. All right, Knockout.
28:49
Thank you. Motion to count.
28:51
Let's go, please. Again, this is the front doors
28:55
issue right here on the military broadcast real network MB radio
28:59
dot US. All right, so the panel is here.
29:01
Doctor Marisha is here. So am I missing anybody?
29:05
NO123. No, we good.
29:07
I also invited a couple more in case they were available.
29:10
I did invite Doctor Randolph if he was available.
29:12
He's in Saint Louis, but like I said, we don't get this started.
29:15
So one more PSA come back and then we're going to talk about
29:19
aspects of sickle cell trade. I'm going to bring up each
29:21
person first individual, let them share a little bit a bit,
29:24
and then we're going to get started because today it is a
29:28
very I want you to walk away to understand the different aspects
29:32
of sickle cell trade and how Doctor Maisha can support you.
29:37
And if you have, if people in your life that need to know this
29:41
information, you can direct them to the people here that I
29:43
working with as well. So PSA and then we're coming
29:47
right back the front dose show. Muchas Enos otrosnos vemos
29:51
affectados Portland fermeda de cerulas Fasciformes adeario Y
29:56
numero crescentes implemented onos Amos cuenta Los impactos
30:01
Esten fermeda affecta NATO de Las personas Y en especialmente
30:04
a Las personas de collor econante cedentes de versos esta
30:09
Ren SER Visio carmigo econos de mas amedida que creamos una
30:13
major conciencia sobre como identificad EDI rejir El
30:17
tratamiento de Los rascos de cellulas Fasiformes de Las
30:22
familias acever como supera El trastorno de cellulas Fasiformes
30:29
do blegue de SE O en ES. Opinions expressed in this
30:36
program are those of the speakers and do not necessarily
30:40
reflect the views or positions of any entities they represent.
30:45
Find us on the web at NB Radio dot US all right, again, welcome
30:51
back to the front Doze show on the military broadcast reader
30:53
network. NB radio dot US.
30:56
If you want to support this conversation, you see the code
30:58
up there. They provide all these services
31:01
for us. So we we ask you to donate to
31:03
this platform, you'll go to NB radio dot US.
31:07
You can see all the others talk shows here, veterans of
31:10
different branches, first responder, their family members.
31:13
This is a place where they've given us a voice and I've been
31:16
grateful to bring my military show back here and be a part of
31:20
this network. So if you want to support US1
31:23
way I'm saying thank you for our service is providing some
31:26
donations to help keep these bills paid for all these
31:29
platforms. Roku T if you know about Roku
31:31
TV, it ain't cheap to be on TV these days, right, and all these
31:34
other platforms. So I'll make sure you go out and
31:36
support that if you care about the Congress here today.
31:40
All right, let's get started. I'm going to bring.
31:43
Up. My the first person that was
31:47
here today, she was like she was early too.
31:49
She was like, I'm in the building, I'm in the building.
31:51
This is Richie, What's happening?
31:53
This is Richie come off of mute for me.
31:55
How you doing? I am wonderful.
31:58
How are you? What's happening, lady?
32:02
Same old thing, just a different day.
32:04
Happy to. Be here.
32:06
You know, again, it was it was it was kind of further in my
32:10
advocacy work and world that when I met you.
32:14
So do me a favor, introduce yourself to the listeners and
32:17
give him a little bit of background of even though you
32:19
know why you're here today for this conversation.
32:22
OK, I'll be happy to do that. My name is Richard Johnson.
32:25
I am a registered nurse by profession.
32:28
And 14 years ago, I lost my youngest son, Chris, to renal
32:33
medullary carcinoma. And it was while he was
32:37
receiving treatment that he noticed a lack of advocacy for
32:42
renal medullary carcinoma. And for sure we did not know the
32:46
sickle cell trait was the main factor of this deadly cancer.
32:50
And RMC is one of the deadliest of all kidney cancers.
32:55
It was first described in 1995. But there was not any advocacy
33:00
done and there was no research and there were no treatment
33:04
modalities. And so Chris wanted to start a
33:08
foundation. So we did start the Chrissy J
33:10
Johnson Foundation. Unfortunately, it was started
33:14
after he passed. He did live 15 months after
33:17
diagnosis. But since our existence, we now
33:22
have treatment modality specifically for patients with
33:26
REMC. We're now working on our fifth
33:29
clinical trial and the survival rate has increased from 1% to
33:35
10%. And we are global and have the
33:38
only REMC support group for patients as well as the only
33:45
grief support group for family REMC.
33:49
So I am happy to be here. Thank you so much.
33:52
And it's it's I mean at RMC conversation is had been such a
33:59
missing discussion right piece of our work.
34:03
And even as I start to learn about it from you and meeting
34:06
you and doing these conferences with you and sharing the stage
34:09
with you. Ronnie Hillman who passed away.
34:14
That's far as I know the most recent couple years back to play
34:17
for the Denver Broncos won a championship up there sickle
34:20
cell trade carrier. And what's wild was his cousin
34:24
is a prophet at my church and he came on the prayer line 1
34:27
morning praying, asking for prayer for his cousin.
34:30
And it wasn't until he transitioned and I was like,
34:34
wait a minute, That's that's who we was talking, praying for.
34:37
And it was like, Oh my gosh. And when I saw that it was RMC,
34:40
I'm like, Oh my gosh. So when I let the prophet know
34:44
the word, I mean, he's aware of the work that Jordan and I do.
34:46
But that was, that's how close it came to me is like, we were
34:49
praying for Ronnie. And it's like, and then we
34:52
looked at like, well, he's on a professional NFL team.
34:55
Like, how did they not catch? They got the we think the best
34:58
doctors right would be on the planet would be a part of his
35:00
football team. And yet they didn't discover his
35:03
until, you know, stage 5. And it was like a few months,
35:08
weeks later, he was gone. Exactly.
35:11
And and that is the problem with kidney cancer overall is that
35:16
you're normally asymptomatic until it's full blown and
35:21
usually you'll have the blood in your urine and that's what
35:23
usually send you to the. It's a sign.
35:26
Wow. Again, thank you for being open
35:29
and sharing. You are very key component of
35:32
this conversation as it's a rare kidney cancer and sickle cell
35:35
trait is connected to it. So thank you so much for being
35:38
here today. I'm going to bring up someone
35:40
else real quick and then introduce them.
35:41
And then like I said, we'll get this panel discussion going.
35:45
All right, So up next, let's go to Doctor Dab.
35:49
Doctor Dabney. Man, you, you, you the latest
35:52
and the greatest in my in my crew, man.
35:55
Thank you. Introduce yourself, introduce
35:57
yourself so we can get this is exciting with you.
35:59
Let's well, I'm glad, glad to be here.
36:02
Thank you for inviting me back. I think this is our third, third
36:06
talk. Yeah.
36:09
So my name is Doctor Dabney. I am a integrative medicine
36:13
physician here in Decatur, GA. But I've been working with
36:18
sickle cell patients for about 10 years, about 10 years.
36:24
But I did get involved with working with sickle cell
36:28
patients. It's because my wife, she's an
36:30
OBGYN and she had a sickle cell patient and she referred her to
36:35
me because she wanted to look at another alternative approach.
36:39
And I got to her and I said, well, I had never really worked
36:44
with the sickle cell patient before.
36:46
She's like, well, you need to learn because I need to, I need
36:49
some help. I had to, I had to start doing a
36:52
lot of research and was able to work with her and get her crisis
36:56
and stuff under control. But that was the beginning and
36:59
starting getting more involved with more sickle cell forms.
37:04
That's how I end up meeting, meeting you just trying to let
37:08
people aware that sickle cell with a sickle cell trait or
37:14
sickle cell disease that things can be done to help reduce the,
37:19
the symptoms. I'm not saying cure, but I'm
37:21
saying reduce a lot of the symptoms.
37:23
A lot of times people just don't know.
37:26
And I've had people that are in Africa that I've worked with
37:29
because they're out there and, and they don't really have a lot
37:33
of a lot of good support. So I was able to work with them
37:37
and I still keep in contact with them and was able to keep his
37:41
voice crying. He was in the hospital all the
37:43
time. He was like 5 or 6 years old.
37:45
See now I think he's like 13. He's reduced the sickle cell
37:49
crisis to a minimum. I mean, he still has them.
37:52
But I did offer since I'm so far away and.
37:57
Can't fly. Now I just, well, there's
37:59
certain things in your neighborhood.
38:01
I mean in your in your backyard or there's certain.
38:03
Things that. Food groups that you can try,
38:05
they weren't aware of that. So just making them aware, you
38:08
know, so, and, and you again, our, our conversation initially,
38:13
you know, just you were so helpful in helping me.
38:18
We educated me about some of these conversation and, and it
38:21
stuck on me the most was the white cells, because you know,
38:25
me and Jody, we have our rap called battle of the jeans, the
38:28
red cell versus the white cell. And I'm the white cell, right?
38:30
And so when we started talking about inflammation and you
38:33
started breaking down and I'm like, wait a minute, hold on,
38:36
wait, wait, wait. You mean you, you introduced the
38:39
mass cells, the a mass cell? What, what does it look like?
38:42
Nobody talks. Nobody really.
38:45
There are some people and some doctors out there that really
38:48
don't believe the extent of a damage with mast cells.
38:51
That's what it is. It's something called a mast
38:54
cell activation syndrome. So I'm like, well, someone's
38:57
giving it a name, so it must have.
38:59
Some. Existence, but it's they're not
39:01
putting the pieces together. Of, of of.
39:04
What could be happening not with just sickle cell patients, but
39:06
just people that are having problem.
39:09
I probably would be able to discuss more on that.
39:12
But yeah, it's just a matter of educating the public that these
39:15
symptoms are not just allergy symptoms.
39:18
Sometimes they resemble it, but it's it sometimes it go deeper
39:21
until they start having anaphylactic, you know, shock
39:26
and then that's when people want to recognize.
39:28
But you can kind of catch this up early if you if you know the
39:31
symptoms. Yeah, and that.
39:32
And so that's why I'm like, man, can you come, 'cause this, this
39:36
whole, this white cell conversation information like I,
39:39
I know that first hand. And, and a lot of the holistic
39:42
things that we deal with go after the, the information in
39:45
the body more time with the well actually with sickle cells, red
39:48
blood cell, right. Right.
39:49
Think about. I do.
39:51
I tell people sickle cell like rheumatoid arthritis and other
39:55
different disease, they're inflammatory and they don't
39:57
think like, well, how is that possible?
39:59
Since when you start breaking things down, the body's trying
40:02
to fix it and you've got something that's abnormal in the
40:04
cell, it's going to create a problem.
40:07
And you're going to have some issues with inflammation,
40:11
secondary complications and all the white cells.
40:15
So man, thank you again. I appreciate you.
40:17
Like I said, you, you, you, you, you, you, was you.
40:20
Another layer of the conversation as we begin to go
40:22
out in the community and have these talks so they can pay.
40:26
I told you if they understood the cell breakdown and the
40:29
diffusing and how the like, like when you told me the other day,
40:32
oh, the, the mast cells, they, they're also in the bone marrow.
40:35
They come out premature. And I'm like, wait, wait, wait.
40:37
What? How are the, Yeah, how are the
40:39
red cells and the white cells coming out of the same?
40:41
And then one is 1 is the red cells come out mature and the
40:45
white cells, I'm like, bro, you, you, you're killing me.
40:47
But I know that it's an important conversation.
40:50
Yeah, there's coming from the stem cells.
40:54
So the stem cells in the master like the master controller.
40:57
So. That and that kind of dictates
40:59
what cells are going to become what.
41:02
But yeah, the only thing I say about the white cells, they they
41:05
have great intentions. Sometimes the.
41:07
Intentions can be too much. Exactly exactly.
41:11
Especially in sickle cell. When I found my buddy, I think
41:14
his white cell count was like 27,000.
41:17
I mean, he was in a serious crisis in his body.
41:20
So but Doctor Dadney, thank you so much.
41:22
I got a couple more to bring up here, man, but you're going to
41:24
be a part of the discussion shortly.
41:25
So OK, great. Don't go, don't go nowhere,
41:27
don't go nowhere. All right, so this family right
41:30
here up in the know, we call it the know up there.
41:33
I met this family 2014 working on a website with these two
41:38
gentlemen and and they were like, you know, you know, what
41:41
are you doing talking about my website and stuff, But I'm my
41:43
advocacy working. I'm, I'm, I'm only a couple
41:45
years, you know, into it. And I was looking for one of the
41:48
things we were talking about. There was no one doing mobile
41:51
testing. No one was doing sickle cell
41:53
trade. They were doing mammograms and
41:55
AIDS testing mobile units, but there was nothing we could find
41:58
that there was doing sickle cell trade testing mobilely.
42:01
And so he was like, you know what, man, wait a minute.
42:03
I know this family out there in, in Palm Desert somewhere and
42:07
they got a storefront in the lab and blah, blah, blah.
42:09
I was like, man, put him on the phone right now.
42:12
And so he put me in communication with Raimondo.
42:15
And I can say this is 2014. We have not lost communication
42:18
since 2014. We have worked together.
42:20
He was a board member. We've done mobile testing in the
42:23
community. We're still at it.
42:27
And so I have his wife who is a part of the work that he does as
42:31
well. And so I'm going to bring her up
42:33
on the deck to have a conversation with us because
42:36
she's going to be talking about some of this holistic stuff.
42:39
So Peter, how you doing? Hello.
42:42
Hello, Caron. How are you?
42:43
How is everybody? I'm good, thank you.
42:46
Thank you for stepping in and and having this conversation
42:49
with us. Lupita has been nothing less
42:53
than a blessing for me because as I went on this journey to go
42:56
to Nigeria in December, 1 of my biggest concerns was my
43:02
inflammation in the shots and the vaccines and just trying to
43:05
be healthy as possible in my travels.
43:08
And I have been dancing around with the, with the supplements
43:10
and everything for a few years. And honestly, I take them and
43:15
then some days I don't take them.
43:16
Maybe like a month go by, then I get back on them.
43:18
And then, and then, but I came to her with, with the sense of
43:21
urgency because I was, I'm scared because of the vaccines
43:25
and I had AI believe I had a COVID reactions.
43:27
You know, I can't document say that, but my views, I had a
43:30
COVID reaction from the Johnson and Johnson.
