Latest / DA CREW Podcast / SEASON 2 DA CREW PODCAST_EPISODE _58 _ HOST BLAQUE DIAMOND

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SEASON 2 DA CREW PODCAST_EPISODE _58 _ HOST BLAQUE DIAMOND · DA CREW Podcast

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Oh, nursing person all things and what they used to be? Where all
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the Blue Sky's Boys Blue from the North somethings wha persons? All things and
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what they used to No, Wait, Dallas, what work A A L
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A c. The Chanse of Your Dream Book Tour in Expo is coming to
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your area. Mark your calendars May eighteen eleven a m. To three pm,
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Central Standard Town. We have some amazing authors, some amazing business its
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to be educated and power in in churge, come out support. Hey Hongy
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and welcome to another episode of that Proof Hey Hongray and welcome, Hey Hongya,
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stories in the most meaningful and impactful ways. We look forward to putting you
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on the path to writing your book. Basic Black after Dawn dhar Lou podcast
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show with your host Black Diamond. Everybody, this is Black Diamond from the
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Crew Network and you're listening to Basic Black Affter Dog podcast. Should that meets
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you where you are and gives you what you ask for. Tonight's topic it
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holds near and dear to my heart. We are here with a panel discussing
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HIV and AIDS. The roots of HIV and AIDS stigma, liing, fear
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of misconceptions, outdated beliefs, and lack of information contributed to negative values,
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discrimination and judgments about people living with HIV and AIDS to combat stigma. It's
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essential to talk openly about HIV, correct misconceptions, and lead with supportive behaviors.
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My guests tonight are gone above and beyond their call of duty. Please
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welcome Sharon jones, Cha, Trevia Kennedy, and Carla Sipio to Basic Black
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After Dark. Ah Ladies, Welcome, Welcome, Welcome. Now Sharon may
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be joining us a little later, but we still have these beautiful young ladies
4:56
that's going to be here and it's going to give us a pleasor of information.
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During the introduction of tonight's topic, I mentioned human immunal deficiency virus,
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which is HIV and acquired immunal deficiency syndrome AIDS call it. What's the difference
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between the two. Well, HIVS is the actually the virus. The virus
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causes and you will say acquired actually causes the disease. If it's not well,
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I can't say the disease, but the infection, if it's not treated,
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if they don't take the medications to fight the virus, your body,
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your immunological system shuts down and the virus takes over. And I've heard some
5:48
people this was back in the day when I guess it was in the early
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nineties. Some people say, oh, this person got full blown AIGs.
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What is full blown age? You have HIV or you have AIDS. What
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is food blown foot blown AIDS is the fact that your body doesn't have the
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ability to fight anything, to fight the virus, things that you and I
6:14
were, the common cold, any anything that, any infection, the body
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doesn't have the ability to fight it. So when they say full blown AIDS,
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that's what they mean, that your whole immunological system is shut down and
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you can't fight and you can have She knows because she's a nurse, so
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she definitely knows what's talking about. Trachiva is also a specialist with this.
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She has a lot of experience with it as well. What I what I
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am confused about is how people go about talking about it. How can you
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tell if someone has HIV? What are some of the symptoms? You can't
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You cannot look at somebody and tell that they have HIV. I tell people
7:12
that HIV has no face. What you would have to do is be tested
7:17
for the virus and that will let you know if that paston, that person
7:23
has the HIV or not. Now it depends if that person has been exposed
7:27
less than three months, because sometimes it takes up the three months before the
7:30
virus shows up and it can be detected in the blood. Now what I've
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seen on television, I guess it's because it's television. You would see people
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where they you said, you can't tell in the person's face. But I
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was watching a show Gray's Anatomy where the young man was they was saying that
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he was saying he didn't have the virus, and that was new because they
7:56
were doing a BackFlash of the show. And then he came back maybe less
8:00
than a year later, and his face was different than you. So it's
8:03
bluish in his face, and his face was I would say, one,
8:07
I don't want to say something that I would say it was warn and we
8:11
already knew just by watching the show that they were telling the truth that this
8:15
is what he had. But sometimes you see people that has this bluishness in
8:20
their face, and some people are saying, oh, they don't have HIV,
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they got AIDS because of the way that they may look. It's more
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of it's drawn in that. That's what I've been hearing and seeing a lot.
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So you want to answer to tea and you want me to answer.
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It's fun too. By the way, I'm just listening. Sometimes I still
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be going to learn. You know, I don't know everything right, but
8:48
we both can asked the question. I don't like those shows I was watching
8:54
to Be to Be and they had some guy they're supposed to have HIV don't
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have AIDS, and he had all this stuff on his face and he's coughing.
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Every time I see a show that have somebody with HIV or AIDS,
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I always get mad because what they do, what they perturning, is my
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true Do I look like I got HIV? No? I know some people
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that was diagnosed with AIDS, they didn't look like they had a's. It's
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not a look you can look like. How you're saying, how lately how
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people faces has been maybe have nothing to do with HIV or AIDS. Maybe
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they just losing weight, Maybe they got up some type of other infection that's
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making them look that way. It's just it's people. It's it's kind of
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weird to me that when something is going on where we're losing weight, were
9:41
starting to look different. That is the first thing that everybody want to say
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oh this person got a's they got HIV or you know they well I'm from
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Chicago and where y'all from. But they say they got the package. You
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know, they got the package. She got it, he got it?
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Like got what what is you talking about? You know? It's it's weird.
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It's no look, it's no look, it's no look right, you
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know. And like I said, again, HIV does not have a face.
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You can't tell by looking at anyone. You can't say for a fact
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certain that they have HIV. It can be anyone. And that's my that's
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my I'm sorry now, I was just gonna say. And when I when
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I talk about HIV, that's the first thing I say, especially as it
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relates to African American women m hm, or even African American men or anyone
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in particular. You can't tell what it looks like. It can be anybody.
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So what can help suppress the virus and reduced the risk of transmission?
