Latest / The Dr Louise Newson Podcast / 293 - Navigating menopause in my 30s after ovarian cancer: Suzie’s story
Transcript
- 1:02So on my podcast today, I've got someone called Susie who doesn't
- 1:06look like the average menopausal woman that you Google who's got
- 1:09Ray hair with a fan who's middle age or even in her late 50s.
- 1:15So Susie's young and she's going to share her story, which I hope
- 1:18will help to educate and reassure many people.
- 1:22So thanks for joining me today, Susie.
- 1:24Yeah, no problem. Yeah, happy to be.
- 1:26Yeah. So just tell me a bit about you
- 1:29and the age that you were when you became perimenopausal,
- 1:34menopausal when your hormone levels changed.
- 1:37It was probably about, so I'm 32 now and it was probably 3 or 4
- 1:43years ago that I noticed a big change in my hormone levels, in
- 1:49my energy levels, getting the hot flushes and the all of those
- 1:54kinds of symptoms that were supposed to show that you might
- 1:58be menopausal. But for me, it was something
- 2:02that I probably expected because I'd gone through a lot of cancer
- 2:07treatment. I was diagnosed with ovarian
- 2:09cancer in when I was 25. So I'd gone through a lot of
- 2:13cancer treatment, chemotherapy, surgeries, various different
- 2:17things. And finally I was told that the
- 2:20last kind of option was to have full abdominal radiotherapy.
- 2:24And so that was kind of the point where I thought, OK,
- 2:27that's my, I suppose my fertility journey has ended
- 2:31here. And I suppose I knew I'd go
- 2:33menopausal, but I didn't expect it to happen in the way that it
- 2:37did, Really so. Yeah.
- 2:39So 25 diagnosed with cancer of the ovaries.
- 2:42Not very common, is it? Well, no, no, it's incredibly
- 2:46rare. I hindsight is that I had all of
- 2:50the symptoms for it, but I had no idea of them at the time.
- 2:54And I, it wasn't something that was on my radar.
- 2:57I don't think it's something that's on anybody's radar when
- 2:59they're 25. I was trying to make ends meet
- 3:01as an actor at the time and, you know, working my day job and
- 3:05then trying to do my dance rehearsals and things in the.
- 3:09It's just, it was a lot and and then I was feeling really
- 3:13fatigued. I was feeling bloated.
- 3:16I needed to go to the toilet all the time.
- 3:19I felt like an old woman going back and forward to the toilet
- 3:21when I was trying to sleep. And you know, all of the
- 3:25symptoms were there. And then I got the diagnosis and
- 3:28it was supposed massive life changing experience from there
- 3:32really. So was that picked up on a scan?
- 3:36Well, actually I have to admit there are a lot of other people
- 3:39that would have a different story.
- 3:41But I cannot thank the NHS enough for my diagnosis because,
- 3:46well, I suppose my not even my GP, it was a nurse practitioner
- 3:51at my doctors who I ended up going to see when I was feeling
- 3:54really poorly. And I was explaining to her the
- 3:56symptoms I was having in, you know, tenderness in my tummy and
- 3:59all these kinds of things. And she immediately noted those
- 4:06symptoms as what they potentially were, even for
- 4:10someone at my age. I've heard so many other stories
- 4:13of the young people that have been diagnosed with cancer very
- 4:16late because they've been turned away and said, well, no, it
- 4:20couldn't possibly be this. I mean, she said, worst case
- 4:23scenario, it could be cancer. And that's exactly what it was
- 4:25in the end. So I absolutely have her to
- 4:28thank for getting me on that journey very, very quickly
- 4:31because by the time I was diagnosed I was probably stage
- 4:343/4, which for most people is not good at all in terms of
- 4:40prognosis, but somehow I've managed to still be here.
- 4:43So thank goodness for that. Which is wonderful, but
- 4:46obviously the treatment that you've had has stopped your
- 4:49ovaries working. And hormones.
- 4:51A lot of our hormones are produced in our ovary, but as
- 4:54many listers know, also produced elsewhere, but without your
- 4:58ovaries, whether they're removed or they've had chemotherapy or
- 5:02radiotherapy damaged in some way.
