
Jessica Patay is Helping Caregivers Be Braver Together
When Jessica Patay's second son Ryan was born, she knew something was different. Ryan didn't cry like other newborns and had trouble feeding. After a month in the hospital with no answers, a DNA test finally revealed Ryan had Prader-Willi syndrome - a rare genetic disorder causing low muscle tone, developmental delays, and an insatiable hunger starting in childhood.
Jessica found herself thrown into the world of caregiving for a child with extraordinary needs. But she was fortunate to quickly find a local support group and mentor parents also caring for children with Prader-Willi. This…
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