Latest / Podcasts By Donna Jodhan / Remarkable World Commentary Episode #88: Interview with Elizabeth Mohler, Ph.D. Researcher, Educator, Advocate, Scholar, Speaker
Transcript
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- 1:21Podcast Commentator: Greetings, Donna J. Jodhan, LLB, ACSP and MBA invites you to listen to
- 1:29her bi-weekly podcast, Remarkable World Commentary.
- 1:33Here, Donna shares some of her innermost thoughts,
- 1:36insights, perspectives, and more with her listeners.
- 1:40Donna focuses on topics that directly affect the future of kids,
- 1:44especially kids with disabilities.
- 1:47Donna is a blind advocate, author, sight loss coach,
- 1:51dinner mystery producer, writer, entrepreneur,
- 1:54law graduate, and podcast commentator.
- 1:58She has decades of lived experiences, knowledge,
- 2:02skills and expertise in access, technology and information.
- 2:07As someone who has been internationally recognized for her work and roles,
- 2:11she just wants to make things better than possible.
- 2:15Donna J. Jodhan, LLB, ACSP, MBA: Hello everyone, and welcome to another episode of Remarkable World Commentary.
- 2:22I am Donna J. Jodhan, a lifelong disability advocate and one who
- 2:29sees the world mainly through sound, through touch and stubborn optimism.
- 2:35I am a law graduate, accessibility consultant,
- 2:39author, lifelong barrier buster who also happens to be blind.
- 2:45You may know me from a few headline moments, as in November 2010,
- 2:51I won the landmark charter case that forced the Canadian government to make its websites
- 2:58accessible to every Canadian, not just recited ones.
- 3:03And in July of 2019, I co-led the Accessible Canada Act with more than two dozen disabled
- 3:11disability groups to turn equal access into federal law.
- 3:16And most recently, on June the 3rd, 2022, I was greatly humbled by Her Late
- 3:24Majesty's Platinum Jubilee Award for tireless commitment to removing barriers.
- 3:31When I'm not in a courtroom or in a committee room or in a pottery studio,
- 3:39you'll find me coaching kids with vision loss,
- 3:44producing audio mysteries, or helping tech companies to make their
- 3:50gadgets talk back in plain language.
- 3:54Everything I do circles.
- 3:55One goal to turn accessibility from an afterthought into everyday practice.
- 4:03I invite you to think of this show as our shared workbench,
- 4:08where policy meets lived experience and lived experience sparks fresh ideas.
- 4:16Now, before we jump into today's conversation,
- 4:20let me shine a spotlight on today's guest, a change maker whose work is as every bit as
- 4:29remarkable as the world that we are trying to build.
- 4:33I am pleased. I am proud and I am privileged to introduce to you Elizabeth Mohler.
- 4:40But when I first met her, I knew her as Chelsea.
- 4:43So I hope I do not miss and call her Chelsea.
- 4:48Elizabeth. Welcome.
- 4:50Elizabeth Mohler: Thank you so much. I'm thrilled to be here.
- 4:52Donna.
- 4:53Donna J. Jodhan, LLB, ACSP, MBA: Good. I always knew that you would be going places.
- 4:56My dear. From the first day I met you, I thought this is our future.
- 5:02And here she is. She's graduated with her PhD and let's get going.
- 5:08So, Elizabeth, you were born with congenital glaucoma and grew up in Brockville,
- 5:16Ontario, before your family relocated to Toronto in the 1980s to access services.
- 5:27Can you take our listeners back to those early years and tell us what that journey was
- 5:35like for you and your family, and how it shaped the person that you would
- 5:42become?
- 5:44Elizabeth Mohler: Yeah, for sure. So my family and I left Brockville in 1987,
- 5:50so I would have been two. So I guess now everybody knows how old I am. That's right.
- 5:54Donna J. Jodhan, LLB, ACSP, MBA: Look what you've done.
- 5:55Elizabeth Mohler: That's right. Yeah. At the time, the community living movement was starting to
- 6:00blossom. You know, deinstitutionalization conversations were happening.
- 6:05But we, my family, I think, knew at the time that the services we would
- 6:08need as a family were going to be in Toronto.
- 6:11So things like Holland Bloorview shout out to Holland Bloorview.
- 6:14I volunteer with them.
- 6:15The hospital for Sick Children.
- 6:17Schools for the the blind as well as other resources.
- 6:21My family sort of unit is comprised of myself.
- 6:27I'm the youngest and I live with almost total blindness.
- 6:30I have two brothers that live with dual diagnosis that are non-verbal.
