Latest / Living with Parkinson’s | Bryce Perry / The Hidden Parkinson’s Symptoms Doctors STILL Don’t Talk About

Transcript

The Hidden Parkinson’s Symptoms Doctors STILL Don’t Talk About · Living with Parkinson’s | Bryce Perry

• 0:00
  You know, one of the hardest parts about living with
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  Parkinson's are the symptoms that nobody warns you about.
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  Like suddenly your skin looks like I can't decide between
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  teenage acne and a snow globe. Or you choke on a sip of water
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  like you've forgotten how to swallow.
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  Or, my personal favorite, you're planning your entire life around
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  bathrooms. And that's what today's episode
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  is all about, the hidden side of Parkinson's that doesn't get
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  enough attention. We're going to talk about skin
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  issues, swallowing problems, and urinary urgency.
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  And stick with me all the way because not only will I give you
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  a practical tip for each and every one of those, but by the
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  end, you're going to hear Carmen's care partner corner.
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  And let me tell you, her perspective is gold.
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  And plus, of course, I'll I'll reveal today's Bryce ISM that
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  you won't forget the next time you get stuck in a bathroom
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  line. Welcome to Living with
• 0:52
  Parkinson's, The Good, the Bad, and the Reality.
• 0:56
  Real talk, real life, real community with Bryce Perry.
• 1:01
  Let's begin. Hey everyone, Bryce here.
• 1:05
  Welcome back to Living with Parkinson's, The Good, the bad,
• 1:08
  and the Reality. Now before we dive in, here's a
• 1:11
  quick update. We just moved the inner circle
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• 1:17
  more interactive. We've got spaces for daily wins,
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  wobbles, tips, tools, and even direct Q&A with me.
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  with a free three day pass. A free three day pass.
• 1:30
  Click the link in the description below.
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  It's just for this week and trust me, you'll want to sign up
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  after you take that three day trial.
• 1:37
  So, and for those of you that are newly diagnosed and
• 1:40
  thinking, well, now what I've got you, I've got a brand new
• 1:44
  six week boot camp course. It's open to reserve your spot
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  right now. Just drop your name and your
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  e-mail using the link below in the description.
• 1:52
  I'm telling you, I will answer everything.
• 1:54
  It's going to be you and I it's interactive.
• 1:56
  It's 6, a six week program, six week program.
• 2:00
  When you get out of there, you're not going to feel alone
• 2:02
  and you're going to have the tools that you need.
• 2:05
  They're the things that I wish I had when I first got diagnosed.
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  But today, let's get into these hidden symptoms.
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  Now let's kick it off with something I never thought I'd be
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  talking about on a podcast. My skin.
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  Yep, Parkinson's skin is a real thing now.
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  For me, it showed up like this. Constant shine on my forehead.
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  Can you see it? And no amount of washing will
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  fix it. I used to joke with Carmen.
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  You don't forget expensive lighting.
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  Just shine the camera on my forehead and we're all good.
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  She rolls her eyes, but it bugs me.
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  And what can you actually do about it?
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  Well, if you're having some skin issues, you need to see a
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  dermatologist. You know, they've seen it all
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  and they can prescribe medic medicated shampoos or creams
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  that will calm it all down. And let's be honest, not
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  everyone runs to a dermatologist right away.
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  So here's another thing you can do while you're waiting.
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  Don't over wash your face. The instinct is, oh, my skin's
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  oily. I better scrub it twice a day.
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  But that actually doesn't make that actually makes it worse.
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  And if you're looking for a cheap trick, I always like, I
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  like cheap tricks. That's it works really good.
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  Try dandruff shampoo. Weird, I know, but gently using
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  it on your face a couple of times a week can really help
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  settle the oiliness and the flakes.
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  And to finish it off, moisturize smart.
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  Come on guys, go gentle fragrance free stuff that's
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  smooth instead of stinging. OK, now if you're dealt with
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  Parkinson's glow, give me a hell yeah in the comments so people
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  know that they're not the only ones dealing with it.
