Latest / Miss Understood with Rachel Uchitel / TikTok Phenomenon Baylen Dupree Educates Us on Living With Tourette's Syndrome

Transcript

TikTok Phenomenon Baylen Dupree Educates Us on Living With Tourette's Syndrome · Miss Understood with Rachel Uchitel

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  Speaker 1: real conversations in a new language today. Welcome back to Misunderstood.
• 0:59
  Speaker 1: I'm your host, Rachel Yucatel. So guys, today we are
• 1:04
  Speaker 1: going to be talking about something that I know is
• 1:06
  Speaker 1: misunderstood by probably everyone listening to this. You know today's
• 1:10
  Speaker 1: guest from her major, major social media presence with over 600,000
• 1:15
  Speaker 1: followers on Instagram and a whopping 9 million followers on TikTok.
• 1:19
  Speaker 1: Balin Dupree has been sharing her life, her stories, and
• 1:22
  Speaker 1: her struggles with the world. I was introduced to Balin
• 1:25
  Speaker 1: by my daughter and my daughter's friends who absolutely loved her.
• 1:30
  Speaker 1: It wasn't because she was doing a dance video or
• 1:31
  Speaker 1: giving makeup tricks, although we love those videos too, but
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  Speaker 1: Balin was using her platform to share her experiences living
• 1:37
  Speaker 1: with Tourette's syndrome. Now, I think it's really important on
• 1:41
  Speaker 1: my show to highlight things that are misunderstood, not just people.
• 1:46
  Speaker 1: So while I am, you know, talking to Balin about
• 1:50
  Speaker 1: her life and her, I really wanted to do this
• 1:52
  Speaker 1: episode to, you know, bring awareness with Balin's help to
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  Speaker 1: Tourette's and what it is. I admit, I did not
• 2:02
  Speaker 1: know much about Tourette's before this interview, except for what
• 2:04
  Speaker 1: we see depicted on TV or in the movies. But
• 2:07
  Speaker 1: Balin is so genuine and open that you cannot help
• 2:09
  Speaker 1: but be entranced by her videos. You guys really have
• 2:12
  Speaker 1: to check her out to understand how she lives with us.
• 2:15
  Speaker 1: Her personality shines through, and even when she has tics,
• 2:18
  Speaker 1: she's full of love and charisma. We had the best conversation.
• 2:22
  Speaker 1: Baylen talks about living with Tourette's, why sharing her story
• 2:24
  Speaker 1: is so important to her, how opening up changed her life,
• 2:28
  Speaker 1: and how she hopes it's helping to change others. She
• 2:30
  Speaker 1: doesn't sugarcoat her struggles, sometimes just showering and eating, putting
• 2:34
  Speaker 1: on makeup, going to school, sitting in class can be difficult.
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  Speaker 1: But with the support of her family, her boyfriend, and honestly,
• 2:40
  Speaker 1: her own courage, she's building a brighter future. Besides being inspirational,
• 2:45
  Speaker 1: she's also hilarious. I'm so excited for everyone to know
• 2:49
  Speaker 1: Baylyn Dupree. Balin, thank you so much for joining me
• 3:24
  Speaker 1: at Misunderstood. It is such an honor to have you here.
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  Speaker 1: I just want to tell you a little story of
• 3:30
  Speaker 1: how I stalked you to get you on my show.
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  Speaker 1: So basically, my daughter would walk around the house and
• 3:42
  Speaker 1: sort of yell things like, you're done, you're done to me,
• 3:47
  Speaker 1: and wind it up and say all these things to me.
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  Speaker 1: And I would say- Exactly. Wind it up. And I
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  Speaker 1: would say, Wyatt, what are you talking about? And she's like, oh,
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  Speaker 1: that's my friend from Instagram, Balin. And so finally I
• 4:00
  Speaker 1: looked you up and I thought your story was so inspirational.
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  Speaker 1: Some of your posts have brought me to tears because
• 4:07
  Speaker 1: I think you're just like the cutest. So I DM'd
• 4:10
  Speaker 1: you and you never got back to me, which is
• 4:12
  Speaker 1: fine because I'm sure you get a lot of DMs.
• 4:14
  Speaker 1: We'll talk about that later and how many you do get.
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  Speaker 1: But so the way I figured out how to get
• 4:19
  Speaker 1: you is that my daughter was in an accident and
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  Speaker 1: I decided to look you up on Cameo and I
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  Speaker 1: found you on Cameo and I requested that you send
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  Speaker 1: something to my daughter, like a get well card. And
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  Speaker 1: you did. And I also said at the very end, listen,
• 4:36
  Speaker 1: I'm not trying to be a stalker, but I would
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  Speaker 1: love you on my show. Here's my cell phone. And
• 4:41
  Speaker 1: it worked out. You sent my daughter the most wonderful cameo.
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  Speaker 1: She just like burst into tears. She sent it to everyone.
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  Speaker 1: First of all, she laughed because you're just, you're so
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  Speaker 1: funny and you're so great about your life and about
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  Speaker 1: the syndrome that you have Tourette's syndrome. And also I
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  Speaker 1: think it's so wonderful that you bring such awareness to
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  Speaker 1: something that kids might not know what it is. And
• 5:05
  Speaker 1: even a lot of adults, there's some stigma. that goes
• 5:09
  Speaker 1: with Tourette's syndrome and you just bring so much knowledge
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  Speaker 1: to it. So anyways, that is what I wanted to
• 5:15
  Speaker 1: say to you. And I really, I'm so thankful that
• 5:17
  Speaker 1: you're here and you made the time.
• 5:19
  Speaker 2: Oh, I'm so thankful you're able to have me. It's
• 5:21
  Speaker 2: so nice to meet you, Rachel. I appreciate you having me.
• 5:23
  Speaker 2: And I'm so grateful that I was able to say
• 5:26
  Speaker 2: hi to Wyatt and, you know, and her little pink cast.
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  Speaker 2: She looks so cute.
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  Speaker 1: Yes.
• 5:32
  Speaker 2: Yes.
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  Speaker 1: Thank God she has that off now. So, all right.
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  Speaker 1: So let's like get right into this. You were diagnosed
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  Speaker 1: with Tourette's syndrome when you were around 17, right?
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  Speaker 2: Yes.
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  Speaker 3: Yes.
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  Speaker 1: So what was life like before you were given that
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  Speaker 1: label and you finally figured out what you had? What
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  Speaker 1: were your symptoms growing up?
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  Speaker 2: So when I was about seven, I had a lot
• 6:02
  Speaker 2: of neck movements. However, they only came out in like
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  Speaker 2: very anxious situations. So it would only be at like school.
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  Speaker 2: And I thought it was normal. I thought that it was, like,
• 6:13
  Speaker 2: something that, like, everyone did. Like, I didn't think anything
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  Speaker 2: of it. Kindergarten, like, elementary school was probably the worst
• 6:21
  Speaker 2: school years of my life. I, like, begged my mom
• 6:26
  Speaker 2: to homeschool me. Like, it was just terrible. I had
• 6:28
  Speaker 2: a lot and a lot of anxiety that stemmed from, like,
• 6:31
  Speaker 2: when I was a child.
• 6:32
  Speaker 1: Fuck, fuck, fuck.
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  Speaker 2: So those were kind of the first things I saw.
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  Speaker 2: And then we... We moved. I lived in upstate New
• 6:43
  Speaker 2: York when I was younger. And that's when I first
• 6:45
  Speaker 2: started seeing like symptoms when I was like seven. And
• 6:48
  Speaker 2: then I moved to Georgia when I was about 12, 13.
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  Speaker 2: And then I moved to West Virginia when I was 15,
• 6:56
  Speaker 2: 16 years old. And that's when they became a little
• 7:00
  Speaker 2: bit more noticeable again. They completely went away and they
• 7:04
  Speaker 2: became more noticeable and Very livable, if that makes sense.
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  Speaker 2: I was able to do everything else that everyone wanted
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  Speaker 2: to do. However, from a very young age, I've never
• 7:18
  Speaker 2: wanted to drive. I never wanted to get my permit.
• 7:22
  Speaker 2: I was like, mom, I'm just going to live in
• 7:23
  Speaker 2: New York city. Like I'm just going to live in
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  Speaker 2: a city and I don't have to fuck, fuck, fuck
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  Speaker 2: your dad. I don't have to worry about driving or
• 7:31
  Speaker 2: any inconvenience that way. And she was like, okay, man.
• 7:34
  Speaker 2: And then it got to where I am now, where
• 7:37
  Speaker 2: I'm like, striving to drive, like where I want to
• 7:40
  Speaker 2: learn how to drive. But when I was in high school,
• 7:45
  Speaker 2: my symptoms were very, very mild and it was almost
• 7:48
  Speaker 2: like living like a normal life. Um, it didn't impact
• 7:51
  Speaker 2: anything that I did. Um, I probably I probably had
• 7:54
  Speaker 2: 10 ticks a day and they, they ranged from clearing
• 7:57
  Speaker 2: my throat to, um, neck movements. Um, and they progressively
• 8:12
  Speaker 2: got worse before COVID. Um, my friends, my friend group
• 8:16
  Speaker 2: at the time started like pointing them out and like
• 8:20
  Speaker 2: being like, what are you doing? Are you doing that?
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  Speaker 2: Like we'll be in a silent Ted talk and I like,
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  Speaker 2: can't stop clearing my throat. And I went to the car,
• 8:27
  Speaker 2: I have a cardiologist and he was like, well, it's
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  Speaker 2: your vocal cords. I said, no, you don't understand. I,
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  Speaker 2: I can't like, I ha like, I have to do it.
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  Speaker 2: And he was like, I can't help you.
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  Speaker 3: Yeah.
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  Speaker 2: And I said, I can't help myself either. So this
• 8:39
  Speaker 2: is going good. And then after it started getting worse
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  Speaker 2: before COVID, I went and got a diagnosis for it.
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  Speaker 2: And my doctor was like, yeah, this is like Tourette's. Like,
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  Speaker 2: it's very, very mild. Like, it's a very common blank, blank,
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  Speaker 2: and blank. But it took a stretch to get to
• 9:02
  Speaker 2: that diagnosis. Because after I was living a normal life
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  Speaker 2: with my tics, and I had TikTok when I had tics. However,
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  Speaker 2: you couldn't tell that I had Tourette's. And I didn't
• 9:15
  Speaker 2: make it my whole platform. I didn't even want a TikTok.
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  Speaker 2: Anyone that you talked to from high school, I did
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  Speaker 2: not want TikTok. It was like, everyone was dancing, all
• 9:27
  Speaker 2: this other stuff. And I just... I can't dance. So
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  Speaker 2: I just like didn't see like a need for it.
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  Speaker 2: And then I was like, OK, I'll make like funny
• 9:35
  Speaker 2: videos or something. And it just came into like a
• 9:37
  Speaker 2: little like like a laughing thing. And then people started
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  Speaker 2: saying stuff about my tics in public and videoing me
• 9:48
  Speaker 2: in public when I was. These are kids I went
• 9:50
  Speaker 2: to high school with a girl specifically that was in
• 9:53
  Speaker 2: my math class that asked me for math answers on
• 9:55
  Speaker 2: every single exam. I'm not good at math. I'm not
• 9:58
  Speaker 2: good at math. Okay. I'm not good. So the fact
• 10:01
  Speaker 2: that she was asking me, she got really mad and
• 10:03
  Speaker 2: she like videoed me into Marshalls and like sent it around,
• 10:06
  Speaker 2: like bullied me. So that's terrible. That's how, um, I
• 10:12
  Speaker 2: started making my platform about tics and Tourette's because like
• 10:17
  Speaker 2: this girl has no idea. Like these kids I graduated
• 10:19
  Speaker 2: high school with were shocked of how bad my tics were.
• 10:22
  Speaker 2: Like I ran into them, a couple of people from
• 10:25
  Speaker 2: my high school last year, and they came up to
• 10:26
  Speaker 2: me and they were like, oh my God, you actually
• 10:30
  Speaker 2: do have Tourette's. And I was like, well, why wouldn't
• 10:32
  Speaker 2: I have Tourette's? And they were like, because you didn't
• 10:34
  Speaker 2: have Tourette's when I was, when you were in high school.
• 10:36
  Speaker 2: I said, I did have Tourette's, but I didn't I
• 10:41
  Speaker 2: was made fun of.
• 10:42
  Speaker 1: Progressively.
• 10:43
  Speaker 2: Yeah. I was just made fun of for the little
• 10:46
  Speaker 2: tiny movements that I did or like, why are you
• 10:49
  Speaker 2: doing that? And they thought it was my medicine because
• 10:51
  Speaker 2: I had very, very bad depression when I was in
• 10:54
  Speaker 2: high school and I was taking multiple different amounts of
• 10:57
  Speaker 2: medication to the point where it was giving me manic episodes, um,
• 11:02
  Speaker 2: And like, I finally felt like good enough and happy.
• 11:04
  Speaker 2: And my friends would be like, stop doing that. You're
• 11:06
  Speaker 2: so annoying. Like certain comments like that, but them not
• 11:10
  Speaker 2: knowing that I had no control over it. So.
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  Speaker 1: many questions. So you are one of six children, correct?
• 14:15
  Speaker 2: Yes, I'm the second oldest. Oh, okay.
