Latest / Aspergers & Autism Podcast [The Aspie World] AuDHD / How YOU Create CHANGE For AUTISM

Transcript

How YOU Create CHANGE For AUTISM · Aspergers & Autism Podcast [The Aspie World] AuDHD

• 0:00
  Oh, how's it going? And so I'm done but I'm actually
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  known as my all my name is the ask me will ya go a t-shirt if
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  you don't wear your Merchants, what are you doing?
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  Basically I make an online content on autism ADHD OCD
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  dyslexia and advocate for it. Like just I don't know I do
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  bunch of something constant on all platforms.
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  I didn't contact with these two guys a lot and yeah my channels
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  on a couple of wards. We're going over a hundred
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  thousand strong on YouTube. Awesome.
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  So yeah, that's what I'm doing, and I'm glad to be here again
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  for this panel. Well, I would say yeah, well
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  simple answers the question is yes.
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  I do consider myself an Autism Advocate because advocate for
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  the understanding of autism in a certain way where people aren't
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  kind of you know uses kind of stereotypical idea of what
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  autism is in a not really understanding it.
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  So advocating for that change in that difference is good.
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  You know, we're making changes with things like summer in the
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  city and Vidcon having panels. There were kids can actually
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  come and listen to people talk about ADHD and autism and have a
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  place to go and listen to that Khan has been doing some stuff
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  as well. But you know you advocating for
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  I'm having a somewhere nice and quiet room for stuff like that.
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  And so I think sort of social necessity so say so yes, I would
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  consider myself an advocate. But at the same time I'm a
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  content creator and I think it just falls into that category of
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  just because you're making awareness and you're making like
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  fun content. We will kind of engage with
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  autism in a different way. You automatically become another
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  girl. I don't know if that's like if
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  you guys would agree with that but that's what I feel the most
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  kind of things happen. It all helps promote the cause
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  of it. So I think what's the definition
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  of advocate? Funny thing about that though is
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  that if you think a lot like the national autistic Society for
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  instance, they're headed the you know, the CEO of all the top
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  person. There isn't a person is on the
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  Spectrum and it's not advocating for autism.
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  So it doesn't really mean that like because you don't have a
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  condition that you can't you know support and help that I
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  mean most Charities for like, you know looks Europe or Asia or
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  cancer and stuff. A lot of people don't have those
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  conditions without again because they want to help there's
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  nothing wrong with that where I'd like to say just like one
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  thing on this. Oh, but I see the real Advocates
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  of we look at Auto markets and I say is like full wholeheartedly
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  other parents who are living it day and night and trying their
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  best. Every single day I'm parents
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  going to loads of slot and an awesome Community, right because
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  everyone's like, oh, they don't understand the non-lead
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  condition baba, but it's the parents who live in that kind of
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  like every day and night doing that best like a tirelessly in
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  the parents need more most like salute splitting the two ideas
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  into this with like you have someone you're like a creator
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  advocating for autism Lord or a specific kind of disability or
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  ability to everyone felt and you have to split up to do things.
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  You know, you have to admit in you have to do something at your
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  job and you can also look at the work that you do.
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  I don't think we should cross the path of being like Oh, I'm
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  taking money from like, you know supporting lots and I don't
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  think it's something that it's like hey, I'm doing this work.
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  You should be paid for the work that you do because it's a lot
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  of hours we put in is ridiculous.
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  I mean, you know, I work like I don't think we should ridiculous
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  like what like 20 hours a day. Okay.
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  No, it's not realistic. Actually.
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  I probably do any sleep like five hours a day.
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  So I'm probably working 20 hours a day, but that you think we
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  should be compensated for the work that you do.
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  There's nothing wrong with that and everybody who works in like,
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  you know Charities is that they have a wage because they still
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  need to live you can't just do stuff for free because then
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  you'll just be a charity case yourself.
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  Only Connor. Kind of phoned me about the
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  phone as in former colonies, like you see Kevin's done.