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M hm? We both look. So I think more education. If we
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educate more people about HIV and AIDS, I think that's how we can get
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we can decrease the numbers. It will never stop, So we can decrease
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the numbers. And also too, when we say educate, not just educate
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the people that we think need to be educated, We need to educate everybody.
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People that's in long term relationships, people that have been married for twenty
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years, people that don't care about their husband had a baby two three years
11:31
ago and they stayed or why. You know, those those type of people
11:35
need to become educated because if they don't, it's just gonna keep it's gonna
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keep happening. I think to normalizing the education, normalizing testing where they would
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have to out out for testing. I feel we had to look at stigma.
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There are places certain places like the church does in this some most churches
12:00
that doesn't even talk about hid so my church doesn't. There's there's no,
12:07
no, nothing about HLVAN. You find some churches that go out of their
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way. It's difficult. I remember when I worked in our college health and
12:16
trying to get into the churches to do education and testing. You know,
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we all believe that nobody out there is having sex and they don't want to
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have the conversation, but we had to have We had to normalize the conversation.
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We had to make it normal. Hey, it's it's just part of
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every day living, and we got to talk about it. Well, I
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know there's one religion I can't speak about the whole thing, but I've been
12:43
a part of that religion for a while and they definitely don't talk about it
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at all. It's almost like it's taboo or you're a shamed or it's just
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that religion needs a lot of work. You know, they got other issues
12:56
going on, so they need a lot of work before they even try to
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tackle that. They need to work within and and that's what I feel about
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that. But they should talk about it in the churches. What about teen
13:07
mothers who say they want to breastfeed their babies. Is there a medication that
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they should take so they won't transmit it? Or should they not just breastfeed?
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We shouldn't. We don't encourage anyone that has the HIV to breastfeed.
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So it's important that we know the body fluids that's transmitted, and that comes
13:30
with education as well as we release the breast milk. That's one of the
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ways seamen vaginal fluids. Although you find minute portions in saliva and different things,
13:43
it's not enough to transmit the virus to someone else. What I forgot
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one? What I say steaming vaginal fluids, breast milk at one? More?
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What's what's the other? One? Blood? Blood? Right? You
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have some mothers that say, well, I had a baby, I have
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HIV or aide and the baby did not test positive. So that means that
14:07
the baby this is what they may say, that the baby didn't test positive
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and the baby came out of me. So why can't I breastfeed? I'm
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taking my medication, it's been nine months, my viral load is still where
14:20
it needs to be, and my baby came out negative. Why can't I
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breastfeed? When the mother is pregnant, the mother is on a drug regimen
14:33
that helps decrease the chances of baby acquiring HIV. Joins the during delivery and
14:39
when people don't realize it's that the mother and the baby's blood doesn't mix at
14:46
all. So, but the breast milk contains enough virus and the way she
14:50
can still transmit it. Even though your viral load red load is low or
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it's undetectable, you still have the virus. Wow. So a person living
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with HIV has a unique treatment journey, but there may come a time when
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their regimen is no longer working. Some of these circumstances may be in their
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power to control, while others are not. What types of regimen should they
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follow and what about exercising natural urbs? Well? For me, I've been
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taking the same medication for the last five years. I wasn't taking medication at
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first because I didn't need it. I've been positive for nineteen years also too.
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To go back on what you was talking about, I was pregnant when
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I found out I was HIV positive. Now months pregnant. My daughter's negative,
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and I had two kids after the other two kids, I'm negative too.
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I did everything I was supposed to do to make sure that they was
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a negative. They're fine. But I have not had any any complications with
15:54
my medicine. I take my medicine. I'm perfectly fine. Everybody's situation is
15:58
differ. Some people get on meds and it just don't work for them,
16:03
and they have to get on another mad and sometimes another one another one.
16:06
The most important part is to go to the doctor. You got to be
16:10
going to the doctor and have open communication with your doctor so that they can
16:15
know that this medicine is not working for you. A lot of people get
16:18
sick like you're sick, you're throwing up all types of stuff. But that
16:21
never been the case for me. But and then we talk about exercise.
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I think we all should exercise because that I'm HIV positive and you're not.
16:29
I think we all should have some type of routine that we do a healthier
16:33
lifestyle. We should eat from some vegetables, we should say walks. All
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of us should do that. Not just because you are HIV positive. It's
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like, I don't know what it seems like because people with HIV positive we
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put in a box, Oh, you should do this because you're HIV.
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No, we all should do this. We all should be doing these things
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so that we all could live a healthier lifestyle. I just wanted to pig
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well before we even get that, we need to go back to the regiment,
17:00
the medication regiment, when she said that sometimes the patients, sometimes the
17:07
medication doesn't work for every patient. And the thing he is consistently taking your
17:14
pills every day like you're supposed to some people, and you find a lot
17:18
of people that HIV positive also has to deal comes from the law, socioeconomic
17:26
status, so they we have to deal. And I'm just talking about the
17:30
patients that I see every day. We have to deal with some of the
17:33
barriers to care. But it's important that they maintain their drug regimen like you're
17:40
supposed to. And oftentimes the people who don't take their medications every day are
17:45
the ones who have an issue with the medication working. They may become resistant
17:51
to that medication and you have to put them on something else. Now be
17:55
in fact to the HIV. The HIV medication is really explensive. So those
18:00
are some of the things their programs out there to help with that. But
18:04
for exercises, everyone's most exercised, just like she said. But what we
18:10
have to be in mind, although the medication is making is helping to extend
18:15
the life of people in the HIV positive, it also affects the different organs
18:22
and then we have to deal with a lot of not only that you have
18:26
African Americans, the places we live, all of their place into how that
18:32
person takes care of themselves and how they live with HIV. So I'm saying
18:37
that to say that there are barriers to care, we have to look at
18:42
the chronic illnesses. Most of our patients have issues with weight obesity. They
18:48
also have issues with kidney problems, herd problems. I've had one of my
18:53
HIV patients had a heart attack. She was less than thirty. I deal
18:57
with a lot of them who are affected by the because of the medication affects
19:03
their organs. That makes it even harder for them. So when we talked
19:07
about the regiment not working, we got to look at the whole entire picture.
