Episode 49: MDS, AML, Liver Failure. We Ran It Like a Startup.
Heidi Kay Carson's husband Chad was 33, healthy, and holding a PhD in computer science when a routine blood test set off a 14-year medical odyssey that ended with two simultaneous organ failures and no US hospital willing to treat him. In this episode, Heidi walks through the decisions, the dead ends, and the unconventional moves that got them further than anyone said was possible, and what she has built since Chad passed in 2019.
In this episode, they dive into:
How needing a liver transplant and a bone marrow transplant at the same time created a catch-22 with no protocol, Chad was removed…
The skinny
The skinny isn't ready yet — notes appear once the transcript is processed.