- 6:36And I have a couple of stepbrothers as well as my brother Kyle and then my,
- 6:42my parents so we're quite a big family.
- 6:46And so I think, you know, when we moved here in Toronto in the early
- 6:5090s, like late 80s, really, it was thinking about services.
- 6:54So getting connected with you know, a preschool for the blind things like
- 6:58orientation and mobility.
- 7:00And then later, you know, going, moving from an integrated school where
- 7:04they certainly did their best with programming.
- 7:07But knowing that there was needs and supports outside of the classroom that I would need.
- 7:14So that's where w Ross McDonald came in.
- 7:16So I, I went to started w Ross McDonald in grade five really to gain expanded core
- 7:22curriculum skills. So like daily living skills,
- 7:25extracurricular activities, music, things I couldn't maybe gain in a
- 7:28community school in the same way, at least back then.
- 7:32And so that was a really big moment that kind of shaped who I was.
- 7:36I discovered a love for swimming and sports athletics running track and field,
- 7:43trampoline music. You know, I sang in choirs and really began to sort of
- 7:49find myself and who I was.
- 7:51And I stayed at w Ross McDonald until the end of OAC.
- 7:55Again, I'm dating myself.
- 7:56Because that no longer exists.
- 8:00Donna J. Jodhan, LLB, ACSP, MBA: Yeah. Go ahead.
- 8:01Elizabeth Mohler: But after that I, I went to Laurier, Brantford,
- 8:04which is a small campus of the main Wilfrid Laurier and Waterloo.
- 8:09At the time I went there was just under 500 students and I was the first student with
- 8:13vision loss. So, you know, I, I think kind of thinking through the
- 8:18years, I think one thread that for me has always been really important is finding my
- 8:23own voice and dependence you know, being able to be a trailblazer.
- 8:28Certainly being the first student with sight loss at Wilfrid Laurier in Brantford,
- 8:33you know, I was really instrumental in some of their early accessibility conversations
- 8:37and was proud to do that.
- 8:39So I'll, I'll leave that there.
- 8:41But yeah, I think definitely the opportunity to go to a specialized school for,
- 8:47for me was instrumental in helping me become the person I am today.
- 8:53Donna J. Jodhan, LLB, ACSP, MBA: And you said that you attended W Ross MacDonald school for the blind.
- 8:58Starting in grade five.
- 9:01Elizabeth Mohler: Correct? Yes.
- 9:02Donna J. Jodhan, LLB, ACSP, MBA: For those listeners who may not be familiar with that school,
- 9:07can you describe what that experience was like and how it influenced your education and
- 9:14your sense of identity as a young person with vision loss?
- 9:20Elizabeth Mohler: Yeah, absolutely. So W Ross MacDonald is a, is a school for the blind,
- 9:25where folks generally will come during the week and stay in a,
- 9:28in a lodge or a dorm because people come from all over the province of Ontario.
- 9:33I think at one point it was maybe all over Canada,
- 9:35but I, I think that's no longer.
- 9:39And so really the idea, besides getting a full academic suite of
- 9:44courses is that you're developing skills like life skills like orientation and mobility.
- 9:49You're also with peers that also have have some degree of vision loss.
- 9:53So there's a shared understanding. So it really for me was a place where I found
- 9:58community. You know, I still have some of my closest friends from the school.
- 10:03I think it really helped shape my confidence.
- 10:06You know, when I went to university and I was living in a dorm,
- 10:10it was interesting because in some ways I had more skills than my my sighted classmates who
- 10:15were coming in who maybe had never cooked before or done laundry.
- 10:20I think, you know, for me, again, it really helped me find who I was
- 10:25build community. I think that whether people decide to stay in their local school or
- 10:31whether they decide to attend a specialized schools,
- 10:34very personal. And I think both are right at different times in a person's life.
- 10:38And I think for me, what made it right was just knowing that there's things that my
- 10:42family couldn't necessarily teach me, that I needed to learn to be independent.
- 10:46Donna J. Jodhan, LLB, ACSP, MBA: So you learned to cook while you were at W.
- 10:48Ross McDonald.
- 10:49Elizabeth Mohler: Exactly. Yes.
- 10:50Donna J. Jodhan, LLB, ACSP, MBA: Oh. Okay. I'll have to try this out one of these days
- 10:54Elizabeth Mohler: Exactly. Yes.
- 10:57Donna J. Jodhan, LLB, ACSP, MBA: Something that really struck me about your story is that you have two brothers who are
- 11:05blind and also live. Live also live with nonverbal autism and other diagnoses.