- 5:04Then people do become menopausal, but a lot of women I
- 5:08speak to who've had cancer treatments for different types
- 5:10of cancer that have had treatments that have affected
- 5:13the way their ovaries work, especially when they're young.
- 5:16The concentration has been on fertility.
- 5:19Menopause might have been mentioned, but there are two
- 5:22things that concern me and I don't know whether it's
- 5:24mentioned to you. One is the symptoms, because
- 5:27symptoms can really affect people in so many different
- 5:29ways. But also as a physician, the
- 5:32future health risks of not having hormone hormones with
- 5:36something that I don't hear spoken about enough.
- 5:39And I understand in the crisis time, the most important thing
- 5:43is to focus on the cancer. Absolutely right.
- 5:47But and the big but is we need to think about after the cancer,
- 5:51beyond the cancer because hopefully as you've proven,
- 5:56prognosis outlook can be very good.
- 5:59And you're young, you're only in your early 30s.
- 6:01So it's that future health benefits of having hormones that
- 6:05I worry that isn't discussed enough.
- 6:07So I don't know, was it discussed much with you at all,
- 6:10Susie? Well, I mean, the only people
- 6:12that spoke to me about my future health was you guys.
- 6:15When I spoke to one of your lovely doctors.
- 6:19I at the time of when I, you know, started speaking to
- 6:23gynaecologists and kind of menopause doctors within the
- 6:27NHS, they just looked at me like I was anybody else going through
- 6:33this, which I really am not. I am a lot, lot younger than
- 6:38most people that do go through this, which means that my
- 6:41hormone levels need to be higher and not just to kind of sort out
- 6:47the symptoms like hot flushes and things like that, but also
- 6:51for the future. As you say, I don't want there
- 6:54to be a problem in the future where I I don't know.
- 6:57As you say, you can get heart disease if your hormones aren't
- 7:01right. You're at higher risk of getting
- 7:02dementia if your hormones aren't right.
- 7:04And I don't want that to happen. Obviously I want to try and live
- 7:08as long and as healthier life as I possibly.
- 7:10Can yeah, and it's really could be very confusing for lots of
- 7:13people because actually even if you look at the insert for HRTI,
- 7:17never, I don't know if you've ever done it for your hormones
- 7:19and it will say risk of ovarian cancer.
- 7:21And that's actually come from a study, an observational study
- 7:25that was done quite a few years ago, but it was using older
- 7:27types of synthetic hormones. And even then the risk is
- 7:31probably not there. It's so small.
- 7:33But when it's observation, it's not really good data.
- 7:36But we don't use those types of hormones.
- 7:38We're just using natural we're just replacing like for like.
- 7:41And so we know the hormones are very anti-inflammatory.
- 7:44They're likely to reduce any inflammation, any cancers going
- 7:49forwards as well. But if when we don't have really
- 7:52robust evidence, certainly in my clinical practices, we share
- 7:56uncertainty with patients and we say there may or may not be
- 7:59risks, but we know that there are benefits and it's up to that
- 8:03individual. But if you haven't had that
- 8:05conversation with anyone and haven't been allowed to have a
- 8:08choice, then you're very much left on your own, aren't you?
- 8:11Well, yeah, absolutely. And it was only, I think it was
- 8:14when I spoke to you guys or I questioned about the risk of
- 8:19cancer returning based on having HRT, because that's one of the
- 8:23things that the doctors say to you is that if you take too much
- 8:27of this HRT, you're at risk of getting cancer.
- 8:30And one of the biggest kind of takeaways that I've had from you
- 8:34guys is that actually I think it was someone said there was no,
- 8:39the risk of getting cancer was no higher than that of getting
- 8:42cancer when you are older anyway, yes.
- 8:46So people are still going to have a risk, but that doesn't
- 8:49mean it's related to the hormones.
- 8:50And I think that's really important because there will be
- 8:53people that will get recurrences that will have a new cancer on
- 8:57HRT, but there will also be people that will trip down the
- 9:00stairs or, you know, fall over and that's not related to their
- 9:04HRT. So but because I think everyone
- 9:07is so scared, if something negative happens, it's easier to
- 9:11blame the HRT. But the problem is all hormones
- 9:15have been grouped together as evil, whereas our own natural
- 9:18hormones, you know, you're designed in your 30s to have
- 9:21hormones and they're very beneficial for your future
- 9:24health. So to have them taken away and
- 9:27not replaced without good reason could affect your future health
- 9:31and day-to-day functioning if you were getting symptoms as
- 9:34well, which it sounds like you were.
