Latest / The STA Clinician Podcast / Ep.274 'Understanding Pain in 2026: Part 3 - The Gender Pain Gap' with Dr. Rachel Dewar-Haggart
Transcript
- 0:00You're listening to the STA Clinician Podcast, connecting clinicians across healthcare.
- 0:20Known for the last five years as the Sports Therapy Association podcast.
- 0:24My name is Matt Phillips, creator of runchatlive.com. And as always,
- 0:27this episode is being recorded live on the Sports Therapy Association YouTube
- 0:31channel and Facebook page at eight o'clock UK time on a Tuesday.
- 0:35Although as we'll mention again later on, if you are joining us live next week
- 0:39on February the 25th, it will be a Wednesday.
- 0:42Still at eight o'clock, but just so you know, next week, Wednesday life.
- 0:46Right. So we have reached part three of our focus this month of understanding pain in 2026.
- 0:53And the topic tonight in this episode is going to be the gender pain gap.
- 0:57As was stated in the advert for this research, sorry, for this episode,
- 1:02research does consistently show that women experience more MSK pain than men.
- 1:06They have it taken less seriously and are more likely to receive delayed or inadequate treatment.
- 1:12So to talk about this very shortly would be my special guest Dr.
- 1:15Rachel Dewar-Haggett, a postdoctoral qualitative researcher within the Medical
- 1:19Sociology and Health Experiences Research Group at the Nuffield Department of
- 1:24Primary Health Care Services, University of Oxford.
- 1:28Firstly, though, I would like to thank my guests from last week.
- 1:33And if you joined us last week, hopefully you're now watching it for your fourth
- 1:36time through, trying to work it out of what was going on.
- 1:39It was a fantastic episode. It was with Professor Dave Newell,
- 1:42Head of the Centre for Pain and Active Inference Research at Health Sciences
- 1:45University, and also Anna Maria Matsieri, who is currently a PhD student at
- 1:50Health Sciences University, and also, as many of you will know her,
- 1:53Director of the ST School.
- 1:56I mean, I say this all the time and I hate myself saying it,
- 1:59but it was an amazing episode, but definitely one which I would recommend you
- 2:02listen to a couple of times or just be connected and kind of zoned in with some
- 2:07coffee, if that's your medicine,
- 2:09just to really listen to it and pause it and have a little think.
- 2:12It's a fantastic overview of predictive processing, which is basically in layman's
- 2:16terms, when your brain guesses what's happening and outputs pain when it predicts danger.
- 2:20And also active inference, which is where the brain acts to conform or update
- 2:24those guesses, shaping how you move, feel, and interpret sensations.
- 2:29It really is, I'm not going to lie, I think it was challenging,
- 2:32but I think it joins the dots for a lot of you who are aware of the biopsychosocial,
- 2:37who are aware of Loma Mamosi and explain pain and are looking to take that next
- 2:41step forward to help put it all together and just evolve, just gently,
- 2:44which is what we like to do on the SDA podcast,
- 2:47just gently kind of evolve, move forwards and understand how much of that you
- 2:52need to tell your patient or client or how much it's just to help yourself be
- 2:55more effective in clinic.
- 2:57So available as always on the Sports Therapy Association YouTube channel and
- 3:01all popular podcast apps.
- 3:04And as I mentioned earlier on, just to remind you that next week,
- 3:08it will be Wednesday, the 25th of February with special guest, Dr.
- 3:13Rachel Zofnis, pain scientist, international speaker, science writer with a
- 3:17new book, Tell Me Where It Hurts, coming out March the 26th.
- 3:20Right then, just going to check. People are definitely with us.
- 3:23If you have joined us for the first time live, then thanks very much.
- 3:26I am able to bring up your comments and share them on the screen.
- 3:30So for example, Nikki Mansfield, first to the door, is saying,
- 3:34evening all. Fingers crossed YouTube's playing nice tonight.
- 3:37Yeah, we did have, we did, and it was YouTube's technical problems.
- 3:40But there were some technical issues last night, last week.
- 3:42But I think, touch wood, it's all going perfectly now. So thank you people who
- 3:46have come through to join us live.
- 3:48A real opportunity to ask some questions about such a topic,
- 3:52which I hope is close to all of your hearts.
- 3:53Cecily Hislop is here saying, hello, is there anybody in here?
- 3:56Just nod if you're going to... Okay, nice reference to Pink Floyd there,
- 3:59Cecily, and to our problems last week. So I'm just going to move on.
- 4:02Gary Benson, founder of the SDA, is here as well. Good evening,
- 4:05all. Hope you're all keeping warm and staying healthy. Thanks,
- 4:07Gary. Good to see you here.
- 4:09Becky Carroll, haven't seen for a while. Great to see you, Becky.
- 4:11Evening, all. Long time, no see. Fantastic. Thank you for joining us,
- 4:13people. Really appreciate it.
- 4:15And like I say, if you listen to the podcast and you like the idea of joining
- 4:18us live, then just come along next Wednesday, eight o'clock UK time.
- 4:22On either YouTube or on the Sports Serbian Association Facebook page.
- 4:28Right, I've left my guest down in the lobby for long enough.
- 4:31So sit back, get your pens and pads out.
- 4:34You're still using them to ask some questions as we start part three of Understanding
- 4:39Pain 2026, entitled The Gender Pain Gap with my special guest,
- 4:43Dr. Rachel Dewar Haggart.
- 4:51Hello, I'm good, thank you. Thank you so much for having me.
- 4:54Oh no, thank you for coming along.
- 4:56As always, I'm really grateful for you giving up your time and talking about
- 4:59a topic like this, which is, yeah, it's coming perfectly, I think.
- 5:03We've covered an introduction to understanding pain, we've looked at some amazing
- 5:06theoretical stuff last week, and now we're going to hit a topic which seems to,
- 5:12rise whenever we're looking at anything to do with healthcare and that is some
- 5:16kind of gender inequality.
- 5:17So I think it's a really important topic which we've touched before in lots
- 5:20of different capacities which I'm looking forward to. So thank you very much.
- 5:24Maybe we can start for listeners who aren't aware of you.
- 5:28Could you start by giving, I know it's tricky with your extended career,
- 5:31but maybe a little summary of what you do on a daily basis and how you're connected to this topic.
- 5:37Yeah, thank you. So I'm a psychologist by background and I have been a researcher
- 5:42for many years, mainly based kind of in primary care settings.
- 5:47But I think sort of throughout the course of my work, I think I'd like to describe
- 5:51myself as a bit of a lived experience researcher, really.
- 5:55So when I kind of have my own health experiences, I tend to get quite curious
- 6:00and want to find out a little bit more about the condition, how it might affect
- 6:05me, affects other people.
- 6:06And then with that sort of then stems my own kind of research ideas and passions.
- 6:11So I'm predominantly a qualitative researcher. So I naturally a very nosy person as well.
- 6:18So it's basically a real privilege for me to go out and speak to people with
- 6:22lived experiences of chronic conditions and looking at kind of how they manage
- 6:28those sort of long-term conditions within primary healthcare settings,
- 6:33whether they get supported self-management and things like that.
- 6:37And yeah, I have moved from looking into ME-CFS to having an interest in fibromyalgia,
- 6:45to then doing my doctoral thesis on long-term antidepressant use,
- 6:50and then have sort of segues into sort of interests and understanding around
- 6:54communication in healthcare settings and the patient-practitioner relationship.
- 7:00And following a diagnosis of endometriosis in 2022, that has led me on to sort of really,
- 7:06interested in kind of women's health, sort of gender equity,
- 7:11sort of the diagnostic journey of endometriosis.
