Latest / The Eye Believe Podcast / "Transforming Memories into Legacy: No Story Lost with Founder Andrew"
Transcript
- 0:00Music.
- 0:24All right, you guys, welcome back to the I Believe podcast. Thank you.
- 0:27Those of you who are joining us live, those of you joining for the recording,
- 0:30we're grateful that you are here to listen.
- 0:32And today I'm joined by a special guest from No Story Lost.
- 0:35It's actually founder or co-founder Andrew, who founded No Story Lost shortly
- 0:40after recording their grandfather's story.
- 0:42So I'm not actually going to tell the whole part of his intro because I want
- 0:45him to be able to share more about how he founded No Story Lost.
- 0:48So can you just tell us, Andrew, a little more about who you are and how No
- 0:52Story Lost came to be? Yeah, totally.
- 0:54Thanks for having me. So I grew up in a big, as a part of a big family in Calgary
- 1:00in Canada here, and we had tons of family gatherings.
- 1:04So together we were 14 or 15 people, and we had these grandparents who were
- 1:09kind of at the center of it all.
- 1:10And so the guy that starts the story is this man who is my grandfather, Alan.
- 1:16We called him Pop, and he was a legend in the family. So he always had the best stories.
- 1:21He'd always keep us entertained with songs and old stories and stuff.
- 1:25And that was kind of like a formative thing in my childhood.
- 1:29So I'd always remember going to Thanksgiving dinners and Christmas dinners,
- 1:32and he would always be there telling some story or singing some song.
- 1:36And our family would always say stuff about, we need to write these stories
- 1:40down or someone needs to do something with these.
- 1:42And so you hear this when you're six or seven years old and you don't think
- 1:45too much about it. You think someone's going to take care of it.
- 1:47And then I kind of realized I was hearing that same story again,
- 1:50like 10, 15 years later, and no one had done anything about it yet.
- 1:54So I was home from college on a break and I thought, you know what,
- 1:58someone's got to just do this.
- 2:00I'm going to sit down and just type while he tells some stories.
- 2:03So I sat him down on the couch and with my laptop.
- 2:06Live while he was talking. Recorded a bunch of his stories and realized like
- 2:11I had quite a bit of the cool stuff written down.
- 2:13So then my cousin and I, who he'll come into the story again later,
- 2:18but we thought, okay, we should probably like do some more about this and like
- 2:20maybe print a book or something.
- 2:22So we sat down with him again and recorded this time audio.
- 2:26So we'd have some audio clips of him and wrote down those stories and eventually,
- 2:29yeah, pulled together this first book.
- 2:31So you can see it's pretty narrow. There's not a ton in here,
- 2:35but we have it. And we realized like, wow, this was a ton of work,
- 2:39but it's so cool to have what we have now.
- 2:42And our entrepreneurial brain started turning on it thinking,
- 2:45if this was this hard for us, and is this valuable to have?
- 2:49Surely there's other families out there who would like to have something like this.
- 2:53So that's kind of the roots of how we got started. And from there,
- 2:57we did a project or two for friends and other families.
- 3:00And that started the ball rolling on the company. That's so amazing.
- 3:04And I have loved learning a little more just as I've kind of perused the website
- 3:07and just seen more about what you guys have done with people's stories.
- 3:11And I actually just finished reading a book series that, I mean,
- 3:14fantasy, you know, unrelated, but one of the phrases that I loved from this
- 3:17that I actually titled our interview with was just this idea that like your story is worth telling.
- 3:21And that was just something that really sunk in, especially as a stage four
- 3:25cancer patient myself, when you're really just facing your mortality with a
- 3:28cancer diagnosis that can, And I can feel really daunting, I think,
- 3:31in some ways, like you mentioned, that it's a lot of work.
- 3:33But also, I think there's that level of wondering, you know,
- 3:36when I'm gone, whether it's due to cancer or just whatever happens in my life,
- 3:40like, is my story worth remembering?
- 3:42I think that's a question that we then have to face as cancer patients.
- 3:45So I'm curious, you know, what's your opinion on why capturing life stories
- 3:49might be important and impactful?
