Latest / The Eye Believe Podcast / Brain Injury Awareness: What You Need to Know! | The Eye Believe Podcast
Transcript
- 0:03hey everyone
- 0:04I'm Megan with The Eye Believe Podcast
- 0:06and this month is actually Brain Injury Awareness Month
- 0:09so we have two fantastic guests with us
- 0:12from Brain Injury Services
- 0:14we have Donna and Claire welcome ladies
- 0:17thank you so much
- 0:19why don't you each
- 0:20take a minute to just explain what you do
- 0:23sure I'll
- 0:24I'll kick us off I'm Donna Meltzer
- 0:26I'm the CEO of Brain Injury Services
- 0:29we are located in Northern Virginia
- 0:32and we have been around since 1989
- 0:35we primarily serve individuals who have a brain injury
- 0:40anybody in our area who has a diagnosis
- 0:44from a medical doctor of brain injury
- 0:47can come and find us
- 0:48and we have a lot of supports and services for
- 0:52individuals who are on their journey to recovery
- 0:55so I hope during our conversation
- 0:57we can talk a little bit more about
- 0:59what those services are
- 1:00but let me turn it over to Claire
- 1:02because she does actually provide direct services and
- 1:06and supports to many of our clients Claire
- 1:10yes thank you Donna
- 1:11hi Megan
- 1:11thank you for having us yes
- 1:12my name is Claire Callison Aub
- 1:15and I am the manager of child and Adolescent Services
- 1:17with Brain Injury Services
- 1:19so we have a small team of four of us in total
- 1:23who serve young adults infancy toddlers
- 1:27children teenagers
- 1:29and young adults who are up into college
- 1:31who have brain injuries that is fantastic
- 1:34so when you started brain injury services
- 1:38you said that was quite a few years ago
- 1:41has it changed a lot
- 1:43with the amount of people coming forward
- 1:46realizing that they have a brain injury
- 1:49yeah I think so Megan
- 1:50you know the
- 1:51the story is I understand it from those who
- 1:55we're really part of
- 1:55the movement to establish this organization
- 1:59we're largely a group of parents who had adult age
- 2:03children with brain injury
- 2:05and I guess their concern
- 2:06and rightfully so
- 2:08was what's gonna happen to my child when I'm gone
- 2:11who's gonna take care of them
- 2:13what are they going to to do during their lives
- 2:17what what will they be able to do
- 2:18what will their lives look like
- 2:20so they started this organization
- 2:22to really delve into that
- 2:24initially
- 2:25they were really looking to create more housing
- 2:28opportunities for their adult kids with brain injury
- 2:31that is one piece of what happens
- 2:34but really now we look at our community so differently
- 2:38it's it's much broader
- 2:40you know we don't have just one program here
- 2:42we have eight different programs that we run here
- 2:46running the gamut from day programs for um
- 2:50adults who have brain injury and in need of a place
- 2:54in a space where they can go
- 2:56both for socialization
- 2:58and that idea of feeling like they belong somewhere
- 3:01and that they have friends
- 3:02they have a group again but also
- 3:04so that they can learn
- 3:06or relearn skills that they need
- 3:09so that they can go back into the workforce or
- 3:12or doing whatever it is in their life
- 3:14that makes them happy so we have those programs
- 3:17we have adult case management
- 3:19we have the pediatric case management
- 3:22which Claire mentioned
- 3:23we have vocational services supports
- 3:26and we have mental health support
- 3:28which is a really big light
- 3:30in which we're growing right now
- 3:31I think as you can imagine
- 3:33in today's world when
- 3:35who doesn't need some help right
- 3:37you know processing what's going on in our world
- 3:40and in our lives particularly
- 3:41for people who are impacted by brain injury
- 3:43they they need to talk with somebody as well
- 3:46we also provide occupational support and therapy
- 3:50and just a whole host of ways that we help people
- 3:54along the way with their journey
- 3:56and getting back to
- 3:57building the life that they wanna live
- 3:59that's fantastic so
- 4:01one of the things that I thought was very interesting
- 4:04when I was talking to Claire
- 4:05was that some people might not realize
- 4:08that they have a brain injury
- 4:10or that they qualify as having a brain injury
- 4:13and there might be services that they are eligible for
- 4:17but they wouldn't know about it
- 4:19tell us a little bit about that
- 4:20cause I feel like that is kind of a huge deal
- 4:23yeah it is a huge deal and
