Latest / The R4R Podcast: Road to Zero / Heidi Prowse: We should have grown old together - Part 1
Transcript
- 0:00The artist in me was like, I'll try and make the Bush represent
- 0:06the community growing, growing over.
- 0:10Symbolism. Over what the like inspired by
- 0:14Angela and Paul. So if it grows over, it's like
- 0:16it's no longer about that, it's about the community.
- 0:19Continuing on. And then everything else was
- 0:21just because, just because it's the Ark and I've left out the
- 0:25buildings because I wasn't good enough to do that.
- 0:30Just change your perspective a little bit.
- 0:31Yeah, and no people. And no people, no.
- 0:33It's timber. No, it's, it's timber.
- 0:36It's rusted. OK, rusted.
- 0:38That's a lack of skill. But today, Heidi, thanks for
- 0:43coming in. I think myself, I think for you
- 0:47as Benny, we at AFRA have utmost respect for people trying to
- 0:51water their own patch of grass, you know, doing whatever they
- 0:54can, however they can to improve the world.
- 0:56And I think from my experience with you, you're an example of
- 1:00that. So it's great to have you here.
- 1:02It's great to have you around Afra Wednesday nights and very
- 1:05good. But I was reading some of your
- 1:07words recently and I think it's a good place to start.
- 1:12He's tall because it made me giggle.
- 1:15Yeah, he's tall, dark haired, undeniably handsome, with just
- 1:19enough of a dorky edge to keep him from looking perfect.
- 1:24From the other stuff you wrote, it sounded like you might have
- 1:26seen Andy beforehand, or you might have known who he was, but
- 1:31that sounds about as close as it can to love at first sight.
- 1:36100%. So a person who I had.
- 1:40Gone to high school? With.
- 1:43Was in the year above me but never on my radar.
- 1:47Both of his sisters I admired. What?
- 1:50They were both the school. Captain of the girls school in
- 1:53the small town that I lived in. And then you have years and
- 1:58years and years. And then I happened to come to
- 2:01Canberra and I walk into the good old Canberra gathering.
- 2:05There's a party at someone's house.
- 2:07They've just moved in. And honestly, I.
- 2:10Recall it like a. 90s ROM com I walked in the room, the music
- 2:16was playing, it was tacky and you know, people were chatting
- 2:19and the crowd splits apart and there is And I knew that this
- 2:25was the person immediately that I wanted to spend the rest of my
- 2:29life with. It's it's from and there's I
- 2:33guess there's two ways we can go with this.
- 2:35Both we should. The book is called We Were Meant
- 2:39to Grow Old Together. You wrote it.
- 2:41And so there's a really, I guess, sad part to this and and
- 2:45I think we'll get to that, but there's also really lovely part
- 2:48to it. I guess, like from my
- 2:51perspective, the thing that jumps out in my mind is you knew
- 2:55that Andy had cystic fibrosis and what that brought with it.
- 3:00And you still, well, you didn't have a choice, it sounds.
- 3:03Yeah, but, and I think that is the thing that a lot of people
- 3:07talk to me about. You knew how, you must.
- 3:11Be so courageous. You much must be so brave.
- 3:13What a great. Humour and I'm like, no, I, I
- 3:17saw this person that I wanted to have in my life.
- 3:21They immediately ticked my imaginary.
- 3:23Boxes. That didn't actually exist,
- 3:27Andy. Also I always said that he used
- 3:30his superpower for. Good, he was one of those people
- 3:34that any information that he. Absorbed, he could.
- 3:38Recall it. And so often people that are
- 3:41that intelligent don't have that like real sense of, I guess.
- 3:44That social. Link, but he would remember your
- 3:48kids. Birthdays.
- 3:50That was how into he cared and he was always wanting to learn
- 3:54about people and then he also wanted to teach and share the
- 3:58things that he had learned. So I just completely was
- 4:02enveloped by him. And then when he said, you know,
- 4:07you need to know that I have cystic fibrosis and that means
- 4:10that. I'll have a short.
- 4:11Life and I kind of there was no moment for me that went Oh well,
- 4:19then I'm out. That was it didn't even factor.