- 7:14Some people might be aware it's incredibly long and incredibly complex.
- 7:18And really, that's where I am now. So I'm at Oxford working on a study that's
- 7:22looking at understanding experiences of people living with endometriosis,
- 7:27both from the patient perspective and also the healthcare sort of professional
- 7:31perspective from primary and secondary and cursory care.
- 7:34So I'm just really nosy and want to see whether people's experiences match mine, really.
- 7:39And I think that's sort of where it's generated my interest in sort of the gender,
- 7:43gap in health and research.
- 7:45Thank you very much. Yes, endometriosis, I say we're lucky enough. It's not lucky.
- 7:51We shouldn't have to be talking about the delayed diagnosis and the pain and
- 7:55terrible circumstances people find themselves in.
- 7:58But yeah, we've had a couple of episodes, if not probably three or four on that,
- 8:01because it's such a great example, of diagnostic overshadowing and the wrong
- 8:04questions or the questions not being asked and something that should be.
- 8:09Probably we'll mention again tonight when it when we kind of
- 8:12mentioned diagnostic overshadowing and that sort of stuff but yes so thank
- 8:14you very much for sharing that and thank you for being here
- 8:17maybe we could start by we're kind of
- 8:20assuming that everybody understands what gender pain gap was i was really happy
- 8:23actually to tell you the truth i don't know if you've seen the latest ipa proofing
- 8:26advert on tv you've seen it yes i think so there's i know that neurofen i'm
- 8:31sure other pain killers are available um neurofen i think they've had they've
- 8:36had a campaign recently about pain.
- 8:38The gender pain gap came up. I was watching last night. I just went, look at that.
- 8:42You're a friend copying the STA clinician podcast. That's good. That's good to see.
- 8:47But it's obviously something very topical and it's kind of, I was encouraged
- 8:50to see that it's actually on TV.
- 8:52But for people who aren't aware of what we're meaning by the gender pain gap,
- 8:55could you give us a definition and maybe when you first became aware of it?
- 9:01Yeah. Yeah, absolutely. Well, I think even just thinking about it in the context of the
- 9:06sort of the series that you've got this month I was trying to think about what
- 9:09pain is in itself and pain and having to
- 9:12explain it is already an incredibly complex as
- 9:16as you've been discussing is it's a really complex concept to think about but
- 9:20I think you can then bring into this into the sphere is sort of the issue around
- 9:26gender and that there are there are differences in kind of perceptions of pain
- 9:31between male and female,
- 9:34how people kind of discuss and present pain with clinicians.
- 9:38Prevalence of pain as well in terms of musculoskeletal conditions.
- 9:42There are seen to be disparities there.
- 9:44And essentially the level of kind of care that men and women receive relating
- 9:50to pain, there are disparities and there are potentially many explanations for
- 9:56it, which I'm sure we'll go into as the conversation goes on.
- 9:59But essentially, there is research to suggest that there is a gap in the level
- 10:04of understanding and care around pain for men and women.
- 10:09Very interesting. Yes, we will go into those different reasons in great detail.
- 10:13And I'm very much looking forward to it because it's such important information out there.
- 10:17And just remind people, if you have got questions or any experience you want
- 10:19to share, then that'd be great by using the comments. What about,
- 10:22let's start off with just the biology.
- 10:24Yeah, just the biology, I think. That's a good place to start and then move from there.
- 10:27But so is it a case where women do experience more MSK pain?
- 10:34And if so, why is that? What would be a reason for that? Yeah.
- 10:38So I'm going to caveat this by saying I am by no means a sort of biomedical
- 10:43person by any stretch, but I'll give you sort of my understanding of it is that
- 10:47there are differences from a kind of hormonal perspective.
- 10:51And I think one of the things that we sort of go, we're very quick to blame
- 10:55hormones for everything, but actually there is some truth to that.
- 10:58And I think one of the things that we need to consider when we're looking at
- 11:01pain is the menstrual cycle and the sort of the fluctuations in levels of progesterone
- 11:07and estrogen during the cycle and how that can affect things.
- 11:11So, you know, there's evidence that shows that progesterone can have an impact
- 11:17on sort of the tendons and the joints and the sort of the flux of it and thinking
- 11:22about things of hypermobile,
- 11:24Ehlers-Danlos and sort of connective tissue disorders like that.
- 11:28So that's sort of one of the things that we can think about.
- 11:31And then it's also thinking about the life course as well.
- 11:34And then moving on to, say, when you're becoming or sort of going into perimenopause
- 11:38or sort of postmenopause levels of estrogen can have an impact on bone density.
- 11:44And sort of, again, that will then allow for, you know, things like osteoporosis
- 11:49to be, you know, again, more prevalent in women due to these fluctuations in hormones.
- 11:54And there's also evidence to suggest that autoimmune responses and conditions
- 11:59are more common in women as well, which might give some explanation to sort
- 12:03of high prevalence of things like rheumatoid arthritis. Yeah.
- 12:07So straight away you're saying that and straight away i
- 12:10suppose we just just the fact that there's a bit of a problem here
- 12:13because historically research into pain and
- 12:16msk issues has been predominantly by
- 12:19men on men yeah absolutely so again
- 12:23sort of once i sort of get in this real interest in
- 12:25like the gender sort of differences and things like that it it sort
- 12:28of really shocked me that it's you know even in the
- 12:31sort of 1970s women were excluded from
- 12:35research because hormones again here we go
- 12:37let's blame them again i feel like we should have a pound for every
- 12:40time we blame the hormones i'll be i'll be rich but again
- 12:43it's it's thinking hormones and sort of fluctuations in
- 12:47hormones were seen as being too problematic to have in health
- 12:50research because it was too much of a confounding factor
- 12:53for inferences to be made about whether
- 12:57a drug treatment was working or things like that
- 13:00so women were excluded and also risk to say
- 13:03if women were pregnant so unborn babies I think you can think of the I can never
- 13:09say the word thalidomide I think I've got that right sort of sort of massive
- 13:14issues with that as well and sort of the risk of testing and sort of involving
- 13:18women in research but I think really it's only been sort of.
- 13:23I think it's only been in the past couple of decades, really,
- 13:27that there's been a sort of a need or sort of it's been made necessary that
- 13:32women are included in research.
- 13:34And even when research is being conducted, that it's aggregated by sex as well.
- 13:40So it's looking to see whether there are sex differences in trials of drug treatments
- 13:45or the way that illnesses are or sort of conditions are presenting themselves.
- 13:49So one of the big ones that sticks out is heart attack.
- 13:53Heart attack presents differently in women to men, and it's something that's
- 13:56not necessarily considered or thought about.
- 13:59So, you know, how can it be treated if a woman is going in with pain or not
- 14:04understanding what it is?
- 14:05If they're in A&E and they're not presenting with the typical symptoms of a
- 14:09heart attack that has been shown in men, then, you know, treatment decisions
- 14:13and potentially the outcome for women could be, you know, quite dramatically,
- 14:16dramatically different.
- 14:18So I certainly think research is getting better and women are being included in research more.
- 14:25But then you can add this additional layer now of the fact that a lot of women
- 14:30that are included in research are white ethnic background.
- 14:34High socioeconomic status, health literacy as well.
- 14:40So more women are in research, but again,
- 14:43we're not thinking about these wider determinants of health and actually looking
- 14:48to see whether what we're looking at in terms of what can be of benefit for
- 14:52women are of benefit to all women, regardless of social status.
- 14:58That's really interesting. And I think we've already mentioned,
- 15:01but you yourself kind of oversee PhD students and that.