• 14:18
  Speaker 1: So growing up, did your siblings, I mean, you're talking
• 14:24
  Speaker 1: a lot about the kids in your class too, but
• 14:26
  Speaker 1: were they like, Valen, what is this? Stop doing that.
• 14:30
  Speaker 1: And you were trying to suppress it or like, how
• 14:33
  Speaker 1: did it make you feel? Was part of that depression
• 14:35
  Speaker 1: in your high school years because you felt like you
• 14:38
  Speaker 1: were being made fun of or because you felt like
• 14:40
  Speaker 1: you had something you had to express and it needed
• 14:43
  Speaker 1: to come out? Like, where do you think all that
• 14:45
  Speaker 1: stemmed from?
• 14:46
  Speaker 2: So- My depression was way before my Tourette's diagnosis. I
• 14:53
  Speaker 2: don't think it had anything to do with my Tourette's.
• 14:57
  Speaker 2: My dad has a job where we move around a lot,
• 15:00
  Speaker 2: and it was very, very hard for me to find friends.
• 15:03
  Speaker 2: I've never really had friends. real friendships, good friendships. However,
• 15:10
  Speaker 2: I am in a place now where I have a
• 15:11
  Speaker 2: couple and I'm very grateful for that. However, I was very,
• 15:15
  Speaker 2: very badly bullied in middle school. Very, very bad. I
• 15:19
  Speaker 2: had a back brace for my scoliosis I had to
• 15:23
  Speaker 2: wear for two years. I was very, very sick with
• 15:26
  Speaker 2: chronic Lyme disease. So I was called the sick girl.
• 15:30
  Speaker 2: I was never in school. I always wore sweatpants.
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  Speaker 2: A hoodie, like I just never took care of myself.
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  Speaker 2: Like it was, I was lacking some type of love
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  Speaker 2: for myself that I couldn't find. And my parents, my
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  Speaker 2: parents did everything. My parents got a dog for, for
• 16:20
  Speaker 2: my depression. But they said they labeled it for the family.
• 16:23
  Speaker 2: It's a family dog. And my tics were not bad
• 16:30
  Speaker 2: when we got the dog. However, they got worse and
• 16:33
  Speaker 2: he got scared of me. And so it like broke
• 16:37
  Speaker 2: my heart and I were, me and the dog aren't
• 16:42
  Speaker 2: close anymore.
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• 16:46
  Speaker 1: The little white dog?
• 16:48
  Speaker 2: No, the other dog is Yelly and he's, he's an
• 16:52
  Speaker 2: eight pound multiple and he is the meanest dog you'll
• 16:54
  Speaker 2: ever meet. Um, he's literally, he's bit everyone in our family.
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  Speaker 2: It's so bad.
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  Speaker 2: Yeah, but the two dogs I have now, I've brought
• 21:59
  Speaker 2: into my life, obviously, how bad my tics are now,
• 22:03
  Speaker 2: and their names are Tootsie and Fluffy. They're my favorite
• 22:06
  Speaker 2: things ever. They give me so much serotonin and help
• 22:09
  Speaker 2: so much with my condition that people don't understand. People
• 22:12
  Speaker 2: think I, like, throw my dogs. Like, it's like motherhood. Like,
• 22:17
  Speaker 2: like it's like an instinct. I try to tell people,
• 22:19
  Speaker 2: I'm like, it gives me relief and calmness and makes
• 22:22
  Speaker 2: me feel at peace when I'm holding basically my, like
• 22:28
  Speaker 2: my dogs are my children. Like I give them everything. Right.
• 22:31
  Speaker 1: So in the same way with my dogs. So when
• 22:34
  Speaker 1: you were finally diagnosed, you did not have the urge
• 22:39
  Speaker 1: to curse yet. Correct. I mean, is that something that
• 22:41
  Speaker 1: came later?
• 22:42
  Speaker 2: Yes. So, Cursing or corpulalia is in 10% of people
• 22:49
  Speaker 2: that have Tourette's. However, I came back from college my
• 22:53
  Speaker 2: first semester. I think it was around Thanksgiving time. I
• 22:57
  Speaker 2: could be wrong. I don't know exactly what time, but
• 23:00
  Speaker 2: I came back from college and my brothers, I lived
• 23:02
  Speaker 2: in the basement at the time, moved their Xbox station
• 23:05
  Speaker 2: down there. And can you imagine the things that came
• 23:09
  Speaker 2: out of their mouth? Because I can give you a
• 23:11
  Speaker 2: couple examples.
• 23:14
  Speaker 1: I'm sure you give examples every day. Okay, yeah, go on.
• 23:17
  Speaker 2: Yes, and everyone's like, where do you get these nasty
• 23:20
  Speaker 2: words from? I'm like, my brothers. My brothers. My dog
• 23:25
  Speaker 2: is gonorrhea.
• 23:28
  Speaker 1: So, yeah, I just want to explain to people what coprolalia,
• 23:31
  Speaker 1: is that how you pronounce it?
• 23:33
  Speaker 2: Is.
• 23:34
  Speaker 1: Pronounce it for me.
• 23:35
  Speaker 2: Corpulalia? Yes.
• 23:37
  Speaker 1: So that is the medical term used to describe the
• 23:39
  Speaker 1: most socially stigmatizing symptoms of Tourette's syndrome is the involuntary
• 23:44
  Speaker 1: outburst of obscene words or socially inappropriate derogatory remarks. And
• 23:50
  Speaker 1: as you said, only 10 percent of people have this.
• 23:53
  Speaker 1: So not all people that have Tourette's are affected by
• 23:55
  Speaker 1: this sort of cursing term. Part of it. But I
• 23:59
  Speaker 1: think that's a big stigma that goes along with Tourette's.
• 24:02
  Speaker 1: If you hear someone has Tourette's, they say, oh, they
• 24:04
  Speaker 1: have the cursing disease.
• 24:05
  Speaker 2: Right.
• 24:06
  Speaker 1: I mean, it's just such a small percentage. I wonder
• 24:11
  Speaker 1: if you get this question a lot. Why is it
• 24:13
  Speaker 1: cursing and not yelling things like you're beautiful? I love
• 24:17
  Speaker 1: your puppy. Like, why is it always derogatory and curse
• 24:23
  Speaker 1: words as opposed to things that are not, you know, inappropriate,
• 24:27
  Speaker 1: let's say?
• 24:29
  Speaker 2: So I don't really have 100% example for that or
• 24:34
  Speaker 2: a statement to give you as an answer. However, Tourette's
• 24:38
  Speaker 2: looks different in everyone. So vocal tics and motor tics
• 24:44
  Speaker 2: can go into categories that are either simple or complex.
• 24:48
  Speaker 2: And with complex vocal tics, it can be into my
• 24:53
  Speaker 2: dog is gonorrhea, multiple different categories. words being used with simple,
• 25:00
  Speaker 2: it can be noises. Um, it was my throat clearing, sneezing, very,
• 25:06
  Speaker 2: very simple, simple things that can go about and just
• 25:10
  Speaker 2: look like everything else. So people get caught off guard with, Oh,
• 25:18
  Speaker 2: Tourette's only looks like this. And because that's the only
• 25:23
  Speaker 2: thing that we're showing because there's people that have very, very,
• 25:28
  Speaker 2: very mild ticks like me when I first started social media.
• 25:32
  Speaker 2: And I didn't express that. Those were my ticks. I
• 25:35
  Speaker 2: didn't express in my videos that, Oh, Hey, I have Tourette's,
• 25:38
  Speaker 2: but I don't really know how to show you that
• 25:40
  Speaker 2: I have Tourette's. Um, and then there's complex, which is
• 25:46
  Speaker 2: multiple different phrases. Go fuck yourself, scumbag like that. And, um,
• 25:53
  Speaker 2: Anything that you hear can become a tick. Anything that
• 25:57
  Speaker 2: you see, fuck, fuck, fuck, smell the roses, can become
• 26:01
  Speaker 2: a tick. So I have had what people would label
• 26:05
  Speaker 2: them cute ticks. And then they become simple noises or
• 26:11
  Speaker 2: very certain things that people want to hear. Like those
• 26:14
  Speaker 2: are the things that people come up and they're like,
• 26:16
  Speaker 2: oh my God, your condition's so cute. Okay, that's cute. No.
• 26:24
  Speaker 1: But that's interesting what you just said, that you can
• 26:26
  Speaker 1: develop a tick from something that you hear. You are
• 26:31
  Speaker 1: known for having, and we'll get to your social media
• 26:33
  Speaker 1: in a second, because you're talking about it. You are
• 26:36
  Speaker 1: known for a good 10 things. phrases, let's say. You know,
• 26:42
  Speaker 1: where did you come up with some of these tics
• 26:45
  Speaker 1: that are more well-known that people, like you say, are
• 26:48
  Speaker 1: coming up to you and saying they want to hear it?
• 26:50
  Speaker 1: Can you talk about some of them?
• 26:53
  Speaker 2: So when people come up to me and repeat my tics,
• 26:57
  Speaker 2: it's called echolalia, and I will repeat it after they
• 27:00
  Speaker 2: say it. So it's very difficult sometimes for me to
• 27:04
  Speaker 2: go out in public and meet someone, and then I
• 27:06
  Speaker 2: have to explain to them, hey, Let's not repeat my fuck, fuck,
• 27:10
  Speaker 2: fuck tics. Cause I'm going to say them. So it's
• 27:13
  Speaker 2: setting my, it's setting my condition off. It's like setting
• 27:15
  Speaker 2: like someone's epilepsy off, like doing it almost purposely without
• 27:20
  Speaker 2: knowing that it's purposeful. So, um, whenever I talk about
• 27:25
  Speaker 2: my tics, it sets my tics off. However, there has
• 27:28
  Speaker 2: been some of them that I get directly from social media. Um,
• 27:33
  Speaker 2: I don't want to say specifically, but at least 60
• 27:35
  Speaker 2: percent of them are from social media. The other half
• 27:39
  Speaker 2: are from things my family has said, things random people
• 27:44
  Speaker 2: in a dollar general line in front of me have said.
• 27:48
  Speaker 2: There's there's so random. They're like and people think that
• 27:51
  Speaker 2: it's like I'm like thinking of it. It's like it's
• 27:57
  Speaker 2: like I'm fat ass. That tick specifically. People think that
• 28:04
  Speaker 2: I'm calling them that like purpose. Like my sister one
• 28:08
  Speaker 2: time was like, you're making me insecure. I'm like, I
• 28:11
  Speaker 2: don't like what I was like. I couldn't like even
• 28:16
  Speaker 2: believe what like she said, because I don't mean any
• 28:20
  Speaker 2: of the things they say. They're just things that I hear.
• 28:23
  Speaker 1: That's such a good point because my daughter, I asked
• 28:26
  Speaker 1: her if she had any questions for me, for you.
• 28:28
  Speaker 1: And her specific question was, has anyone ever gotten upset
• 28:33
  Speaker 1: by what you said and thought that they meant it
• 28:36
  Speaker 1: for them? Like you just explained that you don't mean
• 28:38
  Speaker 1: it like that. Or like, are some of these things
• 28:41
  Speaker 1: that you're expressing things that are inside your head that
• 28:45
  Speaker 1: just come out because you're really thinking them? Or is
• 28:48
  Speaker 1: that just a misconception about it as well?
• 28:52
  Speaker 2: So it's not that I'm like thinking about them. However,
• 28:55
  Speaker 2: there has been times where like, for example, there was
• 28:59
  Speaker 2: a blow up rocket wiener. There's a blow up rocket
• 29:02
  Speaker 2: ship for Halloween rocket wiener, um, like that. Um, across
• 29:08
  Speaker 2: the street. And Colin was like, where my boyfriend, he
• 29:10
  Speaker 2: was like, where did you, where are you seeing rock
• 29:12
  Speaker 2: rocket wiener? Where it says, where are you seeing rockets?
• 29:15
  Speaker 2: And I said, rocket wiener right over there. Like that
• 29:17
  Speaker 2: house has one blown up right there. And he was like,
• 29:20
  Speaker 2: Oh my God. So they can literally come from it.
• 29:22
  Speaker 2: I was like, yes, they can literally come. From absolutely anything.
• 29:27
  Speaker 2: And it's so it's so mind boggling because I literally
• 29:32
  Speaker 2: don't mean anything. I say fat ass. but it can
• 29:36
  Speaker 2: literally pick be picked up from like the most random conversation.
• 29:40
  Speaker 2: Like my mom was saying, Oh, we don't say this word.
• 29:43
  Speaker 2: We say another, we say this word instead. And then
• 29:45
  Speaker 2: I just kept saying the word that she told me
• 29:47
  Speaker 2: not to say. So like my, my brothers are very, very, um,
• 29:52
  Speaker 2: immature and say a lot of disgusting things. And my
• 29:56
  Speaker 2: mom gets very, very upset at them because whenever I'm home,
• 29:59
  Speaker 2: she's like, just watch yourself because have respect for your
• 30:02
  Speaker 2: sister because anything that you say, she can pick up.
• 30:05
  Speaker 2: And then you're going to go to school and you're
• 30:07
  Speaker 2: going to hear about how your sister said this and
• 30:09
  Speaker 2: then you don't want to talk about it. And you're
• 30:11
  Speaker 2: going to be like, yeah, that's from me. Right. Right. Right.
• 30:15
  Speaker 1: So how did you get through school and through college?
