Latest / The KCNA2 & Rare Epilepsy’s Podcast
From the NICU to a KCNA2 Diagnosis: A Parent’s Early Warning Signs
In this episode of the KCNA2 and Other Rare Epilepsies Podcast, Nancy speaks with Oriana Hornick, a longtime KCNA2 community member, KCNA2 Epilepsy Foundation board member, and research coordinator. Oriana is also the mother of Avery, now 9, who was diagnosed with KCNA2-related epilepsy in infancy.
Oriana walks through Avery’s early medical journey, including seizure concerns within hours of birth, a NICU stay, repeated EEGs, and starting anti-seizure medication while living abroad. At the time, she and her husband were teaching internationally, and Avery was born in Rio de Janeiro. The…
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