- 15:04And so are you noticing there's more female students who are coming up and stepping
- 15:08up and feeling the confidence to get involved and not be judged?
- 15:11Yeah, I like to think so. I mean, even reflecting back from when I started sort
- 15:16of my research journey about 15 years ago now, there was one professor in our
- 15:21department who was female.
- 15:23Certainly that's you know there are more professors
- 15:26and sort of leading researchers who are female in that
- 15:29field I think certainly I mean I
- 15:32work in a medical sociology department I think there
- 15:35are probably two men in our department so
- 15:38maybe sociology is the place to be there's there's I don't know probably something
- 15:42that could be said for that but I certainly think there's a lot more interest
- 15:47in menopause research that seems to be coming through and the impact of perimenopause
- 15:52and sort of even post-menopause that's coming through.
- 15:56But I certainly think there's still an awful lot of work that needs to be done there.
- 16:00But hopefully with increasing awareness and similarly with endometriosis research,
- 16:05which is very much my area and sort of where I'm in, there is a growing kind
- 16:12of movement and interest in trying to improve women's health and maybe try and
- 16:16bridge the gap in gendered health. Good stuff.
- 16:21It's interesting i can't help say but what comes through my mind
- 16:24but and it'll probably come out wrong but i see so much
- 16:27criticism and of the woke generation and
- 16:30the younger generation and the snowflakes everyone's so sensitive and there's
- 16:33a lot of probably fueled by social media but i see it in my students that they
- 16:38that does seem to be less of the homophobia and the racism and all the ugly
- 16:43stuff which was just there and accepted in society when i was growing up even
- 16:48in kind of like the 80s and the 90s.
- 16:50And I see it amongst kind of 16, 17-year-olds now. And I hope.
- 16:55Because I like to find a bit of optimism where I can, that the generation we've
- 16:59got now are less judging and they're more just judging people by as being individuals
- 17:05and less labeling a category.
- 17:07So I don't know whether you see that as yourself in the university and stuff
- 17:11as well, but I get it at my end.
- 17:13And I feel quite positive about it. I think there's obviously problems with
- 17:16current generations, but I think there's a little bit of a silver lining.
- 17:20Maybe, with this more awareness and acceptance.
- 17:22Do you see that a little bit? Yeah, I think so.
- 17:25Again, I think within the realms of kind of research and particularly when it's
- 17:29looking around reproductive health conditions, I think there's still some difficulties there.
- 17:33So again, with the research that we've just been doing,
- 17:37we were really keen to speak to members of the trans community or people who,
- 17:43you know, were non-binary, didn't identify as their assigned sex at birth.
- 17:48And that was really tricky.
- 17:50And I think we were unfortunate in that we were trying to recruit people during
- 17:56a time when the Supreme Court were making their rulings as to what defines a
- 17:59woman, which made it difficult.
- 18:01And I think it's trying to sort of break down those barriers.
- 18:06But I think even thinking about it from a gendered perspective,
- 18:09I was, again, I've been thinking about this.
- 18:11I still think that education in schools is a starting point for understanding
- 18:17of kind of women's health conditions and understanding of pain.
- 18:21And I mean, I know I'm a little bit far out of being at school from now on,
- 18:25but from what I've heard from people that I've spoken with.
- 18:28Sort of education around periods and periods pain and sort of menstrual taboos
- 18:33and sort of educating around that, the boys and the girls still have separate
- 18:36learnings about it and actually don't have that opportunity to have those conversations.
- 18:42And, you know, I've been speaking with people that have been going,
- 18:44I've been on the floor in the toilets in my school crying because I'm in so much pain.
- 18:50And, you know, I can't go in or I can't leave a classroom to say that I'm in
- 18:55pain and go somewhere and it's you know there is some of that gender thing and
- 18:58that kind of you know the assumptions that boys might not understand what's
- 19:02going on but it's also happening within within communities of girls as well
- 19:07and within families and I think that's because.
- 19:11Starting from a young age there's this assumption that
- 19:14periods are painful and this pain is normal
- 19:17when they go through to pregnancy childbirth is
- 19:20painful you're expected to experience pain menopause
- 19:23hormones going all over the place hot flushes feeling confused probably aching
- 19:28joints that as we said this risk of osteoporosis this is normal it's all part
- 19:33of being a woman and i think having this kind of normalization of pain within
- 19:38our kind of within our own community of women and
- 19:42sort of speaking to people about it then potentially stops us acknowledging
- 19:46other pain that might not necessarily be related to our menstrual cycles, but then thinking,
- 19:52oh, I'm feeling a bit unwell under the weather.
- 19:55You know, I'm experiencing aching joints, I'm feeling a bit fluey,
- 19:59not great, and going, oh, actually, this is probably just normal.
- 20:02It's part of being a woman because, you know, excruciating period pain is normal
- 20:06and being part of a woman.
- 20:07So, I think we've almost, from a young age, we've kind of ingrained ourselves
- 20:13into understanding that or accepting that any level of pain is normal.
- 20:17And then also, we don't necessarily discuss pain amongst ourselves.
- 20:22And how on earth do you quantify pain? I know that you get pain scores,
- 20:25but what one person feels is excruciatingly painful might not be the same for someone else.
- 20:31And I think that's why I then sort of think about how do you describe pain? It's so complex.
- 20:36I struggle to describe it. So don't ask me that question.
- 20:43Scribble out my next question for
- 20:44you. Yeah, so much really interesting reflection and information there.
- 20:50We've already kind of alluded to the fact that yes, hormones are one of the
- 20:55reasons why there's a lot of differences in MSK pain and the incidence and prevalence and that.
- 21:01But we've also kind of alluded to the fact that it's not everything.
- 21:04And I think there is a danger now that it typically happens, isn't it?
- 21:07As we start, therapists now start realizing that yes,
- 21:11menopause can be linked very much to differences in presentations of
- 21:14tendinopathies and all sorts of things but there's a
- 21:16danger now that yeah I understand women they've got totally different
- 21:19hormones and that's kind of the end of it when really it's only kind of half
- 21:23the story of that isn't it yeah absolutely and again I've been kind of reflecting
- 21:28on my own experiences a little bit so I have always struggled with feeling slightly
- 21:34under the weather and not quite right myself I
- 21:37had glandular fever when I was 17 years old,
- 21:40which was dismissed by the GP as being a little bit stressed,
- 21:45which again is something that's quite common in women.
- 21:47A lot of the symptoms that we
- 21:49present with are kind of somatic or could be perceived as being somatic.
- 21:53So you're probably a bit stressed. You're a bit anxious.
- 21:56You're doing too much. Try and rest a little bit more.
- 21:59And I'm going, well, actually, I've got glandular fever. I'm really quite unwell.
- 22:03So I kept pushing and pushing and pushing and from
- 22:06there on in I think maybe some form of post-viral fatigue not
- 22:10entirely sure which again sort of thinking is it ME
- 22:13is it CFS I don't know few years
- 22:16down the line I kept on just feeling constantly like aching and in pain and
- 22:21I had sort of sort of sensitivity to touch and sort of a lot of symptoms that
- 22:26are very characteristic of the fibromyalgia diagnosis and I was very fortunate
- 22:30to have a GP that listened to me was very empathetic and understanding.
- 22:34I had a fairly quick referral to a rheumatologist who then subsequently diagnosed me with fibromyalgia.
- 22:41But what I think, again, is really interesting is that nowhere at this point
- 22:46was I asked about my menstrual cycle and whether my pain was constant,
- 22:51whether it fluctuated, whether there were particular times where my pain was
- 22:55worse, where my pain was, and sort of taking this kind of whole holistic view.