19:12
Wow. So some people who are for natural herbs, they think,
19:18
I guess that that's gonna work because they've been on a natural earth cake all
19:22
in life. But you know, they are quiet HIV or age and they
19:26
figured that natural urge will do it. Have you run into any of them,
19:33
any patients that said, well, you know life was taking some natural
19:34
urge first. Yeah. I run into them and they're usually we call them
19:42
debt walking because of that. They are viral loads, some viral loads extremely
19:48
high. They have issues as it relates to they deal with a lot of
19:59
crime diseases as well, and it doesn't work. Wow, that's that's my
20:08
opinion from what I've seen. I've heard people talk about their cures. I
20:15
haven't seen it. Yeah, well we're going to get to that in a
20:18
minute. On Friday, lessens to YouTube, Curtis and things for tuning in
20:22
HIV treatment has been helping people live longer held their lives by helping them lower
20:27
their viral loads. Of course, HIV medications is an important part of starting
20:32
treatment of HIV and AIDS and there are many medications on the market. Are
20:37
all of them FDA approved? They have to be moved from the market.
20:44
There's some of the old the older ones that they first started out because they
20:48
I mean when you have to take a ten twenty pills a day, the
20:52
older ones. They're making newer and newer, smaller pills with less side of
21:00
effects than the old ones, so they do do studies in research and remove
21:06
them out of the market. So there's some I'm not sure what medication you
21:11
are on the TUAT, but we have like vic Tarvi is one of the
21:17
new one medications that they're doing, the vito where there's a combinations of different
21:23
ai T which is introdcto virus. The medication actually fights the disease, so
21:33
they have to be they approved or at least any research. Have you had
21:41
any side effects from any of the medications m H no, I think I
21:45
take guitari. No side effects. I know years ago. When I started,
21:48
I was sick like a week. Other than that, I've been fine.
21:53
You had mentioned call about some people's taking twenty different medications. I remember
21:59
them when I was a pre and posed test counselor. They were saying that,
22:02
oh, those are cocktails, and they just made light of it and
22:04
coming into the clinic and getting them in the little cups and you know,
22:08
getting them. They was just mentioning that those was cocktails. But some people
22:12
are not taking as many medications because they just like you said, they found
22:18
other forms and ways of providing those to people, and a lot of them
22:25
are working. There was one time that they had mentioned that a certain celebrity
22:29
who had announced that that celebrity had HIV. They said that this person was
22:36
living so long because of the money, because this person had money. But
22:41
it's not because of the money, because that celebrity wasn't the only celebrity that
22:47
had HIV because they had money. But they passed away anyway from they said
22:52
other complications. So it's not the money that's keeping them a lot, it's
22:56
the medications and their viral loads and the things that's going along with that.
23:03
I guess we could look at it another way too, like not just the
23:06
money just because they have money, but it is because they have money because
23:10
like for me, I don't got money like that. My pills is thirty
23:12
five hundred dollars. So if I go on vacation and I don't take my
23:17
pills with me, that means three days I'm not taking my medication. But
23:19
if I got money and I'm a celebrity, I got pills where I go,
23:23
everywhere I go, because I can buy six bottles of pills every month
23:27
being each mentioned that I have. So it would be the money is the
23:30
reason why they have more medication than we would have. But other than that,
23:34
that's it and right and no access to the quality healthcare. They don't
23:40
have to come and sit down and go through and provide our information and documents
23:45
to prove that they need to get on the states and the state program.
23:48
They have access to whatever the money, the money pays for it. So
23:52
it does, it does, it does help. It does make a difference.
23:56
So you know, they cleared a lot of people, a lot of
23:59
things up because they said at the beginning, that's all we heard with this
24:00
person have the money. So that's why this is that happening, but you
24:04
you just cleared it up. So with the fact effect of treatments, most
24:07
people with HIV don't progress to AIDS if they follow the regiment as they're supposed
24:17
to. As it relates to taking your medication every day and going to visit
24:21
your doctors, you know, three to six months. Some people are afraid
24:26
to be tested at to go once a year, Yeah, and because they
24:30
probably knew that you will take your medication and doing what you were supposed to
24:33
do. Now, the ones that we see every three six months, we
24:38
had to mind, those are the ones that we monitor up closely. So
24:45
some people are afraid to be tested at a clinic and ought to take the
24:48
HIV in home testing. How accurate are the in home tests and should they
24:52
should they be tested at home? H You know, for me personally,
25:03
I feel like that's kind of like really iffy. Some people do well when
25:08
they some people do well when they they give the results, some people go
25:18
off when they get the results. Now depend on the how would I say
25:26
the complexity of the home test, because you can teach anyone how to do
25:32
a HIV test, It's it's not that difficult. Because that's what we do
25:37
we teach you know, any anyone? So it just depends. But if
25:42
that's a way of testing more people, I go with it. So some
25:49
of the some people get the test results back and then negative, should they
25:53
follow up anyway because that tests showed the negative? Should they just cond of
25:57
take their doctor pr PCP and let them know. Look, I took at
26:02
home HIV test. There had to be a reason why they felt as though
26:06
they needed to taking it, and it showed negative. I'm here to follow
26:10
up. Do you think they should follow up? Or I got a negative
26:12
test? So I'm good. So my question to them was when was the
26:18
last time you had unprotected sets? And if they told me that they had
26:22
unprotected sets a month ago, I will tell them that they will need to
26:26
check again into the three months. So are these such things as false positives?
26:34
Yeah? Anything this man made is not one hundred percent, So they
26:37
are false positives and they are false negatives as well. Wow, Yeah,
26:47
it's true, just like the pregnancy test false positives. So dealing with an
26:51
HIV diagnosis can be challenging to vida. How have you been handling your emotions?
26:57
Oh, I've been all over the place, all over the place,
27:02
in a positive way. Now it's been nineteen years old, i'dn't been hiding
27:07
low and had lower sometime in between. I'm in between right now. I'm
27:11
fine. But I always tell people I don't have an HIV problem, I
27:15
have a mental issue, because I've had more mental struggles than anything. I
27:22
was not seeking help. I was going through it all on my own.