43:32
So I'm, I'm leery about vaccines.
43:35
And I came to her and she was like, OK, well, you know, Doctor
43:39
Sabie what his conversation was about and like, yeah, so
43:41
information. Yeah.
43:42
OK, then you got to clean up. But you got to clean out your
43:44
system. And I'm like, all right, all
43:46
right, let me let me lock in and clear.
43:48
And I can only tell y'all by switching to the liquids from
43:56
day one when I when I took the CC four and she was like, it's
43:59
going to take about 8 to 12 hours.
44:01
But when it kick in and but you going, it's going to be going to
44:03
get the parasites. It's going to do some work on
44:05
you. And I was like, oh God, no
44:08
kidding. My testimony is that not only
44:11
have I worked on my, my physical health, my spiritual health, my
44:17
emotional health, but clarity I got not only did I, not only did
44:25
I lose about 10 lbs of waste weight, I want to say cuz I was
44:29
like 18080. I was like 188.
44:31
And then I went to the doctor to get those vaccine.
44:34
They was like, yo, you 179. I'm like 179.
44:37
But I'm like, oh, but that was that all that waste.
44:40
That's tip ice cube says coming out the bathroom about 10 lbs
44:42
lighter. And I'm kidding you about about
44:44
10 lbs lighter. And I equate that.
44:47
But the clarity that I got also, Lupita, can you, can you talk
44:52
about that part of it before we get in?
44:54
Because I want to say our conversation for the panel
44:56
discussion, but overall with the, with the supplements and
45:00
the compound, can you touch on that?
45:03
Because I, I'm literally, it literally helped my emotional
45:06
state and I understand that. And we know that that some
45:10
foods, the toxins, all that because we're cells and
45:13
chemicals that those could throw off your even mental capacity.
45:16
And I believe I got some clarity in life, not from just detoxing
45:20
for the parasites and stuff, but I was able to start to be OK
45:26
with my emotional health, mental health.
45:29
Can you is that? Is that true?
45:31
Yes it is true. My my name is Lupita Martinez
45:35
and I am the founder and CEO of Botanica Herbal Company.
45:41
We are in Fresno, CA and I had the privilege of meeting Doctor
45:47
Savior around 2000 and I was very privileged and blessed to
45:53
meet him and get trained and with the herbs, the products
45:59
that he created in the 70s eighties to help people reverse
46:05
different kind of health issues. And I, I was blessed to meet
46:12
Paron and around 2014 he was not coming to meet me.
46:16
He was coming to meet my husband.
46:19
But I was there and I was part of the package.
46:22
I was part of the nothing. So you start taking the products
46:28
and you know, he here and there on and off the herbs and stuff
46:33
like that. But it was like what, two years
46:36
ago, one year ago when we switched from the capsules to
46:42
the tonics and the tonics work better because they work faster
46:47
and they is is different kind of tonics for different things.
46:52
But one of the tonics that Pharon was taking to prepare him
46:58
for this trip, it was the CC four, that is, that helps to
47:05
remove parasites, mucus, toxins that the body has accumulated
47:11
from eating from the air that we breathe from everything and
47:16
accumulates in the body. So this tonic goes there in your
47:21
head and your toes and every. Tissue in your body.
47:24
Just removes everything. Sometimes people say, you know,
47:30
oh, but I go to the bathroom every day.
47:32
I don't need them, but you'll be surprised how how these amazing
47:38
herb and and when we created in these formula, it goes in their
47:46
body and removes everything and and it helps the body, the
47:51
organs to perform better. And also because of all the
47:57
toxins, the mucus, the parasites that comes out, it help us to
48:03
see better not only statistically, but also clear,
48:09
make better decisions and feel better.
48:13
And this is, this is what this one of these compounds do you
48:20
know. And, and we've been working with
48:22
our own again, with other many people.
48:25
We, we send products. We, we have blessed, we are
48:29
blessed to have sent products to Australia too, friends to other
48:34
parts of the world because of what these herbs do.
48:39
And, and, and our biggest, my biggest testimony before my own
48:42
personal was Alan, Alan, I'm we when I, when I met young 14 and
48:47
then Alan had came from Atlanta to California.
48:49
He was in a crisis. I think he went back home
48:52
because it was a crisis so bad. Then he tried to come back to
48:54
California because he was doing this event and he got another
48:57
crisis and, and he was on my talk show at the, at the time.
49:01
And so he was like, man, I'm, I'm like, I'm, I'm in a bad, I'm
49:04
in bad shape. And so I was like, well, you
49:06
know what? I, I did an interview with
49:09
Doctor Savey and then I know some people who actually doing
49:12
some work with the sun compound. And he was like, please
49:14
introduce me to them. And so we drove, we got video
49:17
where we drove out to Palm Desert and you helped out Alan.
49:22
And to this day, he's now in Brazil hanging out and he, he,
49:27
he, he says that I haven't had a crisis since that year he was on
49:33
that compound. And he has sickle beta
49:35
thalassemia. He changed, but he did the whole
49:39
thing. He changed his diet.
49:40
I mean, to this day, he never went back to the old diet.
49:44
So he has he, he says, I haven't had any crisis since that
49:49
relationship, that of the introduction with you Lupita.
49:52
And so that's that's where we are with that so.
49:57
Yes. And for Alan we what we gave him
50:00
again, it was the product to to detox him, to remove all these
50:05
things from the body. But also it was the Oxyhemo, it
50:08
was to build up his blood blood cell, the red blood cells to
50:13
help him. And at that time when you
50:15
brought him to us, what he said he was, he was in the hospital
50:21
once a month for a few days at a time.
50:24
And after him taking more than anything the Oxyhemo 1 bottle of
50:30
Oxyhemo a day, that's when he was able to see the results and
50:35
made the decision of changing his eating habits, the whole
50:38
lifestyle. And I don't think he's taking
50:42
any of the products right now, but that is what it make him see
50:48
different and, and, and changed his whole lifestyle.
50:52
Yeah, thank you. The pizza.
50:53
I'm going to bring up the doc real quick and then we're going
50:56
to bring everybody up on the deck and have a conversation.
50:58
Thank you for being here again today and sharing with us.
51:02
All right, ladies and gentlemen, the one and only the trade
51:06
doctor. Y'all ready for the trade doctor
51:08
we have? I think it's, I think we're in
51:10
our 16 years for me, probably about 13 or 14 years.
51:15
I met Doctor Myesha and just by meeting her and having
51:19
conversations with her, she was been on the show all these years
51:22
and I'm like, we needed, the trade community needs a doctor.
51:25
We need a doctor and there's who's believing us with these
51:29
trade complications, Who's listening to us with these trade
51:32
conversations. So I'm like, can you, can you
51:34
take on, can you be the trade doctor?
51:36
Can you take on that label? I didn't mean to put that much
51:38
pressure on her, but you know, at that, it took her a while.
51:42
It took a while, but I kept I kept pronouncing her as the
51:46
trait Dr. and. And here she is today, finally
51:52
embracing with us in this conversation full force is
51:56
Doctor Maisha as the trait Dr. How you doing, lady?
52:00
Oh man, you know whenever you do something great, a lot of stuff
52:05
tries to get in your way. I swear I normally finish clinic
52:08
no later than 5:30. Why did I finish at 6:45 today?
52:12
Oh man. I mean, the last patient left at
52:15
6:35 and I'm running, running to try to get to this show.
52:20
And you know, it's amazing because the last patient I
52:23
suspect trait avascular necrosis, blood in the urine, no
52:29
answers that. Sound like SC?
52:31
Doctors and studies that. Sound like SC?
52:35
I'm just like, I'm like, wow, this is my why.
52:39
This is why I'm racing to get to WKC Radio and do this show and
52:43
be on this panel and then I'm listening as we introduce like
52:47
our family has. Grown we have.
52:49
Yeah. Oh yeah.
52:51
I listen to Lupita like my. Twins, how you been you?
52:57
Know I'm just, I'm on the East, she's on the West.
53:00
It's time. You know it's time.
53:01
You're a good doctor is now set up to take care of trait
53:06
patients. We are fully licensed in like 15
53:10
states. You're now our official health
53:14
coach. We.
53:15
Are. Yeah, yeah.
53:16
So like, we are ready. I'm listening to Doctor Dabney.
53:20
Like where have you been? Exactly, exactly.
53:23
She's. So much, you know, and I'm
53:26
watching all the stuff she's doing, but I'm like catching
53:29
balls, constantly trying. To set.
53:31
Up and still, you know, survive. You know, I want to make sure I
53:35
mentioned we now have no charge consults like we have sickle
53:38
cell trait consults. There's no risk.
53:41
Just set up a visit. You know, even if you don't
53:45
become part of the clinic, even just one visit, you're going to
53:48
benefit. So I don't want to forget to say
53:51
that because I always forget that kind of stuff.
53:53
So we're going to put that information up.
53:54
We're going to put that information up.
53:57
But I'm, I'm, you know, times are changing.
54:01
My confidence has grown. We talk about the mental health
54:04
aspect. This was not accepted.
54:07
It wasn't accepted in the medical community 15 years ago,
54:13
right? If you try to say trait was the
54:16
cause of anything, you will be labeled.
54:19
We had to do this work quietly. Now John Hopkins researcher Dr.
54:24
Nait just put out the the paper last year that sickle cell trait
54:30
is an independent risk factor. Just trait.
54:34
Not SCSDS. No, AS trait the trait, just the
54:39
trait for end stage renal disease.
54:42
Miss Richie, who's A50? Year nurse. 40 years of being a
54:47
nurse and then her own son being sick and going away from here to
54:52
the other side told you about renal medullated carcinoma.
54:56
So now to me, how can we say that it's benign?
55:00
If. You can end up on dialysis just
55:02
because of it. And now there's proof like you
55:06
can't dispute it. They've been trying to prove
55:08
that it's phenom. But I want to make sure I
55:10
mentioned and I know I'm supposed to be introducing
55:12
myself and introducing. You good, you good, you good,
55:14
but. I just really, I got excited
55:16
listening to everybody. I really want to mention that
55:19
it's not to make you afraid. Yeah, between we have, I have
55:25
been actually taking care of trade patients.
55:28
I have one patient that he couldn't do the mile run without
55:34
vomiting and now he's the head of his ROTC.
55:39
He's the head of his ROTC. He's on his regiment.
55:43
I, I step by step, I can get you to the point where you can still
55:47
still play your sports, but not getting help is as crazy as an
55:51
asthmatic saying I don't want to take my asthma pump because I
55:55
don't want anybody to think I'm weak or diabetics saying I'm not
55:58
going to take my medicine. Whatever it is, whether you're
56:00
going with the the Berberine herbs, whether you're going with
56:04
the with the, with the all the natural supplements, or whether
56:11
you're going with the metformin and the GOP ones.
56:14
And I even can help you with natural GOP one, getting your
56:17
natural GOP1UP without that risk.
56:20
You know what, whichever route you're going, you know, it'll be
56:23
like saying I'm not going to take I'm just going to let
56:25
myself go into a diabetic coma because I don't want anybody
56:29
think I'm weak. So if you have trait or you may
56:32
even think you may be possibly have a whip of having trait
56:36
Holler talk to us. You know, I'm I'm doing it.
56:41
Doctor Dabney is seeing. Patients I was like, he's.
56:44
Doing what we're doing. Yeah, yeah, all.
56:47
Over the world, patients in in, in Ethiopia, patients in
56:52
Senegal, wherever you are, Spain, we can see the
56:55
international patients over there, it's different.
56:58
They can go to the pharmacy. They don't necessarily have to
57:01
have a prescription. Right.
57:04
You know, I have, I just helped a lady, you know, she was so
57:08
sick and, and we were able to do it from key, you know, so, and
57:14
we're primary care. We do everything primary care.
57:16
We do all the supplements but. This is why.
57:19
This is why. This.
57:21
This. Is why you want hurt.
57:22
You got hurt. This is why Doctor Doctor Maisha
57:26
has been such a key factor in US developing our conversations
57:30
because again, like she said, 16 years ago when I came on a trade
57:34
scene, there was that was very little sickle cell trade
57:36
conversations, even here in California.
57:39
And to be able to take that on to be a yes in the room full of
57:42
Nos to fight for my experience and then sharing my story and my
57:46
testimony and then to find her and Doctor Austin, Dr. Austin
57:50
was the reason her research. And I'm like, you are my Angel
57:52
because now I got another ally who's it makes sense.
57:56
And so just again, and you're going to meet these people who
57:59
are parts of this puzzle that we're putting together to work
58:03
together individually and Sep and and together.
58:05
But these are the people as I share my conversation as the
58:09
aspects of sickle cell trade. So let's just get, let's bring
58:14
them up so we can get this conversation.
58:15
Yeah. Let's get.
58:16
It started. I'm I just the?
58:18
Family. So let me, let me, let me, let
58:20
me with you first. So before I bring them up, why
58:22
we're even here now, quality of life versus a cure is not a new
58:26
conversation for us. We was doing this at La Talk
58:28
Live in 2015, 2016. We were talking about quality of
58:32
life because there was so much going on in the sickle cell
58:35
community and living it. And for me, living in the future
58:40
of uncertainty from my experience of anxiety, if I'm
58:44
living that far out into the cure for whatever or my own
58:47
sickle cell trade advocacy work, my my experience of myself today
58:51
is anxious. So if I'm having anxiety today
58:55
because I'm looking to see where they are with the cure, my
58:58
quality of life right now could be suffering emotionally and
59:02
then physically and all the other.
59:04
And we know that's in our sickle cell community, stress is a
59:06
trigger as well that could cause complication.
59:09
So if we know that, then how can we not have a conversation to
59:14
say how do we improve your quality of life while we look
59:18
for this cure? So it's quality of life versus a
59:20
cure. And neither it's not right or
59:23
wrong, good or bad, but I want people in 2026 from our
59:27
conversation, find out where you are in your self-awareness.
59:31
Are you in the stands of life waiting and hoping and for, for,
59:35
for a cure, But you're watching this game of life and you're
59:39
suffering in the stands. Or are you on the bench of life
59:42
waiting to get put in the game with a conversation that can
59:44
help us move this conversation forward with some middle
59:46
toughness or some middle whatever.