• 30:17
  Speaker 1: Did you have to talk to your teachers and explain
• 30:21
  Speaker 1: what you had and that you might have an outburst
• 30:24
  Speaker 1: in class? Like, how did you get through that? And,
• 30:26
  Speaker 1: you know, I also want to hear the second part
• 30:29
  Speaker 1: of that question. You know, I've seen a lot on
• 30:31
  Speaker 1: your Instagram that people accuse you of faking it. Did
• 30:34
  Speaker 1: your teachers, you know, sometimes give you a People in
• 30:38
  Speaker 1: levels of.
• 30:39
  Speaker 5: Being a student is expensive.
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• 31:09
  Speaker 1: Authority don't necessarily believe young kids and why they're acting out.
• 31:13
  Speaker 2: Okay, I love this question. So when I was in
• 31:19
  Speaker 2: high school, when my tics were very, very mild for
• 31:23
  Speaker 2: around sophomore, junior year, it was right before, it was
• 31:28
  Speaker 2: probably five months before COVID. And then we were told that,
• 31:32
  Speaker 2: oh my God, we're going on a week break for COVID.
• 31:33
  Speaker 2: It turned out to be two years So I went
• 31:36
  Speaker 2: virtual for two years and it was the biggest lifesaver
• 31:40
  Speaker 2: of lifesavers. However, I was going to graduation. I hated
• 31:46
  Speaker 2: myself for those two years. I did therapy three to
• 31:51
  Speaker 2: four times a week to look at myself in the
• 31:52
  Speaker 2: mirror because I fucked your dad. tippy tippy top that
• 31:58
  Speaker 2: wiener tap their tisbury chicken because I didn't like the
• 32:01
  Speaker 2: way I looked when I ticked and that's something I
• 32:04
  Speaker 2: also still struggle with with social media and people are
• 32:06
  Speaker 2: like why are your tics so bad and I'm like
• 32:08
  Speaker 2: because I get so anxious like looking at myself and
• 32:11
  Speaker 2: being like okay I gotta I gotta delete that like
• 32:13
  Speaker 2: I go through my videos and delete I go, whatever,
• 32:17
  Speaker 2: that's a different topic for a different day.
• 32:19
  Speaker 1: But wait, on that topic, Baylen, you know that all
• 32:21
  Speaker 1: people do that, right? That's very normal. My daughter from
• 32:25
  Speaker 1: women I know- are self-conscious and they will do a
• 32:32
  Speaker 1: thing for TikTok or their social media and they will
• 32:35
  Speaker 1: hate how they look and erase it. And I do
• 32:38
  Speaker 1: the same thing. I don't really do a lot of
• 32:39
  Speaker 1: stuff on social media besides post my podcast, but it
• 32:44
  Speaker 1: is not something that you should feel like you are
• 32:46
  Speaker 1: different about. You know that, right?
• 32:49
  Speaker 2: Yes. And it was definitely a mind block between those
• 32:54
  Speaker 2: two years of COVID because of... how bad my tics became.
• 33:03
  Speaker 2: My parents were feeding me because I would throw forks
• 33:06
  Speaker 2: at them. Did I mean to throw forks at them? No.
• 33:08
  Speaker 2: I threw forks in the wall. I threw salsa containers.
• 33:11
  Speaker 2: I was throwing everything in reach. I wasn't allowed to
• 33:14
  Speaker 2: be in the kitchen. I wasn't allowed to make food.
• 33:19
  Speaker 2: I forget the question.
• 33:21
  Speaker 1: Oh, yeah. Well, me too now. But I guess, well,
• 33:24
  Speaker 1: on that topic, though, like, did you feel angry? Is
• 33:28
  Speaker 1: that why you were throwing? Like, explain what it feels
• 33:31
  Speaker 1: like to have a tick so that people that don't
• 33:33
  Speaker 1: know what that's like can understand. I've heard that it's
• 33:37
  Speaker 1: equated to sneezing.
• 33:40
  Speaker 2: Yes. So a tick is a premonitory urge. It's something
• 33:44
  Speaker 2: that you feel. So, for example, the way I like
• 33:48
  Speaker 2: to explain it is telling someone not to blink. try
• 33:51
  Speaker 2: not blinking and you're going to sit there and you're
• 33:54
  Speaker 2: going to hold it in and you're going to focus
• 33:56
  Speaker 2: on not blinking. However, you want to blink, you have
• 33:59
  Speaker 2: to blink. And then by the time that you blink,
• 34:02
  Speaker 2: your eyes are going to be watering and you're gonna
• 34:04
  Speaker 2: have to blink four more times. And that's what it
• 34:06
  Speaker 2: feels like to hold in a tick is it's very uncomfortable.
• 34:13
  Speaker 2: And I never felt angry with myself. I never felt
• 34:19
  Speaker 2: angry with my tics. Oh, but like if you.
• 34:26
  Speaker 1: Were throwing things at your parents, was it because you
• 34:28
  Speaker 1: were angry with them or it was just something your
• 34:30
  Speaker 1: body was involuntarily doing?
• 34:32
  Speaker 2: It was, it was the, I had the urge to
• 34:37
  Speaker 2: do it and it gets, gets really hard to talk
• 34:40
  Speaker 2: about because people think that I can stop myself from
• 34:48
  Speaker 2: doing it, which I would, I know before I'm going
• 34:51
  Speaker 2: to tick. So I'll be like, mom, I need to
• 34:53
  Speaker 2: throw this fork and she'll be like, okay. And they
• 34:57
  Speaker 2: would move out of the way or blank, blank and blank.
• 34:59
  Speaker 2: There's been things like I picked up a jar of
• 35:02
  Speaker 2: sprinkles one time and I shook the entire thing. And
• 35:06
  Speaker 2: I felt like, very, very bad afterwards because they were
• 35:14
  Speaker 2: just like, just don't clean it up. Just, just stay
• 35:16
  Speaker 2: right there. Just don't clean it up because I would
• 35:19
  Speaker 2: pick it up and do it again and again. Right.
• 35:23
  Speaker 2: So speaking of, go ahead. It, it's not anger towards anyone. However,
• 35:30
  Speaker 2: when I hit myself, um, it, it, It's out of
• 35:39
  Speaker 2: something I feel the urge to hurt myself, but I
• 35:44
  Speaker 2: would never hurt anyone else. So over the summer, I
• 35:47
  Speaker 2: picked up a knife and I tried stabbing myself in
• 35:50
  Speaker 2: the back with the knife. This was during a family
• 35:52
  Speaker 2: occasion and everyone was scared to take the knife away
• 35:55
  Speaker 2: from me because they all thought that I was going
• 35:57
  Speaker 2: to hurt them when really in reality, I was going
• 36:00
  Speaker 2: to slice half my side off. Um, So and I
• 36:05
  Speaker 2: would do it. I would have done it and I
• 36:08
  Speaker 2: would have done it two more times because that's how
• 36:10
  Speaker 2: bad my OCD is as well.
• 36:13
  Speaker 1: Yeah. So let's talk about your OCD. So OCD is
• 36:16
  Speaker 1: something that you have to do in in repetitive stages
• 36:20
  Speaker 1: of three. Am I correct about that?
• 36:23
  Speaker 2: Yes. So OCD is obsessive compulsive disorder. So for people
• 36:27
  Speaker 2: who don't know that it's when obsessive thoughts turn into
• 36:31
  Speaker 2: compulsions and those compulsions. can be very intense. So when
• 36:41
  Speaker 2: people say, oh my God, I'm so OCD, I have OCD, blank, blank,
• 36:47
  Speaker 2: and blank, use it as an adjective, I get offended
• 36:51
  Speaker 2: because it is paralyzing. If I have been late for things,
• 36:57
  Speaker 2: I have been not able to get out of the
• 37:00
  Speaker 2: shower because I slammed my head on the shower wall
• 37:06
  Speaker 2: So many times until it feels right until I'm like, okay,
• 37:11
  Speaker 2: the feeling, the, the urge of me slamming myself, my
• 37:15
  Speaker 2: head against the wall is gone. Then I'm like, okay,
• 37:20
  Speaker 2: I can, I can get out. And I did that
• 37:22
  Speaker 2: one time and I did it 36 times and I
• 37:25
  Speaker 2: got out and I collapsed on the ground and everyone
• 37:28
  Speaker 2: was sleeping in my house. And I had to tell
• 37:30
  Speaker 2: my parents the next morning and they were like, you
• 37:32
  Speaker 2: got to start wearing a bathing suit. And I was like, okay.
• 37:36
  Speaker 2: And I had to shower in my parents' room. Cause
• 37:38
  Speaker 2: it got so intense and so bad. And the last
• 37:41
  Speaker 2: thing that I want is to anyone see me without
• 37:43
  Speaker 2: a bathing suit on. I've saw like that happens. Right.
• 37:46
  Speaker 1: Well, I guess I can understand that. But that's gotta be,
• 37:51
  Speaker 1: so not everyone that has Tourette's has OCD, but it
• 37:55
  Speaker 1: sounds like, you know, it's between, I think it says
• 37:58
  Speaker 1: something like 30 and 50 people, 30 and 50% of
• 38:03
  Speaker 1: people that have Tourette's have OCD as well. I think
• 38:07
  Speaker 1: that that's correct. Um, so is there a cure? Is
• 38:11
  Speaker 1: there medication for something like this? Your Tourette's we're talking about.
• 38:16
  Speaker 1: It's for the Tourette's for the techs.
• 38:20
  Speaker 2: I have, um, I've been on medication. I've probably been
• 38:24
  Speaker 2: on three or four different medications. Um, however, one of
• 38:29
  Speaker 2: them made me gain 30 pounds in two months and
• 38:33
  Speaker 2: made me feel like a zombie. It helped my tics
• 38:38
  Speaker 2: a lot. However, it didn't help me mentally. The next
• 38:41
  Speaker 2: one I was on, I didn't feel anything. It didn't
• 38:46
  Speaker 2: do anything. It just made me not want to eat anything.
• 38:51
  Speaker 2: So that didn't work out. And then I went back
• 38:53
  Speaker 2: to the old medicine that helped my tics, but I
• 38:55
  Speaker 2: was put on a lower dosage. And then I stopped
• 38:57
  Speaker 2: taking that and I went to a different medicine, which
• 39:00
  Speaker 2: I have not talked about on social media. I took
• 39:02
  Speaker 2: it for... day. I took it the night before I
• 39:08
  Speaker 2: went to bed and I woke up next day and
• 39:09
  Speaker 2: I took it and I didn't feel like myself. Um, I,
• 39:14
  Speaker 2: I was very, I was in the deepest hole that
• 39:19
  Speaker 2: I've ever been in, in my entire life. Um, I
• 39:23
  Speaker 2: don't really want to get into it a lot. However,
• 39:25
  Speaker 2: it was, it was bad. It was really, really bad
• 39:30
  Speaker 2: for that one day. My mom was like, we're getting
• 39:32
  Speaker 2: off this medicine. Like do not take it.
• 39:34
  Speaker 1: So you stopped taking it. So, so do they say
• 39:37
  Speaker 1: that there's a cure for this? I mean, I did
• 39:39
  Speaker 1: read in researching Tourette's syndrome and you that with age,
• 39:44
  Speaker 1: it can completely disappear in some cases or get better.
• 39:49
  Speaker 1: What are your thoughts on your prognosis?
• 39:52
  Speaker 2: So when I was diagnosed at the Mayo Clinic, she
• 39:56
  Speaker 2: looked at me and she was like, I have hope
• 39:57
  Speaker 2: for you. Like, um, I see thousands of people with
• 40:00
  Speaker 2: Tourette's and it gets better over time. However, it's a
• 40:04
  Speaker 2: chronic condition and it doesn't completely go away. So it
• 40:07
  Speaker 2: would come back in like stressful situations or like when
• 40:10
  Speaker 2: you're really excited or when you have anxiety or like
• 40:12
  Speaker 2: certain situations like that, you will most likely always have
• 40:16
  Speaker 2: a tick or only tick in some way, shape or form. However,
• 40:22
  Speaker 2: it is supposed to get better with age. And I'm
• 40:25
  Speaker 2: hoping that by the time that I want kids or
• 40:27
  Speaker 2: have kids, that it does get better there is also
• 40:33
  Speaker 2: a brain surgery that you can get that is used
• 40:37
  Speaker 2: for Parkinson's but Tourette's patients have been starting to use
• 40:42
  Speaker 2: it for research basically as like a lab rat which
• 40:45
  Speaker 2: I refuse to do and I don't know what it's
• 40:51
  Speaker 2: I don't know what it's called actually deep brain stimulation
• 40:54
  Speaker 2: surgery Um, they'd like drill a hole in the top
• 40:57
  Speaker 2: of your head. And there is a guy who went
• 41:00
  Speaker 2: on the news about it and he like controlled, um,
• 41:04
  Speaker 2: almost like his, how bad his ticks were going to
• 41:08
  Speaker 2: be through his phone, through like the level of the
• 41:12
  Speaker 2: thing in his brain. It was the weirdest thing I've
• 41:14
  Speaker 2: ever seen. It was super cool. His ticks have went
• 41:17
  Speaker 2: from like really, really bad to like 70% improvement. So
• 41:22
  Speaker 2: it was crazy to see, um, and read about and
• 41:27
  Speaker 2: watch his life go from this to this in a
• 41:32
  Speaker 2: matter of seconds. It was insane and props to him
• 41:39
  Speaker 2: because I would never do that.
