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HSE Decision on Skyclarys for Friedreich's Ataxia | Cork News
Families across Ireland are holding their breath as the HSE prepares to decide whether to cover the only approved treatment for Friedreich’s Ataxia—a devastating disease affecting around 200 people—by August 25th. The initial rejection of coverage sent shockwaves through patient communities, especially after promises from the Taoiseach that all possible efforts would be made to secure approval. Grief-stricken parents like Craig Coady, who lost his son Rory and battles for his other son Paudie, are joined by political leaders including Mary Lou McDonald and Michael Collins, demanding…
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