032 - “Not Value for Money” Aoife’s Fight for a Future, Living with Friedrich’s Ataxia - Aoife Quinn
Aoife Quinn is 23, from Galway, and living with a rare condition called Friedreich’s Ataxia.
Right now, her symptoms are manageable.
But she knows what’s coming.
She knows there’s a drug that could slow the progression of her condition and protect her future.
The problem?
It has been deemed “not value for money.”
In this episode, we talk about:
Being diagnosed at 18
Living with uncertainty and fear
The impact on family and identity
Fighting for access to life-changing treatment
This isn’t just about chronic illness.
It’s about what happens when the treatment exists… but you can’t access it…
The skinny
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