59:47
And, and, but you're still not there yet to be on the court
59:50
with us. Or are you going to come and
59:52
hang out with us and get on the court and take these shots and
59:55
have these conversations and Share your story, help educate
59:58
these doctors and nurses and all the people who need your
1:00:01
information, your testimony. We want you on the court with
1:00:04
us. But guess what?
1:00:05
It's OK if you want to sit in the stands.
1:00:07
Just be aware that when you talk, you're in the stands.
1:00:10
Be aware that when you talk, you're on the bench and this.
1:00:14
If you want to get on the court and, and be on the on the panel,
1:00:17
you want to be in the community in conversations, you want to be
1:00:19
you want to find that confidence to Share your story.
1:00:22
I, I hear people. Oh, well, I got, I went to the
1:00:25
doctor and they asked me how long I've been living with
1:00:27
sickle cell. I was so upset.
1:00:29
That's your opportunity to educate that doctor.
1:00:31
If that's, if that nurse asked you a question like that and
1:00:33
they don't truly know, then why are you mad with the nurse for
1:00:37
the question? Answer the question and then
1:00:39
educate them on that information.
1:00:40
But people are, we're so offended by our by, by what
1:00:45
people say about us, about our community, that we can't even
1:00:49
help move the conversation forward.
1:00:50
So quality of life versus a cure, Doctor Maicha, what does
1:00:54
that mean to you? When when you hear quality of
1:00:56
life versus a cure. So first of all, I want to say
1:01:00
it's really to me it's not a either or.
1:01:02
I'm, I'm a person that tends never to subscribe to either or
1:01:06
axiology, black or white abstract, a non abstract super
1:01:09
country, concrete thinking. I see everything in shades of
1:01:14
colors and spectrums. And you know, how can we make
1:01:18
the different pieces? What can we do with this color
1:01:20
palette that we've had? Black has a purpose, white has a
1:01:24
purpose. Every color on that spectrum,
1:01:27
pink, blue, red, green, we need all of it.
1:01:30
You know, God put it all here for a reason.
1:01:32
So I don't believe we want to choose between the two.
1:01:35
To me, we need to have a path where we have a a cure that
1:01:42
we're working on and we still work every day to have a better
1:01:46
quality of life. Each time when I'm working with
1:01:50
a patient on trait, I'm looking how can I impact your life right
1:01:56
now? What's I I always give patients,
1:02:00
this is one of my tricks. I get them one thing.
1:02:03
I want you to do this one thing. See me back in two to four weeks
1:02:09
when I know you've been to this one thing.
1:02:12
Now we're going to add 2 and 3:00 and 4:00 until you have a
1:02:17
new normal and it happens. So simple, you know, I mean,
1:02:21
they're going to give something or take something.
1:02:23
Sometimes I'll give two things because I'll give and take if I
1:02:27
take if I take something. Oh.
1:02:29
My God, when I take. This pork?
1:02:30
Oh my. God, you see that place?
1:02:31
I'll. Take the pork.
1:02:34
Do you understand that pigs don't sweat and you're eating
1:02:36
toxins? And I couldn't say that 20 years
1:02:40
ago. Now all the research is there
1:02:42
that pork worsens every those white cells.
1:02:44
He was talking about that mast cell production.
1:02:47
I was aware of that mast cell disease 20 years ago and it's
1:02:51
all part of the puzzle, right? How can you have this problem
1:02:55
with your red blood cells and the fighters?
1:02:57
It would be like saying somebody took a shot at the house and no
1:03:00
fighters came out. You at war, somebody took a shot
1:03:04
at the base and the fighters, of course the fighters came out.
1:03:07
And just like he said, fighters over, yet they just start
1:03:10
shooting. So part of getting that.
1:03:12
Quality of life is calm down. The fuck?
1:03:15
Calm down, fighters. It, it was just a rock.
1:03:18
It wasn't on purpose. Let's see, how can we?
1:03:21
And that's part of the issue with sickle cell trait, because
1:03:25
you have one healthy gene, you have an hemoglobin A Ostensibly
1:03:30
you may, may not, but ostensibly you have one.
1:03:34
You have the opportunity to have some healthy red cells.
1:03:38
How do we increase their functionality right away?
1:03:44
And that's going to promote cure, that's going to promote
1:03:48
quality of life all at the same time.
1:03:50
When it comes to the cure, with the bone marrow transplants and
1:03:53
with the new gene therapy that they're doing, my take is
1:03:58
everybody has to decide for themselves.
1:04:01
I can't tell somebody you're wrong to get the gene change.
1:04:07
If I was SSI, don't know what decision I would make.
1:04:12
I certainly would expect that it would depend on how severe my
1:04:16
life experience has been. You know, because The thing is,
1:04:20
you have something called jumping jeans.
1:04:24
Jumping jeans. So you go in, you do the CRISPR,
1:04:28
you cut the gene out or put the gene in, but you don't know what
1:04:31
the jumping jeans are going to do.
1:04:35
You mess with jeans. Jeans are the master code.
1:04:39
We didn't create it, right? You mess with genes, you fix one
1:04:43
thing, you break something else. But if you are in excruciating
1:04:46
pain every single day of your life and nothing works, Oh yeah,
1:04:52
you're going to take that chance.
1:04:53
Jump. I don't care about jumping
1:04:54
genes. Try it.
1:04:57
It can't be worse than what I'm experiencing now.
1:05:01
And that's what it means to me. Quality of life versus cure.
1:05:04
Some of these cures are worse than the disease.
1:05:07
I've been getting so many people off of the statins right,
1:05:10
because we have the whole rhabdo conversation.
1:05:13
Statins, it worsen rhabdo. They cause peripheral A
1:05:16
neuropathy. They can even make you have
1:05:18
diabetes when you didn't have it.
1:05:20
At the same time, they can keep you from having a heart attack.
1:05:23
It's always a balance. Nothing's pure good, pure bad.
1:05:27
Only God is pure good. Everything else is a shade of
1:05:30
grey. So when you talk about quality
1:05:32
of life versus cure, I'm going to yes.
1:05:37
I'm going to work. You as an individual, how can we
1:05:40
make you feel better and do that thing that's going to give you
1:05:45
what you need right now to alleviate the stress and the
1:05:48
comfort and help you know that more help is coming I'm just.
1:05:52
More help, More help is coming. More help is coming.
1:05:56
More help is here. Where we where we at?
1:05:59
Doctor Dabney, I'm so honored to meet.
1:06:03
You. Yeah, I've been following you
1:06:04
for a while. It's got a chance to.
1:06:06
Meet you. No, not like that.
1:06:08
I ain't stalking you. No, not like no, I don't know.
1:06:12
We, we have a, we have a lot of the same philosophies and you
1:06:16
were trying to figure out what, what, what we could do to help
1:06:20
with the hemoglobin phenol. Hemoglobin is what I'm really
1:06:23
looking at. I wasn't sure, maybe you guys
1:06:27
are aware or not. That's what we're here for is
1:06:30
that you could use a vitamin D as a means to help boost the
1:06:36
fetal hemoglobin. I mean, vitamin D does a lot
1:06:38
more than just bones and teeth. It does a, it does a lot, a lot
1:06:42
of other different things, turning genes off and on,
1:06:45
modulating the immune system, especially if you're going
1:06:48
through a crisis. We know that most people who
1:06:52
have a are in a crisis. They've done some studies that a
1:06:56
lot of them are vitamin D deficient and once they get
1:07:01
their vitamin D levels up, they're their crisis decrease.
1:07:06
Yes. When they're not getting rid of
1:07:08
them per SE, but they're they're modulating the immune system.
1:07:10
If you can keep your vitamin D levels into.
1:07:12
Place. Quality of life versus cure.
1:07:14
You and I have both. I have been so right now, and
1:07:19
this is like all different diseases trait and everything
1:07:22
else. If you have enough melanin to go
1:07:25
in the sun without sunscreen from the elbow down right and
1:07:30
your leg from the knee down and your face and you're melanated,
1:07:34
30 to 45 minutes a day is all you need to get 10,000 to
1:07:39
24,000. I use a vitamin D and you will
1:07:43
feel better. I have some people safely doing
1:07:47
the vitamin D and it's helping with the aching of the bones
1:07:50
that comes with trait or disease.
1:07:53
But what time of the day is that?
1:07:55
But. What time you're?
1:07:56
Going to go before you're going to go, so before 11.
1:07:59
AM and after 2:00 PM to avoid the UV radiation.
1:08:03
OK, so before 11 AM you can hang.
1:08:06
Out in the sun before 11 AM depend on time of the.
1:08:11
Year so 11:11 AM before. 11. AM and after 2:00 PM is the best
1:08:15
time to be in the sun to get the roughly depending on where you
1:08:18
are and you. You don't want to go when the
1:08:21
sun is at right above your head at its hottest, right?
1:08:24
That makes sense. That's when you're going.
1:08:26
To get the most DNA transformation.
1:08:28
Etcetera And for ethnic people, you're looking at the palms and
1:08:33
the souls if you're going to look for that Melanoma.
1:08:36
So keep an eye on your palms. And your life is a balance, you
1:08:41
know, you, you, you. You don't want to go on the sun.
1:08:43
Like nobody wants to go on the sun anymore because they're
1:08:45
afraid of skin cancer, Melanoma, etcetera.
1:08:48
But nobody in their family has ever had Melanoma.
1:08:53
And two generations ago, they stayed in the sun.
1:08:55
Why are you worrying? About Melanoma, right, right.
1:08:58
But then you want to you want to smather.
1:08:59
Sunscreen. Right.
1:09:02
And and now you're putting cancerous.
1:09:03
Benzines on your. Skin.
1:09:04
Yeah. So let me Doctor Myson.
1:09:06
Dr. Myson, let me go. Around the deck I want.
1:09:08
To ask you what you go do, I want to ask each each each.
1:09:11
Person. Miss Richie, Miss Richie, when
1:09:15
you hear quality of life versus a cure, what comes to your mind
1:09:18
when you hear that, that comment, that conversation, what
1:09:22
comes to my mind is. Whether I should take?
1:09:27
Chemotherapy or. Not, you know.
1:09:32
Is. It going to make a difference.
1:09:35
In my survival rate and so. Or should.
1:09:40
I choose to. Have a quality of life and just
1:09:43
live what I have left. Good quality.
1:09:48
Thank you, thank you, thank you. Got me chills with that one,
1:09:51
Lupita. That's why we love her, man.
1:09:53
That is why I'm. Telling you, Lupita.
1:09:56
Quality of life versus a cure. What do you, what do you hear in
1:09:59
that in that statement? Quality of life.
1:10:04
Quality of life, for me, it is having a choice of going more
1:10:11
natural, going more into what are ancestors we're taking for
1:10:18
daily life, daily food like Doctor Maisha say, going out,
1:10:25
getting more sun, being out there out of the house more and
1:10:31
being more exposed to nature and that.
1:10:36
Curious side of that because you you you in this.
1:10:38
World of of of Doctor Sabi's you know his his proof of work and
1:10:42
and and the things that he discovered how to how to how do
1:10:45
you language that cure conversation in your work if at
1:10:48
all well-being be more in. Nature and getting to.
1:10:52
Know more Your, your, your, the herbs that God put out there for
1:10:58
us to consume every day. Every earth that is out there in
1:11:02
nature, it has something to offer us and if we just stay
1:11:07
inside the house and not go out, we will not know all these
1:11:13
amazing gifts, blessings that God put in each of these herbs
1:11:19
for our own benefit. Like, you know, it is one
1:11:22
passage in the in the Bible, it says God created all the earth
1:11:27
for to heal the nation. So what else can we discuss?
1:11:32
What else you know, is out there?
1:11:35
So we need to get more out there, get get out of the house,
1:11:39
be more nature, get to know your herbs, plant your herbs and and
1:11:46
and fruit and vegetables and eat them.
1:11:50
Don't wait to go to the store for for those those.
1:11:55
Herbs. Those.
1:11:57
Vegetables and fruit that you want to consume every day, and
1:11:59
they're full of toxins and chemicals.
1:12:03
So we have more in nature. Thank you.
1:12:06
Thank you and Doctor Daphne. When you hear this in your world
1:12:11
of of listening, what is what is quality of?
1:12:14
Life versus a cure. For you, what is that?
1:12:16
Well, I, I think it from, from my angle is looking at it from
1:12:20
a, the quality of life, you know, trying to find a balance,
1:12:23
trying to, trying to make things the best of what you have and
1:12:27
try to find a balance. The cure part is kind of hard.
1:12:32
And I know this is kind of out of out of term because we're
1:12:34
talking about you're good. The thing is with, with like I
1:12:37
work with a lot of cancer patients and you know, a lot of
1:12:41
time when they come to see me, very rarely they're at stage 2.
1:12:46
They're usually stage 3 or 4 or something like that.
1:12:49
So I get them on the path. I work with the doctors.
1:12:53
They you know, they have surgery.
1:12:55
Or they have. Chemo, whatever, and you get
1:12:58
them back to where they're, you know, before the cancer came
1:13:01
about, they're technically. They're technically cured.
1:13:07
Supposedly cured but five years they come back and says did you
1:13:12
stay on the plan well no so they they they they forget they
1:13:17
forget how they got to where they are so I'm thinking like
1:13:21
well we had you under control they just forgot so having.
1:13:26
The cure? It's a little bit different than
1:13:29
having. The the the knowledge.
1:13:30
Prior to the sickness, like I developed a health plan for
1:13:35
them. I mean, I'm pretty much giving
1:13:37
them information on a silver platter.
1:13:39
And a lot of the times they they, they forget the cancer is
1:13:43
cured. They.
1:13:44
Go. Back to the same same problem in
1:13:48
life. Now you're back to where you
1:13:52
start, so I'm. Kind of like you have to give
1:13:55
them information you. Have to give them tools.
1:13:57
Hopefully they'll be able to to use.
1:14:00
Yeah, thank you. Thank you.
1:14:01
All and in my version for the. Record quality of life versus
1:14:04
secure today, again, it's, it's having the ability more for me
1:14:09
emotionally quality of life versus secure.