• 41:41
  Speaker 1: Yeah.
• 41:42
  Speaker 2: I would never. Yeah.
• 41:45
  Speaker 1: Do you, do you try to do some things that
• 41:49
  Speaker 1: help you suppress anxiety? The tics, I mean, do you
• 41:51
  Speaker 1: try to stay in certain situations or stay away from
• 41:55
  Speaker 1: certain situations? Or is there a physical thing that you
• 41:58
  Speaker 1: do to suppress the tics? Or at this point in
• 42:02
  Speaker 1: your life, are you confident enough and it feels good
• 42:05
  Speaker 1: to you? Like you need to do it. Like, where
• 42:08
  Speaker 1: are you at with that?
• 42:10
  Speaker 2: I'd say a little bit of everything. There's definitely some
• 42:13
  Speaker 2: things that I do to help. Like, for example, I
• 42:16
  Speaker 2: take deltas. If you don't know what delta is, it's
• 42:18
  Speaker 2: basically like a T-shaped a THC infused like gummy. Um,
• 42:26
  Speaker 2: and THC helps tremendously. I don't tick. Like I do
• 42:30
  Speaker 2: not tick at all. It's like amazing. The fact that
• 42:34
  Speaker 2: I can, like, I do it to go to top golf.
• 42:36
  Speaker 2: I love top golf. It's my favorite activity to do. However,
• 42:39
  Speaker 2: I don't want to throw a club at anyone. So
• 42:41
  Speaker 2: I take a specific amount of dosage to go there
• 42:45
  Speaker 2: and people have actually reached out to me and been like,
• 42:48
  Speaker 2: you faker. I saw you at Topgolf, like you didn't take.
• 42:51
  Speaker 2: And I was like, cause I was high. Like, like
• 42:56
  Speaker 2: there's just things like that. Um, I, the more exercise
• 43:01
  Speaker 2: you do, um, the more focused your brain is in the,
• 43:05
  Speaker 2: like your tics go away. So like when I go
• 43:09
  Speaker 2: down to the gym, I work out three to five
• 43:11
  Speaker 2: times a day, three to five times a week. Sorry.
• 43:13
  Speaker 2: Not a day.
• 43:13
  Speaker 1: I was like, wow.
• 43:19
  Speaker 2: And, um, the more inflammatory foods that you eat, because
• 43:24
  Speaker 2: Tourette's syndrome is an inflammatory condition. It's inflammatory syndrome, whatever.
• 43:31
  Speaker 2: And the more foods you eat that have inflammation in
• 43:35
  Speaker 2: them makes your tics worse. So like caffeine and I
• 43:39
  Speaker 2: drink caffeine, though, but that's a good example because it
• 43:41
  Speaker 2: makes my tics really bad. However, I drink it.
• 43:44
  Speaker 1: What about what about alcohol?
• 43:46
  Speaker 2: Oh, yeah, really bad, really bad. So every time I drink,
• 43:50
  Speaker 2: I have to take it to have to take THC
• 43:53
  Speaker 2: every time I drink. It makes them skyrocketly horrible. Like
• 43:58
  Speaker 2: I can't even leave the house. I'd be smashing my
• 44:00
  Speaker 2: head off this table multiple times. Wow. Wow.
• 44:04
  Speaker 1: So where do you live now? You're done with are
• 44:07
  Speaker 1: you done with college?
• 44:09
  Speaker 4: Yes.
• 44:09
  Speaker 2: So actually back to the other topic we talked about
• 44:11
  Speaker 2: before I lost track, I had to drop out of
• 44:13
  Speaker 2: college because of how bad my tics were. So I
• 44:17
  Speaker 2: finished half a sophomore year and I called it quits
• 44:21
  Speaker 2: because I had to teach myself everything. I would go
• 44:25
  Speaker 2: into class with headphones in because I the teachers, like
• 44:30
  Speaker 2: all the teachers announced that I had Tourette's before the
• 44:33
  Speaker 2: beginning of the year. Oh, right.
• 44:34
  Speaker 1: That was my question. How did the teacher?
• 44:36
  Speaker 2: Yeah. Yeah. Yeah. So every kid knew that I had Tourette's. However,
• 44:40
  Speaker 2: it made me very, very uncomfortable because if I had
• 44:43
  Speaker 2: a good tick day, the people next to me would
• 44:46
  Speaker 2: be like, oh my God, you're doing so well. And
• 44:48
  Speaker 2: they pointed out, they would point out my ticks, which
• 44:51
  Speaker 2: makes my condition worse. They'd be like, you know, I've
• 44:53
  Speaker 2: never heard that one before. And I'd be like, Me either. Like,
• 44:59
  Speaker 2: what do you want me to say? It made me
• 45:01
  Speaker 2: so uncomfortable and I didn't want to talk to anyone.
• 45:04
  Speaker 2: And no one ever laughed because in college you're a
• 45:07
  Speaker 2: little bit more mature, but also she said that she
• 45:10
  Speaker 2: would like give you an F on like the exam
• 45:14
  Speaker 2: or something if like you laughed or something like that,
• 45:17
  Speaker 2: because it just wasn't tolerated in like the certain classrooms
• 45:20
  Speaker 2: that I was in. And everyone was very, very respectful.
• 45:24
  Speaker 2: And I really did appreciate that. However, The teachers would
• 45:29
  Speaker 2: pause every time I ticked. So it just became like
• 45:36
  Speaker 2: almost inconvenient to bring it up and then like try
• 45:40
  Speaker 2: to pretend like it's not there, but then act like
• 45:43
  Speaker 2: it's there.
• 45:45
  Speaker 4: And being a student is expensive. Rent, books, your morning coffee,
• 45:50
  Speaker 4: your mid-morning coffee, your I'm about to fall asleep in
• 45:53
  Speaker 4: the middle of a lecture coffee. So here's something that
• 45:56
  Speaker 4: won't break the bank. A subscription to the Irish Times
• 46:00
  Speaker 4: for just € 5 a month. Get every article, 165 years
• 46:04
  Speaker 4: of journalism, daily puzzles and exclusive newsletters.
• 46:07
  Speaker 5: All for less than the price of your daily coffee habit.
• 46:10
  Speaker 3: The Irish Times for just € 5 a month.
• 46:13
  Speaker 5: The ultimate student discount.
• 46:16
  Speaker 2: I contacted the nursing programme. I was a nursing student. Um,
• 46:22
  Speaker 2: or becoming a nursing major, whatever you want to call it. Um,
• 46:26
  Speaker 2: and one of the, um, basic nursing classes, I was
• 46:29
  Speaker 2: in the teacher after I was on Dr. Phil, there
• 46:32
  Speaker 2: was an article that WVU and went to West Virginia university, um,
• 46:36
  Speaker 2: wrote about me and my nursing instructor, um, through zoom,
• 46:40
  Speaker 2: there were like 120 kids in the zoom call. And she,
• 46:44
  Speaker 2: she said, can you unmute yourself? I said, yes, ma'am.
• 46:49
  Speaker 2: She goes, I'm going to need to talk to you
• 46:50
  Speaker 2: after class. Is that okay? And I said, yes, ma'am.
• 46:53
  Speaker 2: So we wait till after class and she goes, I
• 46:56
  Speaker 2: read that article. She goes, you got the whole nursing
• 46:59
  Speaker 2: program talking about you. I said, what do you mean?
• 47:03
  Speaker 2: She goes, we've had meetings. She goes, we just don't
• 47:05
  Speaker 2: know how you're going to be a nurse. I said, okay.
• 47:10
  Speaker 2: I said, I'm like every other nursing student. And she
• 47:14
  Speaker 2: was like, Well, I have faith in you. I have
• 47:18
  Speaker 2: faith in you. But however, you're going to need to
• 47:20
  Speaker 2: cut the bad words out if you want to be
• 47:22
  Speaker 2: a nurse at WVU. And I said, I said, and
• 47:27
  Speaker 2: then I went to the head of the nursing board
• 47:29
  Speaker 2: at WVU and I I contacted him and said, this
• 47:32
  Speaker 2: is your teacher. This is a nurse working for you. Okay.
• 47:38
  Speaker 2: That doesn't think I can be a nurse. I said,
• 47:40
  Speaker 2: let me tell you something respectfully. I have went and
• 47:43
  Speaker 2: gotten two COVID tests by your nursing students here. And
• 47:46
  Speaker 2: not one of them have been able to give me
• 47:48
  Speaker 2: a COVID test. They said, if they said, we can't,
• 47:51
  Speaker 2: we can't, we can't give her a COVID test. We
• 47:54
  Speaker 2: can't do it. If you want to give yourself a
• 47:55
  Speaker 2: COVID test, you can give yourself a COVID test. I said, epic.
• 47:59
  Speaker 2: And then I went to go get blood work done
• 48:02
  Speaker 2: and neither of the nursing students could give me blood work.
• 48:05
  Speaker 2: I said, that is your nursing staff, not mine. So
• 48:10
  Speaker 2: you- Couldn't.
• 48:10
  Speaker 1: Give you the test and the blood work because they
• 48:13
  Speaker 1: were nervous to touch you or because they couldn't, like
• 48:17
  Speaker 1: they didn't know what they were doing.
• 48:19
  Speaker 2: They didn't know how to treat someone with Tourette's.
• 48:22
  Speaker 4: Right, right.
• 48:23
  Speaker 2: But you know, they can't have a student with Tourette's
• 48:26
  Speaker 2: to be a nurse.
• 48:27
  Speaker 1: They just- And that's what I want to get into too,
• 48:30
  Speaker 1: because I think that that is- So interesting that so
• 48:34
  Speaker 1: many people do not understand this disease. Is it considered
• 48:38
  Speaker 1: a disease? Is that the right word?
• 48:41
  Speaker 2: I don't know. I would say syndrome.
• 48:43
  Speaker 1: Syndrome. Okay.
• 48:44
  Speaker 2: So.
• 48:45
  Speaker 1: It's so interesting that so many people, even in the
• 48:48
  Speaker 1: medical community, don't know how to do it. And they
• 48:51
  Speaker 1: treat you like a kid, you know, like you're a
• 48:54
  Speaker 1: doll almost. And they don't want to be responsible for it.
• 48:57
  Speaker 1: I mean, I did read those. I saw the Dr. Phil.
• 49:00
  Speaker 1: I read the article that you're talking about as well.
• 49:02
  Speaker 1: And they were, you know, putting you on a pedestal.
• 49:05
  Speaker 1: They were, you know... It was talking about how wonderful
• 49:09
  Speaker 1: your life can be and what the syndrome is and
• 49:14
  Speaker 1: how you've risen above and you've created a platform for people.
• 49:20
  Speaker 1: And I think it's just terrible that that someone would
• 49:23
  Speaker 1: take dreams away from you. And we'll get into that
• 49:26
  Speaker 1: also in a second. But so you said you left college.
• 49:30
  Speaker 1: So where are you living now? Who are you living with?
• 49:33
  Speaker 2: So I go back and forth. My parents live in
• 49:36
  Speaker 2: West Virginia and my boyfriend lives in DC. So I
• 49:40
  Speaker 2: go back and forth from his place to my parents.
• 49:44
  Speaker 2: So I'll stay with him for like a month, two months,
• 49:47
  Speaker 2: and I'll go visit my parents and I'll come back
• 49:49
  Speaker 2: type of thing because I have doctors in both places.
• 49:53
  Speaker 2: I have appointments in both places. I have a lot
• 49:56
  Speaker 2: of things going on in both places. So it's just,
• 50:02
  Speaker 2: inconvenient to not go back to either place basically. Okay.
• 50:05
  Speaker 1: So let's talk about your boyfriend for a minute because
• 50:08
  Speaker 1: he has become, you know, a little social media famous,
• 50:12
  Speaker 1: wherever you guys call it, um, from, from participating in
• 50:15
  Speaker 1: a lot of your posts. I forwarded one of the, um,
• 50:22
  Speaker 1: shows kind of that you guys did together, not a show,
• 50:24
  Speaker 1: but like a little clip of how you guys met
• 50:28
  Speaker 1: and how, you know, he has interacted in your life,
• 50:32
  Speaker 1: how you interact in his. And I've sent it to
• 50:34
  Speaker 1: some people and it brought them to tears because he's
• 50:37
  Speaker 1: just the greatest guy. And you, if somebody is not
• 50:40
  Speaker 1: watching this on YouTube and they're just listening, you're a
• 50:43
  Speaker 1: gorgeous girl with all sorts of confidence and humor and love.
• 50:50
  Speaker 1: And the two of you together are like the perfect match.
• 50:53
  Speaker 1: So I, you know, talk to us about how you
• 50:57
  Speaker 1: met him and how he first contacted you.
• 51:00
  Speaker 2: Okay. Yes. So me and my boyfriend met through a
• 51:03
  Speaker 2: social media dating app. My mom was like, man, you
• 51:09
  Speaker 2: need to not find guys through dating apps. So I
• 51:12
  Speaker 2: tried not searching. I tried not searching. And then I
• 51:14
  Speaker 2: got made fun of a lot. when I didn't try
• 51:17
  Speaker 2: searching people, I would like go out to places and
• 51:20
  Speaker 2: guys would like, think it's like a joke to downgrade
• 51:22
  Speaker 2: me because I have Tourette's.
