Latest / Cork News Today | 2 Min News | The Daily News Now!
Huntington's Care Pathway Urgently Needed | Cork News
A High Court judge has demanded an urgent national care pathway for Huntington’s disease after a family’s devastating battle with the health system. Their mother, in her sixties, won a €142,000 settlement after years of being misdiagnosed as having psychological issues — her father died unaware he carried the gene, and 26 relatives are now at risk. The judge called the state’s failure “shameful,” citing only one dedicated nurse nationwide and a 2022 proposed pathway still unimplemented. The daughter blamed systemic collapse — no family linkage system, no shared records, no post-diagnosis care…
The skinny
The skinny isn't ready yet — notes appear once the transcript is processed.