Latest / NDV Podcast: Neurodiverse Voices Connect / Unlocking Neurodiversity: Joanna’s Journey in Education and Advocacy
Transcript
- 0:17Welcome to season 5 of the Neuro Diverse Voices Podcast, the
- 0:22podcast that gives a voice to the neuro divergent community.
- 0:27My name is Andrea Costa and I am your host.
- 0:32I am also the mom to a beautiful 9 year old autistic daughter and
- 0:36she is my world. At the age of 42, I was recently
- 0:41diagnosed with ADHD and through my lived experience I've
- 0:45developed a deep passion for all things neuro diversity.
- 0:51My daughter gave me purpose. My neurodivergence keeps the
- 0:55passion alive. By sharing my journey, I hope to
- 0:59help others feeling seen, understood, and less alone.
- 1:04Through conversations with guests from a wide range of
- 1:08backgrounds and perspectives, my aim is to challenge assumptions,
- 1:12spark curiosity and enlighten all kinds of minds.
- 1:17This is and brings another incredible line up of guests.
- 1:21From comedians and writers to alternative provision leads,
- 1:25therapists, parent advocates and researchers from the University
- 1:29of Oxford, every guest has an inspiring journey and a powerful
- 1:33story to share. This is a space for honesty,
- 1:36connection and celebration where difference is not just accepted
- 1:41but valued. Hi everyone, Welcome to another
- 2:04episode of Season 5 of the Neuro Diverse Voices podcast.
- 2:08And today I have the privilege of interviewing the founder and
- 2:13CEO of Sensational Tutors who also has lived experience of
- 2:17ADHD. Welcome to the Neuro Diverse
- 2:20Voices podcast, Joanna Gibbs. Thank you very much.
- 2:23Thanks for having me. You're very welcome.
- 2:25How are you? I'm good, I'm good.
- 2:28I'm a bit of an in in an interesting place actually.
- 2:32Today was the school's white, the school's white paper was
- 2:36published. So I've been watching a lot of
- 2:39the news, keeping in touch with what really what's happening.
- 2:41WhatsApp messages have been buzzing all over the place, so
- 2:45yeah, there's the significant changes ahead.
- 2:48Yeah, definitely. I was actually going to ask you
- 2:50about this about this, because we we do have our interview
- 2:54scheduled for for a while and we've prepared the interview.
- 2:57But yeah, it's going to be good to know.
- 2:59What are your thoughts? I also had a brief look at the
- 3:02news. So yeah, let's see.
- 3:06OK, so before we start talking about hot topics, can you start
- 3:11by introducing yourself and tell us a bit about how what you do
- 3:17at Sensational Tutors? Sure.
- 3:19So I established the company nine years ago.
- 3:23I'm a qualified teacher. I fell into education
- 3:26essentially. I wanted to become a speech and
- 3:27language therapist quite a few years ago, and my first degree
- 3:30is in linguistics and phonetics. After that, I want, as I say, I
- 3:36worked for the NHS with the understanding that I wanted
- 3:39desperately to support children with their speech and
- 3:41communication difficulties. So following my experience
- 3:45working for the NHS, I moved to India.
- 3:50The reason why I moved to India was because I absolutely loved
- 3:54helping children and that came from my experience working as a
- 3:58community behaviour support specialist for the NHS.
- 4:03But I was working within schools, but I was also
- 4:05supporting occupational therapists and the speech
- 4:09language therapists. And my role there was to make
- 4:11sure the strategies were consistent between schools and
- 4:14the family home. You know, were they using
- 4:16Makaton, were they using PEX? How were the OT strategies being
- 4:20utilised in the home as opposed to in the school?
- 4:25Very often the strategies weren't weren't being utilised
- 4:29in both places. So my role in that was to make
- 4:32sure that everybody's working together in that collaboration
- 4:36and also making sure that there was a really good, strong team
- 4:39around that young person because obviously, you know, education
- 4:42and education, but there's lots of things that do support a
- 4:46young person being able to access education.
- 4:48And that very often is the communication and the sensory
- 4:51side of things as well. Yeah.
- 4:53So I moved to India. I worked in a in a slum school
- 4:56in northern India because I wanted to save the world at the
- 4:58age of 2021. I came back after six months
- 5:04quite upset that I hadn't resolved my mission and my
- 5:08intention. And at that point I was applying
- 5:12for jobs and I worked for the American School in London, which
- 5:17is an absolutely amazing school. And the reason why I was picked
- 5:20up there was really for my vision and my passion and my
- 5:23drive to support, to support children.
- 5:26And essentially that came through from my experience
- 5:28working in the slum schools in India.
- 5:32I loved the school so much and I loved the international side of
- 5:36things. And I attended an international
- 5:39job fair because I was interested in, at that point, I
- 5:44was interested in travelling and very, very much a type of person
- 5:48that wants to explore and wants to understand the world.
- 5:53And my mum at that point said, you know, become a teacher, you
- 5:55can travel. And I was like, oh, OK, I'm not
- 5:56a qualified teacher, but I'll attend this job fair, this yeah,
- 6:00this school's job fair. See what happens.
- 6:02And as luck had it, there was an individual there who was
- 6:06developing an opening school in South Korea.
- 6:09At that point, qualifications weren't needed because he is
- 6:14incredibly visionary in his approach and he needed people
- 6:17who were equally visionary regardless of a qualification.
- 6:19And you know that that tip box, whether that person really truly
- 6:24understood how young people can work and why different
- 6:29strategies should be utilised for different young people and
- 6:32gaining an A true understanding of that.
- 6:35So I was successful at that interview and without a contract
- 6:40at all, with no guarantee of anything, I ended up working in
- 6:43South Korea. So I was a founding member of an
- 6:47International School in South Korea which was within the
- 6:50International Baccalaureate system or, OR curriculum, which
- 6:54is very child focused and very much based on topics.
- 6:58So within a year you'd have 3 or 4 topics and then you'd have to
- 7:01integrate all of the academics within those topics.
- 7:04So it was very, very creative. And as a creative person myself,
- 7:07I absolutely loved that. So yeah.
- 7:12So the first year was a founding member of of the school and then
- 7:14I was the teacher there. And then very quickly after
- 7:19that, I became the head of the learning support team.