- 3:52Specifically for people in a cancer community, like, you know,
- 3:55who might be facing the more terminal or risky feeling stage four diagnosis?
- 4:00Yeah. So I think it's easy to feel intimidated there that like,
- 4:04you know, do I really have a story or a bunch of lessons to leave?
- 4:07And I would say from everything we've heard at very minimum to your family and
- 4:12friends, absolutely. It's priceless, like no question.
- 4:15So even if you feel like, you know, I don't have the odyssey tale of of an amazing
- 4:19life arc necessarily that the world needs to hear,
- 4:22you still can be confident in the fact that it'll mean so much for your friends
- 4:27and family just to even learn silly little things about you the way you were
- 4:31when you were younger, before people knew you.
- 4:32And we have all these stories of people who said, as they got started,
- 4:36kind of like, oh, my life's boring. I don't know why my kids want to do this.
- 4:39And then you get stories out of that, things like when they met JFK,
- 4:44or like this woman who said they had no stories, And then in the first interview,
- 4:50she's talking about how she lived in Manchester in the war and a bomb came through
- 4:55their ceiling, through the second story, landed in their living room, didn't explode.
- 4:58They had to move to the neighbor's for a few weeks. She was like three years old or something.
- 5:02So I would say being so close to your own story, you also might think it's less remarkable.
- 5:07Pretty much everybody has something interesting that someone maybe doesn't even know about them.
- 5:12Then you kind of ask specifically about for cancer patients and the story kind
- 5:16of comes back around here with my cousin and I because so he's my best friend,
- 5:20he's my business partner, no story lost.
- 5:22And right around the time I was starting to work with Pop on his book.
- 5:25Jeremy's dad had a nasopharyngeal cancer diagnosis, kind of given like 50-50 odds to live.
- 5:32And so Jeremy went on this little mission with him to
- 5:35go camping and spend a few concentrated days together
- 5:38and he brought a list of like a hundred questions to
- 5:41ask your parents and went through all these questions that you
- 5:44just don't think to ask each other on any given Tuesday
- 5:47but it's sometimes it has to be faced with
- 5:50these difficult circumstances to think what should
- 5:53I be learning what should I be asking or telling to my
- 5:56family from my life that we mostly just hold in our
- 5:58heads so I think that that was really formative for Jeremy as well to
- 6:02to have that tough experience and then go
- 6:05through asking those questions learning so much about
- 6:08his dad that was always at his fingertips but he'd never
- 6:11accessed before and I think that showed Jeremy especially
- 6:14really the power of even just those basic stories so that's kind of the other
- 6:18half of our founding story I love that that's so neat and I think it kind of
- 6:23brings back this idea that I guess one question that I had is you know Do you
- 6:26have people who are participating with No Story Lost who are they mostly focused on, you know,
- 6:31oh, they're at the end of their life or they've lived a lot of life and they're
- 6:35capturing their stories?
- 6:36Or do you have kind of a mix of people who they're just wanting to,
- 6:40I mean, write down things from being a first-time parent to graduating high
- 6:45school, like that they just have a desire to capture those kind of monumental
- 6:48parts of their life? Or like you said, just the simple things.
- 6:51I guess I'm just trying to gauge, you know, if someone were to come to No Story
- 6:54Lost, Do you have maybe an ideal person who is capturing their story or do you
- 6:59genuinely feel like everyone at all phases of their life, whether they're faced
- 7:03with mortality or not, really could benefit from doing so?
- 7:06Yeah, I'd say on our end, there's not really an ideal.
- 7:10So I would say it's more on the person's end who's thinking of doing it is like,
- 7:13if they feel like there's people in their life who would value hearing it, that's enough.
- 7:20That makes enough sense right there. But yeah, we've had stories from anyone
- 7:24who's kind of 40 or 50 years old, not facing mortality yet, to people at that
- 7:30age who are facing kind of earlier mortality,
- 7:32all the way up to someone who's 100.