- 4:23I just went, all right, what are we doing?
- 4:26And we learnt so much. We got so much out of everything
- 4:31that we did. You know, I did know that
- 4:34eventually he would pass. Away, but I actually.
- 4:38Think that ended up being a. Gift because.
- 4:41We never had an argument and I say to people often.
- 4:44What would I give? To walk into my kitchen now and
- 4:48every cupboard door be open. Because it was never a thing
- 4:52that frustrated me. It was a thing that I.
- 4:53Absolutely adored about this. Ridiculous human.
- 4:57Who leaves cupboard doors? Open and I'll just close them.
- 5:01But what I wouldn't give now to walk into my kitchen and know
- 5:06that his presence. Was was there?
- 5:08And so. I feel.
- 5:10Very blessed, very lucky to have had the opportunity.
- 5:16To have had a. Connection, a friendship and a
- 5:20love that I think, you know, they try to show in the movies,
- 5:24but most of us don't necessarily get access.
- 5:27To. You still got quite a bit of I
- 5:30mean, I know you've spoken about it before, but I can see the
- 5:33emotion in your eyes and hear it in your voice.
- 5:37Yeah. So it's 2 days ago, it was four
- 5:40years. Wow, since he passed away and it
- 5:43doesn't. Ever feel?
- 5:45I mean time is not relevant I. Think we always talk?
- 5:49About how long has it been and this sort of thing, but you
- 5:52know. The day after.
- 5:54Could have been as raw as. Today or yesterday, It's how you
- 6:01cope with who you. Become as a person I think you
- 6:06know. I was already very deeply.
- 6:09Working in the community. Sector before.
- 6:12I met Andy. A lot of people think that he.
- 6:15He was the sort of, I guess, pivot.
- 6:17That made me move into it, but I was already working in the.
- 6:21Space I was already. Fundraising and supporting the
- 6:24community. He then gave me a.
- 6:27'Cause that I could. Get involved in even more, but
- 6:33you know when we when we think about, you know, the loss of a
- 6:37person you you don't just lose them you.
- 6:39Lose who you are. After them and you have to go
- 6:44through a huge amount of rediscovery and trying to work.
- 6:48Out what do I? Do now, you know, he gave me all
- 6:51my purpose and yeah, no, I don't have that.
- 6:56That person. I have to try and work that out
- 6:58again, yeah. So I was going to ask because I
- 7:01know, I know your back story. Well, thank you for actually
- 7:04clearing that up because I did think Amanda's passing was what
- 7:07got you into that brought you into the sector.
- 7:09But why don't you tell us that the journey before that that
- 7:13actually brought you in? Why instead of working in the in
- 7:15the mental health space? Yeah, so.
- 7:18Actually, in high school, I wanted to be.
- 7:21A sports psychologist. And then I realised the mark you
- 7:24needed. And so I kept changing my mind
- 7:26to make it or maybe I'll do this, maybe I'll do this.
- 7:29And I ended up doing a business marketing and events like course
- 7:35with a business college and I just thought I'm going to
- 7:39organise events and I didn't. I never had.
- 7:43Walked towards the charity or. The community.
- 7:46Sector at all, but they said apply for every job that has.
- 7:50Events in the title or in the. Job description.
- 7:53And so I did that and I went to an interview at 20 with Camp
- 7:58Quality and they had finger puppets for their business cards
- 8:02and they walked. It across the table.
- 8:03To me and I went, oh God, this is so fun.
- 8:06Like I want to work for this organisation and interestingly,
- 8:11as part of their recruitment. Process they do a.
- 8:14Psychometric test so they, you know, ask you what.
- 8:17Colour the sky is. And all these random things and
- 8:20then it. Spits out this profile.
- 8:22Back to you and who I am deep down is the complete perfect
- 8:29person to work in the community. Space devoted.
- 8:32And cares for others will go above and beyond for.
- 8:35The cause? Is very goal orientated and very
- 8:39focused and doesn't need a lot of discipline really can be
- 8:43told. This is what like.
- 8:45Enjoys feedback, needs time to process it, so this 20 year old
- 8:49went up against. People who had far great I.
