Eight Years of Searching: A Determined Family’s Quest to Cure an Ultra-Rare CLCN6 Mutation with Kristin & Paul Purdy
Links & Resources:
Follow Their Journey on Social Media
Facebook: Paxtons Pioneers
Instagram: Paxtons_Pioneers
KCAL News Story
Watch the in-depth feature on their family’s advocacy here: KCAL Rare Disease Coverage
The skinny
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