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What Rare Diseases Teach Us About Trusting a Parent's Gut with Dr. Andrea Gropman
Episode Summary
Rare diseases often leave families searching for answers in a system that doesn’t always recognize what’s happening. On this episode of Parent Confidence Lab, Hans and Cristina sit down with Dr. Andrea Gropman, pediatric neurologist, researcher, and leader in neurometabolic medicine, to discuss how patient stories, family advocacy, and scientific innovation are changing the future of rare disease diagnosis and treatment.
Drawing from more than two decades of research in urea cycle disorders and other rare metabolic conditions, Dr. Gropman explains how listening closely to…
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