Latest / Cyrus Webb's tracks / Dr. Joseph Mikhael and Tara discuss multiple myeloma and treatment options on Conversations LIVE
Transcript
- 0:00Speaker 1: Hello, everyone, and welcome back to Conversations Live. I'm your host,
- 0:02Speaker 1: Cyrus Webb. Glad you all could join us once again.
- 0:04Speaker 1: For our radio audience tuning in at WYED 94.1 FM
- 0:08Speaker 1: and WYEDonline.com, we're glad that you all can be with us. Also,
- 0:11Speaker 1: join us online worldwide via our podcast at iHeartRadio and
- 0:14Speaker 1: Amazon Music. We're glad you all could be with us
- 0:17Speaker 1: as well. This is part of a news and news
- 0:19Speaker 1: segment here at WYED, and today we're talking about relapsed
- 0:22Speaker 1: multiple myeloma. It is the second most common blood cancer disease.
- 0:26Speaker 1: in the U.S. and as we've talked about all this month,
- 0:29Speaker 1: September is recognized as Blood Cancer Awareness Month. So we're
- 0:32Speaker 1: excited about this next segment to welcome two guests with us.
- 0:35Speaker 2: We have Dr.
- 0:36Speaker 1: Joseph McHale joining us. He's the Director of Myeloma Research
- 0:39Speaker 1: at the Honor Health Research Institute. We also have Tara
- 0:42Speaker 1: joining us today. She's a nurse practitioner as well as
- 0:45Speaker 1: a patient. We're going to talk to them not only
- 0:46Speaker 1: about what you need to know about multiple myeloma, but
- 0:50Speaker 1: also about treatment options and also how something called Blend
- 0:54Speaker 1: Rep can be able to help as well. Thanks to
- 0:55Speaker 1: the two of you for stopping by. I really appreciate it.
- 0:57Speaker 2: Well, I'm so happy to be with you. Thank you
- 0:59Speaker 2: so much for having us here today. What a great
- 1:01Speaker 2: introduction to our discussion today, and I'm particularly grateful to
- 1:04Speaker 2: be here on the behalf of GSK.
- 1:06Speaker 1: Look, the pleasure is definitely all mine. As I mentioned,
- 1:08Speaker 1: we've been talking about blood cancer awareness all this month.
- 1:11Speaker 2: Dr.
- 1:11Speaker 1: McHale, I'll begin with you. I mentioned people may be
- 1:14Speaker 1: familiar with multiple myeloma, but what is relapsed multiple myeloma?
- 1:18Speaker 2: So I'll just take a quick moment to explain what
- 1:21Speaker 2: myeloma is and how we approach the treatment. Sure. As
- 1:23Speaker 2: you noted, this is a blood cancer, which means it
- 1:26Speaker 2: originates in the factory of our blood we call the
- 1:28Speaker 2: bone marrow. And we make great progress in myeloma, but unfortunately,
- 1:31Speaker 2: most patients, after initial treatment, the disease will come back.
- 1:35Speaker 2: That's why we call it relapse and refractory multiple myeloma,
- 1:38Speaker 2: where it's going to require multiple lines of treatment over time.
- 1:43Speaker 2: And one of those treatments that we want to discuss
- 1:46Speaker 2: with you today is that treatment called Blenrep that you noted.
- 1:49Speaker 2: So Blenrep, in combination with other medicines, is a treatment
- 1:52Speaker 2: for multiple myeloma that has returned when patients have had
- 1:56Speaker 2: at least two prior treatments. Now, of course, every treatment
- 1:59Speaker 2: comes with a potential side effect. And when it comes
- 2:02Speaker 2: to Blenrep, eye problems, including changes in vision, are common
- 2:05Speaker 2: and can be severe. Patients actually are also followed by
- 2:08Speaker 2: an eye doctor and being monitored by an eye doctor
- 2:11Speaker 2: while they're being treated with Blenrep. As with all medications,
- 2:14Speaker 2: we want patients to be able to talk to their
- 2:16Speaker 2: doctor about their medical conditions and any changes in the
- 2:19Speaker 2: symptoms that they may have. But I'm just delighted to
- 2:22Speaker 2: hear that you are raising awareness and have been through
- 2:25Speaker 2: Blood Cancer Awareness Month, raising awareness of the importance of
- 2:28Speaker 2: understanding myeloma and really of delivering our therapies in a
- 2:32Speaker 2: timely manner today.