- 4:25and Claire's absolutely right
- 4:27you know people who go to see their doctor
- 4:29because they have maybe a
- 4:31a TBI traumatic brain injury
- 4:33they know they have a brain injury
- 4:35they have had either a car accident or a fall
- 4:38something that was a really defining moment right
- 4:42and so they know that something isn't right
- 4:44and they're gonna go see their doctor
- 4:45and then hopefully
- 4:46it is their doctor or somebody at the hospital
- 4:48who will say oh
- 4:49by the way
- 4:50there's this place called Brain Injury Services
- 4:52and you should give them a call
- 4:53because they can help you
- 4:55on the next step of your journey
- 4:57but there are a lot of people who
- 5:00might not think about what's just happened to them
- 5:03so for example concussion is one of those things right
- 5:06concussion is incredibly common
- 5:09think when we think about concussion
- 5:11you know yes
- 5:12we think about so being
- 5:14being hit on the head
- 5:15we often think about those who are athletes
- 5:18but sometimes the the concussion is just very simple
- 5:22maybe it's from an accident or you
- 5:23you know you got hit on the head by a ball just
- 5:26you know being outside playing in the
- 5:28in the backyard
- 5:29sometimes parents will see that and they'll say oh
- 5:32I should I should go see the pediatrician with my child
- 5:35and see what they have to say
- 5:37others are they just kind of get up and say
- 5:38I'm fine right
- 5:41nothing's going on here
- 5:42and so they just go on about their day
- 5:45but later other things may start to happen
- 5:48and that becomes problematic
- 5:50and so it becomes a repetitive kind of thing
- 5:53I can't tell
- 5:54you how many clients we talk to who will say oh
- 5:57I just had another concussion or I had another TBI
- 6:03or I fell again
- 6:05and I'm back here because this happened again
- 6:10and so that's
- 6:11part of the beauty of the services that we provide
- 6:14is it's not time limited
- 6:16people can come back time and time again
- 6:18they they might have great progress and
- 6:21and go back out into the world
- 6:22and then something happens again
- 6:25and they need to hopefully not start from ground zero
- 6:29but maybe pick up or you know
- 6:31just kind of pick up on where they left off
- 6:32or get started again with some support
- 6:35so that they can get back to their life again
- 6:38Claire you brought that up for Megan
- 6:40did you have some experiences
- 6:42or situations that you wanted to share
- 6:46with regards to concussions
- 6:48yes so I had a client actually
- 6:50I used to work as an adult case manager
- 6:52before I was a pediatric case manager
- 6:54and one of the clients I worked with
- 6:56she actually came to us
- 6:58because she had multiple concussions
- 7:00and she didn't realize it
- 7:01she was actually misdiagnosed with PTSD
- 7:04and it wasn't until she saw neuro psychologist
- 7:07and he was the one who tested her
- 7:09and found out through her history
- 7:11because she was in and out of foster care homes
- 7:15and was involved in a lot of gangs
- 7:17that she had multiple concussions
- 7:19from the violence that was around her
- 7:21and so
- 7:22it was her neuropsychologist who referred her to us
- 7:25because he knew about us and it
- 7:27she just had this aha moment
- 7:29when she realized that her issues were not due to PTSD
- 7:33and that's why none of the treatments were working
- 7:35but were actually indeed
- 7:36due to these multiple concussions that she had
- 7:38throughout her childhood wow
- 7:40that is so crazy
- 7:43that a concussion symptom could mirror a PTSD symptom
- 7:46I wouldn't
- 7:47personally think that those would be similar symptoms
- 7:50so that's fascinating you know Megan
- 7:52there's so much we don't know about concussion
- 7:55in fact for the last year
- 7:57we at Brain Injury Services
- 7:59have been embarking upon a year
- 8:01long effort around concussion
- 8:03a year ago at this time
- 8:04we did some polling in Northern Virginia of adults
- 8:08to kind of
- 8:09figure out what they knew about brain injury
- 8:12in general and
- 8:14you know how they might support a loved one
- 8:16or what might they be concerned about
- 8:19if you had a concussion
- 8:20or brain injury of another type
- 8:23and you went back to work
- 8:24or your child was going back to school
- 8:26and we Learned a lot from that polling data
- 8:30one of the things that we Learned was that
- 8:32most people were not relating
- 8:34concussion to brain injury
