Latest / Bendy Bodies with Dr. Linda Bluestein
The Roadmap That Could Change EDS Forever with Lara Bloom (Ep 176)
In this episode, Dr. Linda Bluestein sits down with Lara Bloom, President and CEO of The Ehlers-Danlos Society, for a revealing look behind the curtain of the Society’s ambitious global roadmap to 2026. What will it take to finally change the trajectory for people with EDS (Ehlers-Danlos Syndromes) and HSD (Hypermobility Spectrum Disorders)? Why have progress and awareness lagged for so long? And what is happening right now around the world that could shift everything?
Together, they unpack the systemic obstacles still tripping up patients, from years-long diagnostic delays and rampant…
The skinny
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