1:14:12
Because if, if I could get my heart posture at a level of
1:14:16
peace in the midst in the midst of the storm, I got it to say
1:14:19
what my storm is. And if my storm is arthritis,
1:14:22
then I need to acknowledge the arthritis and the inflammation
1:14:25
and then find my piece in that. And like you say, then get the
1:14:28
information so that I can go and figure out how can I make,
1:14:31
because there are days that I'm even today like I'm, I'm on this
1:14:34
regiment with Lupita, but the, the already damaged that's in my
1:14:38
body. I've got to be OK with that
1:14:40
because that pain may never go away.
1:14:42
So yes, I feel great. I'm living life, I'm loving it,
1:14:45
but there are, I'm still in pain, you know, and I have to
1:14:48
acknowledge that part of my life.
1:14:50
So who am I going to be without the sickle?
1:14:53
Cell trade pain? I don't know.
1:14:54
I don't want to. It's already, I'm already
1:14:56
dealing with an identity crisis. So if I can accept what God has
1:15:00
given me as the trait to deliver this message and use that that
1:15:04
and I know that that affliction because I don't think anyone
1:15:07
escapes the affliction. So if I understand that I was
1:15:09
born with this sickle cell trait and that I can deliver this
1:15:13
message and I'm also going to go through all the pain and all the
1:15:17
things that come with it as a testimonial man, you still
1:15:20
believe in God and you got the trait.
1:15:21
You went through all that, yes. So if I can manage that
1:15:25
emotionally, then my cure is whatever y'all.
1:15:29
If y'all find something for the sickle cell trait that works
1:15:31
other than hydration, then let me know.
1:15:33
But today I'm OK and I'm not living.
1:15:36
I live into the future of uncertainty for Faron and if I'm
1:15:39
living into that cure way out there and they teasing me with
1:15:44
it or they saying what's coming soon, then I'm I'm anxious right
1:15:47
now. I'm depressed because of my
1:15:49
past, like I'm so emotionally challenged.
1:15:53
I might even be alive for the time by the time I cure.
1:15:55
Comes here. Because I've already hurt myself
1:15:57
emotionally, which also takes on our physicality, right?
1:16:01
And so when I understood that it's like, OK, quality of life
1:16:03
versus secure, Let me have the quality of let me have, if I'm
1:16:08
good today, I can go to the gym and shoot some baskets today.
1:16:11
Hey, I'm good today. And if I get up in the morning
1:16:13
and I'm in pain because I shot basketball yesterday, they guess
1:16:16
what, I'm cool still because at least my heart is like, well,
1:16:19
you did go to the gym. So because that internal
1:16:22
dialogue, that emotional piece, that internal.
1:16:25
Dialogue will tell. You, well, you better not do
1:16:28
that because you know what happened five years ago when you
1:16:30
went to the doctor and they said this?
1:16:32
And so now I might be fine today because I've drank enough water,
1:16:36
but my past mine, my mind says, I oh, no.
1:16:38
So quality of life versus secure for me.
1:16:41
Sometimes our languages are, as Doctor Mahisha pointed out, even
1:16:44
how I phrased it, she was like, I, I don't know about that
1:16:47
versus because hey, look, there's a spectrum and I'm like,
1:16:50
Oh, I didn't even look at it that way, right.
1:16:52
So now we get to hear even how we describe quality of life
1:16:55
versus secure. Maybe it's not a versus maybe
1:16:58
it's who I get to be and manage my mountain.
1:17:01
What is my what is your mountain?
1:17:03
Is it sickle cell SC disease? Is it sickle beta thalassemia?
1:17:06
Is it sickle cell trait? Is the RMC.
1:17:08
What is that mountain? We don't label, we don't call
1:17:11
out the mountain when then we suffer in the emotional of the
1:17:14
what the mountain is about versus actually attacking the
1:17:17
mountain and saying, OK, look doc, I got sickle cell trait.
1:17:21
I've had Rabdo I got I live in the pain 7 my inflammation.
1:17:26
This is my white cell. OK, so then what do I who do I
1:17:28
need to be and what do I need to do to take on this conversation
1:17:32
today, as she said. So I pray that people you hear
1:17:35
something for yourself. Doctor Maisha, you got people
1:17:40
here. You want to ask them some
1:17:41
questions. You want to find out some more
1:17:43
about Doctor Dad because Doctor Dabney right now man, that guy
1:17:46
right there with the whole white cell conversation and with
1:17:50
Lupita who can put together herbs that will push out flush
1:17:56
out those mucins out of the blood like.
1:17:59
When I sat. Next to Doctor Sabian 2013, like
1:18:02
next to him and he just, he went from A-Z about life and about
1:18:07
the herbs. He said, you know what's
1:18:09
missing, love? He's like 35 years later, my
1:18:13
friend's mom, we're sitting in her house and she's hearing us
1:18:16
talk and discuss about all this fight the power that be and all
1:18:20
the civil rights issues and all that.
1:18:21
She comes out of her room and she says, I don't know what
1:18:23
y'all missing over there. They're like what she says love
1:18:26
is not in the equation. Love.
1:18:27
He said, he said thirty took him. 35 years later, he realized
1:18:32
when she said that what was missing in his conversation
1:18:35
about life was love. I I want to pick up that thread
1:18:38
right there. Go ahead.
1:18:39
One of the things so as far as questions for Doctor Dabney and
1:18:44
and Miss Lupita, like I'm just. My brain is.
1:18:48
Whirling, right, because we've been hunched down in the lab
1:18:52
like we have IV fluids now. You can come to our clinic and
1:18:57
we can give you actual treatment that will help your crisis.
1:19:01
I've done that now. And you know, one lady that came
1:19:06
after she came, I got her back on track.
1:19:09
She had twins, you know, So it's like we're, we, we were in the
1:19:15
lab, you know, So my head was just buried all this time.
1:19:20
And then I had had a conversation with Miss Ritchie
1:19:23
about the educational piece. And I took, I came up, you know,
1:19:27
you go down under, you swim the whole length of the pool
1:19:30
underwater. I came up with some air and I
1:19:33
see Miss Ritchie had a conference and they were
1:19:37
teaching. And then I can find.
1:19:40
Her number on my phone, then I was supposed to text for Ron,
1:19:43
but then a patient text me, you know, So I just can't even
1:19:46
imagine what their everyone's life has been like.
1:19:49
And like, there's so much I want to know with doctor, with.
1:19:52
So with Miss Richie, I want to start with Miss Richie.
1:19:55
Yeah, I want to say first with Miss Richie, the essential
1:20:00
component more than anything else that I get from Miss Richie
1:20:05
was her approach. She didn't come in.
1:20:10
With the fight, the. Power.
1:20:11
Rosie Perez. You know, Radio Raheem, she
1:20:14
didn't come in like that. Her whole journey with Doctor
1:20:19
Mosul. I don't know if I'm saying this
1:20:20
name correctly. Doctor Massao.
1:20:24
Doctor Massao. Was.
1:20:27
OK. How much?
1:20:29
Time can you give my son and like she said, without giving
1:20:35
him something. That's gonna make.
1:20:36
It not even worth being alive and if she didn't have that
1:20:40
peaceful presence full of just love.
1:20:44
I mean, she's losing her. Son from something that everyone
1:20:47
said is benign and she's a nurse.
1:20:51
She's dedicated her life to saving people.
1:20:55
Nightingale, you know the 1st. Nurse.
1:20:58
Right. You know, she she depicts that
1:21:03
with grace and dignity and honor.
1:21:05
And I want us all to take that approach.
1:21:09
Don't approach our clinicians with you failed me.
1:21:13
How could you? Yeah.
1:21:15
Blame does not fix it. The problem is when people are
1:21:19
in excruciating pain, they're looking for someone to blame.
1:21:24
And I. Guess I want to say how?
1:21:26
Would how do we, all of us here now are in the healing
1:21:30
profession? You know, Fahran is now
1:21:34
officially a health coach. That means in the in between of
1:21:38
seeing me when they're in the sickle cell program, they're
1:21:41
going to be able to communicate directly with Fahran.
1:21:43
And if there's something medical, he's going to hit it.
1:21:45
He's going to kick it to me. Like, OK, this is they need to
1:21:48
know what herb, whatever. But in the meantime, he's going
1:21:50
to be getting their mind right and make sure they don't leave
1:21:53
the plan like Doctor Dabney was talking about.
1:21:55
Yeah, that's that missing piece. You've got to have health
1:21:59
courses. To be successful because we
1:22:01
doctors can't do it all, we need the nurses, we need the health
1:22:03
coaches, we need the herbalist. We work with an herbalist,
1:22:06
pharmacist, but she doesn't work with sickle cell per SE.
1:22:10
So I'm just excited to see what me and Lupita are going to do.
1:22:13
I mean all of us. But I want to ask us all my
1:22:17
question on the table. I'm sorry I'm so long winded.
1:22:18
I'm just so excited is how do we help our patients see the love
1:22:29
side when they're in such pain and distress and they've they've
1:22:34
suffered the medical apartheid and the PTSD of medicine is
1:22:39
whooping them right along with the sickle cell and whatever
1:22:41
other diseases they have too. How do we get them to?
1:22:45
A better. Place to accept the cure or the
1:22:50
improvement in quality of life that we're trying to bring
1:22:53
that's my question I think the important thing is to.
1:22:57
Provide them with compassion and you have.
1:23:02
To. I guess establish trust so that
1:23:06
they will. Know.
1:23:08
That they can come to you without being put on blast, that
1:23:12
they can trust you and that their information is in
1:23:16
confidence. And I've always stressed with
1:23:21
each individual that even when you're in the Valley, you do
1:23:26
have two peaks on each side. And when you're in that valley,
1:23:30
find something good and then you.
1:23:35
Know you're going to reach. The other side.
1:23:39
But it's important to not dwell so much on your pain, not dwell
1:23:44
so much on your disease, because we know you have it.
1:23:48
How can you tackle it? By changing your emotional, I
1:23:56
guess aspect of it and just basically hitting it head on,
1:24:03
you know, so that that's. So important I mean self.
1:24:05
Pity should not be in the equation.
1:24:08
Yeah. Thank you.
1:24:10
Miss Ritchie, anybody going to go next?
1:24:12
That was beautiful. Yes, thank you.
1:24:14
That was. Very.
1:24:16
Good. Anybody.
1:24:17
Want to go next? Want.
1:24:18
Me to go. You can go.
1:24:21
All right, so for me. This this is this is the.
1:24:23
Work that I had to do personally, which is why I could
1:24:26
speak from it. You've got to be able to heal
1:24:30
your past experiences. I believe that when I was able
1:24:34
to tell the truth to myself, take responsibility for my part
1:24:37
in that argument or that experience, and take 100%
1:24:41
responsibility for that relationship working and not
1:24:43
working, that then there was no more blame to the other person.
1:24:47
And then it was what? What did I contribute to this?
1:24:50
And so it's like this If if I if I if I go to Macy's department
1:24:56
store and I walk in and the person says, hey, how can I help
1:25:02
you? Do you need some support today?
1:25:02
You need some help today? No, no, I'm good.
1:25:04
I'm good. I know where I'm going.
1:25:05
Cool. OK, cool.
1:25:06
So I'm walking through Macy's. I'm fine.
1:25:08
Everything's good. I get to the another aisle and
1:25:10
someone pops out. Hey, you need some help?
1:25:12
No, I'm good. I'm good now.
1:25:14
Depends on where my heart posture is.
1:25:16
I don't got stopped at the front door and now I'm stopped in this
1:25:19
second aisle. So now am I going to go to are
1:25:22
they following me because I'm black or are they helping me
1:25:26
because I'm in the store? That's and that's their job,
1:25:28
right? So those are two perspectives
1:25:30
that I could take. So now I'm I'm continuing on.
1:25:32
I get to the men's section and I'm looking for some clothes and
1:25:34
another person pops out and says, Hey, you need some help.
1:25:38
Now by the third time I'm either going to get frustrated like no,
1:25:42
I don't need no help. I'm fine because now I'm
1:25:44
thinking, Oh, they are watching me now because I'm black.
1:25:47
They trade they've they've seen what I'm doing or I'm like, no
1:25:50
ma'am, I'm good. Thank you.
1:25:52
So now I do all that. I go home and I tell my friends,
1:25:55
man, I went to Macy's today, bro.
1:25:58
They was following me around the store all day.
1:25:59
I weighed every go down one hour they pop out over here, tell me
1:26:02
do I need some help? I go over here to ask me.
1:26:03
I need some help, man. I think Macy's is racist, man.
1:26:06
I think Macy's got a problem. They don't like blacks, bro.
1:26:08
I don't even know. I wouldn't be aware when you go
1:26:10
to Macy's because they follow me around the store.
1:26:12
So now guess what my buddy's going to do?
1:26:14
They're going to go to Macy's to see if they get followed to see
1:26:17
if the Macy's races. Well, guess what?
1:26:19
Of course they they will say, oh, how can I help you?
1:26:21
Oh, how can I help you? Oh yeah, from you was right,
1:26:23
man, they was racist and Macy's, man, they followed us around the
1:26:26
whole store. Come on, What did I just do to
1:26:28
my friends? I just corrupted their
1:26:31
experience of Macy's when at but Macy's they're that's what
1:26:37
they're they're they help me to help to help you find your way
1:26:39
to the store. So when I in that example, it's
1:26:43
up to us to heal our past experiences.
1:26:46
And I've been in this community only for 16 years, but I've
1:26:49
heard so many of my friends say I don't want to go to the doctor
1:26:53
because they treat me like I'm on drug seeker or I don't want
1:26:56
to go to the doctor and because they treated me like this the
1:26:58
last time. And my last point is I had two
1:27:02
women on my show, on my blog talk show back in the day and I
1:27:07
bought them on and they were both in the hospital live.
1:27:10
They're both live in the hospital and we're talking about
1:27:15
hospital. Experience.
1:27:17
And guess what, They are going off on my show about the
1:27:20
hospital experience and all of a sudden my mind says, Ron,
1:27:25
anything in the hospital? Yeah, ask him how tall the
1:27:29
treatment is right now. Hold on, ladies, are both y'all
1:27:31
in the hospital right now? Oh, yeah, we in the hospital
1:27:34
right now. How's your care right now?
1:27:35
Oh, it's great. They're taking care of me.
1:27:38
It's busy. And I was like, so hold on time
1:27:40
out then. Are we are we are are we
1:27:43
discussing the hospital visit from when?