- 8:37and they didn't know enough about concussion and
- 8:39and what to do if they or
- 8:41somebody they knew had a concussion and uh
- 8:44you know what the basic protocols even were
- 8:47so we did a deep dive into that
- 8:50this year we hosted a summit back in September
- 8:54where we brought together a bunch of leaders
- 8:57not just from the Northern Virginia community
- 8:59but also from our federal government
- 9:01from the CDC
- 9:02some doctors with deep credentials and in concussion
- 9:05as well as leaders in athletics and schools
- 9:09and all kinds of areas
- 9:11so that we could really explore this more
- 9:13I'm excited to share that
- 9:14we have a report that will be coming out this month
- 9:17for Brain Injury Awareness Month
- 9:19we're getting ready to release that later this month
- 9:21actually on March 20 fifth
- 9:23we will be doing a webinar to release that report
- 9:27and to talk with some of our experts about concussion
- 9:31and how it is brain injury
- 9:33what it might look like
- 9:34and what people should know after having a concussion
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- 9:56that actually is what I would love to ask you about
- 9:58next so in our community
- 10:01we have a lot of vision issues
- 10:04so ocular melanoma is melanoma in the eye
- 10:07and most of our patients will either lose sight
- 10:12completely in their eye
- 10:13or at least very severely impacted
- 10:17so falling is definitely a common occurrence
- 10:21yes
- 10:21so if somebody is to fall and they've hit their head
- 10:25when do they need to seek treatment
- 10:28what are the signs that they should look for
- 10:30if they think they might have a concussion
- 10:33I think that anybody who has had a fall like that
- 10:36particularly
- 10:37if they're struggling to get up after the fall
- 10:40if they feel like they're spinning
- 10:42if their vision feels impaired
- 10:44it is imperative to see your doctor right away
- 10:48I think you know what
- 10:50and one of the things that we heard from our experts
- 10:52during our concussion discussions was
- 10:54that's a No. 1 don't just sit there and think oh
- 10:58it's nothing it's not a big deal
- 11:00I fell down I'm okay
- 11:02you know just brush it off
- 11:04go get checked out
- 11:05because sometimes the symptoms show up later
- 11:09we have a client or former client
- 11:12I should say really
- 11:13who his experience with concussion was
- 11:17such an everyday story right
- 11:19he was in his house and he was walking down the stairs
- 11:23and it was sort of a narrow space between the stairs
- 11:27where the ceiling a slanted ceiling was
- 11:29and he hit his head on a beam and he fell
- 11:32and so at first he thought
- 11:33I'm okay you know
- 11:34he got up he was
- 11:35and next thing he knows he's passed out right
- 11:37so he has had a very long journey of recovery
- 11:42and it's been up and down
- 11:44because this was truly a serious concussion
- 11:47that really impacted him and
- 11:49and he has told his story to all of our staff and
- 11:53and some others as part of our concussion campaign
- 11:56he can even describe how it felt for him
- 12:01with his vision like he would lose some of his vision
- 12:04maybe temporarily it would come back
- 12:06and he said it's like being in a fishbowl
- 12:09or driving along a highway
- 12:10and things are whizzing by you
- 12:11but you're really sitting still
- 12:13so I think there probably are a lot of commonalities in
- 12:17you know
- 12:18how different head injuries can impact your vision
- 12:22but I think the No. 1 thing that we would all say is
- 12:26don't hesitate go get checked out
- 12:29let your medical professionals
- 12:31determine what's really going on
- 12:33yeah so important
- 12:34if you're ever on the fence
- 12:35just go and get checked out
- 12:37and I think yeah
- 12:38with everything you know
- 12:40and that's something that we
- 12:41we talked a lot with some of the
- 12:43the leaders in the the schools in our area about Claire
- 12:47I'm sure in in your work with
- 12:49with children and with teachers and school personnel
- 12:52you you come across all the time
- 12:54is schools have some united protocols
- 12:58in terms of concussion
- 13:00and some are constantly influx with it
- 13:03or changing how they're looking at things
- 13:05you know often I think when a student has a concussion
- 13:09they are sent home with the note
- 13:11and you know
- 13:12we've been kind of looking at this concept of right
- 13:14no technology be in a dark room