- 8:52Was Green had no experience in the sector, let alone even being
- 8:56employed. There were two other people were
- 8:598. Years and five years of
- 9:00experience as fundraisers in the sector and for some reason.
- 9:05They. Chose me, but as soon as I got
- 9:08in there I thought. This is exactly.
- 9:10Where I need to be. This is about storytelling.
- 9:14This is about helping people that have gone through really
- 9:17difficult times in their lives. And I didn't really understand
- 9:21that. I'd grown up very middle class,
- 9:23very comfortable, never faced anything.
- 9:26I was so. Privileged.
- 9:28Really. When I think about my
- 9:29upbringing, that, you know, nobody in my family experienced
- 9:33any chronic, chronic illness, you know, I lost my grandfather
- 9:37when I was 15. He was an old man and he you
- 9:40know. Died after a great life.
- 9:42You know, so then I started working with children that are
- 9:45living with cancer and I learnt optimism, actually learnt it.
- 9:50It was not a. From them.
- 9:52From them, I always talk about Omar.
- 9:56So. Camp.
- 9:57Qualities. Idea is that they take you away
- 10:01so. Cancer can be put in the back
- 10:02seat and you get the opportunity to be a kid, so we don't talk
- 10:07about cancer When you're on these camps.
- 10:08It's all about having fun. It's just reconnecting and
- 10:11giving you just some space and there is medical teams on site
- 10:14around if anything's needed. But it's really about.
- 10:18Bringing in your. Who you?
- 10:20Are as a young person and you know.
- 10:23But you. Get to the end of the night and
- 10:25you're sitting around a campfire and, you know, Omar turns to the
- 10:28kid next to him and he goes, wait, dude, what kind of cancer
- 10:32did you have? And he's like, oh, I had AI, had
- 10:35a brain tumour. And he goes.
- 10:38Dude, you are totally lucky to be alive.
- 10:42Mate I had a wussy cancer compared to the a brain tumour
- 10:46man. Oh God, and I'm sitting there
- 10:49listening to. These literally. 15 year old
- 10:52boys, they're having this exchange and just so moved by
- 10:56it, but even further went back to the office and shared it with
- 11:00some of the. Staff that I was.
- 11:02Working with and one of the ladies said, you know, it's
- 11:04interesting that he has that. Perspective because he's
- 11:07probably. One of the most unwell young
- 11:10people. That we have.
- 11:11Had in a long time. Every year we try to get him to
- 11:15come to camp, but he's ended up back in hospital, the type of
- 11:19cancer that he has. Is really rare it's.
- 11:21The same as a sibling, his sibling has been able to have a
- 11:24transplant. He's on the list waiting like
- 11:27when when they. Talked about actually.
- 11:29What he was going through, it was significant.
- 11:33But he. Could look at someone else and
- 11:34go dude I had a wussy cancer like what even is that and those
- 11:40are the moments. That I got to.
- 11:42Experience as an early 20 year. Old that completely shaped.
- 11:49Who I am now? How I feel.
- 11:52About the world and. The legacy that.
- 11:55I want to give back and so I as a also ambitious don't know if
- 12:01you know this about me 20 year old my desk.
- 12:06Was directly opposite the. CEO's office and I rarely saw
- 12:13him actually in his office, but at my very first performance
- 12:18review. They said OK, this is what
- 12:21you've got to do. Blah blah blah and and what are
- 12:23your goals? And I said I want to be a.
- 12:25CEO by 30. And my manager could have gone
- 12:30No, she went OK. If that's the goal.
- 12:33What do we need to do to get? You there?
- 12:36And I was like, oh, OK, and so, you know, set me some goals and
- 12:39I will knock them down. And I was appointed as.
- 12:43CEO at 30. And 1/2, which I still can't,
- 12:49but you know, it was, you know. How outrageous for this. 20 year
- 12:52old to be sitting there going. I want that job.
- 12:55I don't actually know what it is or what they do but I want it
- 12:58and I'm willing to learn. I will do as.
- 13:00I work as hard as possible to be able to build who I am.
- 13:05I'm not coming from any of the. Usual pathway, the tertiary.