- 7:35We've had our first like centenarian project and everything
- 7:38in between we've told stories about couples and how they came together and
- 7:41so lots of kind of both parent stories so yeah
- 7:45anytime that someone can tell stories over audio and we can record it we can
- 7:49make a book out of it so yeah people have also done like their wedding story
- 7:52and kind of extended it beyond what we even initially planned to anytime there's
- 7:58stories worth telling that are important to write down I think that's so important.
- 8:02So speaking of, you know, you mentioned the audio and writing things down.
- 8:06Can you just tell us a little more about the audio or the story capturing process at No Story Lost?
- 8:11And how is it that you guys actually, you know, provide this as a service so
- 8:15that people can understand what that looks like?
- 8:17Yeah, so going from kind of this old process where we cobbled it together,
- 8:22we really broke down like what has to happen here and how can we systemize all
- 8:26those steps to make it make a lot of sense and have it turn out like our newer books,
- 8:29which are a lot more substantial and have color and photos and all that stuff.
- 8:34So they kind of look a little bit more like a proper coffee table book when they're done.
- 8:38So what we do is the first step is a welcome call where we'll just sit with
- 8:43the client and ask, what do you really want to see out of your book?
- 8:45What would make it amazing? what are you hoping is definitely in there?
- 8:49What are some questions we should ask the storyteller?
- 8:51Maybe what are some questions we shouldn't ask if there's anything,
- 8:54you know, difficult that we shouldn't bring up? And then we kick off interviews.
- 8:57So we'll assign a writer and that person will do all the interviews with the
- 9:02person and will also be the person to write the book so there's really good
- 9:05continuity and understanding of the context.
- 9:07Those phone calls are recorded, then we transcribe them, then the writer will
- 9:12write it out into a manuscript, and we gather photos from the family and their
- 9:17favorite color palette.
- 9:18So whatever kind of color they want to have in their book and put it all together
- 9:21into like a designed copy.
- 9:22Then the family gets to see it, go through it all, correct the names of people
- 9:27and places that we might've not known the spelling for, all those sorts of things,
- 9:31make sure it looks perfect.
- 9:34So those are the steps that, yeah, might seem simple to pull a book together.
- 9:37But in the end, you realize it's like a whole series of people and things that we bring together.
- 9:41So is this a process that you guys have been able to adapt for like people who
- 9:46you mentioned, like maybe they only want to tell a segment of part of their
- 9:49story. Maybe they don't want to tell their whole life story.
- 9:51Like, you know, they just want to focus on one area. Have you guys adapted,
- 9:54you know, in those kinds of circumstances?
- 9:56Yeah. So adaptations for like we've done memorial projects for people who are
- 10:01already gone. We did a project about a two-year-old during COVID who his grandma had never met.
- 10:07So it was just kind of the parents telling all about him so that grandma could
- 10:10learn more about him. So in terms of like different types of projects, for sure.
- 10:14And then other kind of adaptations we've made would be around the process where
- 10:18someone might be deaf or someone might be English second language or other ways
- 10:23that it would be difficult to do the interviewing.
- 10:25So in that case, oftentimes having someone else join, like a child or a friend,
- 10:30join the interviews to kind of help move things along has helped.
- 10:33Yeah, we try to be try to be adaptable and inclusive where we can just however
- 10:38we need to kind of get those stories told.
- 10:40Well, and as I think about this and just kind of applications,
- 10:42I'm just thinking, OK, like maybe maybe this is just me, but I'm sure there's
- 10:46there's a few other people in our cancer community, at least of ocular melanoma
- 10:50patients who would just have like this would be such a unique way to tell your diagnosis story.
- 10:54And we have, you know, the, we have the occasional person who they've defied all the odds, right?
- 11:00They're 19 years out from diagnosis, despite, despite the fact that maybe all
- 11:04of the statistics we have today say that shouldn't really be happening.
- 11:07And so like they've survived, you know, kind of against all odds and to be able to, you know.