- 7:23This was a brand new team because it was a brand new
- 7:25school and we hadn't needed that role in the 1st place.
- 7:31That was the and I was in that role alongside doing my master's
- 7:35degree in in inclusion. So as I say, my first degree was
- 7:39in speech and language therapy. What?
- 7:41Sorry, my first degree was in phonetics and linguistics and
- 7:45then I did my master's degree in inclusion.
- 7:49Not being a qualified teacher at this point, but I wanted to know
- 7:55that I could have a chance to come back to England and
- 7:57actually be a qualified teacher. But after, after South Korea, I
- 8:02worked in Australia. Basically, I fell fell in love
- 8:06with an Australian guy, moved to Australia with him, fell out of
- 8:09love with the Australian guy, moved to Indonesia, the
- 8:14Netherlands International School as a bit of a stopgap after
- 8:19living in Australia. And then I came back to England
- 8:23and wondered what on earth the curriculum was, you know, the
- 8:26English education system was doing here.
- 8:29That was 11 years ago. You know, even hearing the news
- 8:34today, it's just amazing the challenges that the education
- 8:39system has in the UKI say that incredibly lightly.
- 8:43And when I first established the business, which was nine years
- 8:46ago, I had the vision, which I still hold very strongly, that
- 8:52every young person is entitled to the best possible support.
- 8:56But that comes from a strong understanding of every, every
- 9:00single young person in terms of their hobbies, their interests,
- 9:03their drive, their motivation, their, you know, abilities, of
- 9:07course. But we need to be thinking about
- 9:09engaging that with that young person on their level and really
- 9:13truly understanding them. And, and obviously that will
- 9:16create the trust and that relationship.
- 9:19And without the trust, the trust and relationship, you can't
- 9:22teach them. And I also think that even if
- 9:26you do that teacher, that teacher doesn't have that sense
- 9:30of fulfilment. You know, we become teachers to
- 9:32be able to teach. And I think if you're going in
- 9:35this for any other reason other than really wanting to
- 9:38understand young people, then you're not in the right
- 9:40profession. Obviously the, you know, the
- 9:43curriculum and the system at the moment doesn't give teachers
- 9:46capacity because of the red tape to truly work with children on
- 9:51on that, on that one to one basis.
- 9:53And I realised that quite quickly then I worked as a as a
- 9:58sorry, as a tutor myself on on that one to one basis really
- 10:03gained that value of being able to help that child.
- 10:09And then hoped that there'd be other tutors out there that
- 10:13shared my vision always around special needs around send as
- 10:17that's, you know, where I started with this.
- 10:21From my experience, you know, even before university, I've
- 10:23been raised around, raised with lots of disability, mental and
- 10:29physical disability in my family.
- 10:31And that's really want, what I wanted to do is to find other
- 10:35qualified teachers who shared my passion and drive to, to
- 10:38understand and really unpick these amazing young people and,
- 10:43and their potential and to get them where they could possibly
- 10:46get to. Yeah, wow, that's fantastic.
- 10:49I love all the international experience you you have because
- 10:52that's so valuable. I think you just expand your
- 10:56horizon so much. When?
- 10:58When? Yeah, when you have that
- 11:00possibility. So yeah, that's very inspiring
- 11:04to hear. So you are ADHD.
- 11:09What did receiving that diagnosis mean for you
- 11:13personally, and how is that understanding shaped the way you
- 11:18see yourself today? It's a bit of a weird one, I
- 11:21have to say, because I don't tell too many people about the
- 11:25diagnosis. And as much as I'm saying to
- 11:28parents and I, I, I do believe in it.
- 11:31I, you know, as much as I'm saying to parents, there is an
- 11:34amazing skill set here. We just need to, you know,
- 11:37support the young person and understand them and, you know,
- 11:41and to create an environment for them to absolutely flourish.
- 11:44What I do still feel internally is the sense of stigma.
- 11:49You know, there's an absolute massive boom of, of women being
- 11:54late diagnosed ADHD. And I'm one of those, you know,
- 11:58I'm a statistic now. I don't want to be a.
- 12:01Statistic. Yeah, and I and I feel judged.
- 12:05So when I told my parents they had to be part of the, the
- 12:09assessment, you know, there was lots of pushback, lots of guilt
- 12:12for my, for my dad, especially that they had caused the ADHD.
- 12:18But yeah, I I don't talk about it and I feel like that's a
- 12:26conflict internally because I'm also the person that's wants
- 12:31parents to recognise how incredible it is as well as a
- 12:36diagnosis. Yeah, it's, that's the conflict
- 12:39between the, you know, the struggle and what some people
- 12:42would say. The superpower, isn't it?
- 12:44Because I'm sure that everything that you do comes from being
- 12:49ADHD as well. Yeah.
- 12:51What I would say, though, is it has helped my relationship with
- 12:56my husband. He lets things go as is, in his
- 13:01own words. He lets things go a little
- 13:03easier and kind of blames the ADHD as opposed to blames the
- 13:07Joanna. Good for him, he's a great guy.
- 13:11It can. Be it can be helpful.
- 13:14Yeah. OK, So going back to to your
- 13:17professional experience, so you've been supporting children
- 13:20with special educational needs and disabilities for a long
- 13:24time. How has the understanding of
- 13:26neurodiversity changed for you during that time?
- 13:30So I feel that I truly understand and I can see it from
- 13:39having established the company so many years ago.
- 13:41The impact of having that one to one support is absolutely
- 13:45profound. I say that though obviously that
- 13:48tutor has to be the right match, you know, and in terms of
- 13:51relationship and rapport etcetera, etcetera.
- 13:53But I think when you find that person, it the, the, the
- 13:59opportunities for that young person, can it really truly be
- 14:04uncovered? And I, you know, I, I do reflect
- 14:06on my own school life and I, I didn't like school at all, but I
- 14:10do remember my English teacher, you know, and I feel like this
- 14:14is one thing that a lot of parents say to me, that they do
- 14:17remember that one teacher that really supported them.