- 13:11Qualification. I'm coming straight into this
- 13:13organisation, I'm going to learn practically and on the ground
- 13:17and. This is the pathway.
- 13:19That I want, but I think almost saying it out loud and not then
- 13:23telling everybody that that was going to happen, but just, I
- 13:26guess saying it out loud meant that.
- 13:27I had a light say I had a lighthouse that was.
- 13:31Giving me guidance. Fix it into the universe.
- 13:33Sorry, can we go back to one thing that you said that I
- 13:36thought was really interesting? You said optimism can be learned
- 13:39or that you learned how to be optimistic.
- 13:41Yeah. A lot of people think the
- 13:43world's going to hell in a handbasket.
- 13:44Yeah. And they maybe they lack the
- 13:46skill of optimism. How do you learn optimism?
- 13:48How did you learn it? I mean, apart from obviously
- 13:50seeing those kids going through something really rough and maybe
- 13:52it just changed how you see your set of circumstances.
- 13:56But yeah, how could you teach someone optimism?
- 13:59So there. Are a couple of different ways
- 14:01and honestly. Perspective is the great.
- 14:04Place to start and. I also use a quote that was.
- 14:11By Newt's commander in the fantastic base and where to find
- 14:14them and it's worrying means you suffer twice.
- 14:17And so it is about thinking more deeply.
- 14:19About what? We are concerned about and what
- 14:23we're, what we have. The ability.
- 14:26To change and what we don't. There would also be.
- 14:30During COVID this tool came up quite often.
- 14:33It was the circle of control and the circle of influences.
- 14:36What do I have? Yeah, what?
- 14:38If this is a thing that's happening, what control and what
- 14:41influence can I have on it and what can I not and what can I
- 14:45focus on? But I I think deep down.
- 14:48Perspective was. One of the key things, it's
- 14:53really interesting in the way that camp quality as an
- 14:56organisation. Operates so they have you tell a
- 15:01joke. Before you start a meeting.
- 15:03And that's just you can't it. Could be bad dad.
- 15:06Jokes. I'm just thinking.
- 15:07About. No such thing as a bad dad.
- 15:10I'm also thinking of samos. Samos not safe for.
- 15:12Words. No.
- 15:13Well then. Jokes that might come in.
- 15:14Our podcast will get pulled by YouTube.
- 15:18But they also so. Once you passed your probation,
- 15:21they. Had a like photographer.
- 15:22Come in and take a picture. Of you with props.
- 15:26And they got this picture printed and it went above your
- 15:29desk. And the idea?
- 15:31Was we're. Living in a world where and
- 15:33we're working every day on things that are pretty tough.
- 15:37So how do you? See yourself in a different
- 15:39light and I also had this. Tool that was a goofy D board
- 15:43so. Every day when you left.
- 15:45The office. You had to write on the.
- 15:47Goofy D Board. What made you happy that day?
- 15:49And I remember calling my mom and being like, oh, I had my
- 15:52first day and we did this. And then we have this board and
- 15:54we have to write on it every day.
- 15:55What made us happy? And she's like every single day.
- 15:59And I was like, Oh yeah, that like seems like a lot.
- 16:03Maybe it's once a week, but they were like, no, every single day.
- 16:07And from the top down, the CEO would do it as much as everybody
- 16:10else. But this is the part in learning
- 16:12is like do. You give yourself the.
- 16:14Time the space and the. Capacity to have a positive.
- 16:16Thought because you can sit in the negative as much as you
- 16:20like, but no matter what has happened on your day, there is
- 16:26still something. There is still one thing, and I
- 16:29can even tell you my worst. Day, Obviously, the day.
- 16:34That my husband passed away. He.
- 16:36Star Wars to me. Before he died so.
- 16:40I, I had wanted to, you know, have some conversation with him
- 16:46that I would remember. And obviously everything happens
- 16:49and you're not, you know, you don't know what's going to
- 16:51happen or what's going to happen.
- 16:53And he had fallen asleep and our palliative care nurse said, and
- 16:58I think it's going to be any time now.
- 17:02And I was like, OK, and I was. Like but he's asleep like.