- 13:17maybe need to be there 2 or 3 days
- 13:20and now there is some other uh
- 13:22school systems that are working with their counties
- 13:24and their health professionals that are saying
- 13:27that's a little old school now
- 13:28right
- 13:28because we kind of cycle through these things greatly
- 13:31and they're saying that might be right for some people
- 13:34depending on the severity or the level
- 13:37or the type of concussion they had
- 13:39for others they might need to get up and walk around
- 13:43maybe they shouldn't be staring at a computer
- 13:44but they might be able to
- 13:47you know take a walk
- 13:48get some fresh air engage with family or friends
- 13:51and not feel like they need to have these three days of
- 13:55sort of solitary confinement
- 13:56if you will so
- 13:57I think it's important to know that protocols
- 14:00are continuously changing
- 14:02because the science is changing
- 14:04and we know so much more almost every year
- 14:07we learn more from science and research
- 14:09there's better testing better evaluations
- 14:12and so our our procedures in the way we react to
- 14:16whether it's concussion or
- 14:18you know traumatic brain injury
- 14:20something that has happened
- 14:21we can address it differently now
- 14:23yeah that makes a lot of sense
- 14:24and I know when I was a kid
- 14:26you know the football players would get concussions
- 14:28and we would always just like oh
- 14:29he's got a concussion this week
- 14:30or this one's got another one
- 14:31and it was very talked about like someone's
- 14:34like a badge of honor wasn't it
- 14:35yeah and like I got another one
- 14:37like it's not a big deal my son just turned thirteen
- 14:42and he was playing volleyball with a friend
- 14:44and they collided
- 14:45and her front teeth actually broke on his forehead
- 14:49we took him to the er
- 14:51cause we thought he might need stitches
- 14:53and he didn't he just needed a little bit of glue
- 14:55but the first thing they did was a concussion test
- 14:58and I you know
- 15:00as the mom who brought him to the hospital was like oh
- 15:03I didn't even think concussion
- 15:05I went straight to stitches
- 15:07but I was so glad that we brought him in
- 15:09to have the stitches looked at
- 15:11because it didn't even occur to me concussion
- 15:14and luckily he didn't have one
- 15:15but
- 15:15I was so thankful that they knew to check him for it
- 15:19because that was not even on my radar right
- 15:22there's so many different ways that concussion can
- 15:25happen that we don't always think about
- 15:27I wanna mention for your audience
- 15:29something that
- 15:30we didn't really know about until last fall
- 15:33but I find it incredibly frightening
- 15:36and really astounding
- 15:37and it's something that people are doing
- 15:40mostly we see it in videos on social media
- 15:43and it's called power slapping
- 15:45oh yeah yeah
- 15:48I'd never heard of it so
- 15:49we started looking at these videos
- 15:51and it's basically two individuals who are doing this
- 15:56like a sports championship right there
- 15:58they stand up and they are face to face with each other
- 16:02and they take swings at each other
- 16:06and they're basically
- 16:07trying to knock the other one down
- 16:09so not like in professional wrestling or boxing
- 16:14where there's headgear that it's worn
- 16:16they're just
- 16:18purposefully trying to knock the other one out
- 16:21in the head
- 16:23and I I really struggle with this fact that in 2025
- 16:27when we know so much better
- 16:30and we know how dangerous a concussion can be
- 16:35why would we do that I
- 16:36I mean
- 16:36it's perhaps not so different from domestic violence
- 16:40where we also know that many people are
- 16:43injured in the head particularly women
- 16:45and they show up often in the er
- 16:48or in their doctor's office
- 16:50and that too can be severe concussion
- 16:53that can lead to lifelong brain injury
- 16:58that's shocking yes
- 16:59like it is like
- 17:01we all should be incredibly shocked by something like
- 17:04that that it is purposefully done
- 17:07it's a game
- 17:09and when we saw that we're like
- 17:11oh my God how
- 17:13how can people do that I have no idea that's ridiculous
- 17:18wow alright guys
- 17:20don't slap each other please
- 17:22we won't I promise you that
- 17:23yeah
- 17:25wow that's that's crazy
- 17:30so you know
- 17:31brain injury is something that can present
- 17:33in different ways whether it's through a stroke
- 17:36heart failure heart attack