- 9:36Yeah, absolutely. And interestingly, I work as a
- 9:38sign language interpreter, which means that you need to have your
- 9:43processing there. You need to be able to process
- 9:46information from one language to another.
- 9:49And if you're suffering with brain fog, like I know a lot of
- 9:53women do when they're menopausal, that processing
- 9:57becomes that much harder. And it's already hard anyway.
- 10:00I was working with a lady who was struggling to do her job and
- 10:06she said, oh, yes, I'm in the menopause.
- 10:07I've got brain fog. And in my head I was going, but
- 10:10so why are you not doing anything about it?
- 10:12This is your job and it's starting to affect your job.
- 10:16And she's probably freelance like most interpreters are.
- 10:18And so there's no way that you can't like take a day or there's
- 10:22no policy, there's no menopause policy to protect her if she's
- 10:26freelance. So that really it hit me there
- 10:30because I went, gosh, OK, well, if that was to happen to me, I'm
- 10:33a new interpreter. I can't.
- 10:34I don't want to blame anything on the menopause, especially
- 10:37when there's something you can do about it.
- 10:39Yeah. And that's so important, Susie,
- 10:41because we know that commonest symptoms are those affecting our
- 10:44brains because our hormones work in our brain, as you know, but
- 10:48especially memory processing cognition, but even, you know,
- 10:53our mood as well. So a lot of people feel quite
- 10:55flat, they feel quite joyless, they have less motivation and
- 10:59they're more tired. But we know that actually the
- 11:03way our brain works is really crucial for the way we function,
- 11:05especially in our work. And if you have a job where you
- 11:08need your brain to work very quickly and process things very
- 11:12quickly, and you've been used to having that when it's taken away
- 11:16from you, it can be very difficult.
- 11:19And for so long we've forgotten that our hormones have a role in
- 11:23our brain because it's been about flushes, it's been about
- 11:26fertility, it's been about periods.
- 11:28But actually, you're absolutely right, because so many people
- 11:31are giving up their jobs or reducing their hours or taking
- 11:34different jobs, often at lower pay, because they can't function
- 11:38at the level that they're used to.
- 11:39And we see it time and time again.
- 11:41And it's very sad when they think, well, that's just my lot.
- 11:46That's just because I'm menopausal without having those
- 11:50hormones back, because we know they improve the connectivity of
- 11:54the neurons in the brain. They help the brain to function.
- 11:58We've known this for many years. In nearly 100 years we've known
- 12:01the effect on the brain, but it's been ignored and I can't
- 12:05quite understand why. So one of the jobs that I did as
- 12:09an interpreter, of course, I, I adhere to a code of ethics and
- 12:12you have to remain impartial as one of them and interpret as
- 12:17accurately as you can. And, and this, that and the
- 12:19other. And it was AGP appointment and I
- 12:21go to the GP appointment and this woman is reeling off what I
- 12:25know to be menopausal symptoms. Of course, she doesn't know
- 12:28that. And the GP kind of says, oh, OK,
- 12:32how old are you? Let's have a look at how old you
- 12:34are. OK, you're this old, right?
- 12:36OK, that's probably a box ticked.
- 12:37It could be menopausal symptoms and oh, OK, well, I think we
- 12:41could try some HRT. But you know, I do have to warn
- 12:45you that, you know, there's this that and the other and there's
- 12:48the risk of cancer and there's, and I was there interpreting
- 12:51this information to this person through gritted teeth going I, I
- 12:57just, I can't say anything, you know, because this is a medical
- 13:00professional, but I know this to not be the case.
- 13:04So it was a bit of a tough ethical moment for me.
- 13:06I think having knowing what I know about the HRT and the
- 13:09menopause and then having to give what I suppose was
- 13:13incorrect information to this person with very, you know, you
- 13:17must be cautious. And after a month, they said, I
- 13:20think they said after a month, if your symptoms don't go away,
- 13:23I think we should probably stop. And again, I was going, no,
- 13:26that's not long enough, but. If so, did you say anything at
- 13:30the end to that doctor? I didn't feel I had the place
- 13:34to, but I think if it were to happen again, I probably would.