- 17:04Is he going to wake up like? Do I get to?
- 17:07Have this conversation. She's like, I don't know.
- 17:10And I'm like, and so everybody left and left me with him to
- 17:14have some time. And his eye was open and I'm
- 17:15like Andrew, Andrew Press. And he woke up and I said.
- 17:22I. Love you so much.
- 17:26And he just looked at me, took a breath, and he goes.
- 17:28I know. And that is what freaking Han
- 17:32Solo. Han Solo.
- 17:33Yeah, Yeah. To Princess Leia.
- 17:35I don't mean to make a lot of it.
- 17:36I thought he was going to say I am your father, honestly.
- 17:41So that's what I thought you were going to say.
- 17:42I'm not making a lot of it, sorry, but I thought it.
- 17:45But this is the. Thing like I'm sitting there
- 17:48going this. Is was he a Star Wars fan?
- 17:50Yeah. Tragically, tragically, it's.
- 17:54It's gone solo. There's something.
- 17:56Yeah, there's something nice in that.
- 17:57I think, like humour comes in. Yeah, in the darkest moments.
- 18:01And you, it's obviously nice to hear you landed on your feet in
- 18:05a sense, when you're a 20 year old going into a sector that
- 18:10suits you so well. Yeah.
- 18:11But then you got to, you spoke about a legacy you want to
- 18:14create. You got to share part of that
- 18:16legacy with Andy. Yeah.
- 18:19And the oh gosh, the. Combo of us together that I
- 18:23mean, he was completely a devout servant of the public.
- 18:29So I won't say public servant. I'll say servant of the public
- 18:33and absolutely believed in policy development and I would
- 18:38say what have the Romans ever done?
- 18:42Nothing helpful. And I'd be like I work on the
- 18:47ground. I can tell you about Omar.
- 18:48I can tell you about, you know, the I see the difference that I
- 18:51make every day. But he really talked about the
- 18:56policy. What does the policy?
- 18:57How does the policy set it up? And so the combination.
- 19:01Of the two of us together. Having these conversations and
- 19:03going tell me more about this. What does that look?
- 19:05Like, and then how do I change what I do that?
- 19:08We then started to build a team and I said to him, we went.
- 19:14To the hospital for just a really like basic checkout that
- 19:18he had to do. Every three months and he walked
- 19:21out with two massive like the brown paper shopping bags full
- 19:25of medication that was to get him through until his next
- 19:28appointment in three months time and a huge list of all these
- 19:32things that he had to do. And so we get in the car and I'm
- 19:34like. Who who helps you with this
- 19:37like? And he's nobody, he said.
- 19:41There's a very small organisation in the ACT.
- 19:45It's made basically made up of parents.
- 19:48They provide a. Little bit of financial
- 19:50assistance, but pretty much as soon as I leave the hospital I'm
- 19:53on my own. And the community person in me
- 19:56went, no, that isn't OK Yeah. And so on that trip back from
- 20:04Sydney, because at the time you couldn't get.
- 20:05That care locally I. Said, Oh, I've always wanted to
- 20:10do a Santa Speedo run. They do it in Boston in the
- 20:14snow, and they start at a pub and they run around the block.
- 20:17They do a hot lap. I've always wanted to do it, but
- 20:20no one's ever let me. Maybe we could do it for, you
- 20:23know, we could do. It for cystic fibrosis.
- 20:26And he's also an enabler, so he's like this.
- 20:27Would be great. And so we just dreamed up this
- 20:30thing. We're like, we're going to do
- 20:31this thing and we're going to do that.
- 20:33And I'm a very good fundraiser. I.
- 20:35Will say that. Honestly, I'm very, very.
- 20:37Good at it. So I had a very specific.
- 20:41Plan I'm like. There will be rules.
- 20:43And there will. Be criteria so that.
- 20:44We make sure that we raise the most amount of money and we
- 20:48spend as. Little as possible.
- 20:51And I. So he said yeah.
- 20:52Let's do it. And so I called the local
- 20:54organisation and I'm saying to her, we're going to do this fun
- 20:57run and running speedos and Santa hats in the middle of
- 21:00winter in Canberra and we're going to raise 10 grand.