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  Now. This is video sales.
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  It was a taxes that we do speak most days.
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  It was like I was like, what is it?
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  What is it and I was like, I expected something shocking but
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  on the country what Cameron was saying was that like because we
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  were talking about Autumn online right now and advocacy online
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  what online you have to grab attention away.
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  The attention is change happens and how you going to make change
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  on grabbing attention. And to me it's like how do I
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  grab people's attention? You have to grab them you have
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  like seconds. Literally I can Embark to catch
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  on to 10. Turn on the thumbnail want to
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  run the video that you have to show them nine seconds of
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  something that's going to really get them that attention so you
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  can then tell them the story and the story is the thing that's
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  going to change their life and change other people's lives.
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  And if you're not doing that then you're not too in my eyes.
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  You're not making a big impact on making a big change and I'm
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  all about that. I'm all about like, let's push
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  this button doesn't as make this big change and I think like what
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  Kevin is doing is Kevin was highlighting the issue and
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  making it that shock impact and people say like eh shoes and
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  it's going to make people click on it, but that's not really
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  exploiting somebody. That's actually just grabbing
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  that intentionally. Bailey building it's a good
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  quote was a good one. And I think it's a good thing to
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  highlight that you know, we do people explain stuff and I guess
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  yeah, there are some people who exploit things on the internet
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  where you can see it as a clear definition of exploitation and
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  just attention-grabbing unless what there's nothing wrong with
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  tension gravity. I think like to me though making
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  content as being on the Spectrum are making content for people on
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  the Spectrum. I feel like this is my rule II
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  don't see there's actually any that divide between way
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  audience. I feel like it's fluid.
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  So to me it's like, how can I be as open as possible?
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  Because also possible give people the direct Insight.
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  Okay, there's um things like I'm having like a crazy meltdown.
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  The last thing I was on line is let's grab a camera and film it.
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  So there's never anything like that, but that to me it's like,
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  how can I tell them like, how can I explain myself and it's
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  difficult to explain yourself emotionally.
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  So anytime I feel like oh I can explain this feeling like I've
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  trigger the camera recordings. I know that these people
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  watching it I'm gonna understand it.
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  But at the same time though, you have to be super careful that
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  you don't you don't want to make them feel like if they don't
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  experience that that they're not like you I think that's what
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  makes Videos by successful or make some kind of engaging this
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  because people can relate to it super and you don't have to do
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  too much to insulate. I just like yeah, they kind of
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  also dies from it a little bit but I try and bridge that bomb
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  techs are trying to educate people who are neurotypical and
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  give that kind of like liability kinds of people want to
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  question. I'm personally I think it's cool
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  people want to use a block as finally.
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  No, do you have whatever makes you comfortable to watch my
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  content on debt digestif ID, that's fine.
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  So I would say that YouTube my income from YouTube is only a
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  small percentage of my Revenue, you know, we as creators we
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  create revenues law offenses like patronage.
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  Advising and upsetting and other platforms on brand deals and
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  there's so many different ways. You can create Revenue so it
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  doesn't I don't think I'd want damages anybody financially, but
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  I do feel I do understand and I sympathize with those people I
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  say, okay, finally if it works and you can digest like contact
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  with ease do it like to it as much as you can I am I sad
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  accident really really simply I put a video on YouTube.
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  I have a problem. I like my first ever video is
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  going to YouTube channel. Look at last the first you have
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  Post-its terrible not even looking at the camera is on an
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  iPad bad way in bad sound and I just put this video because I
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  never saw any content. Into a special syndrome
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  specifically on YouTube. That was any good and I like I
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  said, I was good. I just wanted to add to it so
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  put on a limping about it and then I check the box seven
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  months later 10,000 people would subscribe to this thing.
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  I was like, oh shoot like I need to make, you know asking for
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  more videos. So I just started making more
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  videos and it kind of just snowballed from there.
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  It was never my intention. It's bizarre like it just when I
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  was I was doing other stuff inside of working different job
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  and was but it was weird it just kind of snowballed into that.
