Latest / Living with Parkinson’s | Bryce Perry / 5 Real Parkinson’s Questions From My Community (Part 2)

Transcript

5 Real Parkinson’s Questions From My Community (Part 2) · Living with Parkinson’s | Bryce Perry

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  Have you ever wondered what the most embarrassing Parkinson's
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  question someone has ever asked me?
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  Or maybe how I handle those little awkward moments that no
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  doctor ever warned me about? Well, today we're diving back in
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  with Part 2 of your questions. My answers?
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  And these are straight from the community.
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  And if you saw Part 1, you know we keep it real here.
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  So stick around to the end, because I've got a Bryce ISM
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  that is equal parts funny and true.
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  Welcome to Living with Parkinson's, The Good, the Bad,
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  and the Reality. Real talk, real life, real
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  community with Bryce Perry. Let's begin.
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  Well, welcome back to Living with Parkinson's, The good, the
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  bad, the reality. I'm Bryce, and this channel is
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  all about providing strength, hope, and support to individuals
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  living with Parkinson's and their caregivers.
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  I share motivational stories, tips, and insights to help
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  navigate life with Parkinson's. So if you're looking for this
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  type of content, make sure you subscribe because today's
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  program is your questions, my answers Part 2.
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  And if you miss Part 1, make sure you go and watch it first
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  because it there's kind of leads into this because I am going to
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  tell you one right off the bat here and this one came from at
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  game Sergeant 333333333. Do you ever forget words mid
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  sentence? The answer to that is you catch
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  it anyway. Yes, of course I do.
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  I do it all the time. In fact, sometimes I forget
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  words mid video, which makes editing very fun.
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  But I've decided not even to edit them out.
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  So if you're a a regular, you'll know there's a lot of times I
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  kind of lose it mid sense. I even forget the name of the
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  podcast sometimes. But you know, one time I was
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  telling Carmen a story and I forgot the word ladder, right?
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  So I'm standing there, you know, the tall climbing thing that
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  steps that aren't stairs, but you climb whatever.
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  And she looked at me and said, like, you mean the ladder?
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  And I'm like, of course, you know, we both cracked up because
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  what helps me is slowing down and sometimes even just laughing
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  at myself because you know what, Everyone forgets words.
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  Parkinson's just makes it happen to me more often, right?
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  Everybody does it. Everybody forgets it.
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  But with Parkinson's, it happens a heck of a lot more.
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  And a lot of times again, I just, I, when I slow it down, I
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  actually stop talking like I literally like, and I start my
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  sentence again. And I do that in, in real life,
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  in real time. And, you know, those around me
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  get it. And if they don't get it, then I
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  don't care. You know, it's the, they're the,
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  they're the ones who I hope I forget their name, right.
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  But anyway, as always, I'll give you a bright season for that one
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  with Parkinson's when the words disappear, laughter is the best
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  dictionary. All right, Next up, this one is
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  from Ronald P72. And the question is, do you
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  still drive? And I thank you for your
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  question, Ronald. And that's a tough one because,
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  you know, it's a real tough one. Yes, I still drive, but more
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  carefully than I used to. You know, I avoid night driving
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  and I'm more aware of fatigue now.
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  For me, the best shift has been in confidence.
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  I've had to ask myself honestly, am I safe or am I being
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  stubborn? OK, and here's the truth.
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  Giving up driving one day, it's going to be hard, extremely
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  hard. I know it, I already know it.
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  But giving up safety is harder. You know, I'm not trying to live
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  life to the fullest and I'm not trying to to beat this
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  Parkinson's thing everyday just to get in a car accident, lose
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  my life. So safety first.
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  My tip is is to keep having open conversations with the doctor
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  and maybe even go for a driving assessment.
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  It's not about losing independence.
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  It's about protecting yourself and the people around you.
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  And Donald, here's that price ISM for this question for you.
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  The with Parkinson's, the hardest part isn't losing the
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  keys. It's finding the courage to know
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  when it's time to lose them. Wow, that one, that one hits
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  hard. That one, that one hits hard.
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  OK, moving on. This one cracked me up.
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  Right. This one just absolutely cracked
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  me up. This is from Linda G89 who asked
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  this. Have you ever tried to multitask
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  and completely failed? Linda?
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  Do you mean like every single day?
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  Because Parkinson's and multitasking are like oil and
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  water. You know, one time I tried to
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  carry a coffee talk on the phone and open the door at the same