27:26
And sometimes you go through things on your own, you really make things worse
27:29
for yourself, and you just talking to yourself. You know, we tell
27:33
ourselves more live than anybody can tell us, so it's just you versus you.
27:36
So I did that for a lot of years. That was bad.
27:40
That was bad for me. But I finally came around to the positive side
27:44
to being HIV positive and accepted it maybe about five years ago, accepting what
27:49
God said it was time for me to do, and it was to help
27:52
others with my pain. So that's how I turned the negative part to a
27:56
positive And that's that helps me mentally because I'm able to help someone else.
28:03
In twenty twenty, we went through the COVID nineteen pandemic and we showed the
28:07
effect of what the pandemic has done to our community. How did COVID impact
28:11
those living with HIV and AIDS. I was perfectly fine, just like anybody
28:17
else. What about those patients that came in the hospital, they were you
28:22
know, I think COVID in a way where a lot of people didn't have
28:26
access to testing or you know, getting out there and testing as much as
28:32
they used to. So I think that was an issue they up to now,
28:37
they still don't know how much of effect COVID had on it until they
28:42
get all the numbers and stuff, but it did impact testing. There was
28:49
treatment different for doing that diagnosed with HIV and AIDS than those who were not
28:53
infected with COVID. So, in other words, a person who had HIV
28:59
or had was living with HIV and a person who did not, was treatment
29:04
different for them if they both had COVID? Were they treated differently as far
29:08
as medication or was whatever medication was given what they recommended to have the shots
29:15
like everybody else, or were they told they should not have it because it
29:18
could affect maybe the viral little or maybe something else, or maybe the medication
29:22
they would take it. I said, from what my experience was that we
29:33
encouraged them to take the COVID tests. I mean not the COVID test was
29:37
actually the COVID vaccine, being that they know the immune system was already compromised.
29:45
So having a compromised the immune system and an infection, be it covid,
29:52
pneumonia or whatever, it makes it difficult for the body to fight the
29:56
infections. So what was it like for you as a nurse? For you
30:02
during that pandemic and you working in the clinic, you know, what was
30:06
it like knowing that we're in the middle of this pandemic and I I wanna
30:10
say thank you so much for your service and being one of those first responders
30:14
out there. You don't get a chance to see somebody who was a nurse
30:18
and really actually been there. The course, you just went through the process
30:22
of it being your job. But what was it like for you knowing that
30:26
you were working in the clinic with UH individuals who are living with HIV and
30:30
AIDS and we are in the middle of a pandemic something that we knew nothing
30:34
about. It just hit us out of nowhere. What was it like for
30:37
you? But first, I wanna say thank you for saying that. I
30:45
can't say it wasn't normal, cause the I think the people that were.
30:51
Actually, there was a lot of concern and anxiety because you wanted to make
30:56
sure you you your patience would come your f family, and you want to
31:00
make sure that your patients are okay. So you have to be concerns and
31:04
now we have to definitely mask up. They mask up and we have to
31:08
make sure that there's nothing else going on with them. So it was scary
31:15
for everyone, not just because of HIV, but even as a as a
31:22
nurse working and when you see that death told and you see people are dying
31:26
all over, you're concerned. And then not having enough ppe that was another
31:33
concern as well. Yeah, trivia trivia, what was it like for you
31:42
to tell your loved ones that you were First? I didn't want to tell
31:52
nobody first because my partner was like cold, I don't want to tell nobody.
31:59
But months and months started progressing and I was struggling so bad because I
32:04
had my baby. Was I think my baby was like six months at that
32:07
time. When I told my mother, I just going through so much and
32:10
I was trying to act like it hadn't happened and I needed help. So
32:15
I told my mother it was it wasn't nothing like I just told her like
32:21
I was in the winter. He was in the hospital, he stopped out,
32:22
you know, he had a's and I got HIV. She was like,
32:27
is the baby okay? And I'm like yeah. I actually had the
32:29
baby in my hand and I was current the baby, my baby, had
32:31
my baby in my arms, and she said is she okay? Me?
32:36
I said yeah, and she grabbed my baby and she was like, is
32:38
you okay? I'm like yeah. And we never had the conversation again.
32:43
She never asked me, was okay? Nothing. She just helped me with
32:46
my kids. And then she wound up going telling other people that I was
32:51
positive because she she needed to support. But I didn't mind it because I
32:54
really didn't care or whatever was. I was going through my own stuff.
32:58
But I took each family member. I have a small family, so everybody
33:01
knew because my mama told them, but I wanted to tell everybody personally.
33:05
So I went to each family member and I told them and the only thing
33:08
they asked was okay, and I said yeah. And we don't have a
33:10
conversation about it. And it's been nineteen years and me and my family we
33:14
don't talk HIV at all. Dang, Nope, we don't talk to HIV
33:19
all. They know by situation. They know I'm okay, so they don't
33:22
ask me. Eleven years I worked at in the hospital as a CNA and
33:28
my CNA family I call them my CNA family. They helped me. There
33:32
was a big support. I started telling my CNA buddies. Then I started
33:37
telling the nurses, and then the nurses like tell the doctors, and that
33:40
was just my support system. I've never had a problem with disclosing because everybody
33:46
always showed love. I never had nobody to treat me, no type of
33:52
way, so it's been an easy process for me. So how are you
33:55
feeling on a day to day basis? Are you in any pain? I
34:00
feel perfectly fine. I have HIV. HIV don't have me, so I
34:05
detach myself from you. I look like everybody else. I'm about drinking,
34:07
able to look up in the water. I'm fine. I ain't no no
34:10
pain nothing. I think the most pain I probably feel is trying to figure
34:15
out how I can help more people, how I can reach more people.
34:17
That's the pain that I have. Now I don't it's no it's no pain.