- 22:59And I know that we say we can't blame hormones for everything.
- 23:02But that wasn't really considered in amongst everything. And
- 23:07I'm remembering back to the note that the rheumatologist wrote back to the GP.
- 23:12And at the bottom, it says, I have advised Rachel that she might want to try
- 23:16not to, you know, try to sort of stop doing as much as she is because I was doing my PhD at the time.
- 23:21I was about to get married and, you know, all sorts of everything,
- 23:25you know, working as well.
- 23:26It's all too much going on. So she might want to try doing a little bit less.
- 23:30I'm thinking, OK, you've given me a diagnosis of fibromyalgia,
- 23:34which is fairly rubbish in itself.
- 23:36And you know having to learn to deal with that you're telling
- 23:39me i'm doing too much but actually you've not asked me
- 23:42about kind of other components of my sort
- 23:45of myself and my being which could
- 23:48be my menstrual cycle so which actually then turned out
- 23:50to be endometriosis much later so it's it's sort of trying to think holistically
- 23:56about the kind of how how all of the pieces of the puzzle fit together to be
- 24:01able to sort of reach that decision and i think these things then also do contribute
- 24:06to diagnostic delay as well,
- 24:08because you're going to see loads of different people who are giving lots of
- 24:11different reasons for things.
- 24:12I think IBS is another really common thing that women will be diagnosed with
- 24:16if they're complaining of kind of pelvic pain and.
- 24:19Sort of painful bowel movements things like that oh it's probably
- 24:22ibs let's look at your diet and again
- 24:25it's sort of it's not looking holistically at people sorry
- 24:29i've deviated from your question matt it's a
- 24:33perfect example and i wanted to go back to when you mentioned i think you said
- 24:35you were 17 or something like that and unfortunately it's a story we've heard
- 24:39so many times on the podcast so it's not like an n equals one it seems to be
- 24:43a regular thing when people do have i mean it's so good that people like yourself
- 24:47are able to come on podcasts and talk about these things because everyone else
- 24:51suddenly goes, oh, it's not just me then.
- 24:52And we realize that it's, you know, but yeah, that sounds like it's a typical
- 24:56thing where you're 17 and they just say, you're stressed. It'll be exams. You're a teenager.
- 25:00And it is, like I said, the beginning is diagnostic overshadowing, isn't it?
- 25:03And had you been a bloke who had gone in saying, oh no, I'm not feeling very
- 25:06good after my rugby game.
- 25:07And I'm like, well, let's get this, do some blood analysis and let's check this.
- 25:11And how long is we going on for? Yeah. Yeah.
- 25:14So it's there. It's a shame. There is, yeah. And again, I was sort of reading
- 25:18up on there being some research where, you know, I think it was medical students
- 25:22were looking at sort of video scenarios of both a man and a woman presenting
- 25:27to A&E with symptoms of pain,
- 25:29sort of musculoskeletal pain, and presenting pretty much exactly the same way.
- 25:34The only difference was their gender.
- 25:35And it was seen that the women were more likely to be exaggerating their pain.
- 25:39Again I think studies have
- 25:42shown that when men and women present to
- 25:45A&E with pain men are more likely to be
- 25:48seen more quickly more likely to be given sort of stronger pain relief to help
- 25:52with their symptoms more quickly women are more likely to be left for longer
- 25:56to be waiting to see someone and also be more likely to be prescribed anxiety
- 26:00medication as well so again there's these sort of unconscious biases and and
- 26:05disparities on on sort of how pain is perceived by clinicians sometimes.
- 26:09Do you know whether these, and I've researched or I've seen kind of papers come
- 26:14to these conclusions as well, the only thing I'm not quite sure that I just
- 26:16thought of as, do you know whether the response, for example,
- 26:20from the team at A&E, who, by
- 26:21the way, we know, do an incredible job and really push back. Absolutely.
- 26:24Does it make a difference if the team there are predominantly more men or women
- 26:28or a mixture, or is it kind of culturally a bias which is found across the genders?
- 26:33That's a really interesting question that i don't necessarily
- 26:36know the answer to but i think again thinking
- 26:40back to kind of the research that
- 26:42i'm doing in terms of primary care and primary care perceptions of things there's
- 26:46a lot of stuff in the literature at the moment of kind of the gender of the
- 26:50gp and how seriously people are taken when presenting with problems in particular
- 26:55again i know i'm referring to menstrual pain but i think it can be kind of considered.
- 27:00It's pain in general, I guess.
- 27:02But there's always been this assumption that because I have period pain and
- 27:07because it's all quite sensitive areas and difficult things to talk about,
- 27:11speaking to a nice lady GP means that they will get me and they will be able
- 27:14to communicate and understand where I'm coming from.
- 27:17They can be more empathic compared to male GPs.
- 27:21Whereas actually, I've done quite a few interviews with people that have said,
- 27:24actually, I much prefer speaking to a male GP because they'll be able to take
- 27:28a slightly more objective kind of understanding of how I feel about or how I'm
- 27:32explaining my pain so again I don't know whether there's kind of clinicians
- 27:37and you know whether there are disparities in that at all but again.
- 27:42I've spoken with I'm doing interviews with healthcare professionals at the moment
- 27:47and I've spoken with one male GP and he sort of says I get it I tell them from
- 27:52the outset go I completely understand that you are in pain.
- 27:55I also appreciate that I am male, but I'm here to listen to your story and for
- 28:00you to tell me what's going on.
- 28:01And I think it's communicating that kind of validation of their concerns and
- 28:06saying, tell me your story, the kind of,
- 28:09hopefully removes that sense of that unconscious sort of assumption I suppose
- 28:14that you know a male GP or a female GP are going to to sort of be helpful and
- 28:19I think that also lends itself to.
- 28:22Again one of my colleagues is a female
- 28:25GP and she says her you know her appointment
- 28:28times are all she sees are people presenting with
- 28:31gynecological or reproductive health problems because
- 28:35I'm the nice lady GP who understands how things are
- 28:37and that she says takes away from the kind of
- 28:40maintenance of the training and the knowledge acquisition
- 28:43for the male GPs to be able to practice those skills to be able to communicate
- 28:47with females presenting with pain etc and I think I think there's a lot of potential
- 28:55to blame the the gender of the GP for the reason why patients have this feeling of being dismissed.
- 29:02I don't necessarily feel that it's like the crux or one of the key factors as
- 29:07to why diagnostic sort of diagnosis takes so long.
- 29:10Good answer. I like it. Yes. Sarah Clark, thank you very much for your comments.
- 29:14Sarah says, I've been really looking forward to this episode with Rachel.
- 29:17I have a huge interest in medical gaslighting and diagnostic overshadowing,
- 29:21far too common, unfortunately.
- 29:23Yeah it is it is and that's i
- 29:26think i'm going to give you a difficult question now rachel apologize in advance
- 29:30oh just following up with sarah clark sorry sarah clark follows up within my
- 29:34experience it depends on which any department you go to yeah it's got to be
- 29:38a product of training and experience and just yeah living through experience
- 29:42doesn't it will vary a lot,
- 29:46my question i'll come to you in a second becky if be so polite i'm sorry i've
- 29:50just seen becky but my question for you is what can we do okay right you've
- 29:54got 20 i'm pleased to say we've got about,
- 29:572800 downloads now a month which is great they're all listening to you now or
- 30:00not now but they will be over the next month what can we do as part of the health
- 30:05care system okay a lot of our listeners are soft tissue therapists maybe massage
- 30:09therapists sports therapists we get physios now health professions as well but
- 30:12what's a little thing that we can all do to try and make a difference.