1:27:45
Five years ago? So you're, you're in the
1:27:47
hospital, right? Now.
1:27:49
Getting. Perfect care and we're on the
1:27:52
radio talking about hospital care and how bad it is when you
1:27:57
are currently in your hospital bed having great care.
1:28:01
But So what I saw was I go to the hospital, I got 10 visits, 4
1:28:07
are not good. But the six?
1:28:09
Were excellent care, but I'm only focused on the four visits
1:28:13
that were the worst. That does not make sense to me.
1:28:17
That does not make sense to me. So what I saw?
1:28:19
For myself. Was that's an emotional fracture
1:28:23
that I don't want to go to that doctor because the last because
1:28:26
because the past, because the stuff that I'm carrying from the
1:28:30
past is now depicting. If I want to go this time, how
1:28:35
can I show up to the hospital? Like this is the first time?
1:28:37
As Miss Richie was saying, we have education, we have
1:28:40
curriculum that we can sit with you, take you through this
1:28:44
process and guess what you get to do?
1:28:46
You put the past out of the future back into the.
1:28:50
Past and now. Your next visit to the hospital
1:28:53
is like your first visit, but we don't realize that we can
1:28:56
actually do that work to heal our heart posture.
1:29:00
And now I'm going to show up like it's the first time.
1:29:03
This is the first time, right? If it's not the first time, but
1:29:06
you can show up like it's the first time emotionally, right?
1:29:10
And, and to me, that's the biggest piece for the work that
1:29:14
I want to contribute to this conversation because if we tell
1:29:19
the truth. We tell the.
1:29:21
Truth. A lot of us live in the future
1:29:25
of I don't never want to feel that again.
1:29:26
I don't never want to experience that again.
1:29:28
And with our sickle cell community directly, you don't
1:29:32
know if that's going to be that final crisis.
1:29:34
We, we hear people say I'm going to wait.
1:29:36
I'm, I'm, I'm just, I'm going to, I know I should go to the
1:29:39
doctor, but I'm going to wait till the last minute.
1:29:41
But we, you don't know what you're doing to your body, wait
1:29:44
till the last minute all because they treated you crazy five
1:29:48
years ago. So.
1:29:52
For me that's. That's got to be at the
1:29:54
foundation of our conversation is how do I be, how can I show
1:29:58
up to this doctor's office with, with confidence as as Miss
1:30:03
Richard said, trust well before trust because we don't trust
1:30:06
everybody 100%. So, but how can I give a level
1:30:09
of confidence to this doctor and this nurse to treat me how I
1:30:13
show up? If I show up with patience and
1:30:16
kindness and frustrated or frustrated, then I'm going to,
1:30:19
I'm going to get what I'm giving.
1:30:20
That's that fruit. And so I really believe that we
1:30:23
can have with our community, have a conversation in a form
1:30:27
or, or one-on-one coaching. How do we, what is your, what is
1:30:31
your fear about the hospital? My fear at the gym is that if I
1:30:36
go to the gym, the gym's going to kill me.
1:30:39
That's how I that's how I looked.
1:30:40
At the gym because of my collapse.
1:30:42
With the Rabdo, it wasn't until I got into therapy that they
1:30:45
they heard me say that. And like Ron, does the gym have
1:30:49
a knife at the door waiting for you to?
1:30:51
And I'm like, you know what? No, but how I described the gym,
1:30:54
it's like the gym had a knife. And if I went to the gym, I'm
1:30:57
going to, it's going to. And it was like my my language
1:31:01
and my views of the gym had me afraid to go to the gym.
1:31:06
And I believe that's. Replace that gym with.
1:31:08
The doctor or this or that. And I believe for me, as Miss
1:31:12
Ritchie said, I don't trust the bank teller with my when they
1:31:16
give me my money. You recount that.
1:31:18
So is it trust or do? We need a little confidence and
1:31:23
if I have confidence in. Myself that you can take care of
1:31:26
me, then I'm going to give you 50% of my confidence because
1:31:29
that's all I have about myself. If I got 50% confidence in
1:31:32
myself, then I can only give 50% confidence out.
1:31:35
So we got to be able to measure ourselves.
1:31:37
We got to be able to talk to the talk that out instead of
1:31:39
suffering in silence and that wait until that last minute and.
1:31:43
I I don't say that. We lost my friend that way but
1:31:47
she didn't go to the doctor and they they told her to wait and
1:31:51
and when and when and at the end of the night she that she didn't
1:31:55
make it that was. Because I was a normal no,
1:32:00
don't, don't. Go to the hospital because they
1:32:01
ain't going to tell you they ain't, they ain't going to take
1:32:03
care of you. And we passed that on to our
1:32:06
community. We passed that on in the
1:32:09
conversation. All you got to watch, watch out
1:32:10
for them doctors, because they ain't, they ain't going to take
1:32:12
care of you. Now how do you tell the?
1:32:15
Family How do you tell the. Family that's just about to have
1:32:18
a baby that they find out that they're going to have a baby
1:32:21
with sickle cell and now they go to the support group and the
1:32:24
conversation and support group is beware of this ape.
1:32:27
It's you already. We already planted that seed of
1:32:29
fear in that family already before they even get to
1:32:32
experience their own doctor, because they're going to show up
1:32:35
guarded with, well, my, my community says you're not going
1:32:38
to take care of my baby. So I'm already guarded.
1:32:42
I'm already offended. That's my part, Doctor.
1:32:47
Dasney, Dr. Dabney. Yeah, I'm just listening.
1:32:50
To this conversation. Pretty.
1:32:51
Heavily, one of the things that I do, I know a lot of doctors
1:32:55
don't, don't do this. Maybe they should, but I hear a
1:32:59
lot of static with, you know, the the doctor and their past
1:33:06
relationships and stuff. Well, you, you communicate.
1:33:11
Oh yeah. You communicate and I was like,
1:33:14
well. I.
1:33:14
I that's what I'm supposed to do because no, you spend more time
1:33:18
and I says, well, I, that's part of my practice.
1:33:21
I know everybody doesn't do it, but one of the things I do try
1:33:24
to teach them is ask how to ask questions.
1:33:31
I mean, you know, I. Take out a lot.
1:33:33
Of the medical terminology and when you go into the doctor you
1:33:36
know make sure that you're asking the right questions
1:33:40
mindful that his doctor has 1520 minutes you've got 10 questions
1:33:45
but you need to narrow it down to at least the top three and
1:33:48
this is how you approach it this is how you.
1:33:50
Ask. And that kind of breaks down the
1:33:53
barrier and gives them more confidence of going to the
1:33:56
doctor. And as a don't, you know, don't
1:33:58
take no for an answer. If you're not comfortable with
1:34:01
their response, then maybe you should see some someone else.
1:34:05
But at least I'm offering them a tool or some tools to make them
1:34:08
feel more confident on doing that.
1:34:11
So I mean I. Mean that's just one of the
1:34:14
things I. Like to do, I do like to
1:34:15
communicate with them, make them feel comfortable, you know,
1:34:20
Thank you. Thank.
1:34:20
You and. That again, we talk about
1:34:22
communication sure, sure. Yeah, yes, I I want to pick up
1:34:26
on that piece that. That.
1:34:27
The doctor said right there, that's the key, and I find that
1:34:32
that's the key to helping a patient be compliant is when you
1:34:39
actually just listen. And I'm pretty sure Doctor
1:34:42
Dabney does what I do. I literally sit down and they
1:34:47
did studies. If we sit as.
1:34:49
Doctors as healthcare professionals, you sit down,
1:34:54
right? So do you.
1:34:54
Sit down. So that they feel like I do a
1:34:58
lot of. Telemedicine.
1:34:59
So I am I am sitting down, but you're sitting down.
1:35:02
But when I did have my own. Office.
1:35:05
That was one of the things that I that I'm gonna read the
1:35:07
studies that, that they sat next to me.
1:35:11
I didn't have a desk. My desk, my office was small, so
1:35:14
I couldn't have they had to sit next to me.
1:35:15
So they sat next to me and I sat next to them and we're on the
1:35:19
same level. Some doctors will sit.
1:35:22
There away you. Know they're they set up a Berry
1:35:25
their. Desk is the Berry or.
1:35:27
Or there's the patient sits and they and they're on a higher
1:35:30
level that sets up in a negative tone.
1:35:35
At least that's what the studies.
1:35:36
And I'm pretty sure a lot of patients don't like it.
1:35:37
So I had them sit next to me and I'm looking at them.
1:35:40
They have the questions and that's how I did in the past.
1:35:43
So beautiful. Thank you so much.
1:35:46
Do you do we So we're like you're a good doctor The.
1:35:48
Way we set it up, it's no insurance, it's a membership
1:35:51
model. So we are actually only working
1:35:56
for the patients and that way. We can.
1:36:01
I mean, I've had visits 2 hours. I mean, I don't think that's
1:36:06
probably best all the time we'd. Like to keep it 30 minutes to I
1:36:12
know. But you know, we can do.
1:36:15
That, you know, we can. Do that because of.
1:36:17
The way we're, we're not owned by insurance in this in this
1:36:21
space. So what you know, and that's why
1:36:26
we can say, OK, we're going to give everybody 15 minutes
1:36:30
whether you're part of us or not.
1:36:32
Yeah. And I feel like if.
1:36:34
If people. Can tell their story.
1:36:37
Yeah. Everyone has a story to tell.
1:36:39
And I'm like you, I hear so many patients say no one's actually
1:36:44
ever listened. Yeah.
1:36:46
Or no one's ever explained. This to me.
1:36:49
Before I heard that about 10 times today.
1:36:51
Yeah, I think I saw 24 patients today and I at least 10.
1:36:56
Of them said no. One's ever like, just heard me
1:37:00
out. Yeah, you know, 'cause I really
1:37:03
feel. What you're saying?
1:37:04
And because when you can hear people out, you can take the
1:37:08
fear out of it and put understanding in.
1:37:13
It's and I worked for. You know I worked for.
1:37:17
A company. I still do it, but The thing is
1:37:22
they. Put you on this clock.
1:37:24
You know. Make a knock on the door.
1:37:27
Saying you know you're. 510 minutes over whatever and I was
1:37:31
like, you know, this is not something that.
1:37:33
That's. I, I originally started my own
1:37:35
practice, you know, that's what I did.
1:37:36
So I'm used to budgeting my time, managing my time.
1:37:39
No, sometime I'm like, yeah, I did go over, but in the long run
1:37:43
it was well worth it because I got a lot more information in
1:37:46
that, in that block of time. But I do understand your
1:37:50
upsetting the balance stuff seeing other patients.
1:37:52
But. Usually it's the patient that
1:37:54
really need it the most. Those are the ones you spend a
1:37:56
lot of time with. Exactly.
1:37:58
Yeah. So it's not all.
1:38:00
It's not all, it's not all bad. I'll make that time.
1:38:02
Up and they'll say well I can't really afford this extra time I
1:38:06
said well we'll. We'll figure it out what this
1:38:10
is, what I'm. Going to do, don't really worry
1:38:11
about it and they usually like that approach.
1:38:13
Because. They're always thinking we're,
1:38:16
you know, gouging them for time and you know, whatever.
1:38:18
I was like, no, I'm not gouging. I'm trying to get this
1:38:21
information out of you and this is the best way I can do it.
1:38:24
So it it overall, it works out pretty well.
1:38:27
Thank you so much, Lupita. I know you.
1:38:30
You're. In the community, you got the
1:38:32
medi lab and and we're looking to definitely come up there and
1:38:35
do a lot of more work in the lab.
1:38:38
And so you deal with patients, you see people you know.
1:38:42
What's your view on that take of just that relationship and what
1:38:45
do you see? I see.
1:38:49
You know the. The the patients, they are in
1:38:54
need of being heard. A lot of people that's, that's
1:38:59
sometimes what it is like when they go to see a doctor.
1:39:05
They just need to be hurt. And if you give them 1015
1:39:10
minutes of just listening, it is very healing for them.
1:39:16
It is very healing for them. It has happened with, with so
1:39:21
many people, even with Pharon. Sometimes we just like start
1:39:25
texting and like can, can can we call and we're spent 2-3 hours
1:39:30
on the phone just talking. And by the end, you know, we, I
1:39:34
feel that I learned so much from from him and he just like when
1:39:40
he hung up, he said, thank you for listening to me.
1:39:43
So, you know, we all need that space where we can just be heard
1:39:51
and, and that can be some kind of healing too.
1:39:56
And I think, you know, we are here, the five of us can agree
1:40:01
on that and, and, and we are willing to do a lot of that part
1:40:06
of just listening to to people or each other.
1:40:11
And after that, we can. See what else, what treatment or
1:40:18
what is the other way how we can.
1:40:23
Help them. Yeah.
1:40:25
Thank you, Thank you. Thank you.
1:40:27
Miss Richie. Anything you want to say before
1:40:29
we get out of here, we're going to kind of go around one more
1:40:32
time around. If I missed anything that you
1:40:33
wanted to say that you wanted to share what you up to your
1:40:37
organization information, whatever you want to share,
1:40:39
well, not really. I'm just happy to be a part.
1:40:42
Of this group and see Doctor Maisha and Dr. Daphne and
1:40:46
Lupita. I just think it's it's great
1:40:49
things for. Ron, that you're.
1:40:50
Doing and I appreciate you allowing me to be on your
1:40:54
platform and I see a future where we will continue to be
1:40:59
warriors and fight until we are heard until we're heard that
1:41:03
that's it that's. It thank and thank you Miss
1:41:05
Ritchie for taking time out again.
1:41:08
I can't we can't have this conversation.
1:41:10
We still missing at least two more pieces of the puzzle,
1:41:12
Doctor Austin and Doctor Randolph for me.
1:41:15
And so just just because there's so many aspects.
1:41:21
Of sickle cell trade. In you, we all, it's beautiful
1:41:24
because we all we don't overlap each other.
1:41:27
Everybody fits in their conversation and it's like
1:41:30
there's no competition. It's like, oh, I could speak to
1:41:32
this, but you can speak to that and I could.
1:41:34
And now we just come together and everybody gets to share
1:41:36
their stage and share their story and share the impact and
1:41:39
what's missing. And people walk away with so
1:41:42
many. Like we did the conference here
1:41:44
in LA and it was like, that was one of the nicest conferences
1:41:48
that I, that I've experienced in a long time.