- 11:15Now, this gives you a perspective that very few people in our field have,
- 11:23and this makes you understand disability both as a person living with it and as a
- 11:30caregiver. How has that dual experience shaped the way you approach your advocacy and
- 11:40your professional work?
- 11:42Elizabeth Mohler: Yeah, it's a really important topic.
- 11:44So we know that 1 in 4 Canadians right now is going is,
- 11:48is taking on caregiving work.
- 11:50And that's, that's continuing to grow as, as our population ages and lives longer with
- 11:55more complexities. I think what we don't talk enough about is caregivers who themselves
- 12:01have disabilities. I think sometimes there's a binary when we think about caregivers you
- 12:06know, there's the person over here receiving care and there's a person over here giving
- 12:10care and in, you know, in my PhD work, which we'll talk more about,
- 12:13I trouble that assumption.
- 12:15Because I don't think there's this dualistic caregiver care receiver.
- 12:19I believe we all give and receive care.
- 12:21You know, somebody might be providing physical care to somebody,
- 12:24but that person might make their, their care provider smile or they're,
- 12:29you know, providing financial support to their care provider.
- 12:33You know, I think that there's, there's a lot of work that needs to be done
- 12:36to really look at what we mean by care.
- 12:38And so one of the things that I find is, is challenging in some caregiving spaces is
- 12:44there's not room for caregivers with disabilities. We don't talk enough about it
- 12:48And we should, because we know that the population is aging into disability and more
- 12:52and more disabled people are going to find themselves in caregiving roles.
- 12:55And I think that part of the conversation that needs to happen is really,
- 12:59how do we support caregivers who themselves have access needs?
- 13:03So I provide a lot of support you know, not day to day,
- 13:07but sort of on a more administrative level for,
- 13:10for my brothers. And that's something that when I talk about in caregiving spaces,
- 13:16it's it's interesting to have conversations around what access for a caregiver could look
- 13:21like. So I think it's definitely shaped kind of the things that I become passionate about
- 13:26and that I talk about and study.
- 13:28You know, I think, I think sometimes we conflate providing a service with providing
- 13:33care and I see carers a lot more holistic and something that we all are giving and
- 13:37receiving.
- 13:40Donna J. Jodhan, LLB, ACSP, MBA: I think it's quite another not, I shouldn't say undertaking,
- 13:43but, you know, a very challenging environment to be in.
- 13:46Right.
- 13:48Elizabeth Mohler: Yeah. For sure.
- 13:49Donna J. Jodhan, LLB, ACSP, MBA: Yeah. Your academic path took you from a Bachelor of Arts in Contemporary Studies
- 13:59at Wilfrid Laurier University to a Master of science in Occupational science at Western
- 14:09University, and ultimately to a PhD in health and rehabilitation sciences,
- 14:18all on a prestigious four year's SHC doctoral fellowship.
- 14:27What a mouthful. For our listeners who may be blind or partially sighted and considering
- 14:36graduate school, what was it like navigating post-secondary education as a person with a
- 14:46visual disability. And what kept you going through all of those years?
- 14:54Elizabeth Mohler: Yeah. I think that, you know, when we think about post-secondary,
- 14:59one of the things that, you know, I always like to talk to folks
- 15:02about is really thinking about understanding,
- 15:07having a really good understanding of what your access needs are,
- 15:10whether it's technology, whether you know, you need a tenant care or
- 15:14sighted guide, because most people aren't going to know unless they're in our field
- 15:19what those needs are and being able to really articulate those needs.
- 15:22I think what's unique about graduate school is that it isn't just what you do in the
- 15:27classroom. In fact, a doctoral level, you're only in your classwork for the first
- 15:31year. Maybe you go to seminar for a couple of additional years,
- 15:36which is essentially once a month, you get together with your colleagues and you
- 15:39talk about your work and you read emerging scholarship and sort of,
- 15:43you know, canonical scholarship in the field and talk about it.
- 15:46But essentially you're out on your own doing,
- 15:49writing, doing research, going to conferences.
- 15:52So you really need to think about your accommodations in terms of like what you're
- 15:56going to need in the classroom, but also what you're going to need beyond
- 16:00that to be successful.
- 16:01So Donna mentioned the four year Social Science Humanities Research Council doctoral
- 16:06fellowship. That's an award that Masters and PhD students can apply for to help fund their
- 16:11research. So it's an external it's through the federal government,
- 16:15through something called the Tri-council agencies.
- 16:17So there's a web portal you apply through that portal.
- 16:20And then if you're successful, then you, you receive a scholarship directly
- 16:25to your post-secondary institution.
