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Katie Woolf spoke to Mum Jamie about her sons issues with NDIS · 360 with Katie Woolf

• 0:00
  Speaker 1: I have heard over the last year or so that
• 0:02
  Speaker 1: there are some real issues for a lot of families
• 0:04
  Speaker 1: at the moment trying to access the NDEs and trying to,
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  Speaker 1: you know, to get the support that they require for
• 0:11
  Speaker 1: their children or require four family members. And joining me
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  Speaker 1: on the line right now is Jamie. Good morning to you, Jamie.
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  Speaker 2: Good morning Katie.
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  Speaker 3: How are you?
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  Speaker 4: Yeah, not too bad now, Jamie.
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  Speaker 1: I understand that you are having some issues at the
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  Speaker 1: moment with the NDEs.
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  Speaker 4: Can you talk us through what's going on?
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  Speaker 3: Yeah?
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  Speaker 2: Sure. Look so basically in my situation with the NDIS,
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  Speaker 2: which is the National Disabibility Insurance Scheme, is that my
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  Speaker 2: beautiful son who's nearly three, he has a development delay
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  Speaker 2: and we're just in the process of getting him an
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  Speaker 2: assessment done for autism, which it most likely is. We
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  Speaker 2: have received funding from the NDAs, which is fantastic that
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  Speaker 2: happened back in April. But obviously with COVID and yeah,
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  Speaker 2: if it's just COVID or just you know, our services
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  Speaker 2: are limited here.
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  Speaker 3: Yeah, We've just there's a lack of.
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  Speaker 2: Services available at the moment, at the moment in Darwin.
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  Speaker 2: So we've got all this money, We've got this funding
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  Speaker 2: but we cannot get in to see any specialists.
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  Speaker 3: There's just no support out there.
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  Speaker 2: We've been on a waiting list for eight months to
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  Speaker 2: get into a clinic that provides psychology, ot and speech pathology.
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  Speaker 2: So yeah, there's a real struggle at the moment.
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  Speaker 4: That must be really hard for you guys.
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  Speaker 1: I mean you're trying to do the best that you
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  Speaker 1: can as a parent to get the support that your
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  Speaker 1: little fellow requires and you're not actually able to get it.
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  Speaker 3: Yeah, it's very frustrating.
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  Speaker 2: It's very upsetting, especially knowing and seeing how your child
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  Speaker 2: desperately needs these services. For us personally, Ari, he he's
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  Speaker 2: become aggressive. So the poor darling, because he's nonverbal, he
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  Speaker 2: gets very frustrated and he gets very aggressive and also
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  Speaker 2: you know himself, so you know, we don't know how
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  Speaker 2: to deal with this, so we can't access you know,
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  Speaker 2: professional help to help him. Which, yeah, it's very frustrating.
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  Speaker 1: You know.
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  Speaker 4: Jamie.
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  Speaker 1: Firstly, good on you for bringing this up, because it's
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  Speaker 1: really hard as a parent. I would imagine to just
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  Speaker 1: make sure that you've got everything you need for your
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  Speaker 1: little fella. And and I just think that this is
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  Speaker 1: something that there's probably so many parents out there listening
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  Speaker 1: right now who are also going through a similar situation.
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  Speaker 1: Are there many places where you can actually get that
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  Speaker 1: support in the Northern Territory.
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  Speaker 2: Well? Yeah, firstly, you know, I'm sure and I've heard
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  Speaker 2: of many, many families that are going through this, and
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  Speaker 2: you know, people that are close to me and also
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  Speaker 2: people that I've met at learning centers along the way,
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  Speaker 2: and you know, the struggle is real and everyone's in
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  Speaker 2: the same boat there. I haven't actually been in touch
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  Speaker 2: with any support groups.
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  Speaker 3: We've tried to contact Autism andtee.
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  Speaker 2: We haven't had any response back, but I'm sure they
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  Speaker 2: will eventually get back to us. But no, yeah, there hasn't.
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  Speaker 2: Actually I haven't personally been in touch with in support
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  Speaker 2: groups or any type of organizations that do help you
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  Speaker 2: along the way if you know you're stuck in limbo
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  Speaker 2: like we are, yeap.
