Doctor and Rare Disease Dad Is On A Mission to Accelerate Research and Drug Development Efforts for His Childs KCNT1 Epilepsy with Dadvocate Dr. Justin West
ONCE UPON A GENE - EPISODE 182
Doctor and Rare Disease Dad Is On A Mission to Accelerate Research and Drug Development Efforts for His Child's KCNT1 Epilepsy with Dadvocate Dr. Justin West
Dadvocate Dr. Justin West is the father to Andrew, who has a devastating disease called KCNT1, a rare infant-onset seizure disorder. Justin serves as President and Co-Founder of the KCNT1 Epilepsy Foundation.
EPISODE HIGHLIGHTS
How has your work been impacted since Andrew's diagnosis?
Surgeons tend to be problem solvers and we like definitive, quick solutions we can act fast on. I realized I couldn't carry…
The skinny
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