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Skyclarys Delayed for Friedreich’s Patients | Cork News
A father’s desperate plea for his son’s future hangs in the balance as Ireland’s HSE drugs group delays approval of Skyclarys, a potential lifeline for Friedreich’s ataxia patients. Craig Coady, whose 16-year-old son Paudie lives with the rare, degenerative disease and lost his 13-year-old son Rory last year, had personally appealed to the Taoiseach. Though the group met to decide on reimbursement, they’ve paused — asking for more expert input — meaning families must wait a few weeks. But officials stress this isn’t a rejection, and lawmakers are pushing for a swift, positive outcome before…
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