- 14:20And I think what we do fantastically well is exactly
- 14:24that matching process. You really, truly understand the
- 14:26families and the young person. Yes, we've got, you know, some
- 14:30paperwork that we all need to fill in, but but I think what
- 14:33the end game is, is the impact of that relationship and it is
- 14:40it it's, you know, obviously we do provide online sessions, but
- 14:44it's in person as well. It's a profound relationship
- 14:47that if you get it right, it can be absolutely life changing.
- 14:51And we've also got to consider the fact that these children by
- 14:55their diagnosis, lots have suffered trauma from, from the
- 14:59school placement that they may well have been and they may not
- 15:02be able to access school anymore.
- 15:05And in that way, the relationship that these tutors
- 15:09have created, breaking down the, you know, the resistance towards
- 15:14anybody attend or being in, in the bedroom or even in their,
- 15:19their house is, is phenomenal. And being able to hopefully over
- 15:23time educate them again. Yeah.
- 15:26It's, that's, it's, it's kind of a special relationship that
- 15:30needs to to exist, isn't it? Yeah, and what's really lovely
- 15:35from the conversations I've had from the parents is because
- 15:40we're very, very different. It's not a case of, you know,
- 15:44oh, my teachers, my tutor's coming here to do my maths
- 15:47homework. It's very, very much aligned
- 15:51with I've got somebody special who's coming to who's taking the
- 15:56time to truly understand me and they take it as a bit of a, a
- 16:00reward, like something really, really positive from that
- 16:05individual. So yeah, as I say, the results
- 16:09are just amazing. Every young person needs
- 16:12something different and I think that's really exciting as well
- 16:15to really, truly, truly understand that young, young
- 16:17person's journey. And we can go in all sorts of
- 16:20tangents with that young person as well.
- 16:22And I think that's really important if it, you know, we
- 16:26do, we will always prioritise developing that relationship.
- 16:29But after that relationship's been established because we are
- 16:33so specialist and you know, we're qualified teachers, but
- 16:36we're specialist as well. We can then support with the
- 16:39speech and language therapy side of things or the OT or integrate
- 16:43that into the lessons or go on tangents about integrating
- 16:46special interests, you know, into into their lessons.
- 16:50And I think that really truly helps to engage a young person
- 16:55and then brings them back to developing a love of learning,
- 16:58which I think is really what we want to do.
- 17:01Yeah, definitely. And what, what sort of lessons
- 17:05do you provide just for the audience?
- 17:07You know, there might be, since you provide online sessions,
- 17:11there might be people interested in reaching out to you.
- 17:14I guess it's going to be completely different.
- 17:16It's going to be tailored to each young person.
- 17:18But yeah, what would be a typical?
- 17:20Day, definitely. I would always say that we are
- 17:24not not subject specialists. We're special needs specialists,
- 17:27So if a family or a parent comes to us and says, you know, I'm
- 17:31looking for a maths tutor, we are not the right company.
- 17:35If that person comes to us and says, you know, my child is
- 17:39autistic and they're struggling with maths, great.
- 17:42That's what we do because we, we utilize the diagnosis to inform
- 17:48how we can support with the the subject, if subject is is part
- 17:52of what they're looking for. So we truly understand what the
- 17:56autism traits look for look like for that young person because
- 18:00obviously every young person is different and the diagnosis
- 18:03aside. So we understand what strategies
- 18:06work for that young person. And then we integrate the maths
- 18:10or the curriculum or the subjects within an understanding
- 18:13of what works as opposed to here is the math maths curriculum,
- 18:18here are your worksheets, which is boring, but you know, and
- 18:21anybody can do that. Yeah, definitely.
- 18:24No, that sounds, that sounds brilliant.
- 18:27OK. So in terms of systems and and
- 18:29challenges, so from your perspective where do does well
- 18:34we kind of touched based on this, but where does the current
- 18:37education system support children well and where does
- 18:42does it fall short or or fail children?
- 18:44So my biggest issue is the four thing and it is in some cases it
- 18:52is physically forcing, forcing children to attend a school if
- 18:57the school is not the right place for them.
- 18:59You know, I speak to parents all the time and very close friend
- 19:04slash parent of client of ours was saying that before before
- 19:11learning about sensational tutors and and our provision
- 19:13being an option. She was literally dragging her
- 19:17child into the classroom or into into the school.
- 19:21But before that, the the boy would sit in sit in the in the
- 19:27car alongside the mum and attempt to jump out the car.
- 19:30So he was risking his own life because but the mum was
- 19:34obviously being forced for him to attend school because she
- 19:37wanted to avoid the fines, you know, and it's, it all comes
- 19:41back to money again. My view, my very, very strong
- 19:44view is if you know, my strong view is not a school is not the
- 19:51right place for every single young person.
- 19:53And we do need to recognise that.
- 19:57And also there are stories in the have been in the press and
- 20:00there's one poignant 1A while ago where again, there's a mum
- 20:04who is trying to avoid being fined.
- 20:06She didn't know how significant the mental health needs of her
- 20:09son were. Likely masking or not, it was
- 20:14obviously not not obvious. And she was pushing him to
- 20:17attend school so badly that he committed suicide and that is
- 20:23the outcome. So, and even today, yeah, I just
- 20:30had a few, literally just had a few meetings about the white
- 20:32paper. But even today they're talking
- 20:34about specialist provision, which sounds great, but within
- 20:39that they are talking about settings.
- 20:41Now these settings are going to obviously potentially mimic
- 20:45schools, but we've got to recognise that these settings,
- 20:48whatever they are, these these young people, these fantastic
- 20:51young people have been so traumatised by the system, by a
- 20:55setting, be at school or whatever the setting looks like,
- 20:57the bricks and mortar of a place.
- 20:59They can't step outside their bedroom lightly.
- 21:02They can't come out from under their duvet.
- 21:04They, you know, how is this going to be possible?
- 21:06And again, we're going back to that same, the same structure of
- 21:10forcing young people to do X. And I think we need to be
- 21:14listening to the young people, the young people know what they
- 21:16want. You know, on the flip side,
- 21:19EHEPS, they are still going to stand, you know, for the most
- 21:23complex young people. But EHEPS and local governments
- 21:26and local authorities have always talked about listening to
- 21:29the child's voice. Well, I think we need to be
- 21:32doing that a little bit more, to be honest, because we're truly
- 21:36not. Yeah, it's, it feels like
- 21:40nothing is really ideal. And precisely for that reason,
- 21:45because neither the children and young people and the parents
- 21:49seem to be listened to. You know what?
