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Skyclarys Funding Delay Sparks Urgent Call | Cork News
Patients with rare disease Friedreich’s Ataxia are in urgent need of Skyclarys, a drug already approved and available in other EU countries — but Ireland’s HSE has stalled, citing cost and clinical concerns. Sinn Féin leader Mary Lou McDonald is demanding transparency and action from Taoiseach Micheál Martin, urging a swift decision and exploring all options to ensure patients don’t wait any longer. With families devastated by the delay and a final HSE decision looming, the pressure is mounting for clarity and compassion. Listen in comfort:Get a discount on a Soli Pillow…
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