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Ireland’s Fight for Skyclarys Access | Cork News
Ireland is rallying for access to Skyclarys, a life-changing drug for Friedreich’s Ataxia, as protesters demand the HSE act ethically despite cost concerns. Already approved in Europe, the treatment is unavailable here for Ireland’s 200+ patients. Emily Felix, diagnosed at 12, leads the charge, stressing the drug buys precious time—not a cure—to preserve mobility, speech, and independence. With a crucial HSE meeting looming, advocates urge decision-makers to prioritize human dignity, quality of life, and patient rights over bureaucracy and price tags. Listen in comfort:Get a discount on a…
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