- 21:05And the president on the end of the phone went, oh, or I don't
- 21:09think you could do that. You know we do.
- 21:12Like a. Big fundraiser as an
- 21:13organisation and like we're lucky to make 10 grand and I was
- 21:17like trust me, we're going to do this I need you to send me an
- 21:22authoritative fundraise. He's like, I don't know what
- 21:23that is like, OK, I'm going to write an authority to fundraise.
- 21:27I'm going to send it to. You you're going to sign it.
- 21:30And then I'm going to go go do this.
- 21:34So I had a. Party and.
- 21:37I had papers. Registration forms at my party
- 21:40that everyone came over, I was like, right, you're registering.
- 21:43You're registering and you're agreeing to raise a minimum of
- 21:46$500. And they're like, oh, I'm like,
- 21:48do it like I'm like, you're going to be in Speedos.
- 21:50People pay for that. And we had nine people sign up,
- 21:54including the two of us in the first year.
- 21:57So I was like. Everybody has to write.
- 21:58Raise $500 and everybody did. And some of some of our
- 22:05fundraisers raised a lot more and we made $12,500 in our first
- 22:10year. And that president called me
- 22:12back and he's like just all of this money just keeps coming in
- 22:17and we don't know, like this is amazing.
- 22:20How did you do? This.
- 22:21And I'm like, well, this. Is what I do.
- 22:24And we just made the next year more Santas, next year more
- 22:29Santas. But it was never about the
- 22:33quantity of people it. Was about the quality, so I
- 22:37said. If we're doing a fundraiser,
- 22:39it's because I know how hard. I've seen how hard.
- 22:42Cystic fibrosis is to live. With I've seen the.
- 22:46Cost that is associated. With it.
- 22:49And So what I don't want is for you to come and parade around in
- 22:53your speedos. You can do that in your own
- 22:54time. No peacocking.
- 22:56Exactly. I mean feel.
- 22:57Free to Peacock. After you raise the money, but
- 23:00also raise the money before. The day so we had all.
- 23:03Of these strategies and all of these.
- 23:04Ways that people. Could raise the money before the
- 23:06day and then that meant you didn't have to pull your wallet
- 23:09out on the day. You could celebrate you.
- 23:12Could enjoy, you could take, and you could bring your Peacock out
- 23:15as much as you liked. And so $1,000,000.
- 23:19In over how many years? Well, it was because of COVID.
- 23:24Yeah, so it was. 88 actual events over a.
- 23:29Decade. So there was a couple of years
- 23:31that. Obviously with COVID and things
- 23:32like that, that we didn't do them and you know, this was the
- 23:36thing as well and he knew me, sorry.
- 23:37You said $1,000,000, Yeah. Oh yeah, it's awesome.
- 23:40Yeah, well done. And the last one or the biggest
- 23:431 I think. Was about 200,000.
- 23:45But it was 100 and. 10 people 150. 150 people because that's
- 23:50something we're trying to do with that we're focusing on that
- 23:53better not necessarily bigger yeah even though yeah it ends up
- 23:56being big and we've also stolen your Santa run yeah since you
- 24:00stopped doing that all right with that and that's on again on
- 24:02again on again this year all right I'll.
- 24:04Be there December. 18th of December at the Jetty all.
- 24:07Right, I'll be there. No speedos because we have no
- 24:09peacocking rule there. So that's that's but.
- 24:12We can't just not just not at the dock.
- 24:14No, not at the docking dock. We might bring it back though.
- 24:17You know it. This was the thing.
- 24:18And Andy knew me very. Well, so I had created the.
- 24:23Event I'd passed. It over to the.
- 24:26Organisation I'd. Created the structure basically.
- 24:29All they needed to do was rinse and repeat that event every year
- 24:32to keep raising money. And then it became harder as the
- 24:36organisation didn't have staff, they were all volunteers and
- 24:40like I said, volunteers that were generally parents with
- 24:43their own children. And he said to me.
- 24:47About two weeks before he passed away.
- 24:49Will you do one more of? Course I will.