- 13:38Actually, I take that back. I actually said it's worth
- 13:41looking on Newsome Health if you want to get up to date, accurate
- 13:45information. They have a lot of information
- 13:46on there. I think I'd signposted to you
- 13:48guys because I know that you are the best.
- 13:51You're kind of the specialist at it.
- 13:52But yeah, that was a bizarre, a bizarre situation to be in.
- 13:58Absolutely. And it's very difficult for
- 14:00people because they're told different things.
- 14:02And every day in the clinic we see and speak to women who have
- 14:05been told different information. And there is confusion because
- 14:10of this, lumping all the hormones together, thinking
- 14:12they're all the same. And metabolically, biologically,
- 14:15they're very, very different in our bodies.
- 14:18And our own natural hormones, of course, are not made to be
- 14:22detrimental because of course they're not.
- 14:24We've got hundreds of hormones in our body and they work very
- 14:26well and especially when people are younger.
- 14:29I did some work with NHS England a while ago.
- 14:32It was a big national programme for menopause.
- 14:35And they said that they were going to focus on women over the
- 14:37age of 51. And I actually put my hand up
- 14:40and said actually, if you've got limited budget, I would focus on
- 14:44the one in 30 women who are under the age of 40 who have an
- 14:46earlier menopause. And they said, well, it's not
- 14:49common enough, Louise, to worry about.
- 14:51And actually, I sort of thought, but I kept my mouth shut because
- 14:55I often get misinterpreted sometimes.
- 14:58But actually it is common enough.
- 15:00One in 30. So in your average class at
- 15:03school, that's one child. Or if you know, it depends if
- 15:06they're mixed classes, of course, there might be one in
- 15:09every two classes, but that's a lot of people that will grow up
- 15:13and become menopausal at an early age.
- 15:17Far more common than other conditions, but the health risks
- 15:20associated with it are huge. And we know from some studies
- 15:24that women have in earlier menopause don't have typical
- 15:26symptoms. So a lot don't have flushes or
- 15:29sweats, but they still have these low hormones.
- 15:32And so we should be more proactive as healthcare
- 15:35professionals, we should be going into companies and
- 15:39organisations and talking about hormonal health because a lot of
- 15:43people, if it happens without having something like cancer
- 15:47treatment, it can be more gradual.
- 15:49But there are signs there. They might have had worsening
- 15:51PMS or worsening PMDD, they might have skipped a few
- 15:54periods, they might know that they've got a condition that
- 15:58might increase their their risk of having an earlier menopause,
- 16:01or they might have lots of family members that have had
- 16:03early menopause as well. So we need to be really
- 16:06proactive at picking these people up to reduce suffering
- 16:10but to improve future health. Because if you don't have your
- 16:14hormones at a young age, you're more likely to drain the NHS at
- 16:17an older age because you're more likely to have more conditions.
- 16:20So it is cost effective, but it doesn't sound very exciting.
- 16:23And I know when I was doctor, someone said to me, if someone
- 16:28comes in Louise who hasn't had their period and young, just
- 16:31make sure she's not pregnant. That's all you need to do.
- 16:34So I hate to admit, but for many years, that's all I did because
- 16:37I didn't even think about women who were young, menopausal,
- 16:42because no one had taught me. So I'm making up for it now.
- 16:45Yeah, But there will be other doctors who will have been
- 16:48taught by the same people and my age who won't be thinking.
- 16:51So how do you think we can get more information out and how do
- 16:56we empower clinicians when we're the patients?
- 17:01Because as you say, even just interpreting, you can feel quite
- 17:04threatened when you're not threatened, but quite it's
- 17:07difficult when you're I, I'm talking now as a patient, but
- 17:10when I go and see a doctor, I know their time's precious.
- 17:13I feel a bit nervous. I take every word they say very
- 17:16literally. And it's very difficult to have
- 17:19a discussion depending on the doctor, especially if they're
- 17:22very closed and quick in their consultation process.
- 17:25Some doctors are very open and reflect and say, what do you
- 17:28think? Are you happy with that?
- 17:29Is there anything you want to ask?
