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Skyclarys Approved for Friedreich’s Ataxia | Cork News
Big news for Friedreich’s ataxia patients in Ireland: Skyclarys just got approved for funding, offering life-changing hope. This progressive disease steals mobility, speech, and heart function—so slowing its advance is a major win. With around 200 people affected, the HSE is racing to get this drug to them after years of advocacy. Stories like Paudie Coady’s, whose family lost sons to this illness, highlight why this approval feels like a beacon. While not a cure, Skyclarys helps maintain daily function and endurance, giving patients more time—and possibly preserving their ability to…
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