34:22
It's no pain. It's an acceptance. Once you accept that you are
34:25
HIV positive, the pain and the sadness goes away, and you try your
34:30
best to live normal, a normal lifestyle like everybody else. So I don't,
34:34
I don't, I don't have a think. So. HIV discrimination occurs
34:37
when people treat individuals living with HIV differently. For example, a healthcare professional
34:44
refusing to provide care or services to a person living with HIV, and like
34:47
I mentioned, I remember the episode on the grays Anatomy where they didn't want
34:52
to be bothered on these two people went in the room to go and help
34:54
them, and also refusing casual contact with someone living with HIV, moving away
35:00
from them, throwing away things they either touched or drink out of, socially
35:05
isolating a member of a community because they are HIV positive, And sometimes that's
35:09
the church, school, and sometimes in some cases there is family or people
35:15
using terms like hivs or positive verbs how they refer to people. Have you
35:21
heard of any other terms that they may have called anyone living with HIV,
35:30
heard the bug or something like that. That's what they were time I experienced
35:37
something at work before. We talked about this too earlier on about educating,
35:44
educating and normalizing the conversation about HIV. And that's how we can we can
35:47
get some type of understanding about what's actually going on because it's so so much
35:53
going on. That's not true when it comes to HIV. But I was.
35:57
I worked in hospital and you know, you do, you do your
36:00
report. So I was doing my report and the lady was the nurse,
36:04
was telling me, oh, the patience she has HIV. You know,
36:07
gown up, you know, put two gowns on, put to everything on.
36:09
I'm sitting there looking at her like why do I have to put two
36:12
of everything on? Why do I why do I need to do that?
36:15
And she was a nurse, so I was I was misunderstood, like she
36:19
a nurse, she should know better. But just because you a nurse,
36:21
that don't mean that you know, you know, you may not specialize in
36:23
HIV, so you just don't know. And after that me with me and
36:29
her talk, I always would touch her. I always would touch her because
36:31
it made me feel some type of way that she was seeing like they got
36:35
this, she got this, she got this, she got this. And
36:37
when she felt out I was HIV positive, she touched she was like,
36:38
I'm so sorry, I'm so sorry. I'm like, no, I'm good,
36:42
I'm good, but you gotta we have to watch the way we speak,
36:45
like when you when you think you with your peers, and we can
36:49
have we can have an open conversation and we can say inappropriate things like watch
36:52
yourself for her, she got HIV. Don't touch nothing, don't touch nothing.
36:57
I'm seeing there in your nurse and it's okay and it's not. That's
36:59
what I said. If we educate more people, we can normalize the conversation
37:04
because if you educated, you know how to say. You ain't saying all
37:07
they got that stuff, she's a person live with HIV. Because if you
37:10
educate more people, then more people like me that's HIV possible will feel comfortable
37:15
sharing the status being open with their family members, with their friends, with
37:20
their partners. Because we haven't, we haven't conversations in a way that is
37:25
not offended nobody, because we get offended real fast because of the way that
37:31
people address us because we're HIV possitible, right, and that's the stigma and
37:37
ignorance. But I want to just say this, When I first when HIV
37:40
first came out and I was graduating from nursing, school, and I remember
37:45
I graduated and was working at my first job. We had to wear My
37:51
first HIV patient was a Heroin addict and this was like baby number twelve somewhere
38:00
around there FORAR and we had to wear the girl, the mask, the
38:06
long gloves, the sheet, the cover, I mean all of the suff
38:08
shoe covers. That was because back then they didn't know what it was.
38:14
But in twenty twenty four, the information is right there and a lot of
38:19
people it doesn't make a difference how educated they are. They still a stigma
38:23
that you know, they shame people. And that's why I feel like it's
38:30
so important that we have more and more conversations like this so we can we
38:36
can talk about it and bringing people who are HIV neutral that's the term that
38:40
they use it now, HIV neutral, and those are the HIV positive together
38:45
in the same room like hate sisty, look just like you. You can't
38:51
you can't. You can't tell me. You can't tell me from the next
38:54
person if we had who is HIV and who doesn't unless I tell you.
39:00
What I've come to understand is that there are individuals out there advocating for those
39:06
living with HIV and AIDS and recently one of the strongest HIV AIDS human rights
39:12
advocates, transitioned Idea Broadband. I would like to take this time to honor
39:16
her. Today we honor Idea Broadband, a prominent HIV activist who passed away
39:28
at the age of thirty nine. Born with HIV, her activism began at
39:32
just six years old when she started speaking publicly about living with HIV. She
39:38
traveled nationally and internationally to educate and inspire others at AIDS benefits and concerts,
39:45
colleges, seminars, and through her appearances and documentaries and talk shows. She
39:51
received the Black Achievement Award from Jet magazine after establishing the Idea Broadbent Foundation and
39:59
was a spokesperson for organizations such as the Magic Johnson Foundation and the CDC's Let's
40:06
Stop HIV Together campaign. Her tireless work to raise awareness and fight stigma and
40:12
discrimination has made a lasting impact. Rest in power, Idea. You can
40:17
visit this website. I'm gonna post it up here if you want to continue
40:22
and support and in her name ideas inspiring messages. Verstand with working with Let's
40:31
Stop HIV campaign. That hit me hard. I didn't know the young lady.
40:52
But it hit me hard when I saw it that she had passed away.
40:55
You know, I thought maybe that was the ignorant in me that I
40:59
thought that she was going to be here forever and ever and ever. Should
41:04
You all are simply amazing. You're doing strong advocates for HIV. You begin
41:10
journaling your thoughts after being diagnosed with HIV about nineteen years ago. Tell us
41:15
about your journaling and your journaling. I think maybe two or three, maybe
41:22
three years into being HIV positive, I went to a psychiatrist and she would
41:30
always tell me to journal my thoughts and I'm like no, and she was
41:36
like, you should do it. It's someone inside of you dying to come
41:38
out. You should, you should write. So I started to write my
41:43
thoughts and every time I felt some type of way, I would write,
41:45
and a few days later I would reread what I wrote and I'm like,
41:50
Wow, I want to be her. She sounds so strong, you know,
41:53
she She's powerful. I want to be her one day and I continue
41:58
this crazy winness through your stories and with that, you've written over thirty books,
42:08
most of it you're self published. What is the title of your latest
42:12
book and how does that relate to a witness. Oh well, my latest
42:17
book would be From Herding to Healing. That's my HIV related But in a
42:23
sense, all my books to me, I feel that it's HIV related for
42:28
some reason because they all tie together. But if we're going to talk about
42:31
the HIV book, my latest book would have been my activity book. I
42:36
created an activity book for the youth. I feel that if we educate the
42:39
youth, that's how we get to decrease the numbers. Like I said,
42:43
I don't think it will ever change. It's too much money invested in this.
