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Rare Disease Parenting and the Power of Community w/ Effie Parks
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Receiving a rare genetic disease diagnosis for yourself or a loved one is devastating news, especially when the diagnosed is a child.
For families, navigating the challenges of these diagnoses requires more than just medical care, it takes a strong, compassionate support system.
In this episode of CareTalk, David E. Williams and John Driscoll sit down with Effie Parks, advocate and host of the Once Upon a Gene podcast, to dive into the critical role of community during a rare disease diagnosis and the strong support system that has developed around parenting those afflicted…
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