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Jesy Nelson Pushes for SMA Newborn Screening | Cork News
Jesy Nelson is fighting for change after her twins were diagnosed with spinal muscular atrophy — a condition where early detection saves lives. She’s pushing the UK government to include SMA in newborn screening, calling out former health secretary Wes Streeting for inaction. With life-saving treatments available, she’s frustrated that the heel prick test doesn’t catch it — until now. A major breakthrough: England will begin nationwide SMA screening by year’s end, thanks to Jesy’s relentless advocacy. Now, she’s channeling her pain into purpose, determined to live fully with her daughters and…
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