A Rare Collection - Schools Out for the Summer
ONCE UPON A GENE - EPISODE 196
A Rare Collection - School’s Out for the Summer
There's power in storytelling- for the listener and the storyteller. A Rare Collection is a monthly series featuring people from the rare disease community, sharing a story with a common theme.
EPISODE HIGHLIGHTS
Karen Pratt
When school lets out for the summer, it's stressful and I have to prepare in advance because I depend on school care for my sons so I can work. I recently received a call that my son Jack would be getting a nurse. Unfortunately, we have been through several nurses who weren't well suited for my…
The skinny
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