1:41:50
And I've been doing conferences for 16 years almost at least.
1:41:55
And but that one was like, and you moderated it and it was just
1:41:58
like, oh man, like this was, this was, it was good.
1:42:02
Like it was a really good. Experience.
1:42:04
I thought that too. I I I didn't think it just.
1:42:07
Because I was the moderator. Well, of course not, I thought.
1:42:12
It was really. Really great.
1:42:14
It was and and so we're we're like.
1:42:16
OK, how do we have our, how we have a sickle cell trade.
1:42:19
We, we've attempted it, but we really need to have our own
1:42:22
sickle cell trade conference, our own, our own inherited genes
1:42:26
conference so that people can come and listen, ask questions,
1:42:31
share their story. Like, like, like I'm learning
1:42:33
about my teaching. I don't want to talk at people,
1:42:37
I want to talk from from. Life and allow.
1:42:40
People to ask you OK, what? What do you want to talk about?
1:42:42
Let them ask the questions because that's what they're here
1:42:45
for. A lot of people just go speak at
1:42:47
people and then you go home. It's like they didn't get they
1:42:50
didn't get heard. Yeah, you talked at me, but I
1:42:53
don't know if it's. And if it's got to be a small
1:42:55
group of intimate conversations, I'd rather have a bunch of small
1:42:59
conferences then 1000 people and they don't get the chance.
1:43:03
To talk to us. They don't.
1:43:04
Get the chance to say what they actually need and why they came
1:43:06
here. So I tell people, yeah, you
1:43:09
might want a big conference because it looks good on cameras
1:43:12
and on films, But small groups are just as effective.
1:43:17
I take 10 people before I take 50 people that walk away.
1:43:20
Like I didn't get a chance to say nothing.
1:43:23
Like, that's my view on that. And.
1:43:24
So how we build? Our conversations and we, we've
1:43:27
been chipping at it a long time as as a group and that
1:43:30
individuals. But now it's, it's time for us
1:43:32
to take that stand and, and, and carve our own way out so that
1:43:36
people can come to us in the different aspects of sickle cell
1:43:40
training. Find, ask what they need, find
1:43:43
out how they can get the help and then walk away with, Hey,
1:43:47
you know what? They, they, they heard me and I,
1:43:51
I got something I could take away that I can improve my
1:43:53
quality of life. Doctor Dabney, man, you got to
1:43:57
come back, bro, because sure, we, we got, we got to peel these
1:44:00
white cells off, bro. We got to, we got to go to
1:44:02
another level of the white cells because Lupita is, is
1:44:06
inflammation, right? One of the things The thing is
1:44:09
about you, you were talking about your level of this, this
1:44:12
is for anybody really. But level of pain that is your
1:44:16
pain coming from after you've exerted yourself, like playing
1:44:19
basketball or is it just pain that just is it just there all
1:44:23
the time or do you notice after you getting sick?
1:44:27
I mean, what is the, I guess the pattern I'm trying to figure.
1:44:30
Yeah. So I, I, I, I how I language it
1:44:33
is after I had that rhabdo, my rhabdo experience, the skeletal,
1:44:37
muscular and joint damage that I experienced from that that had
1:44:40
that pain never gone, has never gone away.
1:44:43
Well, it's like a scarring situation.
1:44:45
The. Reason the.
1:44:47
Reason why I was. Asking.
1:44:49
Remember, we are I talk so. Much about too many a.
1:44:52
Lot of people I may have had this conversation, but I'll make
1:44:54
this short. A lot of the times when your
1:44:56
muscles have been damaged and you don't, I mean, you can maybe
1:45:00
heal it, but. If you don't give it the.
1:45:02
Proper nutrients that you need. It's a, it's a vicious, it's a
1:45:07
vicious cycle. And one of the things while I
1:45:09
was getting that is if you're not, if you're not supporting
1:45:12
your muscle health like vitamin D takes care of that.
1:45:16
It's it's supports the muscle or if you're not getting enough
1:45:22
things that produce the. Energy.
1:45:23
Like the ATP that you would need or the potassium that you need,
1:45:28
or the B12 that you need to produce that energy.
1:45:32
So we've talked with this before where the energy is the key.
1:45:36
If you don't have enough energy, your cells, in this case the
1:45:39
muscle cells are not, they're not doing anything.
1:45:41
They're just sitting around. Body doesn't like that.
1:45:43
Well, if you're not doing anything, it'll just slowly get
1:45:47
rid of you, you know? So that's what I was thinking
1:45:50
about. You may.
1:45:51
Not. Be you're taking care of
1:45:53
yourself, but you may not be giving yourself what you need
1:45:55
to, to generate to to heal right.
1:45:58
And that's why I went to Lapita 'cause I'm like, OK, what else?
1:46:01
What is getting some help doing some herbs and whatever that
1:46:05
means to to support those well support yourself could be a
1:46:09
muscle and then my tray pain and then so I.
1:46:12
Have tray pain in my. Arm right.
1:46:15
And so I understand that that could be over time because
1:46:17
that's been since I was 2 years old.
1:46:19
I think I'm we have talked about before.
1:46:21
And I think. Everyone kind of this is
1:46:23
important for everyone, is that there was a sickle cell person I
1:46:28
was working with. She led me to a conference and
1:46:30
she told me, hey, somebody, one of your patients told me about
1:46:35
you and was like, what are you talking?
1:46:36
About. Well, you told him to take a
1:46:37
sublingual B12. It was folate, a methyl B12,
1:46:41
methylfolate. It was like, who was this?
1:46:43
I don't remember their name, but they remember you.
1:46:45
And he says they hadn't had a crisis in a long time.
1:46:48
I was like, oh, and I kind of knew that, but I wasn't
1:46:52
expecting to be called out. On it but.
1:46:55
One of the things that, you know, the trade doctor was
1:46:58
talking about that I had the same experience, like same.
1:47:02
Thing of a methyl. B12 methylfolate woman had
1:47:04
pregnant, couldn't get pregnant before.
1:47:07
Right. She couldn't get so once I also.
1:47:10
Only. Thing I said to.
1:47:11
Her to do, she was another foreign country and she had
1:47:14
tried for years. And I said well, maybe there is
1:47:16
a methylization problem. You're not methyl like MTHFR
1:47:21
mutation. I didn't know she couldn't
1:47:23
afford a test. She's in a foreign country,
1:47:25
don't even do it. So I said just take these and
1:47:28
hopefully this works. A year later, I get a phone call
1:47:31
on Christmas Day. And.
1:47:33
She goes, congratulations, We're we're pregnant.
1:47:37
Wow, we're pregnant. I what?
1:47:38
Do you? Mean.
1:47:41
What do you mean? We she's.
1:47:43
Going to. Let me know that they had their.
1:47:45
Their. First child she had Dante's
1:47:47
doctor. So anyway, the point I'm making
1:47:49
is supporting the health of the different things that supply the
1:47:53
energy. Without the energy, the the cell
1:47:55
or muscle or tissue is not going to work.
1:47:57
It's it's going to toss it. Yeah, I love how and I love how
1:48:01
do we did have. That.
1:48:02
Conversation about, yeah, I couldn't remember what need and
1:48:05
what and what triggers that vitamin D to express, you know,
1:48:09
it was, it was K12 or something, something you were talking
1:48:12
about. You need DD3K2.
1:48:14
Yeah, K. Two.
1:48:15
Yeah. But the key.
1:48:18
Is the activation part you need, right?
1:48:20
That's part B6 and zinc, right? And you know this vitamin D you
1:48:25
get? From the Sun.
1:48:27
Or the supplement to your food is not activated and oh, you've
1:48:30
got to have to to move the council around.
1:48:33
But anyway the. Point is.
1:48:35
People are put them on 50,010 thousand I.
1:48:39
Use. And.
1:48:39
They're coming up with muscle cramps, muscle problems because
1:48:42
there's too much calcium floating around and not.
1:48:45
Being. Redirected right Madness is just
1:48:51
no. Again, that's that's the
1:48:53
conversation. That our community needs to
1:48:55
understand because if they understood that you would change
1:48:59
your diet, you would not eat what you eating because
1:49:02
seriously, there was nothing coming out of.
1:49:05
That food for that. Cell to breakdown and diffuse
1:49:08
this over here and take this over here and drop this amino
1:49:11
acid over here because it needs to go this way like if you don't
1:49:14
have that to deliver right well, The thing is I was the I was.
1:49:18
Leading up to. The vitamin D I know we didn't
1:49:20
talk about this a lot but the mast cells are controlled and
1:49:24
modulated by vitamin DI. Think I mean vitamin D is a lot
1:49:28
of. Stuff but it it it.
1:49:31
Calms the modulation of the immune.
1:49:33
Cells it. Calms.
1:49:33
Them down. To to.
1:49:35
And there's a vitamin. C.
1:49:39
There was vitamin D, There's another one, quercetin.
1:49:42
I know a lot of people have heard quercetin very important
1:49:44
and this is the season. Where everyone I know doesn't.
1:49:48
Everybody should be taking. It right now.
1:49:50
Yeah, I just had a Covic case today.
1:49:52
Yeah, so first one of the season.
1:49:55
So so. So we're saying this and we're a
1:49:58
lot of people are doing. It in their practice and they're
1:50:00
they're doing it. It's just getting the
1:50:02
information out there to does that support just sickle cell
1:50:06
sickle? Trait just just support.
1:50:08
General health since this is Tuesday's and stuff like that.
1:50:11
So I just want to point that out and and though they're like I
1:50:14
said, there are other red blood cell conditions as well that
1:50:17
people live with not just sickle cell trait thalassemia, C trait
1:50:20
OA wrap. So right so I I see this a lot.
1:50:24
And I work with a. Lot of different patients, I
1:50:27
work a lot of mystery cases and no one, nobody doesn't can solve
1:50:31
them. And I said, well, I'll take
1:50:32
them. And I learned so much from those
1:50:34
patients because of the of nobody was like like nobody
1:50:37
really wants them. I'll take it.
1:50:39
And that's exactly. What I do I can.
1:50:42
Do it in a week. Sometimes it may take me months,
1:50:45
sometimes I took a lady. About five years, but I was able
1:50:47
to figure it out. Wow.
1:50:49
And and and and is is that? Listening.
1:50:51
Yeah, you. Got to listen back to.
1:50:55
The. Lab.
1:50:56
Yeah, yeah. So we're a lot of like.
1:50:59
Pizza I'm. Just amazed like I'm sitting
1:51:02
here. Amazed, I know I'm so lonely out
1:51:06
here, Lupita. Anything.
1:51:09
You want to. Say that I've missed that we
1:51:10
want. To, you know, just express to
1:51:12
the people and and I just want to ask you a question just took.
1:51:16
A few vaccines to go in your preparing your body to go on a
1:51:21
trip. So I want to know what was your
1:51:25
before you were scared to take the vaccines and what was your
1:51:30
what? Was your experience?
1:51:33
So I I I end up taking the 2. I got the yellow fever.
1:51:35
And the typhoid and, and so those I, I, I went for the
1:51:38
mandatory ones that I could get in the country and get out of
1:51:41
the country with. So I went for the, the mandatory
1:51:44
was really only, well, it's three, the, the yellow fever,
1:51:47
the typhoid and I got the malaria pills.
1:51:49
So I have to take the malaria pills before I leave, while I'm
1:51:51
there. And then a week after I get
1:51:53
back. Malaria pills scare me because I
1:51:56
don't, again, I don't have all the information about sickle
1:51:58
cell trait, but it makes it doesn't make sense to me to take
1:52:00
malaria pills because it's not going to trigger my trait, you
1:52:03
know, So I have all that fear, but they said, no, this is not
1:52:06
that. They're just going to be another
1:52:07
added protective blah, blah. So I'm like, OK, I'm cool with
1:52:10
the malaria pills. I'm not going to fear taking
1:52:12
those. But I did have a little concern
1:52:14
about the yellow fever because that was live in the typhoid,
1:52:17
But I took them and I, I, I, I want to say I'd end up having a
1:52:22
fever. I did deal with a little bit of
1:52:25
fever and then I had a couple day, half a day of soreness in
1:52:29
my arms. But I, I was, I was watching, I
1:52:32
was paying attention. And besides the heat, besides
1:52:34
the little fever and how I feel a little groggy, a little tired
1:52:37
that when that next day I kind of slept half the afternoon.
1:52:41
But Nah, I'm good, I'm good. And I, and I appreciate you,
1:52:45
like I said, working with me. And then again, we're talking
1:52:48
about whole health and I just talking about your, your, your
1:52:52
feeling of your body, but your mental, your emotional, your
1:52:56
physical, like spiritual, like all of that.
1:53:01
I've, I have 16 years. I've been at each one of those
1:53:07
and and the most recent one was my physical because I've I've.
1:53:16
I've done this. I was doing the spiritual work
1:53:18
so. At first I was doing the, the
1:53:20
emotional and, and mental health.
1:53:22
So I was feeding my soul, right? I'm feeding my soul.
1:53:25
If I got better, I'm, I'm alive. I found radio.
1:53:28
I found all these things to put in place of not interrupting and
1:53:31
willingness to die, right? Because of my, my fear that life
1:53:35
was over. And then I got into, back into
1:53:37
church the last seven years. And as I, and as I've done that
1:53:41
work started at 40 years old, I was able to go back in time and
1:53:45
I started looking at the decisions and the stories that
1:53:48
were in my mind, the stories I made-up about my dad.
1:53:51
That he didn't love me. The story I made about my mom
1:53:54
abandoned me. There was a story I made it
1:53:56
between my mom and my grandmother at two years old
1:53:59
that I that I how does how does a 2 year old mind land on that
1:54:03
I'm unsafe and I'm lost in. Relationships.
1:54:07
Between my mother and my grandmother and the emotional
1:54:12
piece was I never, ever, ever want to feel that pain again of
1:54:17
disappointment at all cost now that all cost of avoiding
1:54:24
disappointment 16 years later here in my house, I'm sitting
1:54:28
there and I'm eating and watching TV.
1:54:31
And a friend of mine took the classes that I took.
1:54:33
So we're speaking the same conversation language.
