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Jesy’s Twins Fight Heatwave and Injustice | Leeds News
Jesy Nelson is fighting for her twin daughters Story and Ocean as they battle extreme heat while wearing life-saving spinal jackets and splints for their spinal muscular atrophy. Diagnosed in January 2026, the girls likely won’t walk — but Jesy’s rallying cry is for universal newborn screening, ideally via heel prick test at birth, to prevent future families from enduring this pain. Despite overwhelming public support and a heartwarming milestone — one daughter sitting up independently — Jesy left a parliamentary debate fuming, frustrated that only 72% of the country will get access to…
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