37. Advocating for Yourself with Aidan Leslie

Bendy Bodies with Dr. Linda Bluestein · Nov 4, 2021 · 46m

Navigating medical care can be a daunting task at the best of times, but when you have a chronic disorder that is largely an invisible illness, you may find yourself bewildered and frustrated trying to get the care you need. Often, a diagnosis like Hypermobile Ehlers-Danlos syndrome or hypermobility spectrum disorder can come with co-morbidities such as POTS (Postural Orthostatic Tachycardia syndrome), MALS (Median Arcuate Ligament syndrome), MCAS (Mast Cell Activation syndrome), and more.

And with multiple diagnoses comes multiple doctors’ visits.

Bendy Bodies chats with our own wellness…