1:54:36
And she took the second course and she says, do you remember
1:54:38
what your, your act was? And I'm like, well, you know
1:54:41
what my ACT is? I, I did that class twice over
1:54:45
the over the last 16 years. I said, but I know my stuff is
1:54:48
still around. I'm not good enough, I'm not
1:54:49
worth it. So that's my, my self talk was
1:54:53
I'm not good enough and I'm not worth it.
1:54:54
No matter what you see me do, no matter all the stuff you see
1:54:57
these shows, there's times that I sit down and by myself and,
1:55:01
and, and I'm like, you know what, you know, you're not good
1:55:04
enough. You know, you're a fraud.
1:55:06
If somebody finds out that you're not good enough, why
1:55:07
would they want to be a part of your stuff?
1:55:09
Why would they want to work with you because you're not good
1:55:11
enough? You know, you're not worth it.
1:55:12
And so that has been myself taught since I it's not I can
1:55:15
think, right? And so she says, well, you know
1:55:18
what? The command, the ACT is a
1:55:20
command where we say something to ourselves to protect our
1:55:24
emotional state. But as a child, and I'm like,
1:55:28
oh, OK, you know. I, I I don't remember.
1:55:30
What my command was, but I, I OK, thank you that, that the
1:55:35
rest of that day, my middle mind was like searching my heart or
1:55:41
my command because I knew I took the education.
1:55:43
I knew I took that class twice. So I know I, it's in there.
1:55:45
I just got to remember what it where it was.
1:55:47
Well, all day. I'm looking for that, that, that
1:55:50
command of what was mine. What was mine?
1:55:52
OK, then OK. But my first mind, I'm like, I'm
1:55:54
having a good day. I'm doing my thing.
1:55:56
Everything's cool. I'm just having a great, great,
1:55:58
great day. My subconscious mind quiet, no
1:56:02
background noise at all. And then all of a sudden my, my
1:56:07
middle mind says, oh, remember what your mom said?
1:56:09
Your mom said, if you want to know about the strongholds and
1:56:13
why people behave the way they do, go back to the fall of
1:56:16
Genesis with Adam and Eve and, and, and the fall.
1:56:21
So I'm like, Oh yeah, I remember that.
1:56:23
So, OK, so I know for me, I've discovered that I live from
1:56:27
avoiding shame, embarrassment and disappointment.
1:56:31
Those were the things that I discovered about Fahran.
1:56:33
I'm living avoiding those, right?
1:56:35
So I discovered the shames, I discovered the embarrassments.
1:56:40
And then my mind was like, oh, is it disappointment?
1:56:44
And all of a sudden my subconscious mind is like, no,
1:56:49
no, who are we going to be for? Not good enough?
1:56:52
Who are we going to be for? Not worth it?
1:56:53
Because that's been myself talk, right?
1:56:55
I've been protecting myself from that conversation and when I
1:56:59
heard that, Oh my gosh, I'm like what is going on in my head now?
1:57:03
I'm watching TV and I'm hearing this conversation in my mind of
1:57:07
my 2 minds battling each other telling me that we're going to
1:57:12
be not good. Enough, and my other mind is.
1:57:14
Like, oh, I think we found it, this disappointment.
1:57:16
Yeah, remember, because of the two year old.
1:57:18
And so I played back all the stuff that I discovered the last
1:57:21
16 years. That point pointed me back to
1:57:24
that childhood decision between my mother and my grandmother at
1:57:28
2 years old and the identity living from.
1:57:31
I'm unsafe in relationships, I'm lost in relationships, and I
1:57:35
don't want to experience being disappointed.
1:57:38
Now, Can you imagine what a life for person is since they're two
1:57:42
years old to 56 years old? 54 years of living, avoiding
1:57:48
disappointment and I'm unsafe in.
1:57:49
Relationships and I'm. Lost in relationships, it was
1:57:52
like, well, no wonder in my life turned out the way it was.
1:57:56
But the biggest thing was, the biggest thing was.
1:58:00
Was when? I saw that and I heard my voice
1:58:03
say that and I'm crying. My mind says OK, we got to stop.
1:58:08
Crying for a while, you got to call.
1:58:10
Somebody you got to because I couldn't stop crying.
1:58:11
I couldn't stop crying and I'm like you got to call somebody my
1:58:14
mind and I'm talking now the third, my first mind is like you
1:58:17
stop crying, get composure of yourself, call somebody.
1:58:20
My middle mind is like yeah, we founded this disappointment.
1:58:23
My subconscious mind is like no, no.
1:58:25
And I'm like what is going on y'all?
1:58:27
And so I tell myself, OK, stop crying and come on.
1:58:34
In my subconscious mind it says the only way you're going to
1:58:37
stop crying is if you take your life.
1:58:40
The only way you will stop crying.
1:58:41
Is if you take your life, that's.
1:58:43
What my subconscious mind said to my first mind and my middle
1:58:47
mind says what? Oh, no, we're not doing that.
1:58:50
We got church, we got advocacy, we got basketball, we got blood.
1:58:54
You a grand. It's like it ran down all of the
1:58:57
stuff that I've been taking in, from church to the mental health
1:59:01
classes to the grief counseling, all of that.
1:59:04
It's like God's armor. It was deflecting myself, trying
1:59:08
to tell me to take my life, to stop crying.
1:59:09
And when I went through that process, I called my mentor
1:59:13
Caldwell. He's like frying you in the
1:59:15
battle with your mind. I'm like, OK, I had to call
1:59:17
somebody from church. I called my prophet from church,
1:59:20
brother, you in the spiritual battle with your mind right now.
1:59:23
And so our point is to be able to go back.
1:59:28
And to. Discover those childhood traumas
1:59:34
when I when. My middle mind says we not doing
1:59:37
that. That's not an option that the
1:59:39
I'm not good enough, I'm not good and that voice is gone.
1:59:45
I got a level I. Got a level of confidence?
1:59:48
Back I'm free. It's like and I and I equate
1:59:51
that Lupita to her because we know that in psychology, the
1:59:56
body keeps the score. There is a conversation that the
2:00:00
body keeps the score. So I that night I released that
2:00:03
those that crying was from that 2 year old child that I've been
2:00:07
holding onto that I suppressed to to and I use.
2:00:11
I never want to feel that disappointment.
2:00:13
But guess what? I've lived 54 years.
2:00:19
Avoiding. Disappointment and then still
2:00:21
disappoint people and then I'm still disappointed.
2:00:23
So I never avoided disappointment, but that's the
2:00:27
psychological. The mental health.
2:00:29
Conversations that in the, in the work that we're doing with
2:00:32
our community, we have to be able to have those kind of
2:00:35
conversations because how can we deal with our past?
2:00:38
How can we deal? Can you imagine our a person
2:00:41
living with I'm a burden on my family?
2:00:44
Exactly. Can you imagine?
2:00:47
That I'm a burden on. My family And you've been living
2:00:49
like that since you were 5 or 8 years old.
2:00:53
That I'm a burden and and then it's going to play out, right?
2:01:00
The the. What you're you're touching on?
2:01:02
A major, major key everything in this.
2:01:07
Life the. Physical the diseases.
2:01:12
All of this. Is a reflection.
2:01:15
So it's a tangible reflection of what we are experiencing and why
2:01:20
we're even here. The lesson, the test, and the
2:01:23
punishment of this particular experience where you have you,
2:01:29
you. You have to.
2:01:30
Understand if you have sickle cell or sickle cell trait or any
2:01:36
other disease, yes, and you're sick from it.
2:01:40
It is actually a blessing in many, many, many, many ways.
2:01:46
Yeah. That pain that you experience,
2:01:49
it makes you a more compassionate, loving person
2:01:54
because the next time you interact with someone else, like
2:01:57
we're bonding here and we're bonding with the audience,
2:02:01
they're feeling this and all these people on.
2:02:04
YouTube that are going. To hear this or wherever we're
2:02:08
touching something deep that all of us experienced this sensation
2:02:13
of weakness. And God says verily, man is made
2:02:16
weak, but then the strength comes from the most high shining
2:02:20
on us. But if you don't go through that
2:02:23
pain and that difficulty, you become arrogant and you can't
2:02:29
understand what other. People are going through.
2:02:31
And you can't do what all of us here do and actually listen and
2:02:34
hear other people's pain. You have to suffer something
2:02:40
early enough that. Becomes part.
2:02:42
Of you, you work through that. Now you can help others work
2:02:47
through that, but you get a sensibility about yourself.
2:02:51
That's why I don't say it's wrong for two people who both
2:02:55
have sickle cell to to get married.
2:02:57
I mean trait to get married. First of all, you don't.
2:03:00
Know it's a. One in four chance or two in
2:03:03
four chance, you don't know, but every single human being has
2:03:09
illness whether they know it or not.
2:03:13
We're only getting out of this life one way.
2:03:16
That's in a box. So we're we're avoiding death,
2:03:20
we're avoiding pain, we're avoiding disappointment.
2:03:23
Instead of understanding the lessness to work through it
2:03:26
because that develops your trust in God.
2:03:29
It elevates you spiritually. Yeah, you elevate you
2:03:32
emotionally if you let it. That's one of our messages to
2:03:37
our trade patients is that don't let this, don't let the fear of
2:03:41
having this trait, can I travel? Can I do this?
2:03:44
Am I going to get sick? Am I going to have a crisis?
2:03:47
Can I go? Outside and play.
2:03:49
Or the parent with the kid, don't let them played outside,
2:03:51
they're going to get sick. What?
2:03:52
A house is going to make you sick too?
2:03:54
Because the air in the house is probably more toxic, you know?
2:03:58
You're a human. Being you're going to.
2:04:01
Get sick from something maybe trait isn't even really your
2:04:05
problem. Your trait is fairly quiet.
2:04:08
It's the methylation the MTFR gene of a patient that has like
2:04:12
spherocytosis, MTFR gene and trait and it's like let.
2:04:18
That boy play. Herbs and the supplements.
2:04:22
That's important. We're going.
2:04:23
To get those. Vitamins.
2:04:24
That doctor Dabney. Has been talking about into the
2:04:27
mix and we're going to go through this in a brave way.
2:04:30
We're going to accept our situation.
2:04:33
We're thankful we know what the problem is so we can work on it.
2:04:37
You know, that's what we want to experience with our patients is
2:04:41
it's OK. This is the problem we're going
2:04:44
to find. First of all, we're going to
2:04:45
find the problem, right? Me and Doctor Dabney, we both
2:04:48
take. That's what we do.
2:04:50
Probably Lupita, too. We take those rare cases that
2:04:54
nobody wants to handle. Today I was complaining and now
2:04:58
I shouldn't have even complained, mostly because I was
2:05:00
trying to get here. I was complaining.
2:05:02
I'm like, I think they gave me the hardest cases, I'm pretty
2:05:05
sure. Because all of you, that's where
2:05:11
the natural mind. Goes.
2:05:13
That's where the natural mind goes, though.
2:05:15
That's where it goes. That's the low we call.
2:05:18
That the lower self, yeah. For us, we call it the Novs the.
2:05:22
Lower part of the Novs. The lower desires, but even.
2:05:26
That's. Not a bad thing.
2:05:27
If you don't have lower desires, you won't eat, you won't be
2:05:32
instant with your spouse, you won't drink water because you
2:05:35
won't care. About it I.
2:05:37
Was on my spiritual journey so heavy one time I didn't care
2:05:40
what I wore. I didn't care if I ate.
2:05:43
I would just say I I am. God, it's just God.
2:05:49
Everything is. God, and my kids are like, mom,
2:05:53
you still have a husband like your.
2:05:56
Your clothes are inside out. Can can you put the one straight
2:05:58
please? You know you can't.
2:06:00
You can't do this like this. Is not going to work.
2:06:02
And I would, I had like a uniform.
2:06:04
I wear the same thing every day because I don't want to think
2:06:06
about getting dressed. That's the same thing every day.
2:06:10
So that. Lower self you.
2:06:12
Know it's OK that you felt that disappointment.
2:06:16
Look at all the people the disappointment is going to help.
2:06:19
We all feel like a fraud. I remember when Doctor Samia was
2:06:22
like, you're going through imposter syndrome 10 years ago.
2:06:27
I was so scared to get in front of a crowd.
2:06:29
And like be. Like, yeah, trait is not benign.
2:06:32
I was like, Oh my God, they're going to come from my license.
2:06:34
The white people are going to get me.
2:06:36
So I was going to think I'm crazy, you know, I I was, she
2:06:40
was like, you need to read this article about imposter syndrome.
2:06:43
I was like everything, you just. Said and part of that is?
2:06:48
Our trauma as Black people and what we go Oh, and by the way, I
2:06:52
am black. I just want to say that my
2:06:54
patients, one of my patients got.
2:06:57
Mad at one of the black? Providers, they didn't like how
2:07:00
she yeah yeah, yeah and then they came to me they.
2:07:03
Told they had seen me, they'd seen.
2:07:04
Her. They went back, they went and
2:07:06
told the administrator, I don't want to see this black doctor.
2:07:10
I want to see the Indian Dr. I was like what do?
2:07:16
You mean feather like? I got like what Indian like.
2:07:19
I had to tell today. No, I'm.
2:07:21
American I was. Born.
2:07:23
I mean, I'm Puerto Rican, but I'm American.
2:07:26
Puerto Rico, unfortunately or fortunately, is technically.
2:07:33
And with that being said, with that being said.
2:07:35
Thank you all. We can have some fun.
2:07:38
We could look, we got to be able to talk serious and we got
2:07:41
better. Have some fun.
2:07:42
So again, thank you all for coming on here.
2:07:45
I'm, I'm so grateful, Miss misses Johnson Lupita, Dr.
2:07:50
Daddy, y'all y'all, my y'all, my y'all, my threads right now.
2:07:55
I lean, I lean on each one of y'all because there's a part of
2:07:58
this conversation that has to and I couldn't do this by
2:08:00
myself. I can, I can only speak about
2:08:03
these conversations. That's why I'm like in the
2:08:05
community. We've got to be a lot of people
2:08:07
speak from their life experience and from their perspective so
2:08:11
that we can be, so they can be heard and then realize that
2:08:15
your, your illness is not unique to just you.
2:08:17
Your, your fears and concerns and worries in life are not
2:08:20
unique to you. We all got them in our own
2:08:24
special way. We all deal with them.