42:45
We will always have HIV, but we increase the numbers. So if
42:50
we can educate the youth, that's the way we that's the way we can
42:53
fight this thing. Because for some reason, us the notes we kind of
42:55
like stuck our ways. But the kids, if we can reach them,
43:00
I think that'd be awesome. So I created the book too. I actually
43:05
created the activity book. It's a fun book. It got you can color.
43:08
Everything in the is just activity fun. But what you're learning at the
43:12
same time, you know these kids, you got to get their attention.
43:15
So I truly feel that if I can get these activity books in these schools
43:21
in these churches that we can we can make a difference. Color, how
43:25
pregnant is HIV and age a mother African American community and teen pregnancy. You
43:31
know when you send that, I had to go do my research because I
43:37
wanted to to talk about that. This is in twenty twenty one, Black
43:43
people represented forty percent of new HIV diagnosis despite making up only fourteen percent of
43:50
the US population. And it talks about this parently being clear, just like
43:55
we had a system in equities. They talked about the display only being clear
44:00
that forty percent of all people living with HIV in the United States it's black
44:07
and we only acount for forty percent of the population. So there's an issue
44:12
there, Yeah, big issue. Those are the ones that are coming forward
44:19
and that you know about. To trivia, Where do you find the time
44:22
to be a certified HIV tester, counselor and HIV and abuse advocate. Where
44:29
do you find the time to do it? It's three four hours in the
44:31
day. I'm really I'm really good with time managery. I don't manage my
44:37
time. I'm really good. But I started with YouTube. So because I'm
44:40
a YouTuber, well they call it in Florence or now, I think,
44:43
But I have a YouTube channel, so that's how I do a lot of
44:45
my I'm not a counselor. I did not go to school for it,
44:49
but I say counselor. Maybe I should say a different word. I work
44:52
on that later, but people always come to me. My YouTubers, they
44:54
come to me for help, so that's it's easy to do it through there.
45:00
And also HIV and abuse because a lot of women that was diagnosed with
45:04
HIV stayed with the person that they gave that gave it to them and they
45:07
allowed that person to abuse them. We don't talk about that much either.
45:10
We just talk about, oh, we have HIV, but some of us
45:14
got HIV from someone and they abused us. So that's what an abuse in
45:19
HIV advocacy come from. And then far as to testing, I went and
45:22
got certified to be a tester and counselor because I started an organization serial towards
45:29
HIV awareness, so I wanted to test in my own organization. I have
45:32
not worked under any company, but I wanted to do it in my own
45:36
with my own company. So I have events every three months. Maybe whatever's
45:40
going on in the world at that time. I have events and I have
45:45
testing, I have different speakers to come out. I have different things that
45:49
that I'm creating to bring awareness in my community. I added, there's a
45:52
special group that you educate with the program you created called Let's Get Educated Youth
45:58
Group. How did this program come up? So I have a lot of
46:01
I have a lot, I have a huge re course system. Everybody is
46:05
wonderful. I'm telling God has really truly blessed me. I have a lot
46:07
of friends with kids, and over the years, all of their kids came
46:12
to my events. So when you constantly get these kids together, it's like,
46:15
how can you not form a group for the kids. The kids is
46:19
learning this without even really learning it because they sitting there with their mother coming
46:22
to support a friend. So if you can get the kids together and educate
46:25
the kids individually, that would be better opposed to just them sitting with their
46:30
parents. So I did an event last month. It was on National Youth
46:35
Awareness Day. I had an event and it was absolutely amazing. It was
46:38
steered towards just the youth in HIV, just educating them about different things and
46:44
it's not all about just HIV. You could teach youth, all so many
46:49
different things. But because I because this is what I do, I do
46:52
HIV, so it was it was easy to get it to just come together
46:57
the way that it did. So calling as a registered nurse with over thirty
47:01
years of experience in women's health and HIV and age, you also work in
47:06
an HIV clinic as the nurse manager, providing educational webinars, journals, and
47:12
events worldwide by enriching and educating women on health and personal growth. You have
47:16
a passion for working with women and women's mental health. You became a nurse
47:22
around the time we discovered or let it be known about the HIV virus and
47:25
age. How has it evolved? Wow? To you this song. We
47:38
had so much knowledge and the information that has evolved. But I feel that
47:45
this stigma, the shame, it's still like it was back in nineteen eighty
47:53
six, something telling me all out law, it's been thirty eight years.
47:58
So the statement of the shame and especially from within the within our own community,
48:05
it's it's still there. And I feel that the systemic inequities that we
48:10
face as a people has helped perpetuated. So now we just like Chachieva is
48:17
doing has to take it in our own hands and use utilize our ministry,
48:23
our calling our businesses to change the face of HIV because when it started out,
48:30
it was a gay, white man's disease, and that was coming to
48:34
be a black young MSM disease and a lot of women becoming positive. We
48:42
have our brothers going into prison negative and coming out positive, and so it
48:46
continues. I want to say one thing that Chajiva said, I want to
48:54
add one though, say one thing that's gonna be found. As long as
48:58
it's they making money in the drugs, we probably won't get a key off
49:05
of HIV. What do you hope is to take away from your youth groups?