- 30:17I told you it's a toughie. It is a toughie. And this is why I will not become the future for health.
- 30:25More money, more time, more investment. But that aside, I think it's a difficult
- 30:32one because, again, I think there's a lot of narrative in research and stuff
- 30:36that there is an awful lot of this.
- 30:38I completely agree with what Sarah was saying. There is gaslighting.
- 30:42There is dismissal. There is normalization of symptoms. But I think the one
- 30:47thing that people really value when they go to speak to someone about their
- 30:53problems is being able to have a space to talk about it.
- 30:56And again, I know I'm speaking from kind of my research experience.
- 31:00I am very fortunate and I have no agenda when I speak to my participants.
- 31:04I just want to find out everything from them. And I will say to them,
- 31:08so to start with, tell me about your experiences.
- 31:10And I have had narratives from people ranging from about three minutes long
- 31:14to about an hour and a half long where I've literally not said a word because
- 31:17it's the first time that someone is able to go,
- 31:20I can sit there and I can talk to people about what's going on for me without an agenda.
- 31:25And I think it's one of those tricky things that if the system allowed it,
- 31:31continuity of care would be so fantastic because...
- 31:35Having to relay the same story again and again and again, because you're seeing
- 31:40different healthcare professionals, note-taking is not necessarily consistent in the system.
- 31:47I think that contributes to this feeling of not being listened to because you're
- 31:51having to start again from the story, go, well, I saw this GP two months ago.
- 31:56I'm now coming back. I've still got the same problems. Things are getting worse.
- 31:59I'm going to have to tell my story again, etc. etc i certainly
- 32:03think from a physio perspective more pelvic health physios
- 32:06please can we just have nhs pelvic physiotherapy
- 32:10i think this is one of the things that from the
- 32:13patients that or people with endometriosis that i've spoken to and even a couple
- 32:17of kind of pelvic health physios and people working in either multidisciplinary
- 32:21teams or tertiary care settings are sort of talking about how valuable physiotherapists
- 32:28are and sort of looking at Again,
- 32:31looking at the body as a whole and trying to find sort of approaches to sort
- 32:35of managing pain conditions for women's health, I think is really important.
- 32:38So more of you guys keep coming along and get involved in the NHS.
- 32:43But I think ultimately, giving someone the space to talk and really validating these things.
- 32:49And I think asking about pain throughout the whole of their life course and
- 32:55their experiences about and throughout the kind of the monthly cycle as well.
- 32:58And sort of acknowledging that pain.
- 33:01Varies and it's not the same and again i
- 33:04was thinking about this you're probably more likely to go to a health
- 33:07care appointment when your pain's not that bad because you're able
- 33:10to get to have an appointment whereas you
- 33:13know if you're in absolute agony you're probably not even going to be able to
- 33:16get out of bed so people might not necessarily see you
- 33:19at your worst so it's exploring that as well
- 33:22very long and convoluted answer but that's wonderful
- 33:25very good more physios more more soft tissue like
- 33:28all of this kind of stuff absolutely it's really needed i
- 33:31think that's great the continuity is is a problem which i guess needs
- 33:35to be worked on internally but yeah i like the fact we've had we've had the
- 33:38good fortune of having quite a few pelvic health specialists male and female
- 33:42i remember for example bill taylor who has just made a plea for massage therapists
- 33:49to contact him or to contact their local pelvic health.
- 33:54Specialist because they have so
- 33:57many patients who they want to be able to refer to massage
- 34:00therapists and hands-on therapists who are on the same page who will recognize
- 34:04red flags or be on the same page in terms of narratives because they don't want
- 34:08to do it themselves you know they and they don't want to make someone travel
- 34:11200 miles which they have done for that specialist treatment when they've got
- 34:14a you know a well-known or an appropriate massage therapist around the corner.
- 34:19So yeah, you're kind of echoing pleas that we made before, because there's no
- 34:24coincidence that a lot of pelvic health, people who are suffering pelvic health
- 34:27pain will benefit so much from massage therapy and that time just to relax,
- 34:32unwind, and maybe just have someone who will listen to them, like you say.
- 34:36Yeah, absolutely. And the other thing you said really struck a note as well, because I think.
- 34:41I think sometimes this gender bias comes out of obviously the unknown and not knowing.
- 34:46And then there's a fear of asking a question, looking stupid.
- 34:48But the only way you learn about, I think the only way you learn really without
- 34:51getting too hippie is by asking people questions.
- 34:55And then suddenly you'll hear a story, which you go, I never knew that.
- 34:59I never realized it felt like that for you.
- 35:01And then that's how you get rid of maybe your bias because you know.
- 35:05Yeah, absolutely. I think the people that I've been speaking with,
- 35:08you know, not one story has been the same. And I sit there and I go, I think I know it all.
- 35:13And then someone else will come in with something and go, oh, my goodness me.
- 35:17Like, you know, just completely hadn't even anticipated or thought of that.
- 35:22And that's just from a small sample of like 40-ish people that I've spoken with
- 35:26and to think that, you know, there is far more to it.
- 35:29And I think the other thing as well, that from a patient perspective that people
- 35:34value is if clinicians don't know the answer, tell us that we don't know the answer.
- 35:39I think that, you know, it's sort of, I think it's about that kind of shared
- 35:43decision making, information gathering, trying to work out a solution.
- 35:47And rather than just sort of saying, well, you know, what can I do for you?
- 35:52I don't know how I can help you go.
- 35:54I don't understand why you're experiencing pain. I can understand that this
- 35:58is really distressing for you. This sounds like it's really difficult.
- 36:02How can we, you know, how can we look at trying to find things that may help?
- 36:08I think, again, in primary care,
- 36:10contraception, hormonal contraceptive seems to be one of the answers.
- 36:15To me, I feel that that's sometimes sticking a sticking plaster over an amputated
- 36:19leg because there is so much more to it.
- 36:21I know we said that hormones are responsible, but again, it's considering the
- 36:26impact on quality of life and sort of thinking of strategies.
- 36:29Again this supported self-management how can we
- 36:32kind of empower people and enable people to go
- 36:35out and try sort of simple stretching exercises yoga
- 36:40massage you are absolutely right some you know
- 36:42people that I've spoken with go you know what I've my sort
- 36:46of treat to myself is to go for a massage once a month and I feel
- 36:48fantastic afterwards because it's that you know that kind
- 36:51of release of you know pain and things like
- 36:54that so yeah ultimately there is
- 36:57there is nothing wrong with saying if you don't understand why
- 37:00someone's experiencing pain to tell them
- 37:03that say I don't understand what it is but let's try and unpick those
- 37:06pieces together and work towards a solution that we can
- 37:09try and improve your quality of life as best we
- 37:12can and also I think I've done
- 37:15some work looking at communicating realistic optimism in
- 37:18in settings as well and it's not promising the world saying
- 37:21I'm going to cure you of all your pain it's acknowledging that
- 37:23pain is there it is it most more
- 37:27than likely is going to be a chronic pain condition how can
- 37:30we manage it how can we help how can we keep you in the
- 37:33system and have that continuity of care yeah that's
- 37:36really good really important points yeah just not being embarrassed about not
- 37:41knowing the answer and realizing that the person in front of you has probably
- 37:44got the answer you just got to invite them and provide the same space and then
- 37:47like you say is is it's totally gone now the second thing you said.
- 37:51It's going to come out with something so profound then.
- 37:53What was the second one you just literally said just now? Oh, yeah. No.
- 37:59It tied in with the fact because I was reading something the other day about
- 38:01communication and how sometimes...