- 16:28That process for me was not accessible.
- 16:32Back at the back at the time I applied, this was six years ago just for context.
- 16:36They had a lot of drop down menus in their application that jaws wouldn't read.
- 16:41There was a couple of CAPTCHAs, however.
- 16:44One of the things I did early on was I found an email,
- 16:47which is very hard to do on some of these websites you know,
- 16:51government websites and finally connected with somebody.
- 16:53And I was part of a pilot to try and improve the accessibility of the Tri-council
- 16:58application funding application process.
- 17:00So I was pretty, I was pretty pleased to be a part of that.
- 17:03So I think the thing that I always say to students is there's a lot of invisible work
- 17:07that goes into being a disabled student, and you need to pace yourself and you need to
- 17:11have community because I think a lot of the times we feel like we have to fix everything
- 17:18and we feel, we feel like we're kind of we're working to work.
- 17:21I have a colleague and friend who's always saying, we're working to work. And I really
- 17:24like that saying because it's all the things we have to do just to work.
- 17:28So I think you really need a community of support around you or a coil of support.
- 17:32I like the coil metaphor because it's multi-layered.
- 17:36It's multifaceted. It speaks to the different levels and layers of support in your,
- 17:42in your life. And I think that's really important to have that support.
- 17:47I also think it's important to acknowledge the emotional labor that students with
- 17:50disabilities take on. But there is, you know,
- 17:53and I think that, and I think that those things are important. And I also think it's,
- 17:56it's really important to recognize that there's also opportunities for leadership.
- 18:00Like these are all skills.
- 18:01When you're talking about yourself as a student that you can,
- 18:05you can position as leadership skills, as, you know,
- 18:08change management skills as presentation skills,
- 18:11as advocacy and activism skills and experiences.
- 18:15So I think it's really important to think about everything you're doing in terms of
- 18:19your skills, because you are going to, you are going to be drawing on those for your
- 18:22whole life. But really to make sure that you build a community around you,
- 18:27that you reach out and ask for help, there's nothing worse,
- 18:30you know, than getting to the end of a semester and realizing that if you'd had
- 18:33accommodations, things would have worked out.
- 18:35So asking for help right away being proactive and it's okay if you don't know what you
- 18:41need. Like when I went into my PhD, we were required to be a TA and I didn't know
- 18:45how I could proctor. I didn't know how I could do a scantron.
- 18:49So I wrote a letter to my dean who's lovely.
- 18:52Shout out to Doctor Shannon Sebold.
- 18:55Explaining here are the things I think I can do.
- 18:57Here are the challenges that I foresee as a TA.
- 18:59I'm really excited about the opportunity to be a part of the learning community at
- 19:03Western. And I'd like to talk with you about whether we can,
- 19:07can work out a placement.
- 19:09And I listed the things I could do.
- 19:11I could run seminars, I could you know, mark essays,
- 19:15I could mark presentations.
- 19:16So I think it sometimes isn't always about thinking about,
- 19:19you know, what the barriers are, but where are there opportunities and
- 19:22solutions and coming armed with those when you're,
- 19:25when you're speaking to people, whether it's your department chair, your
- 19:27dean, whether you're speaking to accessibility professionals and just being
- 19:33open because you're not going to know what you're going to need right away necessarily.
- 19:37So having those continuous conversations about your accommodations.
- 19:41Donna J. Jodhan, LLB, ACSP, MBA: You know, just listening to you really fascinates me in that all of this is not for
- 19:48the faint of heart. You've got to be a go getter.
- 19:52You've got to be able to go out there and, and roll with the times.
- 19:57It's not for the person who is going to sit in the corner and expect everything to be
- 20:03given to them, right? You have to go out there.
- 20:07You have to forge paths.
- 20:09You have to you literally are on your own a lot of the time.
- 20:14And, and your, your, I wouldn't say your job,
- 20:18but it's, you know, you have to convince the sighted world that,
- 20:22hey, I am vision impaired, but you know what?
- 20:26I can do it.
- 20:28Elizabeth Mohler: Right. Absolutely.
- 20:29Donna J. Jodhan, LLB, ACSP, MBA: Admire anybody like yourself who has been able to go out there,
- 20:33get your PhD, and now, man, you're our future.
- 20:38No. So your doctoral research examined how Ontario's direct funding program
- 20:48shapes the way that disabled persons access attendant services,
- 20:55and how service users resist and negotiate those structures.
- 21:03Can you explain for our listeners what direct funding is all about and why it matters so
- 21:11deeply to people with disabilities, and what the research uncovered about how the
- 21:19system actually works in practice?
