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Latest / Living with Parkinson’s | Bryce Perry

Parkinson’s Research Has a Problem: Are Scientists Listening to Patients?

After more than 200 years of studying Parkinson’s, why do so many people living with it still feel blindsided by the disease?

We have researchers.

We have brilliant scientists.

We have decades of studies.

Yet people with Parkinson’s are still asking why fatigue, brain fog, sensory overload, motivation, freezing, and other life-changing symptoms can be so difficult to explain and understand.

So what would happen if Parkinson’s research didn’t just study people with the disease, but actually started with their lived experience?

In this episode of Living with Parkinson’s: The Good, the Bad, and…

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