- 38:05Oh, yes, that was right. But they're not fixing. It gave me this fixing reflex.
- 38:09Sometimes I was reading a case study of, it was to do with alcoholism and that.
- 38:14And it was a case study. I mean, this particular case study was one,
- 38:17but it was a good example of how it was just from a clinician who was trying
- 38:22to help somebody who was an alcoholic.
- 38:24And they came and literally in the half hour consultation, they said,
- 38:28they literally said, not agrobatim, but they said, look, the cure to this, I wish I had the cure.
- 38:33I'd be a very rich person, but I'm not. but i can guarantee i'm going to be
- 38:36with you and i'm going to walk this journey with you and give you everything
- 38:39that i can do so together we can find i mean classic kind of person-centered care.
- 38:44And literally i think in this particular case which is why it
- 38:47kind of made the news was they came in
- 38:50the next week and the person hadn't had a drink and it was like
- 38:53they didn't have to come up with a solution all they
- 38:56did was say i'm with you you're not by yourself and the person explained and
- 38:59it was kind of a transcript of the dialogue just saying you're the
- 39:02first person my life hasn't said you know tried to come up with
- 39:04a solution which made no sense to me well you said you was going to be with me
- 39:07and i suddenly felt supported and i haven't had the drinks since i last saw you
- 39:09what do you do now it's just so powerful yeah although
- 39:13it's an equals one it was still just a classic example of just
- 39:15what really our role should be and that you
- 39:19know i've got some pretty good information i can help you out some stuff but i'm going
- 39:22to be with you i'm not going to do things to you you know absolutely and i think
- 39:26that's i think there's been some discussions and in previous podcasts about
- 39:29this kind of placebo and and how you know this communication and sort of that
- 39:33empathy and things like that is a natural kind of placebo and can improve the way things are.
- 39:39And I think, again, one of the things that I've noticed from kind of my own
- 39:43personal experiences and kind of looking at people who are living with long-term
- 39:47pain conditions, things like fibromyalgia, and also, again, like endometriosis,
- 39:53chronic pelvic pain, things like that, there is so much time spent looking for
- 39:57a diagnosis and seeking this diagnosis that once the diagnosis is there,
- 40:01it's almost like everyone can sit there and go, okay, we've done our job now.
- 40:03We know what's wrong with you.
- 40:05But actually, it's the, and this is the big thing that we're finding,
- 40:09it's the so what question.
- 40:10And it's going, actually, there is so much more now that needs to be done.
- 40:14We now know what the sort of the condition is or what's going on.
- 40:19Let's try to find ways to manage it. Let's get you onto a referral pathway to
- 40:24somewhere. Let's try and get you speaking to this person.
- 40:26And again, reflecting back on what Sarah has said on the sort of the dependence
- 40:31on which A&E you go to and disparities in care.
- 40:33I've been speaking to some people who work up in scotland and
- 40:37their their care centers it's like a disney
- 40:40world it's amazing they've got dieticians they've
- 40:43got physiotherapists they've got all sorts
- 40:46whereas other places you know you're lucky if you
- 40:48get to see a gynecologist who's kind of got the
- 40:51expertise to be able to help you or sort of has an
- 40:54understanding that chronic pelvic pain is is
- 40:57you know something that can be an umbrella term for
- 41:00conditions like endometriosis and should be put on similar pathways
- 41:04and I think there's just such disparities in that
- 41:07and I think a lot of women can sometimes be
- 41:10left in this kind of silo of just going oh I've
- 41:13got I've got a label for something they've got they've got what's called this
- 41:17rumple stilt skin effect where they've got a label so they feel that intense
- 41:21relief but then it's going well now what do I do how do I cope with it and who
- 41:24do I speak to where do I go because a GP can only do so much gynecologists or,
- 41:31you know, the consultants.
- 41:33You know, rheumatologists might be difficult to sort of be kept on the books
- 41:37with or you get discharged back to the GP and then you have to start the process all over again.
- 41:41So there's definitely something missing.
- 41:45Yeah, I doubt it.
- 41:46Becky, I think we've kind of answered your question. It's difficult to be specific,
- 41:50but Becky Carroll has asked, do you know if trainee GPs now get at least some
- 41:55basic training in female health or is it still very much an add-on if that GP decides to do so?
- 42:00Is it area-specific?
- 42:03Again, it's not something that I'm massively aware of.
- 42:07Again, anecdotally, regarding endometriosis, I've heard that it gets brought
- 42:12up in maybe an hour's kind of lecture session and going,
- 42:15this is what it is but here you go I think
- 42:18I think it's one of those tricky things as well again
- 42:21thinking of my own experience of of kind of fibromyalgia I was very lucky or
- 42:26I am very lucky in the sense that I can sort of read papers and read under you
- 42:30know get understanding of things and I knew that fibromyalgia was a diagnosis
- 42:35by exclusion so I knew that I had to go through all the blood tests I knew how
- 42:39to go all of these things and kind of try and.
- 42:41Tease that out. And again, I was fortunate in that I had an appointment with
- 42:44a GP who knew what fibromyalgia was.
- 42:47But again, there are some people that, you know, I think there's this whole
- 42:51thing of advocacy as well and patients having to bring in their ideas of what
- 42:55their diagnosis might be to the GP because they're trying to,
- 42:59again, they're presenting themselves for the first time. They might not have seen a GP before.
- 43:02They've got seven and a half minutes to try and say what's going on,
- 43:06what the problem is, what they're hoping for, and then coming to some form
- 43:09of shared decision and it's trying to put
- 43:12things out on the table and I think if you've got that level
- 43:15of advocacy if you can be health literate enough to health
- 43:18literate enough to talk about those things then great but then if you go into
- 43:21a consult and you're just like I'm in pain you can't describe what that pain
- 43:26feels like and then a GP doesn't necessarily again like you were talking about
- 43:30earlier know the right questions to ask that can start a whole sort of cycle of difficulties.
- 43:36But I think, yeah, going back to Becky's question, as far as I'm aware, it's covered.
- 43:42But I think unless you kind of go into obs and gyne training as part of your
- 43:46medical degree and then sort of learn through it from it there,
- 43:49you know, go on to a specialty, as a specialty, sorry, then it's relatively limited.
- 43:56As far as I'm aware, I might be wrong.
- 43:58Thank you. Just to read out a few comments. Thanks for leaving the comments,
- 44:02people who've Do I just live?
- 44:03Cecily Hisslopper said, my GP practice has been great dealing with my menopause
- 44:07and HRT, but when I had southern onset MSK pain, lots of other assessments were
- 44:11done, but I felt dismissed and had no answer to my,
- 44:14symptoms so yeah it's tricky isn't it but i think in like we've already said
- 44:19it depends from practice to practice unfortunately the continuity isn't there
- 44:23across the system which is.
- 44:25Something a work in progress maybe becky has come back
- 44:28and said hormone treatment i find it bonkers the gps are
- 44:31quick to prescribe birth control to young girls and yet seem
- 44:33to be less receptive to prescribing hrt to perimenopausal
- 44:37and menopausal women yeah absolutely
- 44:41and i think there's this again with
- 44:44the work that that we're doing and sort of I think menopause is
- 44:47only really just coming into the sort of the forefront of research
- 44:50which again is just completely mind-blowing but
- 44:54I think again it's considering how HRT can
- 44:58have such an impact on things like MSK pain
- 45:01and then the blood testing and where things are going and it seems to
- 45:04be quite a lot of like trial and error and see how things go and
- 45:08sort of absolutely and I again I
- 45:11completely agree it's very quick to prescribe birth control to
- 45:14young girls because it's almost a bit like this is the way that we can
- 45:17kind of deal with the pain take a pill here you
- 45:20go and then be left on these pills for years whilst
- 45:23continuing and not actually acknowledging that there might be some underlying
- 45:26causes as to what's you know what could be causing pain in the future but yeah
- 45:31I think there needs to be a lot more work done in menopause research again from
- 45:36from my own background endometriosis and menopause research, there's literally...