- 21:23Elizabeth Mohler: Yeah, absolutely. So Ontario direct funding.
- 21:27So here in Ontario, there's a program called Ontario Direct Funding which essentially
- 21:31gives individuals with physical disabilities who qualify and are approved money to recruit
- 21:38and hire and train and onboard their own personal support workers or attendants.
- 21:42So it was really direct funding is based off the heels of the independent living movement
- 21:48in the 60s and 70s, which asserted that people with disabilities wanted to have
- 21:52control and autonomy over their own care.
- 21:56And so many centers for independent living around the world exist to promote that.
- 22:00So my work actually used something called critical discourse analysis,
- 22:05which really looks at how language and power are interconnected,
- 22:11how language is used to shape how we might look at a phenomenon or a concept like
- 22:15disability, and the ways in which equity and justice are reproduced or not through
- 22:22discourse and text. So critical discourse analysis sort of falls on the heels of
- 22:26discourse analysis of linguistics.
- 22:29And uses a lot of critical scholars like Norman Fairclough and Michel Foucault,
- 22:34Michel Foucault, who I took up in my work, as well as Shelley Tremain,
- 22:37who are kind of critical scholars that look at power.
- 22:41So my work actually ended up I didn't actually,
- 22:44for my project talk to service users of the program.
- 22:47I looked at program texts, specifically 51 program documents that were
- 22:52acquired using a strategic search strategy.
- 22:56And then took each document through an analytic guide and then built for discursive
- 23:03threads based on the results of the analytic guides.
- 23:07After I'd put them into an Excel spreadsheet and looked across for themes and threads.
- 23:13So for discursive threads emerged, which really had to do with one that's my
- 23:19favorite is a term that I coined called chrono normative citizenship,
- 23:23which really kind of, when you break it down, chrono time normative
- 23:27and then citizenship. So this really talked about how disabled people are expected to
- 23:33conform to a very able bodied notions and structures of time and how people are
- 23:37expected to break down their care routines and show exactly how much time they're going
- 23:43to need for their care routines in ways that can be very invasive,
- 23:46and specifically looking at how time is used as a governing mechanism to a lot or control
- 23:51care and how people, you know, how techs really look at producing time as
- 23:59you know, the, the less time you need for your care,
- 24:02the better. So very much, you know, in line with sort of capitalist
- 24:06notions of like, you know, we don't, we don't want people taking too
- 24:10much or using too much from the system.
- 24:13You know, I'm kind of really putting this into plain language, but I really like the
- 24:16way that this notion of time operated through my dissertation.
- 24:20So I, I really found for, for my dissertation,
- 24:25I was fascinated with the methodology of critical discourse analysis.
- 24:29I really wanted to sort of understand what was happening in these texts.
- 24:33As someone that lives with a disability and has done quite a bit of work in this field.
- 24:36I'm always fascinated by how disability is produced and reproduced through language,
- 24:40how we see disability, how disability is constructed.
- 24:44And I really wanted to explore that.
- 24:45So that's kind of you know, in a nutshell, what my,
- 24:49what my PhD looked at.
- 24:51And it emerged over time, I was in the beginning going to talk to
- 24:56service users and attendants of the program.
- 24:58But as I dove into my coursework and really started to ask deeper questions,
- 25:04this, the critical discourse analysis was sort of the methodology that I chose to,
- 25:10to carry out my work.
- 25:12Donna J. Jodhan, LLB, ACSP, MBA: Wow. I don't know what else to say here.
- 25:17Now in 2016, you and Doctor Mahadeo Sagi, I hope I'm pronouncing his name correctly.
- 25:25Co-authored a landmark book published by Elsevier called Creating
- 25:35a culture of accessibility in the sciences.
- 25:41That is a 25 chapter volume that has been cited over 208 times,
- 25:49including in publications like Nature Reviews Chemistry.
- 25:57What inspired you to write that book, and why is accessibility in Stem such a
- 26:06critical issue that needed a resource of that scale?
- 26:13Elizabeth Mohler: Yeah. So at the time I was working with Doctor Tzu Chi at the National Educational
- 26:19Association of Disabled Students, and we were working on some practical guides
- 26:24that could be used for faculty and teaching assistants around how to support students
- 26:28with disabilities in science labs and in other practical spaces.
- 26:31So when I say practical spaces, I mean co-op placements,
- 26:35work placements, work integrated learning.
- 26:38You know, the Mahadeo is, is a geneticist and has a lot of experience,
- 26:44extensive experience in science and was really interested in this topic.