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  Speaker 1: So what can we kind of do, I guess to
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  Speaker 1: help this morning? Is it a situation where we can
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  Speaker 1: maybe ask the Health minister next time she's on you know,
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  Speaker 1: why it's taking so long for some families in the territory, why.
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  Speaker 4: There are these delays? What can we do to try
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  Speaker 4: and help?
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  Speaker 2: Oh, definitely, definitely Katie, and you know, I do really
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  Speaker 2: appreciate that, you know, just to make people aware of
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  Speaker 2: what's happening, and also for the Health Minister to be aware.
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  Speaker 2: You know, the government needs to support us as families
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  Speaker 2: and also needs to support these organizations and private practices
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  Speaker 2: who can't feel these positions for specialists. So what's happening is,
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  Speaker 2: you know a lot of these private clinics cannot find
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  Speaker 2: a psychologist for example, you're no te you know, a
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  Speaker 2: speech pathologist. People are not coming up to Dawe to
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  Speaker 2: work and I feel sorry for them as well because
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  Speaker 2: they're also getting very frustrated and abused by people that
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  Speaker 2: are trying to get in to see them. So you know,
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  Speaker 2: something has to change. The government has to help, you know,
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  Speaker 2: we can't. And the funny thing is to tell you that,
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  Speaker 2: you know, if you go through the public system, so
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  Speaker 2: you know, if you go and see the child Children's
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  Speaker 2: Development Clinic, that's fine, you can access those services. They're
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  Speaker 2: really good, you can see them regularly. As soon as
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  Speaker 2: you have NDIS funding, you aren't able to attend those clinics.
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  Speaker 3: So you know, what is the answer.
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  Speaker 2: Is the answer not getting NDIS funding and just going.
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  Speaker 3: Through the public system.
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  Speaker 2: It's quite flawed really because you're damned if you're doing
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  Speaker 2: you're damned if you don't. You're just trying to do
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  Speaker 2: the best for your child and you can't say really, yeah, look,
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  Speaker 2: you know, anything you could do to speak to the minister.
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  Speaker 3: And also the more people that.
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  Speaker 2: Speak up about it and.
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  Speaker 3: Tell their stories.
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  Speaker 2: I think you know, if we, you know, make some noise,
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  Speaker 2: something could happen.
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  Speaker 1: You are spot on and Jamie, what a bloody wonderful mum.
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  Speaker 4: You are bringing it to the four for everybody case
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  Speaker 4: as well, and you know, I.
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  Speaker 1: Know it's so it's it's tough being a parent sometimes
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  Speaker 1: as it is let alone when you're dealing with this
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  Speaker 1: type of thing. So I really appreciate you coming on
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  Speaker 1: this morning and telling us a bit more about it.
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  Speaker 3: Thank you, Katie. I really appreciate your time.
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  Speaker 1: Let's see what we can what we can do and
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  Speaker 1: we will make sure that we raise this with the
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  Speaker 1: Health minister as well.
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  Speaker 4: Jamie. Thank you. We'll talk to you again soon.
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  Speaker 3: Thank you, Katie. Have a lovely day you too.
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  Speaker 1: By now, if you want to get in contact with
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  Speaker 1: us on that topic, please do eight nine four one
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  Speaker 1: one O four nine. If you don't want to speak
• 5:47
  Speaker 1: to us on air about it, that's okay as well.
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  Speaker 1: You can send us a text message zero four one
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  Speaker 1: eight nine five seven three six nine. You can even
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  Speaker 1: send us an email if you'd like, three sixty at
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  Speaker 1: Mix one O four nine dot com dot au because
• 6:00
  Speaker 1: I know that some people, you know, you might not
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  Speaker 1: want to come on and get into the details about
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  Speaker 1: the issues that you're going through with a similar situation.
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  Speaker 1: But if you do want to email us, if you
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  Speaker 1: need us to keep it anonymous, we can do that
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  Speaker 1: as well. But you know, I think Jamie's she's brought
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  Speaker 1: something to the forefront that's really important this morning, And
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  Speaker 1: if you are in a similar situation or you want
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  Speaker 1: to give us a bit further detail, we would love
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  Speaker 1: to hear from you