• 51:24
  Speaker 3: Right.
• 51:25
  Speaker 2: I'm like, listen, dude, are you looking in the mirror? Because,
• 51:28
  Speaker 2: but however, Right.
• 51:33
  Speaker 1: And dating is so hard anyways. So I can't imagine
• 51:37
  Speaker 1: how it is when you have something that you have
• 51:40
  Speaker 1: to like share. And by the way, I have something
• 51:43
  Speaker 1: that I have to share with people when I date
• 51:45
  Speaker 1: them and, you know, about my past and things that
• 51:49
  Speaker 1: I've done in my past. And it's very interesting that I,
• 51:54
  Speaker 1: you know, I feel like sometimes people need to be
• 51:58
  Speaker 1: told about it before I meet them. Otherwise they think
• 52:00
  Speaker 1: I'm lying to them. And I wonder if that's something
• 52:02
  Speaker 1: that has happened to you as well. I mean, I
• 52:04
  Speaker 1: think it's great that you, you put it on your
• 52:07
  Speaker 1: social media, right?
• 52:09
  Speaker 2: That I have Tourette's? Yeah. Yes.
• 52:11
  Speaker 1: Not your social media, sorry, on your dating social.
• 52:14
  Speaker 2: Yes. So I got... Tons and tons. Before I met Colin,
• 52:25
  Speaker 2: tons of hate. People, I would say something, it was
• 52:29
  Speaker 2: on Hinge. It was like a question. It was like
• 52:31
  Speaker 2: something you don't know about me or something you don't
• 52:33
  Speaker 2: see about me in these pictures. And it was, I
• 52:35
  Speaker 2: have Tourette's syndrome. And people, guys would respond back, oh,
• 52:41
  Speaker 2: like I could F the ticks out of you. Like
• 52:44
  Speaker 2: just gross.
• 52:45
  Speaker 3: Terrible.
• 52:46
  Speaker 2: Gross. gross things. Um, people would comment, Oh, you're a
• 52:51
  Speaker 2: 11 out of 10, but your ticks make you a
• 52:54
  Speaker 2: negative six, like go after yourself, like all this stuff. Like,
• 52:58
  Speaker 2: it's just, it was horrible. Like I didn't want anything
• 53:02
  Speaker 2: to do with anything. I felt like I was hard
• 53:07
  Speaker 2: to love because of the condition I had. And my
• 53:12
  Speaker 2: mom was always like, the person's going to come. That's
• 53:14
  Speaker 2: going to treat you the best and blank, blank and blank.
• 53:16
  Speaker 2: And I was like, mom, just stop. Like just stop.
• 53:20
  Speaker 2: Because I just couldn't even think about it at that moment.
• 53:22
  Speaker 2: I went on like maybe four dates before I met Colin.
• 53:27
  Speaker 2: It was terrible.
• 53:29
  Speaker 1: Terrible.
• 53:30
  Speaker 2: Quote unquote, forbade him. He goes, I'm actually a medical student.
• 53:34
  Speaker 2: I said, that's amazing. Congratulations. Like, that's so cool. My
• 53:38
  Speaker 2: uncle's a general surgeon. He goes, yes, I'm going, I'm
• 53:41
  Speaker 2: going to be a neurologist. I actually am going to
• 53:44
  Speaker 2: go to whatever fucking school to become a neurosurgeon. I said,
• 53:51
  Speaker 2: that's amazing. He goes, quote unquote, forbade him to fix
• 53:56
  Speaker 2: people like you. I said, okay, nice to meet you, Michael.
• 54:01
  Speaker 2: Have a good one. I don't like the name Mike. Yeah.
• 54:05
  Speaker 2: So yeah, that was, that was.
• 54:07
  Speaker 1: Is that where you got that tick from?
• 54:10
  Speaker 2: No, it just happened to be, it just happened to
• 54:12
  Speaker 2: be the same thing. So I, that's another story, but yeah,
• 54:18
  Speaker 2: that was, that was one of the, That was one
• 54:21
  Speaker 2: of the instances that happened. And I called my mom afterwards.
• 54:23
  Speaker 2: And then he didn't make it any better after we left.
• 54:26
  Speaker 2: He did not make it any better. He was like,
• 54:27
  Speaker 2: do you care if I give you the ride home?
• 54:29
  Speaker 2: I said, yeah, sure. Because I Ubered there. Because I
• 54:31
  Speaker 2: was like, this guy is not seeing... This guy doesn't
• 54:33
  Speaker 2: even know where I live. Uh-uh. So I had him drop...
• 54:36
  Speaker 2: We're in the car. I said, do you know how
• 54:39
  Speaker 2: to get to my location? He goes, yeah, of course.
• 54:42
  Speaker 2: I said, okay. Takes three wrong turns. I said, dude,
• 54:45
  Speaker 2: where are you going? He goes, I'm kidnapping you. I said...
• 54:48
  Speaker 2: I said, what? He goes, no, I'm just kidding. I said, okay.
• 54:52
  Speaker 2: I had him drop me off five houses down from
• 54:54
  Speaker 2: where I lived and I walked back.
• 54:56
  Speaker 1: Well, all right. Well, that guy sounds terrible. But by
• 54:59
  Speaker 1: the way, that also is very normal for just dating
• 55:02
  Speaker 1: on a dating app because guys sometimes suck and it
• 55:06
  Speaker 1: takes finding a diamond in a haystack. So it sounds
• 55:10
  Speaker 1: like you did. All right. So you met, what is
• 55:12
  Speaker 1: his name? Colin, you said?
• 55:13
  Speaker 2: Yes. I met Colin through the dating app and we,
• 55:17
  Speaker 2: I actually went on my first date with him with
• 55:19
  Speaker 2: my best friend. Because she got stood up the day
• 55:22
  Speaker 2: before and he was going to invite someone, but the
• 55:24
  Speaker 2: guy was too busy. So he was like, I don't
• 55:26
  Speaker 2: care if she comes like whatever. It's not that big
• 55:28
  Speaker 2: of a deal. And she said that she didn't feel
• 55:30
  Speaker 2: like she was third wheeling. He was very, very nice
• 55:36
  Speaker 2: all around. We have a lot in common. Um, The
• 55:42
  Speaker 2: only the only thing that when I post him on
• 55:46
  Speaker 2: social media, this might be a thing with all girls.
• 55:49
  Speaker 2: It definitely is with all girls. I wanted to show
• 55:52
  Speaker 2: his arm. That's the only thing that I wanted people
• 55:55
  Speaker 2: to see. And then I was like this because. He's
• 55:59
  Speaker 2: a very attractive man. I love him. I love him.
• 56:03
  Speaker 2: And then every girl on social media that comes from
• 56:06
  Speaker 2: my page that doesn't follow me follows him. I'm like,
• 56:10
  Speaker 2: get out of here. I'm like, get out of here.
• 56:13
  Speaker 1: That's a girl thing. That also is just all the
• 56:16
  Speaker 1: girls want your man. They'll say all the reasons why
• 56:19
  Speaker 1: he should be with them instead of you, right?
• 56:22
  Speaker 2: Yeah, he'll get like DMs and I'll be like, we'll
• 56:25
  Speaker 2: just laugh. We'll just laugh at the DMs because he gets.
• 56:31
  Speaker 2: The strangest ones. And I get some strange ones, but
• 56:34
  Speaker 2: these girls, like they're girling.
• 56:38
  Speaker 1: Right. Well, that, that is normal. I think, unfortunately for
• 56:42
  Speaker 1: the both of you, but I think it's great that, um,
• 56:45
  Speaker 1: that you guys can laugh about it. So what would
• 56:47
  Speaker 1: you say is the best thing about Colin?
• 56:51
  Speaker 2: The way that he treats me. Um, I've never been
• 56:54
  Speaker 2: treated any better. And I've, I've been in a four
• 56:59
  Speaker 2: year relationship before him. Um, And I've never had a
• 57:05
  Speaker 2: friendship as strong as ours, a bond as strong as ours.
• 57:10
  Speaker 2: We're like a team to call ourselves a team. I
• 57:16
  Speaker 2: don't know. I....
• 57:19
  Speaker 1: What would he say is the best thing about you?
• 57:25
  Speaker 2: He says my heart. He says that... he's never met
• 57:31
  Speaker 2: someone that goes to the store and buys everything for
• 57:34
  Speaker 2: everyone else, but doesn't think of herself. I, I'm very,
• 57:39
  Speaker 2: very selfless. Um, and he says it multiple times to
• 57:45
  Speaker 2: multiple people. He goes, I would start worrying if you
• 57:51
  Speaker 2: stopped doing that. If you stopped thinking about others or
• 57:55
  Speaker 2: stopped like caring about others, um, he's mentioned it multiple
• 58:01
  Speaker 2: times that he, that I have the biggest heart that
• 58:03
  Speaker 2: he's ever met.
• 58:05
  Speaker 1: Well, it is true. And you guys are just unbelievably
• 58:08
  Speaker 1: beautiful together. So I love it. Um, okay. So talk
• 58:11
  Speaker 1: to me about your social media platform. You said you
• 58:13
  Speaker 1: had TikTok before, um, COVID before, you know, you made
• 58:18
  Speaker 1: your platform about Tourette's now for people that don't know
• 58:21
  Speaker 1: who you are on social media, you have a platform
• 58:24
  Speaker 1: that is basically about bringing awareness to your syndrome and
• 58:28
  Speaker 1: to Tourette's. Um, A little bit about OCD or do
• 58:31
  Speaker 1: you not talk about your OCD on there as much?
• 58:34
  Speaker 2: I do talk about my OCD and I do talk
• 58:37
  Speaker 2: about other issues that I go through consistently. However, there
• 58:42
  Speaker 2: are certain things I don't like to touch base on
• 58:45
  Speaker 2: in my life. I like to just keep those things
• 58:47
  Speaker 2: sacred to me and to the people that are close
• 58:52
  Speaker 2: to me the most. However, my social media platform, I share...
• 58:59
  Speaker 2: Tourette's and I share my life and how I live
• 59:02
  Speaker 2: with it, not how Susan down the street or your
• 59:06
  Speaker 2: cousin and a half and your best friend live with
• 59:08
  Speaker 2: it because Tourette's and every condition that everyone has or
• 59:13
  Speaker 2: every struggle that everyone has looks different in everyone. And
• 59:17
  Speaker 2: so my page is built off of my specific journey,
• 59:22
  Speaker 2: but also trying to educate people As much as possible
• 59:27
  Speaker 2: to everyone, whether you're 95 or five years old, I
• 59:33
  Speaker 2: feel like you could learn something from it. I've been
• 59:39
  Speaker 2: in stores and there's been little girls that come up four,
• 59:43
  Speaker 2: five years old with their moms. And they're like, you've
• 59:46
  Speaker 2: helped my girl so much. There's a kid in her class,
• 59:50
  Speaker 2: a kid in her preschool, and her mom has Tourette's.
• 59:54
  Speaker 2: There has been times where I have... When I went
• 59:58
  Speaker 2: to Nashville for my 21st birthday, I met this family
• 1:00:03
  Speaker 2: of this boy who is getting diagnosed with Tourette's that
• 1:00:05
  Speaker 2: I'm still in contact with. I think he just turned
• 1:00:10
  Speaker 2: 12 and he's going into middle school. As that goes, horrible.
• 1:00:15
  Speaker 2: So I... I... make sure that I touch base for
• 1:00:23
  Speaker 2: every generation, every type of person. Because if I feel
• 1:00:27
  Speaker 2: that a five-year-old can know how Tourette's is, my six-year-old
• 1:00:31
  Speaker 2: brother learned what Tourette's was not easily. Again, there was
• 1:00:36
  Speaker 2: a lot that came with it. If he can learn
• 1:00:39
  Speaker 2: that a 95-year-old woman can learn. And it's very difficult
• 1:00:44
  Speaker 2: when I go out in public, the stares that I
• 1:00:46
  Speaker 2: get from older people versus.
• 1:00:51
  Speaker 4: Being a student is expensive. Rent, books, your morning coffee,
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• 1:01:21
  Speaker 2: My kids, my age, maybe younger, they'll video me right there.
• 1:01:25
  Speaker 2: Just video me right there. Make fun of me, laugh. However,
• 1:01:28
  Speaker 2: an older woman will come up and ask me if
• 1:01:31
  Speaker 2: I'm on drugs and I'll be like, okay. Um, so
• 1:01:36
  Speaker 2: that's how it fluctuates with people just not knowing what
• 1:01:43
  Speaker 2: is going on. Like the other day I was in
• 1:01:45
  Speaker 2: target and this, these group of I would say middle schoolers,
• 1:01:49
  Speaker 2: maybe sixth grade, seventh grade, they were mocking me behind
• 1:01:53
  Speaker 2: me when I was checking out. And I decided to
• 1:01:57
  Speaker 2: leave the checkout line and go over to them. And
• 1:02:00
  Speaker 2: I said, do you think bullying is acceptable? And they said,
• 1:02:03
  Speaker 2: what do you mean? I said, I have a neurological
• 1:02:07
  Speaker 2: chronic condition called Tourette's. Do you think that is acceptable
• 1:02:10
  Speaker 2: to bully people? I know what school you guys go to.