- 26:48I was interested more from the perspective of the practical spaces piece.
- 26:53I had applied to a professional program in 2012 or sorry,
- 26:572010 that I got into, but ultimately decided not to pursue because
- 27:03at the time the, the program chair was very concerned about how would carry out the co-op
- 27:10placements of someone who was blind.
- 27:12And so at the time, I didn't sort of push, I just applied to ultimately to Western where
- 27:17I did my master's. But that was what sparked my interest in co-authoring the book.
- 27:22And also hearing many stories through my work at the National Educational Association of
- 27:27Disabled students from students with disabilities navigating sort of the practical
- 27:32spaces that accompany the classroom learning.
- 27:35So that book really came out of you know, those,
- 27:39those conversations. And I also want to acknowledge there was many contributors as
- 27:44well to the book who wrote about their own experiences in quite a lot of detail.
- 27:48So it was a wonderful way to connect with different faculty.
- 27:53So I think, I think why it's important is I, there's a lot of,
- 27:58I think we don't know what we don't know. And I think the book does a really nice job of
- 28:01unpacking. What are some of the concerns around being in the lab?
- 28:05We have a lot of conversations in the book around bona fide essential requirements.
- 28:09So, you know, what is the ultimate requirement of a course of an assignment?
- 28:14Can it be done in only one way?
- 28:16If so, why? If not, why not?
- 28:20So there was a lot of conversations around disclosure,
- 28:22which is another topic that I've written extensively about.
- 28:25So I think it was an opportunity to talk about Stem or now we would say Stem science,
- 28:30technology, engineering, arts and math.
- 28:33But also to talk about these conversations more broadly.
- 28:36And it really, I think, sparked my interest in disability activism in
- 28:42writing. And ultimately the career path I took.
- 28:48Donna J. Jodhan, LLB, ACSP, MBA: Wow. Balance for blind adults in Toronto has been a real anchor in your career.
- 28:58You have held so many roles there as assistive technology instructor for one
- 29:06community. Community engagement lead as an accreditation lead,
- 29:13social enterprise team member, and now pre employment specialist.
- 29:21Can you walk our listeners through what balance does and why that organization has
- 29:29been so important to you personally and professionally.
- 29:35And I do remember the late Tom Dekker.
- 29:38That's how I met him through balance.
- 29:41Elizabeth Mohler: Yeah. Absolutely. So balance for blind adults is not for profit here in Toronto,
- 29:47Ontario, Canada. That provides support to adults living with who are blind or living
- 29:53with low vision or partially sighted in a range of areas.
- 29:57So balance has a large assistive technology program,
- 30:02so providing supports to individuals who wish to learn whether it's a screen reader or
- 30:07magnification or learn how to use their laptop for work.
- 30:11Our assistive assistive technology program is,
- 30:14you know, available in person to folks that live in Toronto and then Ontario wide to
- 30:19folks who are outside of Toronto and want remote lessons or able to have remote
- 30:24lessons. Balance also provides orientation and mobility as well as adaptive daily living
- 30:30skills, but also has a large suite of group programs,
- 30:35including a strength and stability class a number of programs to do with mental health
- 30:41support. So there are two social workers that have lived experience of disability who run
- 30:46peer support programs and individual counseling.
- 30:49So that's a huge part of what balance does.
- 30:52You know, of course, there's the pre-employment program,
- 30:55which is the program I run.
- 30:56And ultimately that program aims to provide individuals that want to start looking for
- 31:02work, the skills to do so.
- 31:04So we prepare people to start looking for work,
- 31:08to think about starting to work with an employment service provider.
- 31:11Our curriculum is really built around helping individuals get to know themselves,
- 31:15get to know their skills, learn the technology that they're going to
- 31:18need to be successful in the workplace, as well as connect to community resources and
- 31:22employment service providers.
- 31:23So our program is a five week program.
- 31:25It's on Zoom. And individuals who are thinking about entering the workforce,
- 31:31or maybe re-entering the workforce that want to build some of those pre-employment skills.
- 31:36You know, are welcome to join the program right now. It's in the GTA,
- 31:40but we're hoping to expand the program.
- 31:43I think for me, one of the things that I love to see is somebody that comes in is unsure of
- 31:49what they want to do as, as an individual living with blindness or
- 31:53partial sight. And then at the end of the program has a really good sense of the path
- 31:56they want to take.
- 31:59Donna J. Jodhan, LLB, ACSP, MBA: His balance, a provincial organization or national.