- 21:52Absolutely. At the end of the day, it's a.
- 21:54Yeah. It's it's a start, right?
- 21:59Yeah. We'll, we'll, we'll see.
- 22:02We'll see how. Yeah, I just think what I, what
- 22:07I feel really angry about is anybody other than the parent
- 22:12and the child themselves having control over that young person's
- 22:16life. And, you know, the system that's
- 22:19been created now is, you know, it's just horrible because we
- 22:24are in the hands of of the government and local authorities
- 22:28and that's based on budget and cost.
- 22:31And even when it comes to home schooling, you know, there's
- 22:35there's a push towards the two more constrained around home
- 22:40schooling and the local authorities need to be
- 22:43overseeing the parents who are homeschooling their children.
- 22:46So again, we're going back to that, you know, lack of control.
- 22:50And if a parent is supporting a young person so that they don't
- 22:55commit suicide, and that doesn't look good in terms of the
- 22:58homeschooling curriculum, what choice does that parent have?
- 23:03Yeah, Yeah. So I guess that's is attendance
- 23:07one of the major topics that parents come to you with or is
- 23:11are there any other? Challenges, yeah.
- 23:15For us it's trauma and PDA. So pathological demand
- 23:18avoidance, avoidance, although PDA as an acronym is being
- 23:24discussed at the moment, which is, which is quite exciting for
- 23:28it to be more, more positive. And they're talking about it
- 23:32being persistent drive for autonomy, which I think is
- 23:37great. You know, these young people
- 23:39whose voices want to be heard. Thank you very much.
- 23:43Which is wonderful. Yeah.
- 23:45So PDA linked with the trauma, linked with autism is really
- 23:51what we specialized in, as well as the more complex needs.
- 23:55So PMLD, so obviously wheelchair users, non non verbal, non non
- 24:01speaking as it now is the challenging behaviour.
- 24:09And yeah, those young people that really, truly can't access
- 24:12education from being burnt by the system.
- 24:16Yeah, and you're a visionary, So how do you think professionals
- 24:22can create inclusive and safe learning environments rather
- 24:26than just being tick box? Yeah, I think we need to
- 24:32communicate. I think everything's to do with
- 24:35communication, communication and trust.
- 24:38And I think that when we're creating these things, they're
- 24:42called EOTAS packages. Now, these are packages for
- 24:44young people who normally have experienced so much trauma they
- 24:49can't attend school. It's called education.
- 24:52Other than at school, Eotas or Eotis or EOTIS, It's it's all
- 24:56the same sort of thing. It's either that they can't
- 24:59attend school normally because of trauma or there isn't a
- 25:01school place available. Normally it's the first one, but
- 25:06there's a lot of collaboration involved in that.
- 25:08And I think we need to respect all the professionals that are
- 25:11in place, professionals, but even stronger than that, we need
- 25:15to be listening to the parents for their input because I feel
- 25:19like we absolutely undermine the the value and the impact that
- 25:23parents can have positively on their child's education and and
- 25:27well-being. I remember being in the
- 25:30classroom and there are teachers out there that choose whether
- 25:35it's a choice or maybe they train not been trained not to,
- 25:37or maybe that's just their approach, but choose not to
- 25:41listen to parents and value parents opinions.
- 25:43And I just think that they're missing a trick there.
- 25:47It's so rewarding to understand the family and being able to
- 25:51say, hey, you know, your child had a better day today.
- 25:54This is what's what's happened. And for their everybody to be
- 25:58working on on the same level. So, yeah, I think it's we need
- 26:03to truly understand the bigger picture, but wants to understand
- 26:08with that really genuine approach and to truly listen to
- 26:13the child, to value their opinions and for teachers to
- 26:17ultimately get really excited about working and supporting
- 26:21these children. And for the children not to feel
- 26:23like they're, you know, just a tick box.
- 26:25We need we need the teachers to feel the sense of reward as to
- 26:29the reason why they became teachers.
- 26:31And I think that is only established once we have the
- 26:34capacity. Again, let's blame the system,
- 26:37but once we have the capacity to get down to that young person's
- 26:40level and truly understand them. Yeah, absolutely.
- 26:43Absolutely. So you mentioned you know that
- 26:48there is some kind of self judgement and stigma around your
- 26:51ADHD, but I'm pretty sure you have plenty of strength and I'm
- 26:56curious to know what strengths do you actually often see in
- 27:00neural divergent children and young people that are normally
- 27:03overlooked or misunderstood? Yeah, absolutely.
- 27:07For me personally, it's a sense of hyper focus that if I put my
- 27:12mind something I will put my mind to it negatively, let's
- 27:18say, is that if I'm not engaged, you know, my husband talking to
- 27:23us about that is an example. You know, he likes history and
- 27:26you know, wars and World War One and World War 2 and tries to
- 27:29involve me in all these conversations and TV programmes.
- 27:31I have absolutely no interest in them.
- 27:35But I think if, if, for example, using that, that idea, if
- 27:42history was taught differently, for example, we're working with
- 27:47some individual companies who are using VR.
- 27:51So it's really interactive and, and you can go down to the
- 27:53trenches and talk to the soldier about his, you know, the impact
- 27:57and, and of the war. That sort of stuff I think
- 28:00should be utilised in the classroom to really engage the
- 28:04ADHD brain, which will obviously may well go on a tangent, but I
- 28:08think if you can really engage that young person, it's really,
- 28:12really, really exciting. And hopefully as a teacher as
- 28:14well, you'd be excited about the impact you can make for that
- 28:17child. Yeah, I totally relate with you.
- 28:20History was always one of my really bad marks in school
- 28:24because I just, yeah, I was too bored to to want to learn about
- 28:28it. Because as you say, you just,
- 28:30you read and you memorise and you have to memorize dates and
- 28:34all of that. So it can be quite, quite
- 28:36boring. Yeah, exactly, exactly.
- 28:40And meaningless if you know if you can't apply that knowledge.
- 28:43How do you apply it later in life, exactly?
- 28:46Yeah, definitely. And how do you help children and
- 28:52young people build their confidence and a positive sense
- 28:55of self around their neural divergent?
