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HSE Decision on Skyclarys for Friedreich's Ataxia | Cork News
Friedreich’s ataxia patients and families are holding their breath as the HSE prepares to decide whether to fund Skyclarys, the only approved treatment for this rare, devastating neurological disorder. After the Drugs Group recommended against coverage, sparking protests and hope from advocates like Sinéad Maher — who’s seen the HSE defy previous advice — the final call rests with senior leadership. With a decision expected Tuesday, the outcome could mean life-changing relief or continued struggle for thousands. Listen in comfort:Get a discount on a Soli Pillow…
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