- 2:33Speaker 3: To patients.
- 2:34Speaker 2: One of the things that has recently happened was that
- 2:37Speaker 2: with BlendRep, we've had an administrative update that makes it
- 2:41Speaker 2: easier to deliver this directly into the community. This drug
- 2:45Speaker 2: was designed to be able to be delivered across multiple
- 2:49Speaker 2: healthcare settings where it doesn't require hospitalization. It doesn't require
- 2:53Speaker 2: a large academic center. And so any barrier we can
- 2:56Speaker 2: take away to deliver therapies to patients where they are
- 3:00Speaker 2: is particularly important.
- 3:02Speaker 1: It's such an important part. And that's why we're so excited, Tara,
- 3:05Speaker 1: that you can join us as well. As I mentioned,
- 3:07Speaker 1: you're a nurse practitioner, but also someone who has had
- 3:11Speaker 1: their own experience with multiple myeloma. Talk to us about
- 3:14Speaker 1: your diagnosis and how you learned about it. Sure.
- 3:16Speaker 3: I would say, you know, in the beginning, right before
- 3:19Speaker 3: I was diagnosed, I knew that I wasn't really feeling
- 3:22Speaker 3: my best. I just didn't know what was wrong. I
- 3:24Speaker 3: just knew something was wrong. I was just having a
- 3:27Speaker 3: lot of fatigue and a lot of low back pain.
- 3:29Speaker 4: The back pain got so.
- 3:30Speaker 3: Severe that ultimately I ended up having to go to
- 3:33Speaker 3: the hospital and that's what led to my diagnosis. So
- 3:35Speaker 3: I'm super thankful every day for that pain because that's really.
- 3:39Speaker 4: What put my diagnosis on the radar.
- 3:42Speaker 3: But I would say, you know, as with any patient
- 3:44Speaker 3: that gets a cancer diagnosis or any kind of a
- 3:47Speaker 3: really severe chronic health issue, you know, it's a gut punch.
- 3:51Speaker 4: It comes out of left field. None of us actually ever.
- 3:53Speaker 3: Think we're going to be diagnosed with cancer or have
- 3:56Speaker 3: something that bad happen to us. So, you know, I
- 3:59Speaker 3: think being a nurse practitioner was great in the sense
- 4:02Speaker 3: that I understood talking about treatment and I understood the terms.
- 4:06Speaker 3: I understood the disease process. But on the human side
- 4:09Speaker 3: of things, I was in a really vulnerable position and
- 4:12Speaker 3: a different position than I was ever used to being in.
- 4:15Speaker 4: And so I think it's hard because when you get
- 4:18Speaker 4: that diagnosis, the fear and uncertainty.
- 4:21Speaker 3: You don't know how it's going to affect your life
- 4:22Speaker 3: and how things are going to turn out. And it's
- 4:25Speaker 3: difficult to live in that gray area.
- 4:27Speaker 1: Yeah, such a good point. I want to ask you
- 4:29Speaker 1: about communication advocacy, because one of the things my brother
- 4:32Speaker 1: was diagnosed this year with Hodgkin's lymphoma. And one of
- 4:36Speaker 1: the things that we have talked about, because I've had
- 4:38Speaker 1: segments like this on our radio program, is the importance
- 4:41Speaker 1: of advocating for himself when it comes to treatment options,
- 4:43Speaker 1: but also that communication skills. with the doctor. How important, Tara,
- 4:46Speaker 1: was that for you in having that communication and seeing
- 4:49Speaker 1: what was the best for you when it came to treatment?
- 4:51Speaker 3: I would say that's probably one of the, short of
- 4:54Speaker 3: your family support and being surrounded by loved ones, I
- 4:57Speaker 3: would say that's, you know, maybe one A and that's
- 4:59Speaker 3: one B. So having a healthcare team that you trust,
- 5:02Speaker 3: that you know that they have your back, that they're
- 5:04Speaker 3: going to get the best, most individualized plan for your
- 5:09Speaker 3: particular case. Having folks in your corner that you can
- 5:12Speaker 3: have an honest dialogue with.