- 32:04Elizabeth Mohler: Yeah. So right now, balance for blind adults offers in-person support in,
- 32:11in Toronto for orientation and mobility, assistive technology,
- 32:16adaptive daily living skills, as well as our groups that we have.
- 32:21We have a number of groups Ontario wide for mental health supports.
- 32:26So that would be, you know, our peer support program called Sharing
- 32:29Spaces, as well as counseling, individual counseling,
- 32:33and then assistive technology.
- 32:34So those are the two supports that are offered sort of province wide and they would
- 32:39be remote offerings.
- 32:41Donna J. Jodhan, LLB, ACSP, MBA: Is balance planning to go national one day?
- 32:45Elizabeth Mohler: I don't know. You'll have to stay tuned.
- 32:49No.
- 32:50Donna J. Jodhan, LLB, ACSP, MBA: I always I've always wondered this, you know,
- 32:52like you offer a plethora of services and you know,
- 32:56it'll be nice to see you go national one day.
- 32:59Elizabeth Mohler: Yeah, absolutely.
- 33:00Donna J. Jodhan, LLB, ACSP, MBA: You know, as an assistive technology instructor at balance.
- 33:07Okay. You know, tell us about some of the things that,
- 33:13that you've, you've done and, you know, things that you would like to see
- 33:18continue on.
- 33:20Elizabeth Mohler: Yeah. I've taught, you know, a lot of people who are new to whether it's
- 33:27an iPhone or a smart home device or a laptop.
- 33:33New to it as somebody with sight loss.
- 33:35So they might have, they might have used technology prior to sight loss and then
- 33:40they're coming back to it.
- 33:41I think for me, what I love is those moments where somebody gets really excited,
- 33:46they see the potential of technology, they are starting to understand how they
- 33:49might use it in their daily lives, or they've gone from sort of being afraid of
- 33:54making a mistake to recognizing that they can troubleshoot their way out of a mistake.
- 34:00What I love to see is the excitement because there is so much potential,
- 34:04as we know, for technology use not just for folks with disabilities,
- 34:10but more broadly. And I'd love to see conversations happening where people are
- 34:15really excited about the technology that they're using because it is a game changer.
- 34:19We know that technology is a game changer for for our community.
- 34:24Absolutely. But again, it comes back to being able to talk about our
- 34:28technology, what we need and understand how, how what we need you know,
- 34:36is impacted in our daily lives.
- 34:41Donna J. Jodhan, LLB, ACSP, MBA: Elizabeth, if you could dream and look forward to the future,
- 34:45I know that one of the things that that really bothers me or concerns me or something
- 34:52I'm continuing to work on is access.
- 34:55Access to online education, online exams.
- 34:59What are your thoughts on this?
- 35:03Elizabeth Mohler: Yeah, the online world and we we saw this during the pandemic really opened up
- 35:08opportunities for people to engage with whether it's post-secondary,
- 35:13whether it's employment, whether it was you know,
- 35:16volunteer or training opportunities.
- 35:19I think one of the. Yeah, for sure.
- 35:21One of the biggest barriers remain sort of accessibility to,
- 35:24to content. I feel hopeful, though.
- 35:27I think there's a lot more conversations, whether it's because of the Accessible Canada
- 35:31Act or here in Ontario.
- 35:33You know, we know that the the Aoda has been around for 20 plus years,
- 35:37and there's still a ways to go, but I am seeing more conversations.
- 35:41So, for example, at Western where where I just finished my PhD,
- 35:46there's been a lot of conversations around how to build accessibility into course
- 35:50content online, into classroom design, into learning module design.
- 35:54So I'm starting to see those conversations and I'm hopeful. And I think a lot of it is,
- 35:58is really thinking about taking a universal design approach.
- 36:01So building things in from the start that are going to impact and benefit everybody.
- 36:06I do think that online learning, like Open University,
- 36:08for example, is a, a great, a great resource for people that want to take
- 36:14any number of courses online and you can do it from anywhere.
- 36:18But I think, again, it's important to recognize that, you know, online learning is
- 36:22one approach and it works for some people and not for others.
- 36:25So I, I think that it's really about thinking holistically about the learner and about the
- 36:30learning experience.
- 36:32Donna J. Jodhan, LLB, ACSP, MBA: Because one size does not fit all.
- 36:34It doesn't mean because you or I, you know, are able to deal with a cell phone,
- 36:38for example, that Eleanor next door should be able to do the same.
- 36:43You know, like she may be afraid, she may she may be saying to herself,
- 36:47oh, this is not for me.
- 36:48It's too intimidating.