• 1:02:16
  Speaker 2: I didn't know what school these guys went to. I
• 1:02:19
  Speaker 2: had no idea. But I said I did. And they
• 1:02:22
  Speaker 2: got straight faced. They got scared. And I said, for
• 1:02:26
  Speaker 2: further reference, if you guys want to bully someone, just
• 1:02:29
  Speaker 2: remember that you wouldn't want it done to you. You
• 1:02:31
  Speaker 2: wouldn't want someone coming up to you and telling you
• 1:02:33
  Speaker 2: your hair looks bad or your breath smells or, you
• 1:02:37
  Speaker 2: know what, you should have probably wore better jeans. Say
• 1:02:39
  Speaker 2: those ones don't look good on you. Like, it's the
• 1:02:42
  Speaker 2: same thing. I can't help what I do in public. However,
• 1:02:47
  Speaker 2: you guys have fun laughing. You guys have fun making
• 1:02:50
  Speaker 2: fun of me because karma is not fun. Right.
• 1:02:53
  Speaker 1: And it's so hard, you know, just growing up in
• 1:02:56
  Speaker 1: general and all the things that go along with that
• 1:02:59
  Speaker 1: from dating and getting through school, dealing with bullying because
• 1:03:04
  Speaker 1: you look a little bit different or because people are
• 1:03:06
  Speaker 1: just jealous. And, you know, also then to add on
• 1:03:10
  Speaker 1: top of it, having Tourette's it's just got to make
• 1:03:13
  Speaker 1: it absolutely, um, you know, that much harder for you
• 1:03:17
  Speaker 1: to deal with. And I think you creating this platform
• 1:03:20
  Speaker 1: for people to really understand it instead of be scared
• 1:03:23
  Speaker 1: of it, be misinformed about it, um, has been such
• 1:03:27
  Speaker 1: a saving grace probably for you, but also for people
• 1:03:30
  Speaker 1: that follow you, because I think, um, you know, it's,
• 1:03:33
  Speaker 1: it's a syndrome that not a lot of people have
• 1:03:37
  Speaker 1: come in contact with in a way where they get
• 1:03:39
  Speaker 1: questions answered. And I think what you're doing is phenomenal.
• 1:03:43
  Speaker 1: So I want to ask you a couple questions around that. Like,
• 1:03:48
  Speaker 1: what are the most common comments that you've been getting
• 1:03:52
  Speaker 1: in your DMs now that you have such a big platform?
• 1:03:55
  Speaker 1: Let's talk about the negatives first. What are those like?
• 1:04:01
  Speaker 2: Go kill yourself. I can't believe that you're faking this condition.
• 1:04:05
  Speaker 2: So many people actually have it. I was stalked. The
• 1:04:09
  Speaker 2: police had to come to my house. They were sending
• 1:04:12
  Speaker 2: me pictures of my house. I'm going to burn your
• 1:04:14
  Speaker 2: house down, you stupid slut. I get death threats to,
• 1:04:20
  Speaker 2: I hope your mom gets cancer. to go rot in
• 1:04:23
  Speaker 2: hell your soul belongs in the deepest pit there is
• 1:04:27
  Speaker 2: your boyfriend doesn't just your boyfriend um is so lame
• 1:04:31
  Speaker 2: like all his other stuff does he know who he's
• 1:04:33
  Speaker 2: dating um the but those don't really like those don't
• 1:04:39
  Speaker 2: really affect me I'm like oh my god wow like
• 1:04:41
  Speaker 2: you're telling me you're gonna burn my house down cool
• 1:04:44
  Speaker 2: do what I dare you like the one comment that
• 1:04:51
  Speaker 2: I don't think people mean it to be mean, but
• 1:04:55
  Speaker 2: it impacts me so, so much that I don't talk
• 1:04:59
  Speaker 2: about that. I've made videos about and deleted them and
• 1:05:02
  Speaker 2: made videos about and deleted them over and over again,
• 1:05:05
  Speaker 2: because I get told just to let it go by
• 1:05:07
  Speaker 2: my family, by my friends, by my boyfriend is the
• 1:05:10
  Speaker 2: comment that they're so patient. He's so patient. Your friends
• 1:05:17
  Speaker 2: are so patient. Like I'm so like hard to love.
• 1:05:22
  Speaker 2: Like I'm so like, I don't, it's like, I don't
• 1:05:24
  Speaker 2: deserve a boyfriend. I don't deserve family that cares about
• 1:05:26
  Speaker 2: me that are supportive. And I don't deserve friends when
• 1:05:29
  Speaker 2: I hear that comment. Right.
• 1:05:31
  Speaker 1: Like you're a burden.
• 1:05:32
  Speaker 2: Yes. It reminds me of like someone who's never had
• 1:05:36
  Speaker 2: a struggle. Like imagine if I went up to someone
• 1:05:39
  Speaker 2: who was in a wheelchair and was like, you know what?
• 1:05:42
  Speaker 2: You're so glad you must be so grateful to have
• 1:05:45
  Speaker 2: parents that are so patient with you. What? That's so
• 1:05:50
  Speaker 2: sad and disheartening and would be devastating to anyone to
• 1:05:57
  Speaker 2: hear that in general, whether they had a disability, a condition, anything.
• 1:06:01
  Speaker 2: Just to hear, you know what, those people must be
• 1:06:03
  Speaker 2: so patient to deal with you. That's what I hear
• 1:06:06
  Speaker 2: in the back of my head. And it's constant. It's
• 1:06:09
  Speaker 2: under every post is my friends have gotten DMs. Oh
• 1:06:13
  Speaker 2: my God, please stay friends with Baylen. Like she needs friends.
• 1:06:16
  Speaker 2: She deserves friends.
• 1:06:19
  Speaker 1: That's terrible, Baylen. But I mean, I get what you're saying,
• 1:06:23
  Speaker 1: that that is so hurtful. But also, if you really
• 1:06:26
  Speaker 1: think about where that's coming from, it's people's ignorance. It's
• 1:06:28
  Speaker 1: they are, they just don't know what they're saying. And
• 1:06:32
  Speaker 1: they don't know that, by the way, this does not
• 1:06:34
  Speaker 1: define you. You can do and be anyone you want.
• 1:06:41
  Speaker 1: I mean, like, have you gotten to the part where
• 1:06:44
  Speaker 1: you know that you're not defined by this?
• 1:06:48
  Speaker 2: Do I know? I'm sorry. I was ticking. Oh yeah.
• 1:06:51
  Speaker 2: A hundred percent. I don't think Tourette's is makes me
• 1:06:58
  Speaker 2: who I am. I, I don't believe that I'm Balin regardless.
• 1:07:02
  Speaker 2: I have with a, with Tourette's or without Tourette's I'm Balin.
• 1:07:06
  Speaker 2: If I had a different condition or not, I'm Balin.
• 1:07:09
  Speaker 2: If I didn't have a condition, um, however, it took
• 1:07:13
  Speaker 2: me a long time to realize that, um, again, that's
• 1:07:16
  Speaker 2: why I went to therapy multiple, multiple times because I
• 1:07:21
  Speaker 2: blamed myself a lot for my condition. When I was
• 1:07:25
  Speaker 2: 12 years old, this is going to make me cry.
• 1:07:27
  Speaker 2: When I was 12 years old, me and my parents,
• 1:07:30
  Speaker 2: me and my mom specifically were in my doctor's office.
• 1:07:34
  Speaker 2: And this kid was making this like a multiple noises
• 1:07:39
  Speaker 2: and And they were repetitive. And I was like, mom,
• 1:07:42
  Speaker 2: what is wrong with him? Like being like a 12
• 1:07:45
  Speaker 2: years old, not knowing anything, not saying anything. I didn't
• 1:07:49
  Speaker 2: look at him weird. I didn't say anything rude about him.
• 1:07:51
  Speaker 2: I just looked at my mom. I said, mom, what's
• 1:07:53
  Speaker 2: wrong with him? She goes, Bailey has tics. And now
• 1:07:57
  Speaker 2: here I am nine years later. with Tourette's. And there's
• 1:08:04
  Speaker 2: been a time where I was like, mom, like God,
• 1:08:07
  Speaker 2: God gave me this because I said that about that kid.
• 1:08:10
  Speaker 2: My mom was like, Baylen, you got to stop blaming yourself.
• 1:08:13
  Speaker 2: You can't do anything about it. You were, you were
• 1:08:16
  Speaker 2: a child. You didn't know anything like blank, blank and blank.
• 1:08:21
  Speaker 2: But I blame myself a lot, especially with my cussing
• 1:08:24
  Speaker 2: because of how religious I am and how I, cannot
• 1:08:32
  Speaker 2: belong to a church. I don't feel like I'm ready
• 1:08:35
  Speaker 2: to go to church. I get asked that question a lot.
• 1:08:38
  Speaker 2: Oh my God, I would pay to see her in
• 1:08:40
  Speaker 2: a church. I wouldn't. I wouldn't. I went to church
• 1:08:45
  Speaker 2: before I cussed and it was fine. It was normal.
• 1:08:50
  Speaker 2: It was just like church. No one even looked at me.
• 1:08:54
  Speaker 2: No one looked at me. No one cared. The preacher
• 1:08:56
  Speaker 2: knew I had Tourette's. But I have been told that
• 1:09:03
  Speaker 2: I am a demon because I have Tourette's and that
• 1:09:05
  Speaker 2: I'm possessed and that I need to go get an exorcism.
• 1:09:08
  Speaker 2: People have given me actual locations in Egypt to go
• 1:09:11
  Speaker 2: get an exorcism done. I'm being dead serious.
• 1:09:14
  Speaker 1: And that all stems from from ignorance and fear that
• 1:09:18
  Speaker 1: that people have. You've talked a lot about misconceptions that
• 1:09:22
  Speaker 1: people have about the syndrome. I mean, there's obviously a
• 1:09:25
  Speaker 1: ton of them. I want to ask you what I
• 1:09:28
  Speaker 1: think a lot of times people don't know if they
• 1:09:31
  Speaker 1: should laugh, if they should think you're faking it, if
• 1:09:33
  Speaker 1: they should stare, if they should do something to help you.
• 1:09:36
  Speaker 1: So I want to ask somebody that has it. What
• 1:09:39
  Speaker 1: can people do when you're ticking, when you're in their presence?
• 1:09:45
  Speaker 1: How should we handle it that makes you feel better
• 1:09:48
  Speaker 1: and comfortable?
• 1:09:50
  Speaker 2: So there has been multiple different situations where, I mean,
• 1:09:56
  Speaker 2: obviously some of the things I say are very funny
• 1:09:59
  Speaker 2: and I agree with that. And I think it's appropriate
• 1:10:01
  Speaker 2: to laugh in certain situations. However, It's also not appropriate
• 1:10:07
  Speaker 2: to laugh in other situations. I don't really think it's
• 1:10:10
  Speaker 2: appropriate when I'm in a target and I'm ticking and
• 1:10:15
  Speaker 2: someone five rows down for me is doing the same
• 1:10:18
  Speaker 2: thing as me. It's setting my ticks off. And then
• 1:10:20
  Speaker 2: I have to go approach them and then be like, oh,
• 1:10:23
  Speaker 2: my God, I love you. You're on TikTok. I'm like,
• 1:10:25
  Speaker 2: that's great. But you're mocking me. And they're like, no,
• 1:10:29
  Speaker 2: we're not. I'm like, yes, you are. And you don't
• 1:10:33
  Speaker 2: even know it. I'm not here to be like, oh, like,
• 1:10:35
  Speaker 2: F you, like, shame on you. Like, you're a horrible person.
• 1:10:38
  Speaker 2: I'm just here to let you know that that's mocking.
• 1:10:40
  Speaker 2: You're mocking my condition. And I don't think that's funny.
• 1:10:46
  Speaker 2: It doesn't make my condition any better. It actually gives
• 1:10:49
  Speaker 2: me more anxiety. I don't like being stared at. It's very,
• 1:10:53
  Speaker 2: very rude to be stared at. I get it. And
• 1:10:57
  Speaker 2: I understand, oh my God, where did that screaming, that
• 1:11:00
  Speaker 2: cussing come from? Oh, that girl right there that has
• 1:11:02
  Speaker 2: something wrong with her. And then it's like, it should
• 1:11:05
  Speaker 2: go away. It's like, are you going to stare at
• 1:11:08
  Speaker 2: a mom that has a screaming baby? When obviously she's
• 1:11:11
  Speaker 2: struggling and she doesn't want the baby to be screaming
• 1:11:14
  Speaker 2: in church or in a quiet situation. So let's keep
• 1:11:16
  Speaker 2: staring at her like that. It's just, it just creates
• 1:11:22
  Speaker 2: more anxiety for me. It doesn't make me want to
• 1:11:24
  Speaker 2: go out. However, I'm not going to let someone stare
• 1:11:26
  Speaker 2: at me be the issue of all issues. Like, I
• 1:11:29
  Speaker 2: don't care at that point. Like, I have nothing to
• 1:11:32
  Speaker 2: convince of anyone of my condition. It is how it is,
• 1:11:36
  Speaker 2: and that's how I've laid it out. However, the most
• 1:11:39
  Speaker 2: appropriate way when I'm just meeting you or I'm just
• 1:11:43
  Speaker 2: meeting someone, fucking your dad, is to pretend like it
• 1:11:47
  Speaker 2: doesn't exist. Mm-hmm. Um, and necessarily I've gotten asked questions like,
• 1:11:52
  Speaker 2: do I still talk over you? I'm like, yeah, you
• 1:11:55
  Speaker 2: just like, it doesn't bother me. If you talk over me,
• 1:11:57
  Speaker 2: I might ask you to repeat it because I can't
• 1:11:59
  Speaker 2: like hear it. But other than that, like there's, there's
• 1:12:03
  Speaker 2: times where me and my boyfriend have actually cried laughing
• 1:12:07
  Speaker 2: like the other day at a restaurant. Like me and
• 1:12:10
  Speaker 2: me and my family have died year old. Like, cause my,
• 1:12:13
  Speaker 2: I'm thinking of my dad right now. My dad is bald,
• 1:12:16
  Speaker 2: year old. So yes, that is where one of them
• 1:12:18
  Speaker 2: came from. Yes. But there has been like, when that happens,
• 1:12:22
  Speaker 2: like my dad will be like, when I come home
• 1:12:24
  Speaker 2: from DC, he'll be like, so good to see you, Baylen.
