Films and Fatherhood
ONCE UPON A GENE - EPISODE 015
Films and Fatherhood
Daniel DeFabio is joining us today to share his experience and perspective as a father of a son with a rare disease called Menkes. Daniel is a contributing author to The Mighty and the Co-Founder of the Rare Disease Film Festival.
EPISODE HIGHLIGHTS
Tell us about your son Lucas.
The good news is that he has just turned eleven years old. He was diagnosed with Menkes at age one and we've been dealing with this rare disease journey for ten years. It's unfortunate that had he been diagnosed immediately at birth, he could have had a very…
The skinny
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