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  And I know I'm not the only ones dealing with it.
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  That's a hell yeah for Parkinson's skin.
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  Oily or flaky? Now while your skin might be
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  screaming, look at me. Another hidden symptom makes you
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  want to disappear completely, and that's swallowing problems.
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  Now, I'll never forget the first time I was just drinking water
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  and it went straight down the wrong way.
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  I coughed. They hacked so bad that Carmen
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  thought she'd have to call 911. And you know, I was fine
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  eventually, but it rattled me. So, you know, I've done that
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  before and I'm sure you have as well.
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  And you know when it you always say it went down the wrong way?
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  Well, what is actually happening when when it goes down the wrong
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  way is you've actually tried to take a breath at that same time,
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  you, you took a sip of whatever you're slipping.
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  And this is a bit different. And this one, it's not just
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  embarrassing, you know, if you don't deal with it, it can lead
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  to weight loss, dehydration, and even pneumonia.
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  So what can you do? First, talk to your doctor
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  early. Don't brush it off as just
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  choking on water. Ask for a swallowing assessment.
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  There's such a thing. And once you've had that
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  conversation, the next step is usually this speech therapist.
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  Honestly, they're amazing. They'll give you exercises and
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  tricks to keep you safe. But even before therapy, you can
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  start doing this right away. Slow down.
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  Smaller bites and smaller sips really make a big difference.
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  And another easy change is posture.
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  Sit up straight when you eat or drink if it seems simple, but it
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  makes a really big difference in where that food or drink goes.
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  And finally, for those tougher cases, try thicker liquids.
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  Nobody ever asked for a chunky water, but it's keeps you safe
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  and it's worth it. Like a tomato juice.
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  Not many people choke over that. And if and if you've ever had a
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  a choking scare with Parkinson's, drop a Me Too in
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  the comments and let's make it normal to talk about this.
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  And if you want to go deeper into how to manage symptoms like
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  this, that's exactly the kind of stuff that we talked about in
• 5:44
  the inner circle. Remember 3 free days this week.
• 5:48
  If you want to check it out, the link is in the description
• 5:51
  below. It's a brand new link, so don't
• 5:52
  click on an old one. This is brand new for a brand
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  new community. We'd love to see you over there.
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  So we've gone from skin that makes you shine to swallowing
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  that makes you choke. Now let's talk about another joy
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  of Parkinson's. The bladder issues.
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  Oh boy, this one hits close to home.
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  Urinary urgency. Basically, when you got to go,
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  you better go. I've joked that I could, that I
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  could publish a Winnipeg bathroom survival guide.
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  From coffee shops to malls, I know them all.
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  So what helps? OK, cut down on caffeine and
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  alcohol. I know not anyone wants to hear
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  that, but trust me, they make urgency worse.
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  And for me, that coffee, that's a hard one for me to cut down
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  on. But if I'm going for a ride or
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  going outside or going to do something outside of my home,
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  I'm telling you, I better make sure I don't drink as much
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  coffee as normal. And you know, once you start
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  there, there, there's the next smart move is this.
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  Stay hydrated, but do it smartly.
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  Don't cut out water because your body needs it.
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  Just spread it out through the day so you're not so you're not
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  desperate in the middle of errands or up all night.
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  And if that's not enough, here's the next step.
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  Talk to your doctor. Here we go again, Bryce.
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  There are medications that can calm the bladder and give you
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  back a little control. And while you're at it, don't
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  overlook this one. Pelvic floor exercises and yes
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  guys, even us strengthening those muscles actually make a
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  difference, and they can make a difference in other areas as
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  well, if you catch my drift. And finally, the practical
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  everyday tip. Plan ahead.