- 28:59I think it's very much about exploring that young person's
- 29:02strength together, understanding where their mindset is and and
- 29:06you're building strategies together, but also saying I
- 29:10think what's really important is, and I did this in in the
- 29:13classroom, it's recognizing that people do make mistakes.
- 29:16So when I was in the classroom, I introduced something called
- 29:19Hooray mistakes and it was for the children that were
- 29:22comfortable doing it, but we would literally celebrate
- 29:26mistakes and shout, how are your mistakes?
- 29:28And, and I was the first person to do that, but also of myself
- 29:32as well. If I was to make a mistake or
- 29:33sometimes I would make a mistake on purpose and celebrate it or,
- 29:38you know, or the kids would laugh and ha, you know, that's
- 29:41kind that kind of dialogue. But I think it's just allowing
- 29:48children to recognise that life is a journey every single point
- 29:53as adults as well, we're always, we're always learning, we're
- 29:56always learning from each other. And it's allowing the space and
- 30:00capacity to be OK with that and it and it should be exciting and
- 30:07nobody, nobody is perfect. I think it's really about being
- 30:11curious around the people that you are around as well.
- 30:16One of the schools I unfortunately worked for,
- 30:19there's a change of leadership and they turned it into much
- 30:24more of a, you know, an, an 11 plus kind of school, which is
- 30:28all about grades. And unfortunately I heard this
- 30:31from the parents, the, the, the children with diagnosis or the
- 30:36children in the wheelchairs, et cetera, or had additional needs.
- 30:39They, the parents and the children were bullied out of the
- 30:42class. And I just think that's such a
- 30:44missed, it's a missed opportunity for everybody
- 30:48because the, you know, the, the children who were in the
- 30:50classroom, to be able to have those different conversations
- 30:54with a different young person is so powerful.
- 30:57And to recognise that not everybody is the same.
- 31:00And there's so much value in understanding somebody else
- 31:04who's, you know, different. Yeah, yeah, definitely.
- 31:08And, you know, we all make mistakes at some point, you
- 31:13know, but maybe every day we we, we make mistakes.
- 31:16And it's, it's about normalizing making mistakes that yeah, that
- 31:22we all do it. And I think that's a great idea.
- 31:24I love what you've done. Yeah, What is interesting
- 31:29because I created that strategy even when I wasn't a qualified
- 31:33teacher. Yeah, these are just things that
- 31:35I created as I've gone along. You know, I will never give a
- 31:38child a sticker. Well done.
- 31:40You know, here's a sticker. That whole strategy drives me
- 31:43bonkers. It has to be about internal
- 31:46rewards as opposed to giving these external reward systems,
- 31:50you know, and in terms of giving feedback as well, saying well
- 31:54done, you know, not well done full stop, but well done.
- 31:57I can see that you have added a capital letter to the beginning
- 32:00of your sentence. That means this and really
- 32:02giving them context, as opposed to well done which is completely
- 32:05meaningless. Yeah, yeah, absolutely.
- 32:09OK. So there's a lot of, you know,
- 32:11going back to your past, to the work you've done internationally
- 32:13and, and, and now there's a lot of focus in connection and
- 32:17community, which is something you you really believe and, and
- 32:21the share the shared experience. So why is that so important in
- 32:26neuro diversity spaces? I think it's validating to have
- 32:32those conversations with other people.
- 32:36And I feel because of the stigma, I've always thought I
- 32:39was a bit different. I know I'm a bit different.
- 32:41I mean, everybody's different obviously.
- 32:44And being able to have that reassurance from other people
- 32:47that they have the same opinion of you and you aren't the crazy
- 32:511. You know, I've, I've gained a
- 32:53lot of confidence just from opening up and saying, look, you
- 32:56know, I feel really anxious right now.
- 32:58What do you think? Or can you help me with this?
- 33:00And I think going back to people who you are familiar with in
- 33:05terms of how their brains versus how your own brain works, then
- 33:09you can just get a lot of reassurance.
- 33:12And especially when it comes to anxiety, because as we know, you
- 33:15know, anxiety very much underlines ADHD and taking
- 33:20ownership of that. And I, you know, there's
- 33:25somebody who I know very closely is absolutely brilliant when
- 33:30talking about her level of anxiety.
- 33:31And I just find that so empowering and so, so wonderful
- 33:35of her to be able to do that. And I will be able to support
- 33:39her. And I think it I think it is
- 33:42about ownership and not being fearful of your emotions and
- 33:46asking for help. Yeah.
- 33:49And I, I, I relate, you know, in both senses, as as a parent and
- 33:54as being neuro divergent myself. It's very important to have
- 33:57those people around you and who you can open up to, you know,
- 34:02frankly and recognise your feelings and and your emotions.
- 34:07So I totally agree. Yeah, one second.
- 34:14Sorry I got a bit lost now. OK.
- 34:18So in terms of advice and reflection, what would you say
- 34:22to a child or a young person who feels different or misunderstood
- 34:27right now? I'll probably ask them why they
- 34:31feel misunderstood. First of all, you know, where
- 34:34does that come from? Where is the evidence of that?
- 34:37Is it that So I will use an example that relates back to the
- 34:41school system because that's, you know, I'm a teacher and I
- 34:44always, always will always default to that.
- 34:46But, you know, is it the fact that you feel misunderstood by
- 34:50by a teacher? Or is it that, you know, one of
- 34:55my, one of my big issues, and I've got quite a few issues when
- 34:58it comes to the education system is, is around pen licences and
- 35:01that teachers will give pens to young people once they can
- 35:06demonstrate that they have perfect handwriting with using a
- 35:09pencil. So is it the fact that, you
- 35:12know, for example, there's a young person who doesn't have
- 35:15perfect handwriting, Does that child feel misunderstood by that
- 35:20teacher? Because actually there's a lot
- 35:22of other things going on for that child that, you know, they
- 35:26can't physically hold the pencil in in the right way.
- 35:28Is there something else going on?
- 35:30And that's why that teacher is reacting that way.