• 1:12:28
  Speaker 2: And like joke around. He's like my favorite words to hear.
• 1:12:33
  Speaker 2: So it's just, it's good to have you home. Like
• 1:12:36
  Speaker 2: just certain things like that. But I mean, there's a
• 1:12:40
  Speaker 2: right and a wrong time for everything. If I'm slamming
• 1:12:43
  Speaker 2: my head off the table, I mean, I really don't
• 1:12:45
  Speaker 2: think that's, I'm not acting. I'm not acting. I don't
• 1:12:48
  Speaker 2: think that's funny. And then people stare at me and
• 1:12:50
  Speaker 2: it makes it worse, makes it really, really worse because
• 1:12:52
  Speaker 2: it happens in the most stressful environments, like going out
• 1:12:56
  Speaker 2: to eat. Like my mom has had to say multiple
• 1:12:58
  Speaker 2: things to multiple different people because I don't deal. I
• 1:13:02
  Speaker 2: don't do. What is the word I say all the time?
• 1:13:07
  Speaker 1: Confrontation.
• 1:13:09
  Speaker 2: Yeah, no, I can't do it. I won't say anything.
• 1:13:11
  Speaker 2: I'll literally just walk out and continue with my day,
• 1:13:13
  Speaker 2: pretend like nothing happens. And the people that I like,
• 1:13:16
  Speaker 2: my boyfriend, my friends, my family, my sister almost hit
• 1:13:20
  Speaker 2: someone at bingo because of it. Like they just don't
• 1:13:24
  Speaker 2: tolerate it. And then me, I'm just like put up
• 1:13:26
  Speaker 2: with it because it happens everywhere I go. Like someone's
• 1:13:29
  Speaker 2: always going to say something. Someone's always going to look.
• 1:13:31
  Speaker 2: Someone's always going to do something. There have been times
• 1:13:34
  Speaker 2: where I purposely say, go out and just pretend like
• 1:13:38
  Speaker 2: I don't have ticks. Like I'll just like hold them
• 1:13:40
  Speaker 2: all in and then I'll come back and I will
• 1:13:43
  Speaker 2: tick so bad. It will last like four hours straight
• 1:13:46
  Speaker 2: and I'll go to bed at eight o'clock at night.
• 1:13:48
  Speaker 1: So I have a question about that. When you sleep,
• 1:13:51
  Speaker 1: can you get through the night or do you wake
• 1:13:54
  Speaker 1: up ticking?
• 1:13:55
  Speaker 2: Um, there's been times where I have, um, I'm on
• 1:13:58
  Speaker 2: medicine now for my insomnia and my mood disorder, which
• 1:14:02
  Speaker 2: helps me sleep because I've been on medication before. before
• 1:14:07
  Speaker 2: for not getting enough sleep because of my tics. And
• 1:14:11
  Speaker 2: my mom did like an experiment because I was like, mom,
• 1:14:14
  Speaker 2: like I'm getting the worst sleep ever. She made me
• 1:14:16
  Speaker 2: sleep in her bed and my dad slept in like
• 1:14:19
  Speaker 2: another room and I was ticking in my sleep and
• 1:14:24
  Speaker 2: I had no idea. Like I... I had no idea.
• 1:14:29
  Speaker 2: I would like wake myself up. Like sometimes there was
• 1:14:31
  Speaker 2: one time I woke myself up because I was trying
• 1:14:33
  Speaker 2: to suffocate myself in the pillow from, from ticking. But
• 1:14:35
  Speaker 2: other than that, that was the only time I've ever
• 1:14:37
  Speaker 2: woken up from a tick.
• 1:14:39
  Speaker 1: Wow.
• 1:14:39
  Speaker 2: Wow.
• 1:14:40
  Speaker 1: So your platform has made you big enough that you
• 1:14:45
  Speaker 1: were able to collaborate with the musician Jax. How did
• 1:14:49
  Speaker 1: that come about?
• 1:14:50
  Speaker 2: Oh my gosh. I love Jax. Okay. So, so it
• 1:14:54
  Speaker 2: is happened. We tried planning this last year where I
• 1:14:58
  Speaker 2: go out to LA and like blank, blank and blank. However,
• 1:15:02
  Speaker 2: flying with my condition is not the easiest thing to do.
• 1:15:05
  Speaker 2: I take a very, very high sedative to go to
• 1:15:09
  Speaker 2: sleep and not wake up on the plane. It just
• 1:15:12
  Speaker 2: makes me more comfortable than trying to either pay attention
• 1:15:17
  Speaker 2: to everyone else on the plane and what everyone else
• 1:15:19
  Speaker 2: is doing based off of my tics. So I take
• 1:15:22
  Speaker 2: sleep pills. However, they wanted me to be there for
• 1:15:24
  Speaker 2: two days and I was like, That's a lot. Like
• 1:15:27
  Speaker 2: the sedative takes like 24 hours to like completely wear off.
• 1:15:32
  Speaker 2: So for me to get there and feel maybe like this,
• 1:15:35
  Speaker 2: I'd be like half asleep. It would have been terrible.
• 1:15:38
  Speaker 2: So I was like, let's just do it another time.
• 1:15:40
  Speaker 2: And then they were in Baltimore, Columbia, somewhere in Maryland
• 1:15:45
  Speaker 2: and right out of DC. Cause I live in the
• 1:15:47
  Speaker 2: DMV area with Colin and they, It was like 45 minutes.
• 1:15:52
  Speaker 2: And Jax was like, we're going to be here. Can
• 1:15:54
  Speaker 2: you guys make it? And I said, yeah. And I
• 1:15:56
  Speaker 2: met Big Time Rush too. It's like, what a two
• 1:15:59
  Speaker 2: in one. She's awesome. Her and her fiance are awesome.
• 1:16:03
  Speaker 2: I got invited to go to their wedding, which me
• 1:16:05
  Speaker 2: and Colin are trying to figure out a way to
• 1:16:07
  Speaker 2: get there. However, I don't really know how it's going
• 1:16:10
  Speaker 2: to work, but we're trying. But she is the sweetest
• 1:16:15
  Speaker 2: soul ever. Her brother actually lives in this area and
• 1:16:20
  Speaker 2: we're friends with him. So we're connected in the family.
• 1:16:24
  Speaker 1: I love that. But how did she even reach out
• 1:16:27
  Speaker 1: to you? How'd you guys get connected?
• 1:16:29
  Speaker 2: She followed me on TikTok. We followed each other back
• 1:16:32
  Speaker 2: on TikTok and her management reached out to me. It
• 1:16:34
  Speaker 2: was like, oh my God, we would love to like
• 1:16:37
  Speaker 2: create a song about trust syndrome or like something like that.
• 1:16:40
  Speaker 2: So she's so talented. She's so talented.
• 1:16:43
  Speaker 1: So talented. So talented. Another talented musician, Billie Eilish. She's
• 1:16:49
  Speaker 1: spoken up about having been diagnosed with Tourette's when she
• 1:16:53
  Speaker 1: was 11. Did you know that about her? Have you
• 1:16:55
  Speaker 1: reached out to her on Instagram at all?
• 1:16:58
  Speaker 2: I have not reached out to her. However, I have
• 1:17:00
  Speaker 2: known that she has had Tourette's syndrome the longest.
• 1:17:04
  Speaker 1: There are some other ones. Seth Rogen, I also saw,
• 1:17:07
  Speaker 1: has Tourette's, which I don't think anyone knew either. I mean,
• 1:17:11
  Speaker 1: I didn't know Billie Eilish did until I was researching Tourette's.
• 1:17:15
  Speaker 1: So I think it's really interesting that, you know, people,
• 1:17:20
  Speaker 1: you know, it's not that uncommon is the point of that.
• 1:17:24
  Speaker 1: What is a day in the life like for you
• 1:17:26
  Speaker 1: right now?
• 1:17:28
  Speaker 2: Okay. So I just got a puppy. So the less
• 1:17:32
  Speaker 2: sleep I get, the worse my tics are. So they
• 1:17:36
  Speaker 2: haven't been the best. However, when I'm talking, as you
• 1:17:40
  Speaker 2: can tell, when I'm focused, my tics subside. However, I've
• 1:17:49
  Speaker 2: been First thing is the dogs. My number one thing
• 1:17:52
  Speaker 2: is the dogs. I take them out, feed them. My
• 1:17:55
  Speaker 2: puppy is also very sick, so I have to give
• 1:17:57
  Speaker 2: her consistent medicine. I like to work out for about
• 1:18:02
  Speaker 2: 45 minutes to an hour and a half, depending on
• 1:18:06
  Speaker 2: how long my workout is. I make breakfast, lunch and dinner.
• 1:18:12
  Speaker 2: So I'm always making something. I'm always baking something. I
• 1:18:17
  Speaker 2: like to go on walks. So usually after I go
• 1:18:20
  Speaker 2: to the gym, I'll have like breakfast or whatever time
• 1:18:23
  Speaker 2: I go, I'll cook. And I'm like, okay, I'll go
• 1:18:25
  Speaker 2: take the dogs for the walk or I'll take care
• 1:18:27
  Speaker 2: of them. And my boyfriend gets off of work. He
• 1:18:29
  Speaker 2: works 12 hours. It's ridiculous. Crazy. And then he'll come
• 1:18:38
  Speaker 2: back and we'll kind of just do whatever. But it's
• 1:18:43
  Speaker 2: kind of just like, It's kind of just laid back.
• 1:18:48
  Speaker 2: I'm trying to think what else. what else I do.
• 1:18:50
  Speaker 2: I try to keep.
• 1:18:51
  Speaker 1: What kind of things do you like to do? Do
• 1:18:52
  Speaker 1: you like to go to movies? Do you watch a
• 1:18:54
  Speaker 1: lot of Netflix? Like what, who are you besides the
• 1:18:57
  Speaker 1: girl we see on Instagram?
• 1:19:00
  Speaker 2: I play Wee.
• 1:19:02
  Speaker 1: Oh, like the thing where you do tennis?
• 1:19:05
  Speaker 2: Oh yeah, like 2011. Yes, I have it right over there.
• 1:19:09
  Speaker 2: Me and Colin play competitive Wii. Yes. But I love
• 1:19:17
  Speaker 2: to be as active as possible.
• 1:19:18
  Speaker 1: Do you have a job right now? Are you looking
• 1:19:21
  Speaker 1: to work at some point? What do you see your
• 1:19:25
  Speaker 1: future being?
• 1:19:27
  Speaker 2: So I'm trying to... buy a place to run out
• 1:19:35
  Speaker 2: for Airbnbs. That's currently what my goal is for 2024,
• 1:19:41
  Speaker 2: 2025 type of thing. I do social media now full-time. However,
• 1:19:45
  Speaker 2: I don't talk about it because people think that I'm
• 1:19:49
  Speaker 2: a nobody that just scrums off people to get whatever.
• 1:19:53
  Speaker 2: It's just people don't know that I actually do social
• 1:19:56
  Speaker 2: media full-time. So that is currently... my job for right
• 1:20:01
  Speaker 2: now and I couldn't meaning.
• 1:20:04
  Speaker 1: You've monetized your content and you're doing stuff like that
• 1:20:07
  Speaker 1: or you mean people are hiring you to help them
• 1:20:09
  Speaker 1: with their content.
• 1:20:11
  Speaker 2: I monetize my content oh my god this feels so
• 1:20:14
  Speaker 2: weird to talk about I've never talked.
• 1:20:15
  Speaker 1: About it oh sorry can we no you're.
• 1:20:18
  Speaker 2: No you're fine I just don't know how people react.
• 1:20:22
  Speaker 1: But that's what all influencers do. That's what you should
• 1:20:24
  Speaker 1: be doing. You are an influencer. Why not make money
• 1:20:27
  Speaker 1: off of it? That's great. And another idea for you, Balin,
• 1:20:31
  Speaker 1: is that people can hire you to help them with
• 1:20:33
  Speaker 1: their content because your content is so good. Like I
• 1:20:37
  Speaker 1: would hire you to help me with my content. You know,
• 1:20:40
  Speaker 1: I think anyone could use someone like you that really
• 1:20:43
  Speaker 1: knows your generation, what people are doing on TikTok and
• 1:20:47
  Speaker 1: Instagram and all that stuff. Snapchat, I don't even know
• 1:20:50
  Speaker 1: how to use that. My daughter made me sign up
• 1:20:52
  Speaker 1: for it last night because she wants to have some
• 1:20:54
  Speaker 1: Snapchat thing where you go, you know what I'm talking about, right?