- 17:30And then it makes it easier. But I do feel as patients we
- 17:34have to be our own advocates. Many people know I can't get the
- 17:38dose and type of hormone I'm on on the NHS and I've given up
- 17:41trying, but it's still very difficult.
- 17:44But how do you think that we should be better advocates as
- 17:48patients? I think from my own experience,
- 17:53and that's including my cancer journey, I have been a huge
- 17:57advocate for myself. I don't think I would have been
- 18:00had I not had my mum there with me.
- 18:02She advocated for me and we advocated for me together and
- 18:06throughout the whole thing. But I think it's just it's
- 18:10having the knowledge yourself rather than going in there with
- 18:12no idea. I think it's that thing of
- 18:16empowering yourself with knowledge and getting the
- 18:20knowledge and kind of knowing the symptoms, knowing you know
- 18:24what's wrong with you and getting the information about
- 18:26what potentially you need before you go in.
- 18:29Because otherwise you're going to be sat there nodding your
- 18:32head at whatever this professional is telling you.
- 18:35And of course, they're a professional.
- 18:36They've been through years and years of training, but they
- 18:39don't have the especially GPS, the specific knowledge base to
- 18:43know what you need in this situation.
- 18:47And then it might take a year to be referred to someone who may
- 18:52well be a specialist, but it's following these very specific
- 18:55guidelines which aren't going to match you.
- 18:58And so I think it's having that knowledge, but also being able
- 19:03to be quite assertive in, in the deaf community, it would be this
- 19:08sign. And it's one of my favourite
- 19:09signs. I think it's that being
- 19:12confident and being assertive to back yourself when you're
- 19:16speaking to someone and say, well, for me, for a young
- 19:20person, I am not your usual. I'm not the most common person
- 19:25that has the menopause, but it's just backing myself to know
- 19:27there's something not right and I don't want this to bother me
- 19:30forever. I think it's the mixture of
- 19:32those two things, going in with knowledge and having the
- 19:34confidence to back yourself, I think.
- 19:37That's so important because I know certainly with some of the
- 19:39treatments that you had for your cancer, you had to really be
- 19:43your own advocate, didn't you, and seek the right treatment for
- 19:46you. Yeah, absolutely.
- 19:48There was one particular treatment wasn't on the NHS for
- 19:51me, which was immunotherapy. I think it's becoming more
- 19:55widely used now, but still not for my cancer.
- 19:58I mean, my cancer was incredibly rare anyway.
- 20:00It was a small cell ovarian cancer of the hypocalcemic type.
- 20:04Bit of a mouthful. But that treatment wasn't
- 20:07available in the NHS. There was a very small study of
- 20:10four women that had gone through radiotherapy plus immunotherapy
- 20:14as a combination and three out of four of them had come out
- 20:18cancer free long term afterwards.
- 20:20And we just went, well, that's good enough for me, let's give
- 20:24it a go. But the NHS were incredibly
- 20:26reluctant to do it. They did send off funding
- 20:28applications and things, but everything was turned down.
- 20:31So we had to fundraise 250,000 lbs for it.
- 20:36But I mean, that's where I start to believe in humanity again
- 20:39because I got, you know, video went viral.
- 20:43I had people from all over the world donating to me.
- 20:45So it was incredible. But it was, that was a case
- 20:48where the NHS were very, I don't know, reluctant or very
- 20:53sceptical about this treatment because there wasn't 4000 trials
- 20:58of it, There was 4. But I think it was where both me
- 21:02and my mum went, this is the right thing to do.
- 21:05This is what we want to do. There's what, what are the other
- 21:08options? We'd say to them, they didn't
- 21:10have any other options. And so we just pushed and pushed
- 21:13and pushed. And so they said yes.
- 21:14And I think that's something that you also have to do for HRT
- 21:20and for menopause treatment. I'm actually now having pushed a
- 21:24lot and having, as I said, used the knowledge that I've got from
- 21:28speaking to you guys and from my own body and my own experience.
- 21:33I've now managed to convince the NHS to fully prescribed my HRT
- 21:38for me. Now, the testosterone was only
- 21:41recently added and I'm absolutely thrilled about that
- 21:44because that's a large sum per year that I'm now not going to
- 21:49have to pay for. Well, hopefully not.
- 21:52Which is wonderful and a lot of people come to our clinic and
- 21:54increasingly GPS take over their care for their HRT.