- 17:38power slapping of all
- 17:42car accidents
- 17:44bumping your head on a beam
- 17:47it happens in a multitude of ways
- 17:50every single day every single day
- 17:54somebody else is diagnosed
- 17:55I mean honestly
- 17:56it's like every 30 seconds
- 17:58somebody is diagnosed with a brain injury
- 18:01and we have a lot of work to do to change that
- 18:05for the better we hope
- 18:07um through prevention
- 18:09through a lot of education
- 18:10through research
- 18:11which hopefully will lead to more testing
- 18:14and through better protocols
- 18:16of understanding what to do
- 18:18when a brain injury actually happens
- 18:20whether it's a child in school
- 18:23and the school needs to intervene
- 18:25or it's somebody who it happens to at work
- 18:28and you know
- 18:29we hope that whoever is in that same office
- 18:32or workplace can help
- 18:34we hope that people who are doing manual labor
- 18:36like the incredible people you see
- 18:38fixing our lights in our roads
- 18:40and they wear helmets all the time
- 18:42not that we all need to walk around with a helmet
- 18:44but if you're working around
- 18:46you know heavy materials our veterans
- 18:49of course we serve veterans as well
- 18:51we partner alongside the VA
- 18:53and supporting
- 18:54all of our veterans in Northern Virginia
- 18:56who need maybe beyond
- 18:58but the VA can
- 19:00can supply for them or in addition to
- 19:03you know right alongside with them
- 19:04but so many of them have of course
- 19:07experience TBI and we're here for them as well
- 19:10to help them get their lives back together
- 19:13so you know
- 19:14we'd like to eventually not be in business anymore
- 19:16because nobody has a brain injury
- 19:19but that's not the reality
- 19:21so same here
- 19:22we'd also like to be out of business
- 19:24of course yeah
- 19:24of course yeah
- 19:25we all would right
- 19:27if only we didn't have to
- 19:28you know support whatever illness
- 19:31injury disability occurs because it just didn't happen
- 19:34but it's a real part of our lives
- 19:36and we're happy to be here
- 19:37supporting individuals and their families through this
- 19:41well I'm very glad that you are here
- 20:14so one other thing that I did wanna ask you about
- 20:17that Claire and I had talked about
- 20:18was that sometimes
- 20:19chemo can be classified as a brain injury
- 20:23and I have never heard that
- 20:24now ocular melanoma chemo is not widely used
- 20:28but some of our patients also have other cancers
- 20:31or reasons that they do have chemo
- 20:33so for someone who's going through chemo
- 20:37what does that look like
- 20:38and are there any things that they should know
- 20:42the term that I often hear used
- 20:44and people have mixed feelings about it
- 20:47is called chemo brain which the chemotherapy
- 20:50of course is a chemical that affects the brain
- 20:53and damages the brain
- 20:55while someone is going through chemotherapy
- 20:57and the end result is that
- 20:59there's some damage done there
- 21:01and it can also alter their
- 21:05well can alter a lot of their ability to process
- 21:09it can alter their cognition
- 21:11they may be fatigued a lot quicker than they used to be
- 21:14and not have a lot of energy
- 21:16and a lot of people think oh
- 21:17that's the cancer that made me this way
- 21:19but oftentimes it is the chemotherapy
- 21:22that has affected their brain in such a way
- 21:25where they're moving a lot slower
- 21:27they're processing a lot slower
- 21:28they may have more headaches
- 21:29more dizziness more fatigue
- 21:31it might even change them emotionally
- 21:34they may be more angry in some ways
- 21:36because of the way it affected the brain
- 21:38and we always say that no two brains are alike so
- 21:42no two brain injuries are alike so
- 21:44for everybody
- 21:45it's going to look different and be different
- 21:47and their journey is going to be different
- 21:49I wonder
- 21:50if this is something that just needs more research
- 21:53we work with the Virginia state legislature
- 21:56and we also go to Capitol Hill
- 21:57and we talk about the importance of research
- 22:00on brain injuries their causes and repercussion
- 22:04so you know
- 22:05I think this is an area that
- 22:07definitely is in need of more study
- 22:09I think you know Claire
- 22:11you're right
- 22:11there's a lot of people that do talk about this chemo
- 22:14brain thing kind of maybe similar to
- 22:17you know
- 22:18so many of the things that were coming out during Covid
