Latest / The KCNA2 & Rare Epilepsy’s Podcast
Living With KCNA2 Epilepsy: One Father’s Story of Seizures, Strength & Hope with Jeffrey Gomez
In this episode of the KCNA2 & Rare Epilepsy Podcast, Dr. Nancy Musarra sits down with Jeffrey Gomez to talk about his daughter’s journey with KCNA2-related rare epilepsy.
Jeffrey shares how his daughter’s seizures began just before her first birthday, changing what should have been a joyful family celebration into the beginning of a long and frightening medical journey. He talks about the early hospital visits, the uncertainty around her symptoms, the emotional stress of emergency testing, and the heartbreak of watching seizures continue without control. He also reflects on how hard it was…
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