- 35:36So yeah, I'd, I'd ask them to reflect on where the evidence
- 35:39is, whether it is from a peer or a friend that has mentioned
- 35:44something. And then I'd also ask them how
- 35:49would they like to be listened to and spoken to and giving the
- 35:53young person ownership from with with that regard that if they
- 35:59are feeling misunderstood or different, then understand why
- 36:03and understand how they would like to communicate going
- 36:07forwards or would like the people around them to
- 36:10communicate to them going going forwards so that they can feel
- 36:15understood. Yeah, it's, it all goes back to
- 36:19curiosity, isn't it? Supports through curiosity.
- 36:22If you ask the right questions, then you you will be able to, to
- 36:27support. And I guess it would be the same
- 36:29advice to parents. Any advice for those who are
- 36:33just beginning their their neurodiversity journey?
- 36:36Yeah, I think, I think the point really is, is you're not going
- 36:43to have all the answers ever. And I think it's, you know, I'm
- 36:48very active on a lot of these WhatsApp groups with, with some
- 36:51of our parents as well. And I've gained a lot personally
- 36:55from the WhatsApp groups as a, as a parent myself with a little
- 36:59boy now. And it's so much about asking
- 37:02for help. And as much as the parents are
- 37:05asking each other for help, I'm also asking those parents for
- 37:09help about, you know, situations around trauma.
- 37:14I unfortunately had a bit of a negative experience with my son
- 37:18attending a nursery. I mean, he's only 10 months.
- 37:20And I think this is where part of the issue starts is that I
- 37:25was not happy with two of the nurseries he attended.
- 37:27I could see the impact on him even though he was very young.
- 37:30And I'd asked the parents what they would do in that situation.
- 37:36And a lot of the parents came forward and said they one of
- 37:41their regrets, unfortunately, is they hadn't listened to their
- 37:44gut when they realised that the school place or setting was not,
- 37:49was not the right place for their, for their child.
- 37:51And at that point I was like, right, OK, I need to listen to
- 37:54my gut as well. My 10 month old can't speak,
- 37:57obviously, but I need to be listening to my gut.
- 38:00And that was the advice that these, that, you know, the
- 38:02parents had given me. And I think that's really key.
- 38:05Listen to your gut, but also ask, ask for help and, and be
- 38:09vulnerable. It's hard.
- 38:11Absolutely. Yeah.
- 38:12Sometimes we forget, you know, we are just, it's so ingrained
- 38:16that we have to do it. We, we, you know, we have to be
- 38:19strong and we have to keep going.
- 38:21We, we forget to ask for help. And I absolutely agree with with
- 38:25your gut feeling. It's something that I also had
- 38:27to learn as as a mum. Yeah, it's hard though.
- 38:32It's really hard because going back to my son's situation, in
- 38:37my head, I was like, well, babies is the same as the
- 38:39school, you know, babies need to go to nursery, that's what they
- 38:42do. And you know, and children need
- 38:44to go to school that that's what they do.
- 38:46But and I would say going against the grain is really
- 38:51difficult. And that's where you start
- 38:52questioning yourself. And this is where the sense of
- 38:54community, community has been so empowering for me that these
- 38:59people have said, you know, listen to your gut, it's OK.
- 39:03And they validated my wacky idea, which is he's not going to
- 39:07go to nursery. Yeah, and that's absolutely
- 39:10fine. Yeah, but this.
- 39:12But the issue occurs now with the state of the education
- 39:16system and then the news today that the view around children
- 39:23needing to attend schools is really, really enforced on us,
- 39:27on everybody. And again, you know, there's
- 39:28this lack of choice which is really frustrating.
- 39:32Yeah, yeah, yeah. But at at least you have a few
- 39:38years to to not to worry about school.
- 39:42I know, yeah. But yeah, I'm like you, you
- 39:45know, we, it's difficult for us to live in the present, isn't
- 39:48it? We are already thinking like 3
- 39:51or 4 years ahead, but yeah. Absolutely.
- 39:54That makes sense and if you could change one thing about how
- 39:58society views neuro divergent, what would it be?
- 40:05I would like society and we're guessing there pleasantly
- 40:08enough. I would like society to consider
- 40:12the the period that we're in now to be really, really, truly
- 40:15exciting because I think that more and more so the the
- 40:22community that we're in is, is really recognising the strengths
- 40:25that we have. And there is a realisation that
- 40:28everyone coming together, working with different brains is
- 40:31really, really powerful. What I would say, which, which
- 40:38is really interesting because, you know, working in the
- 40:42schools, working in the school system, inclusion and
- 40:45differentiation has been a buzzword since forever.
- 40:48And, you know, we're being told that everybody's different.
- 40:50I've even said it, you know, being interviewed here,
- 40:52everybody's different. And yes, we, we say those words,
- 40:57but actually we truly do need to recognise that everybody is
- 41:00different and utilising everybody's strengths.
- 41:03What I have seen is in the workplace this is being
- 41:06recognised and I do feel though because I was on, I was
- 41:09interviewing somebody from Goldman Sachs recently about the
- 41:14impact of of the workplace and your divergent in the workplace.
- 41:21But what I do feel is in the workplace, the, the recognition
- 41:28of different brains, let's say is being discovered and being
- 41:32considered because of the financial impact, IE increased
- 41:36profits. So there is that motivation
- 41:38there to have somebody who's, you know, ADHD and hyper focuses
- 41:42and the autistic and potentially great with numbers, you know,
- 41:46but I think the outcome is increased profit whereby if we
- 41:51look back at the school system, there isn't that there isn't a
- 41:55motivation there. And it's quite, quite the
- 41:59opposite, to be honest. I was listening to the radio
- 42:05today just before Bridget Phillips and was on to announce,
- 42:08announce the white paper. There was somebody talking there
- 42:13about the fact that the schools are so focused on Ofsted and
- 42:19grades and exams that the schools are not motivated
- 42:23towards inclusion at all. Because why would they want, you
- 42:28know, these different brains that can't achieve the I'm old
- 42:31so you know, the age stars level nines.
- 42:36There isn't that sense sense of want to have different brains
- 42:41because there's no motivation because I'm Ofsted.
- 42:44Maybe the change needs to come from the top, you know, Maybe
- 42:47different metrics or measurements should be
- 42:51implemented so that you know that motivation is starts being
- 42:56there. Yeah, and I understand we need
- 42:59to, you know, track progress of of every single young person.