- 22:20when we were all dealing with new impacts of disease
- 22:25that we just don't really understand yet
- 22:27and know everything about
- 22:28so that is something that I
- 22:30I hope might be somewhere in
- 22:32in the research down the lines
- 22:34that we can understand what
- 22:37the chemo drugs are actually doing to people's brains
- 22:41yeah that's fascinating
- 22:42so if
- 22:43you were gonna talk to
- 22:45a population that had been through chemo
- 22:47are there any things that you would tell them
- 22:49to look for and maybe seek out services like yours
- 22:52if they were feeling certain things
- 22:54or noticing symptoms how do we get our best healthcare
- 22:57so when we speak up right
- 22:59right so I think if somebody is
- 23:03has experienced chemotherapy and is struggling
- 23:07and is feeling continued effects of that
- 23:12and maybe it's impacting their vision
- 23:14it's impacting their headaches
- 23:15it's don't just blow it off as oh
- 23:19it's just part of the recovery from my cancer
- 23:24keep pursuing this with your doctor
- 23:27and ask the question
- 23:29could there be something going on in my brain
- 23:32should I see a neurologist
- 23:34should I talk to people in the brain injury community
- 23:37the answer should be yes absolutely
- 23:40and I think that a lot of the time patients
- 23:44when they're on these cancer journeys
- 23:46they don't just have one doctor
- 23:48they have a team of doctors who have your primary
- 23:50your oncologist your
- 23:52you know XYZ
- 23:54the list goes on
- 23:55and on and so to add in a brain specialist
- 23:58it might be a good idea when you're building that team
- 24:01to have somebody to just kind of
- 24:03check in and make sure like everything is going okay
- 24:06and if it's not going okay
- 24:08having that recognized
- 24:11is going to help you get the proper treatment
- 24:13and then is there anything that like
- 24:16say after you got the right treatment for that
- 24:18are there any classifications that would maybe
- 24:20help you to acquire the right services
- 24:24or anything along those lines
- 24:27there could be right
- 24:28but we just don't know that yet
- 24:31I think what what the research could provide
- 24:35is a better understanding of
- 24:37are there particular markers for chemo
- 24:42leading to brain issues
- 24:44and what are those particular brain issues
- 24:48if those markers are seen
- 24:50or we're seeing you know
- 24:51in the scientific research world
- 24:53that they have to look at a certain number of people
- 24:57kind of
- 24:57presenting with the same or similar things to really um
- 25:00be able to study it well
- 25:02and then make those kinds of determinations
- 25:04but I think what we'd be looking for is
- 25:06how many people are impacted
- 25:08and is it the same drug that's being
- 25:10is it different drugs that are being used
- 25:12is it length of a particular drug
- 25:15is it a particular type of cancer
- 25:17you know
- 25:17there are so many variables that have to be examined
- 25:21before I think
- 25:22that they can have any consensus that there's
- 25:26brain injury because of chemo drugs
- 25:30I personally just don't know enough about that
- 25:32how many different drugs there are how
- 25:34how it might be metabolized by the individual
- 25:39and what else might be happening within the body
- 25:41and the brain that leads to those effects
- 25:44I it sounds fascinating
- 25:46maybe I think I've always been a researcher
- 25:48epidemiologist wanna be um
- 25:51but that's not my thing
- 25:53so I I can't really go deeper into that
- 25:55because I just don't have that knowledge
- 25:57but I'm fascinated by this
- 25:59and I do think it's worth a lot of study
- 26:01I'd love to see the NIH and the CDC and other um
- 26:06you know national researchers working on this
- 26:09because there could be some incredible outcomes
- 26:13and maybe a lot of help and support for those who
- 26:16I imagine must feel so frustrated
- 26:20there's nothing worse than knowing
- 26:22something's wrong with your body
- 26:25and nobody's listening to you right
- 26:27it's kind of like we're among women menopause right
- 26:31for how many decades do people just brush that off
- 26:34and now we know so much more
- 26:36there are very real changes happening in the body
- 26:39and the brain and the more research we know
- 26:42the closer we can come to having
- 26:45whether it's a cure
- 26:46or protocols or medications or therapies
- 26:49or whatever it might be to help
- 26:52going back to