2:08:26
All day. Long sometimes and so how do we
2:08:29
find the the what what I call? We think the safe.
2:08:34
Space is a location, it's an experience.
2:08:37
And we create it's an experience space, space experience.
2:08:41
For. People to come and have a
2:08:42
conversation with us and speaking on that level, we, we,
2:08:45
we. We every, you know, we're all
2:08:48
actually out here doing work. We're not just talking about it.
2:08:51
We are boots on the ground. We are here for the community,
2:08:55
you know, so we need to make sure that the that the the I, I
2:08:58
I was trying to get into the chat to respond and I can't get
2:09:02
in for some reason. But we need to make sure that
2:09:07
everybody here, like, I'm not sure who quiet QT is.
2:09:11
Yeah. And the sickle cell warrior.
2:09:14
I want to shout. Out some of this Fatima, Jordan,
2:09:16
Latifah, we got some people here, Sean you know everybody is
2:09:22
here and they need to be able to get to us yeah, we need to make
2:09:27
sure I got the I got the. I got the ticker.
2:09:29
Bottom right here. So that their your website is
2:09:31
beautiful. Yeah, please come.
2:09:34
Do a console let. Us be together with you we have
2:09:40
every aspect now and for those of us here on this panel and the
2:09:43
couple of us that couldn't make it it's time for a meeting.
2:09:46
We need to bang it out. How are we going to like we need
2:09:50
to make the sickness or trade conference.
2:09:52
We got put the different pieces together.
2:09:55
We need to use the Medi Lab and Botanica and, and you.
2:09:59
I don't know what Doctor Dabney's platform is
2:10:01
specifically. Miss Johnson needs to bring us
2:10:04
back there to Texas to do another CME.
2:10:06
We need to bang it out. Sickle.
2:10:09
Cell 364 spectrum, because we're talking about this last thing,
2:10:14
we are talking about sickle cell and sickle cell trait.
2:10:18
But as everyone has alluded to, as Doctor Dabney was talking
2:10:22
about the different deficiencies of vitamins from all experience
2:10:25
and vitamin D, that's a vitamin and a hormone and a modulator
2:10:28
etcetera. We.
2:10:31
Everything we're saying about. This disease process applies to
2:10:35
all of them every disease process you know you're good
2:10:39
doctor is set up so that we can take care of of any illness
2:10:48
we're doing functional we're. Doing Islamic we're doing.
2:10:51
Herbal. We're doing western.
2:10:53
I'm an MD, but I'm a herbalist at heart.
2:10:57
And you can see here we have every aspect covered, doctors,
2:11:00
nurses, herbalist, community. I just want to make sure that
2:11:04
people understand. We want to hear from you after
2:11:08
this. We don't just want it to be air,
2:11:11
we're on the air, but we want to be boots on the ground.
2:11:16
And one more thing. We.
2:11:18
Speak Spanish, let him know. Let him know Poquito Espanol and
2:11:29
I know what I'm. Being talked about too just.
2:11:31
Know I know what I'm being. Talking about.
2:11:39
I know. Enough.
2:11:41
I know enough. To get something to eat.
2:11:43
Get to the bathroom and get some water.
2:11:46
I can make it. I can make it there.
2:11:49
I can make it, Lupita, thank you so much.
2:11:52
Again for taking. Time out y'all this has been
2:11:55
this has been beautiful what a way to to take on sickle cell
2:11:57
awareness month and then our our focus on the sickle cell trade
2:12:01
and other again, if you have other inherited genes,
2:12:04
especially the rap though we didn't even touch about the rap
2:12:07
community we're embracing the. Raabdo.
2:12:10
Conversation Because raabdo can be triggered by so many other
2:12:14
inherited genes, sickle cell trade is just one of the genes
2:12:17
that can trigger rhabdo. Rhabdo is a.
2:12:21
Skeletal muscular disorder. Where the myoglobin in the
2:12:24
muscles breakdown and then it leaks into the bloodstream.
2:12:27
But it also releases toxins in the muscles as well, especially
2:12:31
the negative potassium, which can trigger a negative
2:12:34
electrical charge on the heart, which some people have cardiac
2:12:37
arrest. But it also then clogs the
2:12:39
kidneys in the small vessels and the proteins and then the sickle
2:12:44
cell trait mutation. Now you've got all that
2:12:46
happening in the body. And unfortunately, in worst
2:12:49
cases, people have had collapse and sudden death.
2:12:52
And now we're discovering that the RMC is also connected to
2:12:56
that overtime of exercising and all that environment stuff.
2:13:01
And so the Rabdo community, I'm, I'm a, I'm a patient with y'all
2:13:05
too. So I'm in the groups, Doctor
2:13:07
Dad, me, you in the group with me, man.
2:13:09
I go in there and see that post. I'll be like, you want to meet
2:13:11
there with the comments. I'll be like, yeah, there you
2:13:13
go, right there, there you go. So thank you for taking on those
2:13:17
comments in the Rabdo again, because inflammation is such a
2:13:20
key to all of this, right? I mean, we got to talk about not
2:13:23
just the red blood cells, but what is the inflammation doing
2:13:27
to our bodies and how do we get that out of our system?
2:13:30
And sometimes the stress in your life could trigger that
2:13:34
inflammation just as much as heart disease or conditions,
2:13:37
right? That's that's how I understand
2:13:39
it. So anybody we got to get out of
2:13:42
here. I love I love y'all for real.
2:13:46
I'm like I said, you've, you've have done nothing but increase
2:13:49
my own self-confidence that I can stand on your shoulders and
2:13:53
be like, you know what, if I don't know the answer?
2:13:56
I got a list of people. Let me let me see who can get
2:13:58
this case. Let me see who can get this
2:14:00
question answered over here. So from the, from the doctor
2:14:03
trade doctor to Lopita with the, with the doctor Sabi stuff like
2:14:07
I, I, I met him, I talked to him.
2:14:11
I'm proof that that, that it works and the clarity that comes
2:14:15
with that. So Miss Richie, you know, we,
2:14:18
we, we, we, we own them, right? We own them.
2:14:21
And we're going to get these conferences going.
2:14:24
We've got some ideas. Shouts out to Doctor Austin.
2:14:26
We love you, Doctor Timothy Radnor.
2:14:30
Thank you. Doctor Randolph has been here
2:14:31
since I started 16 years ago, and he's been doing studies and
2:14:35
and having difficulty getting sickle cell patients to
2:14:39
participate in the studies so that he can help figure out
2:14:42
what's triggering. Dr. O'Connor.
2:14:46
Oh. Doctor O'Connor.
2:14:47
Who's doing the the study that took on the military with the
2:14:52
sickle cell trade in the military and studying the trade
2:14:55
carriers and why some of us are having trade exertion in the
2:14:58
military. So the military, the armies
2:15:00
involved, they changed. They're now testing all of their
2:15:03
army soldiers and the new recruits in the army to identify
2:15:07
them as trade carriers and come on, that's all we could ask for.
2:15:12
I mean the. Needle is moving. 16 years ago,
2:15:14
they wasn't doing that right. And so I'm grateful and that we
2:15:18
see the we see the progress. Finally, sickle cell trait is
2:15:21
not benign. There are risk factors.
2:15:23
There are complications to it. Fatigue, there's you got to
2:15:26
hydrate. There's so many things going on.
2:15:28
So I got to get out of here. We're already 2 hours and 15
2:15:31
minutes. I hope the station's not mad at
2:15:32
me, but there's no show. There's no show behind me.
2:15:35
So we're cool on that note. But two hours and 15 minutes,
2:15:38
y'all, we, we've, I appreciate you.
2:15:41
There's, but we can treat it. We can treat those things.
2:15:44
We can treat those complications, Holla, like don't
2:15:47
hear those complications and get the exactly, yes, exactly.
2:15:52
All right. You want me to?
2:15:53
You want to give that? That phone number out?
2:15:55
Publicly, Dr. Dabney, or is that just no problem in the group?
2:15:57
You can, all right. You want to do it you.
2:15:59
Want to do it I. I got you.
2:16:01
So Doctor Dabney is, is here he is again.
2:16:06
I, I'm, I'm, I'm my, my goal with Doctor Dabney is to us to
2:16:09
have some, some in person, maybe online talks so that people can
2:16:14
understand the body because we can't see what's going on inside
2:16:17
of us. We, we, we, we by the time we
2:16:20
like I said. By the time.
2:16:21
We feel it by the time, but by the time we feel it, it might be
2:16:23
a little late on that on the lady end of of feeling it.
2:16:26
So if people have that information ahead of time to
2:16:30
understand, yo, that McDonald's, it might be good.
2:16:34
Not every day, but you might not want because you're you're
2:16:37
depriving yourself of those nutrients.
2:16:38
And I'm going to tell you this before I get out of here with
2:16:41
this cleanse with Lupita, let me tell you, if I eat something
2:16:44
crazy right now, Oh baby, it is in 30 minutes.
2:16:48
It's like, and I'm like, I knew I shouldn't have had that piece
2:16:52
of pizza. It was good, but a minute.
2:16:54
But guess what? My.
2:16:55
Body is pushing everything out that I don't that's that's not
2:16:59
good for it. And so I'm like, this is, this
2:17:02
is real. Like it's no joke.
2:17:04
Like when you've cleanse your body and it's operating
2:17:07
properly, you eat something that you're not supposed to eat that
2:17:09
day. It's not going to sit there.
2:17:11
And I'm going to tell you this too.
2:17:14
I told her the other day, I, I, I got off of it.
2:17:18
I was, I, I went, I was, I was somewhere, I had pizza, then I
2:17:22
had a hot dog and then I had a hamburger.
2:17:24
And then, and then I was like, and I'm knowing I'm like, and
2:17:28
all of a sudden the inflammation, my hand started to
2:17:32
swell up again and I'm like, Oh my goodness.
2:17:35
Like I ate that food three days ago and now my body is showing
2:17:40
me that. So what I have to do?
2:17:42
Get back on the CZ4, get back on the Oxyhemo, get back on all
2:17:46
and, and, and, and what happened?
2:17:47
I can move my finger and this is the information is gone.
2:17:52
So when you understand that and you apply that to your life and,
2:17:56
and I must, I got to say this last piece and I forgot who I
2:17:59
was talking to. But Lupita, we're also
2:18:04
programmed. That.
2:18:05
Because it's not a prescription, I can't take it like we got to
2:18:08
do a segment on that. That is not.
2:18:10
A prescription because it's not from my doctor, I can't.
2:18:13
But guess what? You might have to spend some of
2:18:15
your $99.00 a month if you want to improve your quality of life
2:18:19
and get some supplements or get something that's not prescribed
2:18:23
by the doctor because you can't get it from them, right?
2:18:25
So what is that mentality that we got to deal with our,
2:18:28
ourselves first of, hey, you know what, I can't get this as a
2:18:32
prescription, but can I get it? Can I get it and pay for it out
2:18:36
of my own pocket? Because this is going to help me
2:18:38
an additional to my life and my, and my Peace of Mind.
2:18:42
So that mentality, I, I believe that I, I've seen it in the
2:18:46
conversations that I've had with our community that if it's not a
2:18:49
prescription, I can't, I can't take it.
2:18:51
It's not FDA or it's not prescription.
2:18:54
But then you've missing out on all this holistic stuff that
2:18:56
Lupita and Dr. Myesha is talking about that you could take.
2:19:01
That might be what Doctor Dasmi said is the trigger to improve
2:19:05
the vitamin D and trigger the other stuff that you're not
2:19:08
getting from the food to 'cause that to actually work properly
2:19:12
and have it lay dormant in your body.
2:19:13
And then your body's kicking it out and inflammation is also
2:19:16
kicking it out. And now you, it's all these
2:19:19
secondary complications, right? We could go on this with ours,
2:19:23
so I think. Y'all I got to go the.
2:19:24
Food is the key. The food is the food is the
2:19:27
food. Is the food.
2:19:28
And vegetables there. I didn't see this.
2:19:30
There you go. And that are in season.
2:19:33
That's in season. In season.
2:19:37
All right. Y'all I love y'all I.
2:19:38
Appreciate y'all so. Thank you, thank you, thank you.
2:19:49
Yeah, she says. Thanks for the acknowledging in
2:19:51
the chat. Yeah, I appreciate it.
2:19:54
OK, So Doctor Dagney, whoa. Whoa, Doctor Dabney, but.
2:19:56
His information y'all real quick.
2:19:59
He's at 77062444948. That's Doctor Dabney at
2:20:05
706-244-4948. He is excellent.
2:20:11
Thank you again. Did you put it?
2:20:12
Did you post the number somewhere?
2:20:14
No, no, I'm just reading it off so it'll be in the recording.
2:20:17
Oh, OK, And then someone's asking.
2:20:19
About how to see the recording later, yeah, it's going to be
2:20:23
right here on the where. It depends on where.
2:20:25
You're watching it from. If it's on YouTube, it'll be on
2:20:27
the YouTube, it'll be on the Facebook.
2:20:28
It'll be stored there. So the links will go beautiful
2:20:32
will be saved as is. Yeah.
2:20:35
All right, y'all. Let's get out of here the
2:20:37
frondos. Issue KNB radio dot US and also
2:20:41
on KC Radio One O 6.5 FM 1050 AMI love y'all.
2:20:46
He said check me check back next Wednesday.
2:20:49
I got a guest coming live and also we we're back to the
2:20:55
spiritual conversation for sure. So Ariana's back for some
2:20:59
spiritual talk and then I got a sickle cell guest to wrap up
2:21:02
sickle cell awareness month on September 30th.
2:21:04
God willing. I will see you then Chalice.
2:21:07
I was the cap. Let me play APSA before I get
2:21:10
out of here. I kind of dropped this PSA, this
2:21:12
one here. Do you remember studying sickle
2:21:15
cell in biology class? What's the count on?
2:21:17
Sickle Cell Trait Prevention is here to bring you awareness,
2:21:20
education and prevention conversations around the risk
2:21:23
factors of this inherited gene. Visit WDCON sct.org.
2:21:30
Hi, I'm Beaker. With military broadcast.
2:21:32
Radio TV We're your virtual MWR, bringing veterans radio,
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podcasts, gaming, animation, 3D printing and a community that
2:21:42
never leaves you behind. Download our Roku or mobile app
2:21:47
today.