- 43:03But you can't compare somebody, you can't compare children.
- 43:07You can compare where they are now, you know, and my, you know,
- 43:11the prime example truly is, is last week they were going to
- 43:16commit suicide. They haven't done it because of
- 43:18the impact that is, that is much more powerful progress than a
- 43:22young person having achieved, you know, 1 improved grade in
- 43:27their GCSE. OK, it's the different children,
- 43:30but there's nobody that's truly recognising the progress of
- 43:33these men, the children who have truly experiencing the mental
- 43:36health difficulties or even, you know, when it comes to speech
- 43:39and communication, that they have the right support in place
- 43:43with a speech and language therapist and that's absolutely
- 43:45brilliant. And then there is, you know, the
- 43:47academic tick box that is enforced on them as well.
- 43:52We need to recognise there's so much going on for children,
- 43:56young people and obviously adults, humans.
- 44:00Yeah, yeah. Who?
- 44:02Adults who haven't yet grasped how to, you know, sometimes live
- 44:06their lives. So imagine children and young
- 44:08people who don't have the same experience.
- 44:11And you know, you're just young at heart, right?
- 44:14So you wouldn't, you wouldn't know you're, you're learning
- 44:17every day. Absolutely.
- 44:20OK. And is there anything you wish
- 44:23people better understood about ADHD, special educational needs
- 44:27and disabilities or the work that you do?
- 44:31So I think when it comes to neuro diversity, it's not scary.
- 44:37It's something really exciting. Like to understand how people's
- 44:41brains work and and how they work differently is an amazing
- 44:45opportunity. And I think it's, it should be
- 44:48fascinating, fascinating for everybody and an empowering and
- 44:54I think there has to be a sense of a sense of joy, but also a
- 45:02sense of obviously respect when it comes to a new I diverse
- 45:09people. But I just think that people are
- 45:12missing an opportunity if we don't get to understand each
- 45:15other. And yes, I do feel, especially
- 45:18in the workplace, that there was a concern around disability
- 45:21laws. And you know, if the employers
- 45:23don't do XY and Z for their employee, then there's going to
- 45:27be an issue there. But actually if we, if we think
- 45:30about it in the in the other way, if we put things in place,
- 45:36if we create an environment so that we can absolutely thrive,
- 45:39we are going to be the best possible employees, which is
- 45:43really empower, really empowering.
- 45:46Yeah, absolutely. And if listeners want to find
- 45:51out more about sensational tutors, where should they go to?
- 45:55And I'll link everything you mentioned, yeah.
- 45:57Sure. So the website is
- 45:59www.sensationaltutors.co.uk. We're obviously on Facebook,
- 46:08Instagram as well. We have a YouTube channel now, a
- 46:12very, very, very small one with some of the interviews that I've
- 46:15been doing, including the one from Goldman Sachs.
- 46:19And you know, going forwards, what I'm keen to do personally
- 46:23is to be an interviewer of people, people's experiences and
- 46:29especially parents whose children have experienced trauma
- 46:33and, and really their journeys. That's something I'm truly
- 46:36wanting to understand a bit more of and how as a system, we can
- 46:41change things so that unfortunately for these parents
- 46:44and the children, they have experienced trauma, But how can
- 46:46we change things going forwards for these young people?
- 46:50Early intervention, yes, that's been talked about a lot,
- 46:52including today. But we really need to be
- 46:55thinking about what that looks like as a strategy for these for
- 46:58these families. And if the trauma has been
- 47:02experienced, how can we support that family young person to
- 47:07repair some of that so that they can live, you know, live a
- 47:12fuller life and live a live a life where they feel valued and,
- 47:16and, and care for and cared for and are able to access, access
- 47:22the world with a bit more of a smile on their face, which is
- 47:24the overall intention. Yeah, that sounds fantastic that
- 47:27that sounds like a really good initiative.
- 47:29So if anyone is, you know, up to be interviewed, should they go
- 47:35to the website and contact the generic e-mail address?
- 47:38Yeah, or either generic e-mail address which is
- 47:42enquiries@sensationaltutors.co.uk or Joanna, which is mine, Joanna
- 47:47at sensationaltutors.co.uk. Great.
- 47:50Looking forward to seeing those interviews.
- 47:53I had seen the the Goldman Sachs OH.
- 47:56Brilliant. Great, great.
- 47:59OK, now moving on to the inner journey which is the final
- 48:03section of of the interview. Who is your biggest support on
- 48:07your journey? I've mentioned him before and
- 48:12unfortunately I'm going to have to mention him again and it is
- 48:14my husband he will love me for. Saying that, but it is.
- 48:18It truly is he, and I don't tell him this enough.
- 48:21And I'll probably get him to listen to this podcast.
- 48:26Yeah, he's really had my my back.
- 48:28And yeah, he's just from the beginning seen my passion, seen
- 48:36my drive, seen who I am and a as a person.
- 48:40And, and this is very odd in the relationship as well.
- 48:43When he second date told me he was going to marry me and I told
- 48:46him that he wasn't, you know, it's, it's from the beginning
- 48:51and there have been hurdles, you know, there have been
- 48:53challenges. When I had my ADHD diagnosis and
- 48:57when it came to that absolutely horrendous assessment that
- 49:00lasted a long time, it was him. It was him that basically said,
- 49:07yes, the ADHD is having an impact on our relationship.
- 49:11And I find it fascinating going back to the diagnosis that if it
- 49:14wasn't for having a negative impact on a relationship, you
- 49:17actually don't get the diagnosis.
- 49:19It's just something you can deal with.
- 49:21But because of there being negative implications, I got the
- 49:25diagnosis. So, yeah, it, it was, it's him
- 49:31really through the process of the diagnosis, through the
- 49:35business, through the anxiety that I really suffered in the
- 49:41beginning of, of our relationship, I was really
- 49:43quite, quite well, quite I'll with it.
- 49:47But he, he pulled me through that and saw me as a person.
- 49:52And here, here I am today, with a very big smile on my face.
- 49:57Well, that's what we like to see, happy couple.
- 50:00But you know, we all have our hurdles and you know what's a
- 50:04good relationship with without an argument or or a fight.