49:12
And do you serve more males or females from TV? Oh, it's
49:16
actually balanced out. It's balanced out. You know what. I remember When
49:21
I was a kid, I knew about HIV. I knew about college,
49:25
I knew about God. I knew about a lot of different things. But
49:30
nobody taught me those things. I didn't go nowhere to get the mentorship.
49:36
Basically, I didn't. I didn't have that when I was a kid,
49:38
and maybe they did have it, but I just wasn't a part of it.
49:42
For whatever reason. So I truly believe that if we if we teach
49:46
our kids certain things. I was I was detached for my kids for so
49:51
long because I was mentally detached from them. But now that we're being woke,
49:55
now I understand what I should have been doing. So now it's like
49:58
a cential urgency. I'm try to try to teach them everything I know now.
50:01
So I figure that if we just get the kids together, teach them
50:04
all, teach them all about God, teaching them all about purpose, teach
50:07
them all about love. Because if you really think about it, sex sex.
50:12
It's how we HIV. I had unprotected sex, right, So if
50:15
it's a sex thing, right, it's a sex thing. So if we
50:17
teach the kids, we teach them about God, we teach them about love,
50:22
we teach them about purpose. While you're here, love yourself, love
50:25
someone else, and you teach them when you when you start liking somebody,
50:29
y'all, y'all probably should go and get tested. It's this thing called HIV
50:31
and they do that together. What you say, normalize, that's normalized these
50:37
type of conversations with the kids, And I truly believe it could just change
50:40
their life. That's what. I believe that if we teach them God first
50:45
and we eat everything else in it would change change the world. Yeah,
50:51
Wellen, it's time for a change caller. You have a platform promoting self
50:53
love and well being to empower women through your wellness, Nook, Can you
50:57
share a little bit about your wellness Nook? Women you know, and I
51:04
said, black women or women of African descent, has had to deal with
51:12
gender, has had to deal with socioeconomic factors. This had to do with
51:21
so many different things on a daily basis, anxiety and stress. And I
51:27
wanted to look to help the whole woman, not just one portion of the
51:31
woman. But we talk about spiritual health, financial health, We're talking about
51:37
mental health, emotional, cultural, historical, all of these things. And
51:43
as a nurse, I've worked in the community and I've worked in the hospital,
51:47
and I've always gotten the patients where I wanted a time where I can
51:52
sit down and talk and share what I was given important to me, not
51:57
just from what I went to school, but also my experience and what the
52:00
older women pouring to me. And I wanted to take that, wrap it
52:06
up in a ball and teach and share with the women that you know,
52:09
come in contact with, and I felt that that was lacking. And I
52:14
believe, like we have conversations like this, when we sit down and we
52:16
talk about it, that it gives It empowers a woman to share her story,
52:22
but it also empowers those who listening and encourages them. And she is
52:27
a triv It's a trivid I'm saying, and hopefully I'm saying it right,
52:30
can live with HIV and it's vocal about it and shares her experience and hopes
52:36
that she can educate the young people coming up. Then I would have done
52:40
something. So I see that as my purpose, pouring into the lives of
52:45
other women. I've got to the point now when they're gonna say, well,
52:49
I'm an elder, I accept the titles that I am an elder.
52:52
So I'm coming out and you know, I'm at that portion where now I'm
52:57
leaving nursing full time and looking to don't want to to just her wellness,
53:01
No, a place where we can we can have conversations and learn and not
53:07
just talk about HIV and not just talk about just talking about emotions, how
53:10
we feel about our mental health, think till nobody else's addressing And I'm tired
53:15
of having a wait for somebody to come into my community to tell me what
53:19
I should do and how I should do it. It's on us. The
53:25
crew Author's magazine says, thank you both for what you do. You both
53:29
are amazing and we are grateful for all you do, and they pray God
53:32
truly blessings you both overflowing. So I love that you counsel and teach these
53:39
women caller and tell our views and listeners about your nonprofit, the board educators,
53:45
and how you get involved with reviewing federal grants for the Health Resource Service
53:50
Administration that's a government agency. And you're also so knowledgeable, and I'm surprised
53:54
that the CDC has to offered you a job as a resource. You know,
54:00
the CC in places like that tak to control you. I wanted to
54:04
be in control or what I do or how I say, but it's all
54:08
you know. It's all started out the label delivery, ended up working the
54:13
community center where I got a lot of young girls eleven eleven years old,
54:16
pregnant fourteen years old, having to tell us seventeen year old that she was
54:21
possible with HIV. And then I ended up in college health and when I
54:23
worked in college health. It exposed me to a world of things because we
54:28
started getting offers for grants to do work, and then we get offers to
54:32
go to places to travel to learn, and that put me out there where
54:37
I was able to meet some of the ballers, people who were influences and
54:43
that can actually help us to get the grants, put us in front of
54:46
the different agencies, and this is how I started need reviewing grants for h
54:52
you know, for her stuff doing HIV, being women's health, anything pertaining
54:57
to our our people, African American people. Those were the the grandside would
55:02
say yes too. So I'm kind of shifting away from that now and just
55:08
totally focus and trying to focus on my ministry building up what that you're doing
55:14
that. According to the CDC, in nineteen eighty four, researchers finally identified
55:19
the cause of AIDS the HIV virus, and the Food and Drug Administration licensed
55:23
the first commercial blood test for HIV in nineteen eighty five. I noticed is
55:29
the topic that had and still may have a lot of controversy, especially for
55:32
our gen z who was born in nineteen ninety seven to twenty twelve, our
55:37
millennials nineteen eighty one to nineteen eighty six, and our Gen X nineteen sixty
55:43
five to nineteen eighty known as our in Between generation. They are our in
55:47
Between because they are sandwiched between the Baby Boomers and the Reagan era. There
55:52
were also our latchkey children, who are often unsupervised at home and after school.