- 21:59Not always testosterone, but increasingly it is.
- 22:02Which is so important because it's very easy to get other
- 22:06drugs such as antidepressants or blood pressure drugs or statins
- 22:10or or whatever. And they're not even drugs,
- 22:13they're just natural hormones really.
- 22:15We need to think very differently, change our language
- 22:18and think about the benefits and actually if you're feeling well,
- 22:22which thankfully you are, if you're healthy, which you also
- 22:25are, you're less likely to go back to your GP, you're less
- 22:28likely to be referred to the NHS.
- 22:30You are saving money even though they're spending money on HRT,
- 22:33which is actually quite cheap. So it is a cost effective thing
- 22:36and when you're young, you know you're going to be on HRT
- 22:40hopefully for decades, you know, for many years.
- 22:44So it should be available for you.
- 22:46It shouldn't be something you have to come to a private clinic
- 22:49for. It doesn't make sense, does it?
- 22:51No, no, absolutely not. And I think, well, specifically
- 22:55testosterone, I think that was the turning point where I
- 22:58started on a bit of progesterone and a bit of estrogen.
- 23:02And then it was far like it got to the point where I was having
- 23:07enough issues and I was feeling fine.
- 23:10But I'm a very sporty person and I was still feeling a bit
- 23:14unmotivated and, and a bit just a bit lazy and not full of
- 23:18enough energy for myself to want to actually go out and do the
- 23:22exercises. And I think at the time, I think
- 23:25one of the big ones was that I just didn't really want to have
- 23:28sex with my partner, which, you know, it's not something you
- 23:31want as a 30 year old. You don't want to just be there
- 23:33feeling like a cabbage. So, and it was the testosterone
- 23:37that immediately, well, not immediately, it took a little
- 23:39bit of time to work, obviously, but it just that was the change.
- 23:43But then when I did initially ask the NHS, they were saying,
- 23:48Oh no, no, no, it doesn't fit in with our guidelines of anything.
- 23:51And I just went, I want to throw your guidelines out the window.
- 23:55Your guidelines are just this one-size-fits-all thing.
- 23:58And that's not the case here. But.
- 24:01But now they don't. Yeah.
- 24:02And I think that's very important when we do mention
- 24:05guidelines because there's guidelines in everything that we
- 24:07do as healthcare professionals, But they are a guide.
- 24:11They help assist in a general population.
- 24:15But The thing is, is that we are all individuals.
- 24:18We have individual lives, we have individual choices, We have
- 24:22individual decisions about what risk or benefit we're prepared
- 24:26to take, and we all have our own lives.
- 24:29But also we can make our minds up if we're consenting adults
- 24:33and we also have the ability to change our mind.
- 24:36So if you wanted or read something, you can stop your
- 24:40treatment, you can restart it. It is up to you as a individual.
- 24:44And what really saddens me with so much in hormone health is
- 24:50that that decision isn't even there.
- 24:52It's not allowed almost. It's sort of felt like it.
- 24:55You really have to plead and justify to have something that
- 25:00could make a real difference to you.
- 25:02And if it doesn't make a difference then don't continue.
- 25:05And but people often aren't even able to start or like you say,
- 25:10optimise their dose because it can take a while to be on the
- 25:13right dose and type. And then that's why it's
- 25:16important that you say to see someone who's really
- 25:18knowledgeable but works together with the patient.
- 25:22You know, it's not very rewarding as a doctor to be in a
- 25:25unidirectional relationship where you're the person in
- 25:29control. You're the person as a Doctor
- 25:31Who is basically telling the patient what to do.
- 25:33I do not like those consultations.
- 25:36Very different for my husband who's a surgeon.
- 25:38He has to be in control in the operating system, very
- 25:41different. But actually when it's a
- 25:44consultation, it's a two way process.
- 25:46And even for him it's a two way process when he's deciding the
- 25:49operation. And often a patient might want
- 25:52one operation and he'll advise something else and they talk it
- 25:55through. But somehow we've lost the
- 25:57ability to talk and share, especially when there's
- 26:00uncertainty. And that's a great shame.
- 26:03So it's amazing that you've been such an advocate in so many
- 26:07ways. You know, hormone health is just
- 26:09one part, but you've been a huge advocate for your health and
- 26:12you're living proof how healthy you are now, aren't you?