• 1:20:58
  Speaker 1: Where you go like a hundred days and you snap
• 1:21:01
  Speaker 1: each other. Yeah, so dumb. I'm like, does my face
• 1:21:04
  Speaker 1: have to be in it? She's like, no, it could
• 1:21:05
  Speaker 1: be the ceiling. I'm like, Wyatt, this is so stupid,
• 1:21:08
  Speaker 1: but she's so into doing this. Anyway, I think that
• 1:21:11
  Speaker 1: would be a great job for you where people could
• 1:21:12
  Speaker 1: hire you to help with content.
• 1:21:16
  Speaker 2: I didn't know that that was a job. However, I
• 1:21:19
  Speaker 2: do do social media full-time and I'm trying to save
• 1:21:22
  Speaker 2: money to do Airbnbs and I want to own my
• 1:21:25
  Speaker 2: own business. So I've been trying to work on merch
• 1:21:30
  Speaker 2: and all of that stuff on the back burner. And
• 1:21:34
  Speaker 2: I want to open, again, like a coffee smoothie place
• 1:21:38
  Speaker 2: because those are my favorite things to ever do and
• 1:21:43
  Speaker 2: go explore. I'll literally sit there like... There's a coffee
• 1:21:46
  Speaker 2: place really close to Collins. And so I'll just go
• 1:21:50
  Speaker 2: there and I'll sit there for hours and color with
• 1:21:52
  Speaker 2: my dogs.
• 1:21:53
  Speaker 1: Oh, I love that. I love that for you. I
• 1:21:55
  Speaker 1: think that's a great idea. So my last question then
• 1:21:57
  Speaker 1: is one more about your social media. How do you
• 1:22:01
  Speaker 1: come up with the content? Is it based on what
• 1:22:03
  Speaker 1: you're going through that day, that week? How often are
• 1:22:07
  Speaker 1: you coming up with content? Explain how you do your
• 1:22:10
  Speaker 1: social media.
• 1:22:12
  Speaker 2: So I do it very scrupulously. I'm going to say
• 1:22:16
  Speaker 2: that because I don't want to say the other word.
• 1:22:21
  Speaker 2: I really like to, again, bake and make every meal
• 1:22:25
  Speaker 2: that I do. So that's something that I like to
• 1:22:28
  Speaker 2: share because it's something that I also struggle with because
• 1:22:32
  Speaker 2: it's very, very hard to do. And it takes me
• 1:22:35
  Speaker 2: a long, long time. And I also like to make
• 1:22:39
  Speaker 2: content that's... Just based off of random things as well,
• 1:22:48
  Speaker 2: because I like to make my platform some kind of
• 1:22:53
  Speaker 2: just random, just the most random things you could probably
• 1:22:57
  Speaker 2: think of. Because I also think that I don't want
• 1:23:00
  Speaker 2: to post videos being the girl with Tourette's because I
• 1:23:04
  Speaker 2: think I'm also more than that. So there's other things
• 1:23:06
  Speaker 2: in my life that I want to share, like my dogs.
• 1:23:08
  Speaker 2: I like to share my dogs. I like to share
• 1:23:10
  Speaker 2: my outfits. I'm not really into makeup, however I try
• 1:23:14
  Speaker 2: to be. I really try to be. Um, but I
• 1:23:17
  Speaker 2: also am a girl that wears sweatpants and hoodies every day,
• 1:23:22
  Speaker 2: all day. That's everything I wear. And I try to
• 1:23:27
  Speaker 2: incorporate that without incorporating that. Like people specifically guys will
• 1:23:32
  Speaker 2: be like, you stop wearing baggy clothes. I'm like, no, no.
• 1:23:37
  Speaker 2: Tell me what to wear.
• 1:23:38
  Speaker 3: I'm going to wear this.
• 1:23:41
  Speaker 2: And I like to Make content with my boyfriend. I
• 1:23:46
  Speaker 2: really like that he likes to be involved with my
• 1:23:48
  Speaker 2: social media because, I mean, social media is my life.
• 1:23:52
  Speaker 2: It has turned into my job and my life because
• 1:23:55
  Speaker 2: I cannot work a nine to five. I've tried working jobs.
• 1:23:58
  Speaker 2: I've tried going to school. I can't sit through a
• 1:24:00
  Speaker 2: lecture hall class. I can't serve people food. I can't
• 1:24:03
  Speaker 2: bus people. I can't Uber. I can't be an Uber.
• 1:24:08
  Speaker 2: Just certain things like that. So it's probably... the biggest
• 1:24:11
  Speaker 2: blessing in my life that I have the opportunity to
• 1:24:15
  Speaker 2: help as many people and share my life to as
• 1:24:17
  Speaker 2: many people as possible. And that's the only thing I've
• 1:24:21
  Speaker 2: ever wanted to do. I never wanted to do social media. However,
• 1:24:27
  Speaker 2: I did joke around with one of my friends in
• 1:24:29
  Speaker 2: college and I was like, let's just drop out of
• 1:24:32
  Speaker 2: college and be social media influencer. And she was like, no.
• 1:24:37
  Speaker 2: And I was like, yeah, you're right. We could never,
• 1:24:39
  Speaker 2: we could never. And then look at me today. I
• 1:24:42
  Speaker 2: was like, okay. Because when I told my, when I
• 1:24:45
  Speaker 2: told my parents that I didn't want to go to
• 1:24:48
  Speaker 2: school anymore, I was like, it's too hard. Like I'm
• 1:24:50
  Speaker 2: struggling really bad. Well, again, I had very good grades
• 1:24:53
  Speaker 2: for the fact that I had to teach myself everything
• 1:24:56
  Speaker 2: from math to biochemistry. Like I had a 3.6 GPA.
• 1:25:02
  Speaker 2: Like that's very good in my eyes for college. Um, However,
• 1:25:07
  Speaker 2: my parents were very, very accepting about it. And they said,
• 1:25:12
  Speaker 2: if I turn 25 and I want to go back
• 1:25:14
  Speaker 2: to school, then go back to school. They said, right
• 1:25:16
  Speaker 2: now in your life, you're at a very, very healthy
• 1:25:18
  Speaker 2: place with yourself and with your condition. Because I never
• 1:25:23
  Speaker 2: used to accept who I was. However, now I am.
• 1:25:27
  Speaker 2: And I just don't really have the care to convince
• 1:25:30
  Speaker 2: anyone about anything. So... I'm very glad that I have
• 1:25:37
  Speaker 2: a very supportive family and friends and a boyfriend because
• 1:25:41
  Speaker 2: I wouldn't be who I am without them. Yeah.
• 1:25:48
  Speaker 1: I think I'll just say to end here that I
• 1:25:51
  Speaker 1: think what you're doing is so great because, as I
• 1:25:55
  Speaker 1: said before, growing up is so difficult. You're met with
• 1:25:57
  Speaker 1: all sorts of obstacles. Everyone has things that they have
• 1:26:01
  Speaker 1: about themselves that they dislike or that could be a
• 1:26:04
  Speaker 1: hindrance going forward, whether it's something they did in the past,
• 1:26:07
  Speaker 1: whether it's something physical. mental, you know, any sort of issues.
• 1:26:11
  Speaker 1: And what you're doing is taking, um, things about your life,
• 1:26:15
  Speaker 1: being transparent about it and, um, you know, letting people
• 1:26:19
  Speaker 1: into your world and see that you are more than that,
• 1:26:22
  Speaker 1: seeing that it doesn't define you and letting people understand, um,
• 1:26:27
  Speaker 1: Tourette's syndrome, which is such a, uh, you know.
• 1:26:30
  Speaker 2: Uh, a little baby weenie.
• 1:26:32
  Speaker 1: It's such a syndrome that is misunderstood. So my last
• 1:26:37
  Speaker 1: question for you is, you've talked about so many misconceptions,
• 1:26:40
  Speaker 1: but if we had to do one thing of what
• 1:26:43
  Speaker 1: is the biggest misconception that you want people to know
• 1:26:46
  Speaker 1: about you, about Tourette's syndrome, about your OCD, what would
• 1:26:50
  Speaker 1: that be for you that is your final message to
• 1:26:52
  Speaker 1: everyone listening or watching?
• 1:26:54
  Speaker 2: People with Tourette's syndrome don't tick 24-7. There has been
• 1:26:57
  Speaker 2: days where I don't tick for three hours. There has
• 1:27:01
  Speaker 2: been times where I don't tick for 20 minutes and
• 1:27:04
  Speaker 2: it goes periodically. It goes back and forth. People with
• 1:27:08
  Speaker 2: Tourette's don't all cuss. And again, people with Tourette's are
• 1:27:17
  Speaker 2: still people. They still have feelings and they're struggling the
• 1:27:26
  Speaker 2: same way everyone else is. So yes, Tourette's looks different
• 1:27:32
  Speaker 2: in everyone and I'm not, my condition and the way
• 1:27:34
  Speaker 2: that I deal with it isn't gonna be the same
• 1:27:36
  Speaker 2: as your cousin or your neighbor or your mom or
• 1:27:38
  Speaker 2: your sister. It's gonna look different and be different. However,
• 1:27:42
  Speaker 2: people can go hours without taking. Again, for the example
• 1:27:46
  Speaker 2: of this podcast, the more focused I am on a conversation,
• 1:27:50
  Speaker 2: the less ticks I have. The more focused I am
• 1:27:53
  Speaker 2: in general, the less ticks I have. And I think
• 1:27:55
  Speaker 2: that is a good thing, not a negative thing. And
• 1:27:58
  Speaker 2: that if I can tick for 20 minutes, but then
• 1:28:02
  Speaker 2: not tick for three hours, I feel like that is
• 1:28:05
  Speaker 2: a beautiful thing. And then it shouldn't be looked at
• 1:28:07
  Speaker 2: as I'm faking Tourette's or anyone's faking Tourette's because no
• 1:28:12
  Speaker 2: one would know that I, who I am, if I
• 1:28:15
  Speaker 2: didn't post about Tourette's syndrome or post about my condition.
• 1:28:19
  Speaker 2: So I think that just give people grace because everyone's
• 1:28:26
  Speaker 2: struggling and And Tourette's looks different in everyone the same
• 1:28:30
  Speaker 2: way that cerebral palsy looks different in everyone in the
• 1:28:32
  Speaker 2: same way that cystic fibrosis looks different in everyone in
• 1:28:37
  Speaker 2: the same way that epilepsy looks different in everyone. So.
• 1:28:42
  Speaker 1: I think that's a great, great words. And I think
• 1:28:44
  Speaker 1: the bottom line is to be kind because you never
• 1:28:47
  Speaker 1: know what somebody is going through.
• 1:28:49
  Speaker 2: No, exactly.
• 1:28:50
  Speaker 1: And everyone is going through something. So where can people
• 1:28:54
  Speaker 1: find you? Where can people, you know, watch your stuff
• 1:28:58
  Speaker 1: on social media?
• 1:29:00
  Speaker 2: Okay, so I have Instagram, Snapchat, and TikTok. I post
• 1:29:05
  Speaker 2: the most on TikTok, which I don't even know my
• 1:29:07
  Speaker 2: TikTok handle. I think it's balin.dupree. I could be wrong.
• 1:29:11
  Speaker 2: My Instagram is balin underscore dupree and my Snapchat is balindupree. Awesome.
• 1:29:19
  Speaker 1: Well, I'm going to friend you, follow you. I don't
• 1:29:21
  Speaker 1: know what the word is for Snapchat. I have three
• 1:29:24
  Speaker 1: people on my Snapchat as of last night, my daughter
• 1:29:27
  Speaker 1: and her two best friends.
• 1:29:29
  Speaker 2: Yeah, send me your Snapchat through text. I will.
• 1:29:31
  Speaker 1: I will. And you are the best. You are an
• 1:29:34
  Speaker 1: inspiration to people of all ages. I think you're terrific.
• 1:29:38
  Speaker 1: And I just want to wish you the best of luck.
• 1:29:42
  Speaker 2: Thank you for having me. I appreciate it. You're so
• 1:29:44
  Speaker 2: sweet and so beautiful. I was going to tell you
• 1:29:47
  Speaker 2: that beforehand.
• 1:29:49
  Speaker 1: You are beautiful. But thank you, Baylen.
• 1:29:50
  Speaker 2: Of course.
• 1:30:01
  Speaker 1: Thank you so much for listening to Misunderstood. I'm your host,
• 1:30:04
  Speaker 1: Rachel Yucatel. Please be sure to subscribe to the show
• 1:30:07
  Speaker 1: and give us a five-star rating and review. You can
• 1:30:10
  Speaker 1: support the show by joining our Patreon at patreon.com slash
• 1:30:14
  Speaker 1: misunderstood with Rachel Yucatel. Do you have ideas for the
• 1:30:17
  Speaker 1: show or want to reach out? Email us at infomisunderstoodpodcast
• 1:30:21
  Speaker 1: at gmail.com. That's spelled M-I-S-S understood. Thank you so much,
• 1:30:27
  Speaker 1: and I'll see you next time.
• 1:30:32
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