- 5:14Speaker 4: In the medical profession is huge.
- 5:16Speaker 3: And so I was lucky enough that my healthcare professional
- 5:20Speaker 3: team was great.
- 5:21Speaker 4: They continue to be great. They were great. They were
- 5:23Speaker 4: there for me in my time of need.
- 5:24Speaker 3: But that's the most important thing.
- 5:27Speaker 2: And Dr.
- 5:27Speaker 1: McHale, to you, for our audience out there that may
- 5:30Speaker 1: have a family member that may have been diagnosed with
- 5:34Speaker 1: multiple myeloma or, again, of course, they just are looking
- 5:37Speaker 1: for information for themselves and that they can share with others,
- 5:40Speaker 1: How important is it for them to be able to
- 5:42Speaker 1: know about things like BlendRep and about treatment options that
- 5:45Speaker 1: will make access to treatment easier for them?
- 5:48Speaker 2: No, I appreciate you saying that. It really is so important.
- 5:51Speaker 2: Tara explained in her personal experience, but we know... actually
- 5:55Speaker 2: in oncology, when people have a strong relationship with their
- 5:59Speaker 2: healthcare team, they're going to do better. They're going to
- 6:01Speaker 2: be able to have that shared decision-making process of discussing
- 6:04Speaker 2: the options, knowing what's going to be best for them.
- 6:07Speaker 2: So we strongly endorse people developing that relationship with their
- 6:10Speaker 2: healthcare team, having that conversation, and as you said, advocating
- 6:14Speaker 2: for themselves so that they can learn what options are
- 6:16Speaker 2: available to them, what's going to be available to them
- 6:19Speaker 2: close by so that they can get the best therapy possible.
- 6:22Speaker 2: And before we close, let me just also add that
- 6:25Speaker 2: I really hope your brother does well with his diagnosis.
- 6:28Speaker 2: I'm thankful that he has a supportive family, if it
- 6:30Speaker 2: sounds like he does, and I trust he's going to
- 6:32Speaker 2: do well.
- 6:32Speaker 1: Thank you. Yeah, he is responding well to treatment, and
- 6:35Speaker 1: I appreciate that, Dr.
- 6:36Speaker 2: McHill.
- 6:36Speaker 1: Dr. McHill and Tara, thank you to the two of
- 6:38Speaker 1: you for stopping by and sharing this information. It's so
- 6:41Speaker 1: timely for our audience. Where can our audience go for
- 6:43Speaker 1: more information?
- 6:44Speaker 2: I think the best thing that they can do is
- 6:47Speaker 2: to discuss this with their healthcare team. We know that
- 6:50Speaker 2: there is a lot of information out there and sometimes
- 6:52Speaker 2: it's hard to process it all, but having this open
- 6:55Speaker 2: conversation with their healthcare team can direct them to better
- 6:57Speaker 2: understand whether they have myeloma or a loved one has myeloma,
- 7:00Speaker 2: what is best for them and how their case can
- 7:03Speaker 2: be best managed.
- 7:05Speaker 1: Well, again, thanks to the two of you for helping
- 7:06Speaker 1: to raise awareness, spread the word. Tara, thank you so
- 7:09Speaker 1: much for sharing your story. We really appreciate it. Looking
- 7:11Speaker 1: forward to speaking with the two of you again.
- 7:12Speaker 2: Of course.
- 7:13Speaker 4: Thank you so much.
- 7:14Speaker 2: Thank you.
- 7:15Speaker 1: And we thank your audience for tuning in to another
- 7:17Speaker 1: great segment of Conversations Live. Until next time, I'm your host,
- 7:20Speaker 1: Cyrus Wilson. As always, enjoy your day, enjoy your life,
- 7:22Speaker 1: enjoy your world. Thank you for being with us here
- 7:24Speaker 1: at Conversations Live. Let us go make today amazing. Take care.