55:58
What would you say to even one generation about me? What I was
56:09
saying to all, to all, to all the generations, everybody? What
56:16
would I say? That's that's that's deep? So you know what, I
56:20
know what I was saying. I was saying, Kean, learn yourself and
56:24
love yourself, and learn who God is. I truly believe that. I
56:30
believe God is an answer to everything. You know. God is an answer
56:34
to everything that we experiencing here on earth. And if you could teach somebody
56:37
the source and where to go, that help everything. So if you learn
56:42
who God is, you learn about yourself, and you know, I love
56:45
yourself. And then when you when you come in contact with somebody that you
56:47
love and you want to share your life and your body with them, You're
56:51
gonna do it the proper way because God im poured in you and he just
56:54
showed you how to love. He then showed you how to be loved,
56:58
and that's the key. We all won't love. So that's why we have
57:00
sex. Right. Sex is not love when we know that, but sometimes
57:02
that's what goes on. People think that is love. So if you can
57:06
teach what love truly is, learn what love is and love is God,
57:09
and you get your happiness, you get your life, you get everything if
57:14
you teach love, well said, well said, very well said? Did
57:19
you know? Purposely I left out another generation, those born between nineteen thirty
57:22
five and nineteen fifty five. I worked as a pre and post tess counselor
57:27
and I was supposed to counsel women between the ages of twenty four and forty
57:30
four. Instead, I targeted the silent generation of women born between thirty five
57:36
and fifty five. These were the widows, single, retired women receiving benefits.
57:42
They were lonely, vulnerable women, and the young men would often visit
57:45
them between the first and the third of the month, which was checked at
57:49
as long as they were happy. These women paid for it. However,
57:52
they paid for it in a more and more than one way. That's right.
57:57
They contracted HIV and evings and that was the silent generation Travia. How
58:04
can more schools in the faith based communities connect with you? So there,
58:07
there, there you can experience your coaching programs and go setting trends. You
58:13
can't set it again? You thank you. More schools. How can more
58:16
schools and faith based communities connect with you? So then then you can experience
58:21
your coaching programs and goal setting trends. Well, they can message me,
58:27
they can call me and you know what I mean, I'll get my information,
58:31
so you'll put it in a chat. But like right now, my
58:35
ch church, the church that I I'm a part of, we we do
58:37
everything. And then also I have a church where I have all my visit.
58:40
So right now the main thing is connected with more people. I don't
58:45
know nobody you know, so it's them. It's it's just a matter of
58:47
me connected with more people so that I can't help more people right now,
58:52
I don't know what a lot of people. I'm just really getting started with
58:53
everything. Do you have an email that you can shout out and we can
58:58
yes at yahoo dot com, Unique Unique Presents at Yahoo. Thank you think
59:10
Carler? What's coming up for you next? Should we prepare for the Scipio
59:15
method. How can I do it and listeners connect with you to learn more
59:19
about women's health and HIV And how can I listeners connect with you? They
59:24
can actually, and you know, HIV is not my total focus, but
59:30
it's part of my package. They can connect with me at her Wellness milk
59:36
dot com or I'm also on Instagram. I am Carla Scipio. Those are
59:44
the best things coming. I have a pro Actually, I have a mother
59:46
daughter conversation coming up on Sunday. Sunday, made the nineteenth at five pm
59:54
Eastern Center time, and we're gonna talk about mother daughter convers you know,
1:00:00
relationships. We're gonna have a conversation. Wow, well, ladies, I
1:00:06
just got this in. There were three women who had facials at a spy
1:00:09
in Mexico. They were infected with HIV individus at nail salons, barbershops and
1:00:15
duty salons. Oh I saw that. Why would what? And you know
1:00:27
my daughter wasn't to my attention where then she said that they used their own
1:00:30
blood, So I'm not sure the methods was sanitary or not. That they
1:00:36
wear gloves. You know, when you see we're taught that all body flew
1:00:40
with as positive. We're supposed to see it like that, so you have
1:00:45
to make sure that you follow universal precautions. So I don't know the details
1:00:52
of what happened, and what happened, you know, somehow somebody didn't follow
1:00:59
you know, So we have to be mindful, and you also do.
1:01:05
You have to pay attention when you go to the to the mail shops.
1:01:09
You have to make sure that they maintain universal precautions, and some of them
1:01:14
don't and we have to hold them to task. Look on the walls and
1:01:17
see their license is up there and see if everything seems to be legit.
1:01:21
Because sometimes people open up a business, they give you great deals and you
1:01:24
ready to sit down and get your stuff on room. Dealing with an HIV
1:01:29
AIDS diagnosis can be challenging. You may feel many emotions, sadness, hopeless
1:01:34
or even anger. So it's incredibly important to process those thoughts and feelings.
1:01:38
But it's also important to get tested and start treatment as soon as possible,
1:01:43
because HIV and AIDS can be treated effectively with today's treatments. I want to
1:01:47
thank my guess Cha, Trivia and Calor for being so transparent and advocating for
1:01:54
such a worthy cause. HIV and age. Treatment can help people live longer
1:02:00
health their lives by helping them lower their viol loads. Of course, HIV
1:02:05
and AIDS medications is an important part of starting treatment, but support is also
1:02:08
needed. If you need emotional or mental health support during this time, don't
1:02:15
hesitate to get in touch with one eight hundred HIV zero four four zero.
1:02:21
That's one eight hundred four four eight zero four for zero. And if you're
1:02:27
tuning in out of state and I hope you are called three oh one three
1:02:31
one five two eight one six. That's if you're out of the United States,
1:02:37
called three oh one three one five two eight one six, or the
1:02:42
CDC's National Health Information Hotline, which provides answers to your questions regarding HIV and
1:02:47
AIDS on how to protect yourself and where to get an HIV test. You
1:02:52
can contact them at one eight hundred CDC Info that's one eight hundred two three
1:02:58
two six three six will reach out to tcha or calling. These women are
1:03:05
truly and honestly here for you. During US Friday, May seventeenth, we
1:03:09
are talking with author Danny Nicole after a after dogs, You ladies are amazing
1:03:31
and like I told you, I said, look here we are our three
1:03:35
minutes after, I can still talk to a bunch of other questions that I
1:03:37
have for you both. I'm gonna stay in contact with you because I'm planning
1:03:43
on doing an event and