- 11:12Capture or have them have the opportunity to capture their story and
- 11:15to share you know all of the all of the different things because
- 11:18I think that a lot of maybe a lot of the cancer patients really
- 11:21just in really any community of of people who deal
- 11:24with cancer you develop a level of resilience
- 11:26and you develop a level of just kind of
- 11:29the getting through it that you start to really hone
- 11:33I think as a person like you kind of develop the confidence to cope with your
- 11:36own diagnosis and everybody is unique and that's going to look different for
- 11:39everyone but there's a there's a phrase that I love that has always kind of
- 11:44come up when I see someone get diagnosed with cancer that kind of lands in this
- 11:48place of this idea that maybe whatever I'm going through could be someone else's survival guide.
- 11:53And I could totally see how like having the chance to, to write down their story.
- 11:57Like I know that I have a book that I've started, but I've never actually finished.
- 12:01And so like just to have the support to do that, because I mean,
- 12:05just to, I'm sure you've seen this in your, in Jeremy's family,
- 12:08but like just to deal with a cancer diagnosis in and of itself is a lot.
- 12:11And so to think about the idea of, of feeling that desire to,
- 12:15you know, have the project of writing a book,
- 12:17like even if it's just a, you know, just to publish a book or to capture and
- 12:21journal the process of how things are going and all of that,
- 12:24to have a way that this could all come together and be something meaningful,
- 12:28whether or not, you know, you leave it behind or not, like whether or not it's,
- 12:32it's used in that way or not is, is really irrelevant.
- 12:34I think that this, this really has some immense value.
- 12:37And I really hope that those of us, those of the cancer community for
- 12:40ocular melanoma who are listening who are interested will be willing
- 12:43to take advantage of just learning more about how this could work and maybe just
- 12:46writing out you know diagnosis to now and just
- 12:49doing that kind of their story if they choose so if someone is interested in
- 12:52in learning more about no story lost where would be some of the best places
- 12:55for them to go andrew yeah no story lost.com is our website and then we have
- 13:00all the social channels under the same name as well it's just always no story
- 13:04lost that was one of the things we really tried for when we were naming the business was I was like,
- 13:09can we in 2021 still get all these handles and everything? So yeah, nostoryloss.com.
- 13:14Yeah, I love what you said about kind of the process and that being valuable
- 13:18in and of itself, right? The journey of actually writing it down. Can that be helpful?
- 13:22I think we've found that even helpful with people in kind of the dementia community
- 13:26in kind of exercising the memory muscles and asking interesting questions that
- 13:31actually use like different senses to help people draw out memories that they otherwise couldn't.
- 13:36So, yeah, that being a guidebook, kind of like you said, to the community or
- 13:41a gift to the community could also be a really nice purpose for someone who is in your community.
- 13:47I've read, I've read three different books about cancer patients and their kind
- 13:51of journey and all those were helpful for me, even though I'm a bit removed.
- 13:55It was my uncle who had that diagnosis.
- 13:57It's, it's so helpful to gain perspective on something that otherwise was kind
- 14:01of foreign to me. I found those really valuable kind of as a supporter too.
- 14:04I think that's so important. And sometimes it can be hard to put voice to all of the, all of that.
- 14:09Like as a, as a patient, you're navigating your diagnosis, you're navigating
- 14:12the medical side of things,
- 14:14all of the appointments and then to also then have the weight
- 14:17of trying to explain how you're feeling or trying to explain
- 14:20what you've been going through for years to anyone and
- 14:23everyone who is interested and to then you know have a resource that
- 14:26you could use to share that with people or to share some of the things you've
- 14:30gone through to maybe like update people like okay this is where i'm at this
- 14:33is what i've dealt with yeah like that that could totally be helpful but no
- 14:37i love i love what you said about just i mean there were so many things that
- 14:40you said but i just i I really like what you said about that opportunity to
- 14:44use it to support someone,
- 14:46like for you as a support person to learn more about their journey and to then
- 14:50better support them. I think that definitely could be an application.
- 14:54You mentioned that you guys have done some kind of adaptations.
- 14:57You mentioned like memorials, things like that. So could someone else share stories,
- 15:03you know, like if you have a caregiver or maybe the son or daughter of a patient,
- 15:06whether or not they've passed or not, but like people who want to kind of contribute
- 15:10their perspective of this person, this person's life. Have you done stories
- 15:14where you've gathered that?