- 45:42Sort of a handful of papers there's very very little
- 45:45and knowing how to manage it and whether whether people
- 45:48you know whether healthcare professionals ask about
- 45:51you know do you have any underlying reproductive conditions any
- 45:55hormone difficulties that you've had before considering hrt and
- 45:57menopause and then everything else that goes along with it thank you yeah thanks
- 46:02for the question great question um on what you were mentioning earlier on with
- 46:05some people can't convey can't describe the pain everything has an interesting
- 46:09comment here from sarah again And this was picked up in our month on neurodivergence as well,
- 46:15with how people who are neurodivergent can struggle describing their pain or
- 46:18describing it in ways which aren't the same as maybe a neurotypical doctor or GP has got.
- 46:23Sarah says, my autistic participants with EDS speak of difficulty with describing
- 46:27timeline of a symptom onset to their, and trouble describing the severity of
- 46:31pain if they visit the doctor when the pain flare has settled.
- 46:34That's essentially what you were saying, wasn't it? this.
- 46:37Yeah, absolutely. And I think, again, it's just the, I think it is,
- 46:40you've reminded me, referring back to the Nurofen care thing,
- 46:44and I think they've put together a package now of like a document that patients
- 46:49can download to take to their doctor's appointment.
- 46:50And it's got a whole list of different words of how people can describe pain.
- 46:54So I think it's like tugging, pulling, stabbing, squeezing, twisting,
- 46:59et cetera, of how to describe it.
- 47:01But I think, again, pain is so complex and so variable within people and across
- 47:06people but it you know again if.
- 47:09I don't I really struggle to to be able to describe the context of pain and
- 47:14again I think it's got on my my rheumatology report for my fibro Rachel reports
- 47:18feeling like a 90 year old woman because that was the only way that I could
- 47:22describe it not that I know how a 90 year old woman feels but it's just this kind of,
- 47:27And again, it's these flu-like symptoms, which to me actually demonstrates quite
- 47:31a lot of pain that people might be experiencing.
- 47:34But again, how do you communicate it? And yeah, I need to look back at that
- 47:38neurofen thing now, the different symptoms.
- 47:41I think like Dr. Bronnie Lennox-Thompson was saying in the first episode,
- 47:45sometimes we focus so much on the pain and is it a one to 10?
- 47:49When really sometimes questions like, what can you do? What can't you do?
- 47:52What do you want to be able to do? What do you miss? if I could wear
- 47:55a magic wand what would you be doing those sort of questions can help
- 47:59me sometimes the patient more they're just trying to fixate
- 48:02on you know what's causing this pain and how severe is
- 48:04it it's just again just trying to yeah yeah yeah
- 48:08it's interesting um great great questions people thank you so much everyone
- 48:11who's joined us live and and giving us those questions um really good I wanted
- 48:15to mention one thing which we talked I think a little bit off air when we were
- 48:18talking about this and and I saw it in some research as well and I think you
- 48:22mentioned it as well when you said that it's good that women are more involved in research,
- 48:27but a lot of the time they're from a certain socioeconomic kind of part of the community.
- 48:31But also as well, you said that often that the where they're from ethically
- 48:35might be a thing as problem might be different as well.
- 48:37So we're still not getting a good representation from all different kind of circles of life.
- 48:42And I think I've read as well in the research that sometimes the underestimation
- 48:47of women's pain can particularly be with women of color, which I found was really interesting.
- 48:51I know You've had some thoughts and experience on that. So could you expand on that a little bit?
- 48:56Yeah, it's, again, it's a really interesting concept.
- 49:02I don't know why.
- 49:04It exists, but there is certainly this sort of perception that women of colour
- 49:10have much higher pain thresholds and are much less sort of in need of analgesia
- 49:16to help manage their pain.
- 49:17Again, I don't know where it's come from. There is this sort of concept or idea
- 49:23of Beebe or Begum syndrome. I don't know if that term in itself can be seen as quite derogatory.
- 49:29I know that some of the participants that I've spoken with use that terminology
- 49:32and sort of say that, you know, again, I think it's based on a woman of colour's
- 49:36experience of going into a medical setting and being completely dismissed of their pain symptoms.
- 49:41I think particularly, again, I think there's this, there are some cultural kind
- 49:47of sort of cultural understandings within their communities that,
- 49:51you know, we don't talk about pain, menstrual pain is taboo.
- 49:54I know, again, it's, there are, there's evidence to show that women from a black,
- 50:01African black community are more likely to have
- 50:04fibroids so pain might present slightly differently but I don't I don't know
- 50:07where this kind of this bias has come from is it because they're not involved
- 50:13in research and sort of don't report and you know don't engage in that research
- 50:17I think one of the horrifying things as well there was a lot of sort of initial.
- 50:22Research into kind of gynecology women's health things like that were actually
- 50:26practiced on women of color i think the contraceptive pill was first trialed
- 50:30on i think it was puerto rican women,
- 50:33again without with very sort of little sort of
- 50:36ethical considerations around it if you
- 50:40haven't read it or if you don't know of it at all the secret life of
- 50:42henrietta lax if you've ever heard of henrietta lax absolutely
- 50:46brilliant but but again looking at the fact that her cells
- 50:50have essentially changed the sort of the world of
- 50:53cancer and there was no no ethics for
- 50:55her cells being harvested her family you
- 50:58know there was no ethical um consideration or realization
- 51:01of it but i think there might be these sort of ongoing unconscious
- 51:05sort of racial biases that you know
- 51:07that there's this understanding that you know i think there was one suggestion
- 51:13once that there is a higher threshold or sort of higher pain thresholds because
- 51:18of the color of their skin indicated that it was thicker and more resistant
- 51:23to i don't know some absolute rubbish but um yeah.
- 51:28But it's so useful to mention and yeah i'm so glad you reminded me of that i
- 51:33remember reading about i've never read the actual book but i remember reading
- 51:35about it just yeah just being wow this is such a
- 51:38example that people need to know about and a name that needs to be
- 51:41kind of shared in history as well just to turn the tables
- 51:44right but yeah we'll put that link to that in the in the show notes but yeah
- 51:48it all ties in with just kind of values which were there in the past in Victorian
- 51:52times and there's no point of standing there slagging them all off and criticizing
- 51:56them we just got to look at ourselves and realize that we've got their genes
- 51:59and we've kind of all got our biases inside
- 52:02and all it's because we don't understand or mix or know something so
- 52:05even again we just need to ask questions and not see it as
- 52:08a threat there's nothing wrong with not knowing what the person in
- 52:10front of you is is being involved in if they
- 52:13look different or smell different or kind of talk differently or
- 52:16whatever it is is different about them just ask what
- 52:19was that like you know and then suddenly you'll see hopefully those
- 52:23biases disappear because suddenly you won't have that fear it's so
- 52:26important if you're in healthcare so yeah very interesting
- 52:29why where are we 8 55 five let me
- 52:33just check we've kind of talked about
- 52:36how we can get rid of all gender bias in health care it's quite simple we'll
- 52:40put a state steps one to three in the show notes if you want to join in that
- 52:43just get rid of it but it's i think it's useful for people not to kind of just
- 52:48to realize that we have all just got biases it's part it's a human trait i think tristan attenborough.