- 50:10But yeah, it's great to see. It feels my heart to see that
- 50:14you have that. Yeah, I'm, I'm lucky.
- 50:17I would say I'm lucky because we, yeah, we chose each other or
- 50:23he chose me. I think, as I said, I did not
- 50:25want to get married. I was not going to be one of
- 50:26those people with a ring on my finger.
- 50:28But he broke me down and worked on me and here we are.
- 50:33And he knew on the second date, so he.
- 50:36Did he Did, yeah. Great.
- 50:40And Joanna, you are a busy person, how do you treat
- 50:45yourself with regards to your well-being?
- 50:50My I'm definitely at my happiest and it's definitely going to
- 50:54sound cliche, but I'm definitely at my happiest when I am making
- 50:58a difference. So I do try to be around people
- 51:03who have the same values as me. I think the older I get, the
- 51:07older I get, the more overwhelmed in a positive way,
- 51:12the more overwhelmed I get when I do meet people who share the
- 51:15passion and drive to make a difference equally so.
- 51:18And people don't have the same values, then I am quite the
- 51:25opposite. I'm quite black and white.
- 51:27You know, if somebody oversteps the mark in terms of, you know,
- 51:31disrespecting somebody who I value really highly or yeah,
- 51:36demonstrates that I shouldn't trust them anymore, then
- 51:39unfortunately that that's a bit of a different story.
- 51:42But in terms of me creating the environment for myself, it's
- 51:48about being around people who I truly, truly, truly love.
- 51:52And that comes from, you know, my team members in the business,
- 51:56their values, their passion, their absolute drive to support
- 51:59our incredible families and young people.
- 52:02They keep me going a lot. I have to say, you know, work
- 52:06is, is hard, but the shared values within the company
- 52:12structure and the, you know, the staff, that's what keeps me
- 52:16going, have them to bounce me back.
- 52:19Yeah, and sometimes that's difficult to find.
- 52:21So yeah, yeah, yeah. And who is your biggest
- 52:26inspiration? Anybody who has a massive amount
- 52:34of drive to make a difference in whatever field.
- 52:37But I just think it takes a lot to stand by a value so strongly
- 52:45that you want to change, you know, be it policy, be it
- 52:49somebody's mind, anything that yeah, any, anybody that has a
- 52:55has a drive that I value. Yeah, yeah, that makes sense.
- 53:01And if you were a superhero or had a superpower, who or what
- 53:05would that be and how would you use it to?
- 53:07Make. The world a better place for
- 53:10children and young people with special educational needs and
- 53:14and disabilities. I would, and this probably
- 53:18applies to everybody. I would try to get everybody
- 53:21just to stop and to listen. Now stop and listen to that
- 53:25young person. Don't try to pretend that you
- 53:29know better that than that young person, because you absolutely
- 53:32don't. We need to be listening to them
- 53:34and giving them the space to communicate to you.
- 53:36So in terms of superpower, stop and listen.
- 53:40The ability to stop and listen for everybody.
- 53:43Yeah, that sounds great and very, very useful.
- 53:47And if there was a song that captures your journey, would you
- 53:52be able to name 1? This one is quite difficult
- 53:55because more than time, there's more than one.
- 53:59Gosh not. I don't know what the song would
- 54:11be, but something about, you know, being incredibly
- 54:14adventurous and unstoppable. Unstoppable.
- 54:18Hopefully you know with the right.
- 54:22Sia has the song called Unstoppable.
- 54:24It's one of my favourites. That's probably it.
- 54:26Nice, We'll go with that one. Right.
- 54:30And what are your hopes for the future?
- 54:35A sense of calmness, as you know, I think guessing, you
- 54:45know, and that kind of links to my superpower.
- 54:47Just the ability to sometimes stop and listen to myself.
- 54:52I should be using the superpower myself, shouldn't I?
- 54:54You know, just being calm, being proud of, of what I've achieved
- 55:01and the impact that we've made for hundreds of families and,
- 55:05and being reflective of that and patting myself on the back
- 55:12actually, because I don't. And not being so, yeah, anxious
- 55:19and, and, and stressed to, to fix every, every family's
- 55:25challenges that they, you know, they, they rightly come to us
- 55:30four. We can't fix everything.
- 55:32And I want, but I want to because every family is so
- 55:36special and amazing. But that's what makes you
- 55:38special, and that's what makes you keep going.
- 55:41But you should definitely be proud of yourself and pat
- 55:43yourself in the back more often. Yeah, yeah.
- 55:48And finally, if your heart had a voice, what would he tell us?
- 55:56It would tell us, yeah, just to to well, probably give me a hug
- 56:12and just yeah, it would create a warm, comforting feeling and and
- 56:19give me a hug and and say well done, you know, keep going, but
- 56:23well done. Look at the look at the the
- 56:25lives you've you've literally changed if not saved.
- 56:30Yeah. And that's a wonderful way of
- 56:33ending the interview. Thank you so much, Rana.
- 56:35It's been thank you pleasure and privilege to interview you and
- 56:40I'm I'm sure we will stay in touch.
- 56:43Brilliant. Yeah.
- 56:45I'm looking forward to see how sensational tutors develops and
- 56:48to continue following your your career progression.
- 56:52And, and once again, you should be definitely very proud of
- 56:55yourself. I'm patting you in the back.
- 56:59Thank you. Appreciate that.
- 57:01Great. Thank you.
- 57:03Thank you. Thank you for listening or
- 57:23watching the Neuro Diverse Voices Podcast.
- 57:26If today's conversation resonated with you, please know
- 57:30that you are not alone. Your experience matters, your
- 57:34voice matters, and your way of being in the world is valid.
- 57:39I'm Andrea Costa, and this podcast exists to celebrate
- 57:43neurodivergent lives in all their complexity, strength, and
- 57:47individuality. If you enjoy this episode,
- 57:51please subscribe, share it, and help these stories reach the
- 57:54people who may need them the most.
- 57:57Join me again next time for more honest conversations, powerful
- 58:01stories, and diverse perspectives because every
- 58:05neurodivergent journey is different.
- 58:08And remember, when you meet one neurodivergent person, you've
- 58:11only met one neurodivergent person.
- 58:15Until next time, take care, bye.