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  time. The end result?
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  Phone on the floor, coffee on my shirt and me stuck in the
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  doorway. You know, I've learned to do one
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  thing at a time. And if people don't like that,
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  well then they're welcome to come and clean my kitchen floor
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  and do my laundry and clean my shirt because that's the way it
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  is. So slow down one at a time.
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  You know you can't multitask, so don't even try.
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  It'd just be frustrating. So instead, break your break
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  everything just into one part movements and do one part at a
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  time. And of course, I have Bryce's
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  for that. With Parkinson's, multitasking
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  turns into multi messing. With Parkinson's multitasking
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  turns into multi messing. I like that one.
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  I really actually really like that one.
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  OK, here's 1 here and this one is from Janus.
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  R74 and Janice asked, what's the most embarrassing Parkinson's
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  moment you've had so far? That is a really good one,
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  Janet, because there's been many, there's been a lot.
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  There's been some that, you know, I can laugh at them now,
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  but at the time they weren't funny and they weren't ones I
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  want even want to talk about. As a matter of fact, there'd be
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  a time not that long ago when someone would ask me this
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  question and I'd be like it almost.
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  I'd be like kind of, I'd get frustrated on the inside because
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  I try not to. I don't want to remember those
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  times. I don't want to be remember
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  being embarrassed. But, you know, sometimes if you
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  face reality and you face it head on, it makes it feel so
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  much better and it makes it go a heck of a lot faster.
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  Right? So, OK, let's think about this,
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  Janice. For me, it was when I froze.
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  I think it was when I froze in the middle of this crowded mall.
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  I don't know if I told the story or not, but I couldn't move.
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  People were walking around me, you know, some were giving me
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  side eyes. Everybody was staring.
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  I was literally and you know, when you freeze, if you're
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  you've been there and if you've been in this in a position, if
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  you freeze, just put freeze, put freeze in the comments for me,
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  freeze. So I know I'm not alone, but I
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  was standing there frozen. My brain and my head are going,
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  come on, Bryce, let's go, come on, feet, let's go, come on
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  legs, let's move, come on, let's go.
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  And for me, the way I get out of a freeze is I actually need
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  someone to prompt me. I need someone to push me, pull
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  me, move my leg, move my foot. It's like when my legs decide
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  they, oh, that's what we're doing now.
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  OK, great. And we start moving again.
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  And that's what my brains like. Oh, come on legs.
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  But anyway, so people were were walking around me and I could
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  feel them starting at me. What is this guy doing?
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  Just sort of like like being a statue, right?
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  And I, I know I was in their way.
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  And the worst part though, you thought, I thought that was the
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  worst part. The worst part is I heard this
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  kid, this little kid was with his mom and and he reached over
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  and he kind of like yanked on his mom's like sweater, like
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  their arm of a sweater. And and he said, why is that man
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  standing like a statue? He looks weird.
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  And that really stung. I have to admit that was that
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  was tough. But here's the thing that I
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  learned that embarrassment only has power if I let it.
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  And now when something like that happens, I try to make a joke.
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  Sorry, folks, you know, I just buffering like a bad Wi-Fi
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  connection. And most of the time people
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  laugh and take the edge off. I think some people think I'm
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  out of my mind and probably out of, you know, doing something I
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  shouldn't be doing, maybe smoking something or drinking
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  something I shouldn't. But most of the time they laugh
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  and that's OK. That's OK with me.
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  And here's a, here's a parkinism, not just for you, but
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  for everyone about everything. Parkinson's OK with Parkin, with
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  Parkinson's, embarrassment is, is inevitable.
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  Owning it is optional. Take that one and put it in your
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  pipe. And that's a wrap for Part 2.
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  You know, I really hope you enjoyed the Q&A series.
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  And if your question didn't make it this time, don't worry.
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  We'll be back with another one next month, but leave your
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  questions in the comments. You know, I read and respond to
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  every single comment and maybe I will be saying your name in the
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  next episode. And don't forget to subscribe
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  and share this with someone who might need it.
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  And as always, I'm Bryce and you want you to keep doing life.
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  I want you to do it today. I love you guys.
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  Thank you. Keep the comments coming.
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  Keep the questions coming. I'm here for you.
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  Thank you.