- 52:54Spoke about it really nicely at the conference and just recognizing you're not
- 52:57hating yourself We've all got certain biases and we might feel guilty saying
- 53:00them in public, but it's don't beat yourself up about it. Just recognize it and move on from it.
- 53:05You know, that's, I think that refers to this as well.
- 53:08Yeah um great right well look we've
- 53:11reached the end of the hour i'm hoping that listeners definitely
- 53:14people who join us live i'm hoping that you've got a bit
- 53:17more understanding of the gender pain gap um and and
- 53:20hopefully how you can start raising awareness amongst colleagues as
- 53:23well as yourselves to try and help reduce it just to
- 53:26say i think there was a there was a comment much earlier on from
- 53:29nikki mansfield about my paper on long-term antidepressant use
- 53:33and whether it's publicly available there is one paper that
- 53:36has been published that is not my entire
- 53:39thesis and I'm very happy to have that paper shared in
- 53:42the in the notes I think one of the things that might
- 53:45be worth noting in that is that we had to or for
- 53:48my research I did exclude so I did a survey as part
- 53:51of it and I did exclude people who were prescribed amitriptyline for
- 53:55pain rather than as antidepressant because the dosages are
- 53:58slightly different but I think I think you're absolutely right
- 54:01in terms of kind of again long-term antidepressant
- 54:04use that kind of feeling of pain and whether again again in
- 54:07women sort of somatic symptoms it's sort of identified as
- 54:11being you know somatic symptoms oh it might be
- 54:13that you're a bit stressed a bit anxious have some antidepressants see how you
- 54:16go but um i'm very happy to share that paper and
- 54:19i could also put a link to my thesis but it's 400 pages long
- 54:22so it might not be one that you want oh no nikki and becky.
- 54:25And other people certainly be all over it yeah but the sounds
- 54:28i think sarah will be dipping into a breakfast morning read
- 54:31as well enjoy if you can't sleep at night it's a perfect i mean if you if you
- 54:36didn't have pain then you will have pain after reading it and also you've been
- 54:40involved in in watching over a lot of other like you say other other phd researchers
- 54:45and guiding them anything in particular anybody you want to give a shout out to or was that good.
- 54:52No well i don't know particularly,
- 54:54Well, I think some of the research that I was doing before I moved to Oxford
- 55:00and Southampton was looking at sort of developing a communication package for
- 55:05clinical empathy and realistic optimism for primary care clinicians.
- 55:09Paper soon to be published. My paper component of it soon to be written and
- 55:14then hopefully published, as is the joys of research.
- 55:17Papers always need to be written. but as part of that I'm
- 55:20now supervising a student who is developing an add-on module to that about communicating
- 55:24around menstrual symptoms so that might be one of interest and I'm hopefully
- 55:29about to start supervising a PhD candidate that is looking at neurodivergence
- 55:35and perimenopause so that should be an interesting one too.
- 55:38Okay I just know that a lot of people in here all over
- 55:40that so that's yeah great I'm
- 55:46gonna have to lasso you and get you back in to talk all about that at some point
- 55:49if people do want to follow you and keep up to date with what you are do you
- 55:55do you manage to use social media at all to update people on what you want or
- 55:58is it not I'm very rubbish at using LinkedIn I tend to kind of promote my husband's
- 56:02work but I might start trying to use it for myself a little bit more,
- 56:06but I think otherwise my profile on my Oxford web page profile,
- 56:11again, very happy for the link to be shared, ping me an email and I'm very,
- 56:15very happy to have a chat over a cup of tea.
- 56:19Or other drinks.
- 56:22Okay, so we'll make sure those leads go into the show notes.
- 56:25That'd be great. If you want to follow you and hear what you're up to, that's fantastic.
- 56:28Yeah, a lot of talk. Right then, everybody. Thank you so much for joining us.
- 56:32Just a little reminder of what we've got coming up.
- 56:35So next week in part four, the last part of the month, this is why I just get
- 56:38a little bit of depression sinks in, thinking, ah, I've got to shift the topic
- 56:41now. I've got it after the neurodivergence month, and now I'm going to get it with pain.
- 56:45But we will have some, we have got some fantastic stuff coming up in March,
- 56:48which I will share with you. I'm very excited.
- 56:50But before we get turned to March, we are going to have Dr.
- 56:54Rachel Zofnus with us next Wednesday
- 56:56in part four, who's been on the show before, was absolutely smash.
- 57:00Pain scientist, international speaker, science writer, and she has a new book,
- 57:04Tell Me Where It Hurts, which I've had the joy of reading, a pre-release copy.
- 57:08And yeah, it's going to be a classic kind of book for particularly patients
- 57:11and for you guys to brush up on what's going
- 57:14on and and how to understand pain in 2026 so
- 57:17um rachel is going to be here rachel's oftenest um next
- 57:21wednesday february the 25th if you do want to join us live if
- 57:24you listen to the podcast you might want to join us live and ask questions directly
- 57:27to rachel and yeah on the sports association youtube channel or the facebook
- 57:31page i take make a note of both of those links i think tonight facebook has
- 57:35gone down for some reason it's not us it's just facebook and youtube just don't
- 57:39like third party software going live on their platforms which is kind of a business thing.
- 57:43But yeah, make sure you've got both handy in case one does go down.
- 57:47But as far as tonight's gone, I think we've still got people here, which is great.
- 57:50And we're still going out live. So thank you so much to my special guest tonight,
- 57:54Dr. Rachel Dura-Haggett. Thank you so much.
- 57:57Thank you. And a shout out to your lesser half, James, who if people are recognizing
- 58:01the surname, James Dura-Haggett was part of our Neo-Divergent Month in part
- 58:06two, I think, talking about access or barriers it was. So there is a link there, obviously. Thank you.
- 58:12And I think he had a little comment here. I don't know whether he wants me to
- 58:15share this on the screen or not. I know.
- 58:18Posterity to go onto YouTube and be there forever. I avoided it first time round,
- 58:23but let's shuffle it up here.
- 58:29Apparently, StrongPathCIC says, Dr. Rachel, do you have a hug?
- 58:31It looks like a total babe.
- 58:33So yeah, I avoided that earlier on until I verified the link.
- 58:36But there you go, James. You can now have that and look back at it and chortle away to yourself.
- 58:41He's gonna love that all right people
- 58:45thank you so much for joining us um really appreciate the people who join us
- 58:48live we appreciate everyone listens to the podcast as well like i say it's gone
- 58:50up this this month it's gone up about 700 a month
- 58:53so really appreciate that obviously the messages are getting out there which
- 58:56is all we do it for but if you do listen to the podcast and you like our content
- 58:59which seems to be the case to please share it and the best way of doing that
- 59:03is leaving a rating and a review so it appears higher in google it makes a massive
- 59:08difference if you just go into your favorite podcast app, whether you listen
- 59:11to it on, and just leave that rating.
- 59:12Five is a great number for this particular example. Five stars will do fine.
- 59:16Don't waste too much time thinking about it.
- 59:17And if you could put some good words down on that, makes it appear even more
- 59:21in Google when people put in, for example, gender pain or gender inequality will be there.
- 59:25And the great word of our guests, like Dr. Rachel Deerhaggart, will be there.
- 59:28And this episode will be available to them rather than something else,
- 59:31which might be not quite as good.
- 59:34Yeah, that's what I'm suggesting. So yeah, do please do that.
- 59:36If you listen to the podcast, we'll be back. Wednesday. If you can join us live,
- 59:40then remember it is a Wednesday.
- 59:42But until then, as always, take care of yourselves and each other,
- 59:46and we'll see you again soon.