- 26:53how could we help those particular clients who
- 26:56who do feel like they have chemo brain and issues
- 27:00as long as they
- 27:00have a diagnosis from their medical provider that says
- 27:04you have brain injury we can help them
- 27:07but I imagine a lot of them don't have that diagnosis
- 27:10because that's hard to pinpoint from chemotherapy
- 27:13at this point but
- 27:14I think it's great that we're aware that it is a thing
- 27:18because now going forward
- 27:20if enough patients go to their doctor and say hey
- 27:22I think I have this maybe then
- 27:24we could get the funding
- 27:25and the research to figure it out
- 27:28and then if they did get the diagnosis
- 27:29maybe they would be eligible for more services programs
- 27:33medications whatever it may be
- 27:36I couldn't agree more right
- 27:38advocacy is how it's all done
- 27:40it's how
- 27:41we've been working to get the funding that we need
- 27:44or other support that we need to serve our clients
- 27:47but in any situation it is always when you advocate
- 27:51when you talk when you tell your story over and over
- 27:55to people who will listen
- 27:57to the people who are in the power chair
- 28:01you know that place where they can make a difference
- 28:05where they can allot funding
- 28:06where they can look at a new research
- 28:08you know talk to your local universities
- 28:10talk to researchers you may know
- 28:13talk to your own doctor and tell them over and over
- 28:17that this is important to you
- 28:19that you know
- 28:20something's not right about you or your friend
- 28:22or your sister or whoever it is
- 28:25always tell the story
- 28:27because that's how we can create change
- 28:29I couldn't agree more that was so well said
- 28:32tell us where people can find you
- 28:34you can find us on the web at BrainInjurysvcs.org
- 28:43BrainInjurysvcs.org
- 28:47we have several different offices in Northern Virginia
- 28:50our main hub is in Fairfax near the Mosaic District
- 28:54if that is some place you're familiar with
- 28:58but we see clients all over the Northern Virginia
- 29:02territory
- 29:03we have an office in Leesburg for adult case management
- 29:07we have an office in Winchester
- 29:09we have two day programs
- 29:11one is here in our Fairfax location
- 29:13and one is in Fredericksburg
- 29:15so we really cover a lot of territory
- 29:18so if you think we can be of help to you
- 29:22please reach out you can call us at 7 0 3 4
- 29:275 1
- 29:278 8
- 29:288 1
- 29:29and we will take your call
- 29:31we will direct you to where you need to be
- 29:34and we'd love to see you come in
- 29:36and if you're somebody who
- 29:37may not be somebody with a brain injury
- 29:39but you're interested in who we are and what we do
- 29:42if you wanna see our day programs
- 29:45you want to see what it's like
- 29:46you want to know more about what we're doing
- 29:48we welcome you to come visit us as well
- 29:50fantastic
- 29:51and we will link all of that in the show notes
- 29:54so if you want to find their website
- 29:55and their phone number just pop over to the show notes
- 29:57and you can grab it there
- 29:58ladies this has been wonderful
- 30:00I've learned so much
- 30:01and I really just appreciate your time
- 30:04and all of the expertise that you've shared with us
- 30:07well thank you so much Megan
- 30:08it's been a pleasure
- 30:10and we're always happy to share information
- 30:13because a lot of people don't know about us
- 30:15and we also would like your viewers to know that
- 30:19if you're not in our territory
- 30:21but you're in Virginia there are
- 30:24similar programs
- 30:25throughout the Commonwealth of Virginia
- 30:27so if you don't know how to find them
- 30:29find us we'll direct you where to go
- 30:32if you are not in Virginia
- 30:33there are similar programs in some states
- 30:36or you can connect through your
- 30:38brain injury association
- 30:40there's a Brain Injury Association of America
- 30:43BIAUSA.org
- 30:46and each state has their own brain injury association
- 30:50so for us here in Virginia
- 30:51it's the Brain Injury Association of Virginia
- 30:54BIAV
- 30:55but they're also a great resource
- 30:57and they can
- 30:58point you back to an organization like ours
- 31:01or find you what you need in your state
- 31:04well thank you
- 31:05ladies and thank you to our sponsors
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- 31:40we couldn't do any of this without all of you
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- 31:52thank you so much Megan