- 36:50Right? So with the clock winding down, my final question to you is this what are
- 36:58your hopes and dreams for the future with regard to a education?
- 37:03And I think you've answered a lot of that before and be accessible services for those
- 37:09needing it.
- 37:11Elizabeth Mohler: Yeah. We'll start with the education.
- 37:14My hopes and dreams for the future.
- 37:17I'd like to apply for a postdoc.
- 37:20You know, within a disability studies program or one adjacent to a health and rehab science
- 37:26program. I'd like to do some co-design work to look at the experiences of young adults.
- 37:33So 18 to 35 with disabilities residing in long term care,
- 37:38and how individuals that are residing in these spaces who are young adults might
- 37:44reimagine their care and how those individuals share their care story and how we
- 37:51can learn from their care stories.
- 37:52So doing some co-design work with that community.
- 37:56And we're seeing there was a report that came out from the Ontario Ombudsman in December
- 38:01that talked about the number of young adults with with physical disabilities in long term
- 38:06care, as well as intellectual disabilities.
- 38:08And it's a population that's very near and dear to my heart because of my own family and
- 38:13something I want to explore.
- 38:15So I will be applying for postdocs and you know,
- 38:18hoping for a positive outcome in terms of accessibility for services.
- 38:22Like I think it's such a broad question, but I think what I would say is I wish that
- 38:28there was more. And I'm glad to see some, but I hope it continues education around
- 38:34disability, around systemic ableism, institutional ableism within post-secondary
- 38:41curriculum. So whether that's in education for teachers,
- 38:44whether that's for social workers, whether that's for nurses and doctors and
- 38:49speech language pathologists.
- 38:50So not just looking at this contract construct of disability as something that
- 38:56needs to be fixed or cured, but really embedding sort of anti ableism
- 39:00work into curriculum. And that's what I'm passionate about and that's what I hope to
- 39:03see.
- 39:05Donna J. Jodhan, LLB, ACSP, MBA: Now. Do you think your your future studies would,
- 39:09you know, have you stay in Canada or do you think you might have to travel across the
- 39:14pond?
- 39:16Elizabeth Mohler: Great question. I definitely plan to stay here in Toronto.
- 39:20I have my community here, my coil of support here,
- 39:23and I love Toronto. But the wonderful thing is,
- 39:25you know, there's a number of post-secondary institutions, obviously right here within
- 39:29Toronto, but also, you know, adjacently close.
- 39:33So if I had to take a train, it wouldn't be wouldn't be too bad.
- 39:35I mean, I commuted to London during my my PhD and it wasn't too bad.
- 39:39So yeah, that's my plan for now.
- 39:41I think I'll be staying staying in Toronto.
- 39:45Donna J. Jodhan, LLB, ACSP, MBA: But what if someone offered you a golden opportunity to study across the pond?
- 39:49Would you go?
- 39:51Elizabeth Mohler: Great question. I hadn't, you know, not one I'd thought of.
- 39:56I think I'd have to consider.
- 39:57There's a lot of factors to consider with, with moving anywhere and yeah,
- 40:03I would have to really look at the opportunity and you know,
- 40:07the, the length and just where I'm at in my own,
- 40:09my own career journey.
- 40:11Donna J. Jodhan, LLB, ACSP, MBA: But you're not adverse to, to really, you know,
- 40:13like, if you were given this wonderful opportunity and I know that,
- 40:17you know, there's so many other factors for you to consider.
- 40:21Would you go?
- 40:22Elizabeth Mohler: I might, yeah, I might.
- 40:27Donna J. Jodhan, LLB, ACSP, MBA: Elizabeth, this has been a very fascinating interview and one where I'm hoping and I know
- 40:34that our listeners would be very much encouraged,
- 40:38motivated to reach for the stars because you've reached for the stars,
- 40:43you've done it. You're on your way.
- 40:45You are future. You keep it up.
- 40:48And it was a pleasure, real pleasure having you.
- 40:51Elizabeth Mohler: Thank you for having me, and I hope you have a lovely rest of your
- 40:54day.
- 40:55Donna J. Jodhan, LLB, ACSP, MBA: You too, and good luck with your board interview tonight.
- 40:58Elizabeth Mohler: Thank you.
- 40:59Donna J. Jodhan, LLB, ACSP, MBA: Okay, take care now.
- 41:00Elizabeth Mohler: Bye bye.
- 41:01Donna J. Jodhan, LLB, ACSP, MBA: Bye bye.
- 41:04Podcast Commentator: Donna wants to hear from you and invites you to write to her at donnajodhan@gmail.com.
- 41:11Until next time.