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Is the Ehlers-Danlos Umbrella Helping... or Hurting? with Abbey Phillipson (Ep 208)
Could lumping every type of Ehlers-Danlos syndrome under one umbrella actually be doing more harm than good?
In this thought-provoking episode, host Dr. Linda Bluestein, the Hypermobility MD, is joined by Abbey Phillipson, who was born with COL5A1 classical Ehlers-Danlos syndrome, survived the first recorded non-traumatic pediatric spondyloptosis, and now serves as Head Strength Coach for Paralympic and Adaptive Sports at the University of Michigan and founder of the Collagen Advocacy Network.
Inspired by Abbey's powerful presentation at the UVA Research Symposium, this conversation…
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