- 26:16Yeah, yeah, absolutely. And I think there's also, well,
- 26:20I suppose on a slightly different note, is that
- 26:23obviously women, I'm a woman in my 30s and I am on HRT and in
- 26:28the menopause, which is obviously, as we've already
- 26:30said, a unique situation. And I recently met my who will
- 26:37now be my lifelong partner, the love of my life.
- 26:40And I knew it the moment it was probably it was like our second
- 26:44date or something. And I've been dating for, you
- 26:47know, a few months and, and hadn't said anything to I think
- 26:50I'd said something about it to one person who I thought, oh,
- 26:53they seem quite nice. And as soon as I mentioned it to
- 26:56them, they couldn't run fast enough.
- 26:58Whereas as soon as I told my current partner, this is the
- 27:03situation, I can't have children in a biological way, I'd like to
- 27:07have children in a different way.
- 27:09I do have to take HRT everyday, you know, rub this gel on my
- 27:14legs, you know, and things like that.
- 27:16And he came back with the most amazing response to it and has
- 27:19been nothing but supportive and kind.
- 27:24And where a previous relationship where I'd started,
- 27:27it would always say, have you washed your hands?
- 27:29Make sure you've got to wash your hands afterwards.
- 27:31And of course, I'd wash my hands afterwards.
- 27:33But it was that it was almost like a punishment, which wasn't
- 27:36particularly nice. Whereas I'm just, I'm accepted
- 27:39for who I am. And, and I have to be honest, I,
- 27:41I get the odds, not brain fog, but the odd kind of like thing
- 27:45where my brains a bit meh. And I don't know whether that's
- 27:48just something that comes up every so often, whether it's a
- 27:50menopausal symptom, I don't know.
- 27:52But I'm given nothing but love for that and appreciation.
- 27:56And I think that's one massive thing that's helped me accept
- 28:01where I am is and that I am now with the person who accepts me
- 28:06for who I am, for the gel that I rub on my legs, for the tablets
- 28:09I take at night. And for the fact that we're
- 28:11going to either adopt children or go surrogacy route and and
- 28:16we're going to have a lovely family at some point in the
- 28:18future anyway. And so I think that has that has
- 28:20been a huge help to me kind of on my journey.
- 28:23It's just being accepted for who I am now.
- 28:26Oh what brilliant way to end being accepted for who you are.
- 28:29I think we all should think more about that.
- 28:31Yeah, so much. I realise as I get older we
- 28:33can't change about ourselves so we just have to embrace and make
- 28:37the most of it. So I'm very grateful.
- 28:39But before we end, 3 take home tips and I think it should be 3
- 28:43tips about how to be best advocate for yourself for
- 28:47whatever treatment you want or you don't want.
- 28:50You might be refusing treatment. So what are the three things
- 28:53that you've learned that you can share about being an advocate
- 28:56for health? So firstly, as I said before,
- 29:00the gaining knowledge yourself because you know, you're an
- 29:05example of where there's incredible knowledge there and
- 29:09resources that people can use to gain that knowledge before they
- 29:12go to an appointment. I think being confident and
- 29:16backing yourself with that knowledge.
- 29:19So I suppose those two come hand in hand.
- 29:21And I'll add just off the top of my head, probably being curious
- 29:25as well, rather than just kind of like taking your lot and just
- 29:28going, oh, OK, well that's going to happen.
- 29:30It's that thing of, oh, but what if, what if it could be better?
- 29:33What if life could be better? And what if I could feel better
- 29:37rather than just, I'm just going to have to feel like this now.
- 29:39I think it's curiosity is another big one, as well as to
- 29:43just be curious as to whether things could be better because
- 29:45they probably can be testosterone, you know, being
- 29:49that example for me. So yeah, those are my three.
- 29:52What was it? Knowledge, Confidence.
- 29:55Curiosity. Love it, very good.
- 29:58Thank you ever so much and keep going.
- 30:00Thank you so much. Yeah, will do.
- 30:02Thank you. You can find out more about
- 30:08Newson Health Group by visiting www.newsonhealth.co.uk and you
- 30:15can download the free Balance app on the App Store.
- 30:18Or Google Play.