- 24:55I love you and I will. Of course I'll do another one
- 24:58and that and so. That was how.
- 25:00We cracked the million because I went all right, we have 200,000
- 25:04to go. That's how much we'll raise.
- 25:06Let's make this happen. But I.
- 25:09Raise money for the. 'Cause that I cared.
- 25:12About and that's what made a huge difference to me.
- 25:16Cystic fibrosis ACT have actually.
- 25:20Not they don't operate in the ACT anymore, but in a good way
- 25:24because medical treatment has completely changed the lives.
- 25:29Of people with cystic. Fibrosis you now take 2.
- 25:32Tablets a day. And it puts a stopper in your
- 25:35genetic mutation from doing the wrong thing so you don't get all
- 25:38the symptoms that you. Used to get.
- 25:41That you needed all the treatment and all of the therapy
- 25:43and all of the cost. So you're saying when there's a
- 25:45good or they're not operating here, that's because the
- 25:48treatments for it have gotten so good that they don't really need
- 25:50to, Yeah. So they had all.
- 25:53Of the money that. We had raised.
- 25:55They have passed. It over to an organisation
- 25:58that's like minded in one of the.
- 26:00Other states. Who still then basically
- 26:02provides that financial assistance, but they don't have
- 26:05to. Go all out so.
- 26:07And this is it. Like it is.
- 26:09It is not hard to raise money if you're given the tools to do it,
- 26:15if you're given if you're enabled and you're supported to
- 26:17do it and there and I have I there is not a kind of
- 26:21fundraiser that I have not put on I've.
- 26:24Judged the best bull. Bar at a Ute muster as much as I
- 26:28have drunk Chandon at a gala dinner like you've never seen SO
- 26:35and every single type of fundraiser in between.
- 26:37So I've learnt a lot over the years and worked.
- 26:40Out what works. Well, and what doesn't?
- 26:42And, you know, then set up the Santa run.
- 26:46As a structure to go, this is. This is what works.
- 26:50And we can see what works. Now how do we activate?
- 26:54It. It's it's nice to see.
- 26:56There's obviously a lot of joy when you look back on these
- 26:59memories because it's a shared experience that you had a shared
- 27:03purpose and you've also left a bit of a legacy and can it
- 27:08continues as well. But it also must make it equally
- 27:13hard when Andy passed. And I just want to read some
- 27:18more of your words. Bouncing back isn't about
- 27:22leaping into joy. It's about learning to live with
- 27:25the ache. Saying yes to coffee with a
- 27:27friend, singing along in the car, letting the smallest
- 27:31moments stitch you together. Sometimes back looks like
- 27:35nothing, looks nothing like before.
- 27:37And that's OK. Maybe we're not meant to go
- 27:39back. Maybe we're meant to go forward
- 27:42differently. You're not broken, you're
- 27:44building, and every messy, uneven brick still counts.
- 27:47And you, you had a question at the end of that post that you
- 27:50made, and I'll give it to you. What does bouncing back look
- 27:55like to you? How have you bounced back since
- 27:58Andy's passing? Well, I think.
- 28:00The real key part is that. We're not a ball and we don't
- 28:05bounce. And my expectation of myself was
- 28:11well, I knew that he was going to pass away, and I had all of
- 28:15this time to be aware of that. So it should be.
- 28:17Easier. In theory.
- 28:20In theory, until it happens. And then I broke in ways that I
- 28:26didn't even know. You could break.
- 28:29As a human and lost everything I felt and I.
- 28:38Thought that what I would. Do is just continue on?
- 28:44But I had not. Expected what grief would look
- 28:48like, what it. Would feel like no matter how
- 28:50much I wondered or spoke to. People.
- 28:54About it until I felt it myself, I had no.
- 28:59Capacity to process. And one of the things I did do.
- 29:04Is. I decided early on.
- 29:09Because I did. Start to struggle when he was
- 29:11becoming unwell and that. We wrote our first.
- 29:15Emergency will at 25 years old in a hospital because he was
- 29:20having surgery the next day and we might have to put it into
- 29:23place. So that's not a thing that a 25
- 29:26year old should have to do. And it became harder.
