A Family Plagued with Rare Genetic Disease, Adrenoleukodystrophy with Diane Kane
A Family Plagued with Rare Genetic Disease, Adrenoleukodystrophy with Diane Kane
If you haven’t listened to Episode 38, Rare Like Us with Taylor Kane, go back and listen to that episode here. Taylor Kane's mom, Diane Kane, had two toddlers when her husband was suddenly diagnosed with a rare disorder called Adrenoleukodystrophy (ALD). I'm in awe of her strength, grit and grace as a caregiver to her husband John, all while being a new mom, working and preparing for all the ways ALD would disrupt her family and change it forever.
EPISODE HIGHLIGHTS
What is ALD and what are the symptoms?
What…
The skinny
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