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Ireland’s Rare Drug Approval Crisis | Cork News
Ireland faces a pivotal moment as it prepares to decide whether to fund Skyclarys, the first drug to slow Friedrich’s ataxia—a devastating rare disease affecting just 200 people. With a staggering €280K per patient annual cost, the HSE’s August 25th decision could mean life-changing access—or prolonged suffering—for patients with no other treatment options. Despite European approval and availability in 11 other countries, Ireland’s outdated, bureaucratic system has delayed approvals for rare drugs by years, prompting companies to avoid applying here. Advocates warn that while Germany approved…
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