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  Know where the bathrooms are, but don't let that stop you from
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  living your life now. If you've ever done the bathroom
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  dash type run forest run in the comments and so we can know that
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  we're not alone. And a quick reminder, if you're
• 7:49
  newly diagnosed and wondering what's next, don't forget you
• 7:51
  can reserve your spot right now. I'm going to leave 2, what are
• 7:55
  they called? Quadrants or two, two spots, 22,
• 7:59
  I don't know, 2 segments, two courses.
• 8:05
  Anyway, they're six weeks long and I'm going to do 2 in a row,
• 8:08
  so there's 25 per class. The 1st 50 people that can go
• 8:11
  over there right now. Click that link, reserve your
• 8:13
  spot, and you know what? You know what I'm going to do?
• 8:16
  I'm going to throw in six months in the inner circle along with
• 8:20
  your discounted class. Anyway, check it out in the link
• 8:23
  and do it quick first. 50 people and it's game over for now.
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  So now you've heard my side of these hidden symptoms, but what
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  about the person who's walking this road beside me?
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  Guess what time it is? It's right.
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  It's time for Carmen's care partner Corner.
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  OK, this is what Carmen gave for me to read to you.
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  When Bryce first started choking on water, I panicked.
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  I didn't know if I should call 911 or just hit him on the back.
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  Living as a care partner means always adjusting, carrying
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  napkins for the skin issues, being patient when meals take
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  longer, or knowing where every bathroom is on a trip.
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  My tip for other partners, don't brush these things off.
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  Ask questions and encourage your partner to bring it up with the
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  doctor. And most of all, laugh about it
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  together because humor has saved us more than once.
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  And I reiterate, bring it up with your doctor and if he
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  doesn't or she doesn't, then you will.
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  Wow. He always has to end with like
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  tough thing, you know? Anyway, and that's why I love
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  Carmen's partner corner. It's so important.
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  She's the one who sees the day-to-day impact and reminds me
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  that these hidden symptoms affect us both.
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  It's not just about us, it's about them too.
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  So there you have it, 3 hidden symptoms of Parkinson's that
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  doctors don't always prepare you for.
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  Skin changes, swallowing struggles, and urinary urgency.
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  Now your turn. Which of these have you
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  experienced? Let me know in the comments.
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  Your story could help someone else feel less alone.
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  And if you haven't experienced any of these at all, just go
• 10:04
  Like O for three, just O for three.
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  And we can all be jealous of you.
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  OK, you made it. Here it is.
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  Today's price isn't for you. With Parkinson's, sometimes the
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  symptoms you don't see are the ones that trip you up the most.
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  And occasionally they'll chase you straight to the bathroom.
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  All right, I like that one. Don't forget, Inner Circle is
• 10:28
  open right now. It's a brand new platform.
• 10:30
  It is 24/7 community and there's a three day free trial this week
• 10:34
  only. Come on, check it out, meet the
• 10:37
  community and see if it's the right fit for you.
• 10:39
  And if you're newly diagnosed again, remember, reserve your
• 10:41
  spot today. There's only 50.
• 10:43
  There's only 50. The link's in the description.
• 10:46
  Reserve it today. Let's do this.
• 10:47
  I'm going to take you through boot camp and we're going to
• 10:49
  learn and you're going to learn and you're not going to feel
• 10:51
  alone anymore. I love this community, I really
• 10:56
  do. This is the best thing that
• 10:58
  Parkinson's has ever given me. So until next time, I want you
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  to keep showing up. I want you to keep being real
• 11:06
  and keep doing life today. Parkinson's may be part of your
• 11:15
  life, but it doesn't get to define it.
• 11:18
  Thanks for listening to Living with Parkinson's, the good, the
• 11:21
  bad, and the Reality. If this episode moved you,
• 11:25
  helped you, or reminded you you're not alone, share it with
• 11:28
  someone who needs to hear it. Want to go deeper?
• 11:32
  The Inner Circle is waiting monthly Zoom calls, 24/7
• 11:35
  community, and a Direct Line to Bryce.
• 11:38
  You'll find the link in the show notes.
• 11:40
  Until next time, keep showing up and keep doing life today.