Adam Johnson - Rare Disease Dad on Mitochondrial Myopathy and Owning Your Story
ONCE UPON A GENE - EPISODE 052
Adam Johnson - Rare Disease Dad on Mitochondrial Myopathy and Owning Your Story
Adam “DadVocate” Johnson is a dad, diagnosed with Mitochondrial Myopathy. He blogs about his rare disease story, grief and experience on his blog, Owning My Story.
EPISODE HIGHLIGHTS
How did you come to be a part of the rare disease community?
When I was thinking I was a typical, healthy 35 year old, I got the flu that turned into pneumonia and bronchitis. I wanted to get back into self-care and working out and feeling better after that and I made a good push. I noticed during my…
The skinny
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