Jill Dopf Viles, DIY Scientist: Cracking the Emery-Dreifuss Code
Amanda Fields and Eva Langston talk with Jill Dopf Viles, the author of Manufacturing My Miracle: One Woman’s Journey To Acquire Her Personalized Gene Therapy. Jill writes about her experiences with Emery-Dreifuss muscular dystrophy. These experiences are placed in the hands of a deft and lyrical writer who often surprises the reader with unforgettable images and memories even as she works through the story of diagnosis, acceptance, and further research. She persists in making her own connections about EDMD as she performs her own research, discovers others with this rare condition…
The skinny
The skinny isn't ready yet — notes appear once the transcript is processed.