- 29:32And I spoke to my GP and set up a mental health plan, and she
- 29:38handed me the mental health plan and said, it's just one thing I
- 29:42want to say, you know, that you're mourning him and he
- 29:47hasn't died. And I thought, gosh, that's
- 29:51really inefficient. We hate inefficiency.
- 29:55And I made this conscious decision that I would give
- 29:58myself moments to cry in the car.
- 30:02Usually with either. Céline Dion or Shania Twain?
- 30:06But I would. Not mourn a loss that I had not
- 30:11experienced yet. Because I was.
- 30:13So lucky to spend every moment with him and we could enjoy
- 30:17those times and we could laugh in the most inappropriate times
- 30:22and. That was what got us through so.
- 30:26When I actually got to the point of grieving, it wasn't just.
- 30:31That loss, it was the loss of. All of the time that we had
- 30:36spent together and the loss of myself and I, I thought, you
- 30:43know, I'm this resilient. I'm this very capable person and
- 30:47I just completely couldn't function and I didn't care about
- 30:54things and I thought I'm never am I never going to care about
- 30:58anything ever again. And that's deeply a part of my
- 31:04humanity and it. Just has disappeared.
- 31:08Overnight and I had a person. After he passed away.
- 31:16Because my expectation myself, I was CEO of a mental health not
- 31:20for profit at the time that my husband passed away and so.
- 31:24I felt that I. Had an obligation to.
- 31:28Be a leader. Of mental health in my worst and
- 31:31my darkest moment, which sounds ridiculous and not an
- 31:35expectation that anybody else put on me.
- 31:37It is only the expectation that I had of myself.
- 31:39I can see it. So I was straight into a
- 31:42psychologist. I was doing all the things and I
- 31:45said to, I said to my psychologist, I said I honest, I
- 31:49feel like I'm sitting at the bottom of a well and I just
- 31:54can't get out of it. And I know how to get out of it.
- 31:58I've gotten out of it. Before.
- 31:59But I just every time I I'm like scratching at the walls and I'm
- 32:03so stuck. Because I keep just.
- 32:05Falling back down. And then I'm angry at myself
- 32:08because I should know. And I see these ladders and I,
- 32:12you know, there's this one ladder.
- 32:13That is, it's the strategies that we used to do.
- 32:16Together. And so I think this ladder will
- 32:18Get Me Out because I already know that these strategies work.
- 32:21And I start to climb the ladder and it just turns to dust
- 32:24because without Andy, these strategies aren't going to work.
- 32:28And then I go, OK, well, there's another ladder and I look at, I
- 32:32kind of step onto it and it's things that I think, well.
- 32:36These these were. Things that could work?
- 32:38Maybe they're new things I can try.
- 32:41But it's so fragile that. As soon as I step on it, it kind
- 32:44of breaks. It doesn't have the strength.
- 32:45To be able to. Get Me Out of here.
- 32:49I'm cranky because here I'm still stuck in the stupid well
- 32:52and I'm not someone who sits and then I've got this new ladder.
- 32:57That's steel. And shiny and new.
- 33:01And it does represent things like starting medication and
- 33:04talking to a psychologist. New things that I'd never done
- 33:07before. And I start climbing this
- 33:10ladder, but it doesn't go all the.
- 33:11Way up. Like there's work to be done to
- 33:15get myself out. And so I come back down, I sit
- 33:18down at the bottom of the well, and I.
- 33:20Hate it. I hate, I hate it.
- 33:23And my psychologist said, do you think that you might need to
- 33:28just sit? For a bit.
- 33:31I'm like, I don't know if you know who I am.
- 33:34I'm like, what? Just sit, Nah, how?
- 33:40I don't even know how to do that.
- 33:41And so that was one of the things I had to learn.
- 33:44Was I have to sit, have to feel. It I have to experience it even
- 33:50though it's so uncomfortable and then I can start to work on.
- 33:55Those strategies that. Get Me Out and what I hadn't.
- 33:57Thought about was. You know my mum.
- 34:00Could see her at the top of the. Well, she'd AB sail down and
- 34:04she'd come sit with me and I was not alone like I thought I was.