- 15:15Yeah, so we've done that, both with the subject of the book still with us and
- 15:20also just as memorial ones.
- 15:21So whether that's like, we have one where there's, I think, 15 friends and family
- 15:26all contributing to a memorial book, or we just have ones where you've got a
- 15:29family member who's told a couple hours of stories and then they also get some
- 15:33siblings or friends to contribute as well.
- 15:35So yeah, the collaborative ones are really fun too and nice for us to do something
- 15:39a little bit different and bring together a rich story with lots of different perspectives.
- 15:44Totally an option and by the way if your story if
- 15:47your writing is stuck and you want our help with getting your
- 15:50book finished let us know if we can help you with that well i yeah
- 15:52i definitely need to i need to put it on my radar i'm like okay let's consider
- 15:56like on a personal level because i have so many instagram posts and so many
- 16:00things that i have put out there like that my my grandmother told me years ago
- 16:03she's like you could really just write a book like just copy and paste all of
- 16:06your instagram posts and put them in there but the time it takes to do that
- 16:09is its own thing Totally.
- 16:12So anyway, well, I'm going to go ahead and screen share the discount code that
- 16:16we have for the Acure Insight community.
- 16:17Let me just find the share button. So if anyone is interested in learning more
- 16:22about No Story Lost or potentially doing their own storybook project,
- 16:26you actually have an opportunity to not only publish a book,
- 16:29but get two extra copies printed with the discount code that is on the screen here.
- 16:33And this code is I believe underscore two free books.
- 16:38And it's a, I think it's estimated at about a $200 value, which is fantastic
- 16:43and so generous of you guys.
- 16:45So thank you so much for sharing that. But I'll make sure to include that in the show notes as well.
- 16:48But yeah, I guess if anyone has specific questions, is there an email that they
- 16:52could contact you guys at?
- 16:53Yeah, email us at hello at nostoryloss.com. And then yeah, happy to answer any questions.
- 16:59On our website, we have like a chat function as well. You can chat directly
- 17:02with us, not with a robot.
- 17:04So happy to answer any questions people have if they're curious.
- 17:08Wonderful. And just as far as some of the questions that your interviewers answered,
- 17:11do you guys have samples of those online?
- 17:13Like just kind of a running list of these are possible avenues we could take for an interview?
- 17:17Yeah, I don't think we have them posted publicly, but we have a list that we
- 17:20share with people who are curious. So when you have a guest call. Yeah. Excellent.
- 17:25Awesome. Well, Andrew, this has been a pleasure. Thank you so much.
- 17:28Thank you for joining us and for taking the time to just help explain this
- 17:31and putting this out there to our community specifically and just
- 17:34seeing the value of really capturing people's stories in
- 17:37in a tangible way i think that that's something that
- 17:40an art form you know that historically humankind has
- 17:42had for so long and it's it's really neat to see it
- 17:45come full circle with the advances of technology and you
- 17:48know the the passion and the dedication of a team like no story lost to bring
- 17:52people's stories and keep them somewhere treasured and tangible so thank you
- 17:56so much thanks for the kind words and thanks for having me yeah of course just
- 17:59by way of announcements for anyone who's kind of as we're wrapping up if you
- 18:03guys are listening please make sure to check out lookingforacure.org.
- 18:05You can check out the races and events that we have coming up.
- 18:08We do have our Tampa race coming up on March 24th, I believe.
- 18:11So that's our next one. And then we've got a few coming in the early summer.
- 18:14If you're interested in donating to the podcast, please do so.
- 18:17You can head to acureinsight.org.org slash donate.
- 18:21And if you're interested in interviewing like Andrew here on the podcast,
- 18:24whether you're an ocular melanoma patient, or you have just a different story
- 18:27to tell or a different resource or something that would be helpful to our cancer
- 18:30or community of ocular melanoma patients, then don't hesitate to reach out at
- 18:34contact at AcureInsight.org.
- 18:36We will see you guys next time. And Andrew, thanks again for being here. Thank you.