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  But now I realize that like, one of the things that I was doing
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  was putting fun content on the internet.
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  That was not Like it was fun upbeat content about something
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  that's normal procedures in the negative.
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  You know, how do I help my kid around adults and sweating and
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  that's how that's why I continue to do it.
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  Basically, you know, there's only been two really good time
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  to start a YouTube channel all was 2005, which is great with
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  all this and there's natural is right now, so if you want to
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  start a YouTube channel, you want to become an influencer.
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  If you have a message to share that you think is going to bring
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  value do it right now and just just don't think about it just
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  while they're start recording and don't worry about your first
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  50 videos because I'm always gonna be rubbish right or you
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  might be amazing and they're going to leave. 50 great videos
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  out. I envy people like that but just
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  do it and don't think about it too much because that's a bit
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  what we think it one thing. I will say those hard work is
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  directly proportional to success if you work your butt off, you
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  will be successful in anything you do not go to anything and I
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  swear down like that is it that's the secret recipe we want
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  any secret were at every single day.
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  No, I love the challenge. I love it.
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  Like if I feel like anything that's worth having should be
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  hard work, you know because like, you know, nobody got
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  anything for free there was ever worth having man.
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  So yeah, just just do it. I love it and what Love the
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  task, you know, I think like itself will self-realization is
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  something that we're all searching for all the time and
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  like knowing ourselves and that's south of knowing when I
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  was diagnosed at age 26 with Asperger syndrome.
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  I've had like other diagnosis before this like of all kinds of
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  stuff and it was like in the 90s I was a kid and nobody could
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  diagnose. What I lived in Wales was
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  ridiculous. But like having that when I was
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  26 years old like having that like, oh my goodness, that's
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  what it like that. It gives it gives kind of almost
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  like a self like realization and I think that was just-- golden
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  for me, too. Confidence motivational thing
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  which is incredible, but on a caller said on a like a societal
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  scale access to support and help you definitely need a formal
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  diagnosis. And I think that's Paramount.
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  Yes. I think you're absolutely right
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  and I think like self-realization.
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  No, but to me, it's like that knowing it's kind of like a
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  peace of mind. That's what were those are not
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  reason. Why because when you really
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  recently when greater thumb book was a jacket and a media
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  Evolution I'll read it was awesome, but not enjoy and
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  driving about any community that helps each other and I think
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  that's amazing select. That's what the answer was.
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  Two things really it's the first thing is that the academic
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  structure of schooling currently up to high school age hasn't
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  been changed for 100 years. It's not set up to accommodate
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  the liars and the abilities of children and today and the
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  difficulties we have today at the second thing is that essien
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  the problem of our Sienna itself is that they are not listening
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  to the feedback that they get from the kids.
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  They're kind of saying that actually they got off a
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  curriculum based set of rules and those rules are implemented
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  by doctors and psychiatrists and etc.
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  Etc. But then All the people taking
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  the feedback directly from the people who have the conditions.
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  So what they are saying Community co-op on academic
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  skill is flipped out take that the data that they're receiving
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  from doing these things and rather than force them into this
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  box that the scn of said this is the standard they have to follow
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  these checkboxes and and go get the case studies in the failed
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  and all your they failed this class, but they need to then
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  look at. Okay, what do they do and then
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  take that data and change how they do it and it has to be done
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  on an individual basis. It can't be standard.
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  You know, it's funny set up really really quickly when I was
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  in primary. A school in the 90s.
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  They didn't know anything about awesome stuff.
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  So when it's going to school just like couldn't go out
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  because the anxiety it locked me in the classroom.
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  I told him I don't know was a fire in the school.
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  Oh my God 90s was a crazy time, but honestly, like it's the I
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  think that essien needs to learn from the people from the
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  condition. I think that definitely has
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  changed. We have a lot of work to do.
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  I think we'll get there. Just advocacy helps awesome,
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  right? Okay, let's do it.