Latest / Where We Rise / 25| "Meet Them Where They Are" | Advocating for Adults with Autism
Transcript
- 0:00Khalila McCoy: Hey, I'm Khalila McCoy, and you're listening to the show that reminds you you are not alone.
- 0:07Khalila McCoy: This is Where We Rise.
- 0:10Khalila McCoy: Hey, welcome back to Where We Rise.
- 0:14Khalila McCoy: We've officially reached the last week of July.
- 0:17Khalila McCoy: And if you're an educator, you already know what that means.
- 0:20Khalila McCoy: Summer is basically over.
- 0:22Khalila McCoy: I don't care what the weather is doing outside, the target school supply aisles are full, the emails are rolling in, and starting next week, I will be back in full school mode, preparing for a brand new school year.
- 0:35Khalila McCoy: I already know some of you are back full mode already.
- 0:39Khalila McCoy: It's a bittersweet season, so make sure you check in on your teacher friends.
- 0:44Khalila McCoy: But to honor back to school season, I wanted these next few episodes to relate to school, but also teach us something about others.
- 0:54Khalila McCoy: So that curiosity led me to today's guest, April Ratchford.
- 0:59Khalila McCoy: She's an autistic occupational therapist, a mother, and the host of a podcast, Adulting with Autism.
- 1:07Khalila McCoy: In this conversation, April and I touch on some things such as diagnoses and emotional realities of parenting a neurodivergent young adult as she walks us through her son's journey from struggling in college to finding the right support.
- 1:22Khalila McCoy: She shares practical insights about what autistic teens and adults actually need as a transition into the real world.
- 1:30Khalila McCoy: April's honesty, humor, and lived experience make this conversation engaging from start to finish.
- 1:37Khalila McCoy: Let's listen.
- 1:38Khalila McCoy: Hi, April.
- 1:41Khalila McCoy: Welcome to the show.
- 1:42Khalila McCoy: Hello, thank you for having me.
- 1:45Khalila McCoy: Yeah, I'm really excited that you're here.
- 1:47Khalila McCoy: So I shared with you before, I actually saw you on a show of a previous guest of mine.
- 1:54Khalila McCoy: And in that episode, you guys were talking about adulting with autism.
- 1:58Khalila McCoy: And I really liked the way that you reframed autism, not as a deficit, but just as a different way of experiencing the world.
- 2:06Khalila McCoy: And I thought that was really powerful.
- 2:08Khalila McCoy: And I think the more we understand neurodivergence through that lens, the better we can support and help each other and grow.
- 2:15Khalila McCoy: So that's why I asked you to come on.
- 2:17Khalila McCoy: And I'm so excited you said yes.
- 2:19Khalila McCoy: So if you can start off, I don't know a lot about you either.
- 2:24Khalila McCoy: I'm learning along with my listeners.
- 2:25Khalila McCoy: So go ahead and tell us a little bit about yourself and how you came to be so passionate about this topic.
- 2:32April Ratchford: So I'm April Ratchford.
- 2:35April Ratchford: I am an autistic occupational therapist.
- 2:38April Ratchford: I am late diagnosed.
- 2:40April Ratchford: I have a 24-year-old son who is also autistic and has spina bifida.
- 2:46April Ratchford: And what I have gone through with him through the years and transitioning him into adulthood, I found out there's nothing there for them.
- 2:59April Ratchford: Like he went to college at 19, failed out, and I couldn't find anything to help him transition.
- 3:10April Ratchford: We didn't get anything when he graduated high school.
- 3:14April Ratchford: And as an OT, I don't do pediatrics for a reason.
- 3:20April Ratchford: I am in long-term care rehab.
- 3:23April Ratchford: So I was navigating this on my own.
- 3:27April Ratchford: I was like, there's no OT out here, like helping parents transition kids into adulthood.
- 3:33April Ratchford: And I got frustrated because my son was getting depressed and he didn't know where to go.
- 3:40April Ratchford: I didn't know where to go.
- 3:41April Ratchford: He just blew $10,000 because they took advantage of him.
- 3:46April Ratchford: And I was like, fine, I'm gonna start a podcast and bring on guests that could help other autistic young adults transition into the adult world.
- 3:57April Ratchford: Like whether it be mental health or relationships, sexual intimacy, all the things they didn't get in school that they should have gotten.
- 4:07April Ratchford: And here I am.
- 4:09Khalila McCoy: Yeah.
- 4:10Khalila McCoy: Well, no, I like that.
- 4:13Khalila McCoy: I like that you're I always think it's very admirable when people take a situation that they're going through, improve their situation, but don't just stop there.
- 4:22Khalila McCoy: They say, How can I help other people?
- 4:24Khalila McCoy: So I like that you're doing that as well.
- 4:26Khalila McCoy: So let's back up first to you.
- 4:28Khalila McCoy: You said that you were late diagnosed.
- 4:31Khalila McCoy: When were you diagnosed then?
- 4:33April Ratchford: So it's funny because a lot of women don't really get diagnosed correctly until we hit menopause.
- 4:42April Ratchford: And I was doing this, the more I kept doing my podcast, the more boxes I kept ticking.
- 4:48April Ratchford: And I was like, oh, maybe I'm autistic.
- 4:53April Ratchford: So I look at my baby book.
- 4:55April Ratchford: I didn't speak until I was two and a half years of age.
- 5:00April Ratchford: I had speech all through like first and second grade.
- 5:04April Ratchford: I have my own idiosyncrasies about things.
- 5:08April Ratchford: I have my own meltdowns.
- 5:09April Ratchford: I was like, well, this makes sense.
- 5:12Khalila McCoy: It's like all coming together.
- 5:14April Ratchford: Yeah.
- 5:14April Ratchford: I was like, well.
- 5:16Khalila McCoy: So you didn't really notice what you were going through until you start helping your son?
- 5:21Khalila McCoy: Right.
- 5:22Khalila McCoy: Okay.
- 5:23Khalila McCoy: So then did you have to bring it to your doctor and say, hey, this is these are all the things that I'm noticing?
- 5:28Khalila McCoy: Uh, not really, because my doctor is like, well, you're an occupational therapist, you would know.
- 5:34April Ratchford: And I was like, Yeah.
- 5:35April Ratchford: Yeah.
- 5:36April Ratchford: So, because I should have figured it out when I was in my master's program because I could not get through my AMP test without zoning out after hour one.
- 5:51April Ratchford: And my best friend was like, I don't understand.
- 5:53April Ratchford: You zunk these out, but you can't pass your test.
- 5:57April Ratchford: But it's because I like, if it's not interesting to me, the three hours of testing is a long time.
- 6:05April Ratchford: And then I did it again with my OT boards.
- 6:09April Ratchford: I failed those for the first time.
- 6:11April Ratchford: And that was five hours.
- 6:15April Ratchford: And I knew the first time I wasn't gonna pass because I kept focusing on all the clicking noises from the other typewriters.
- 6:23Khalila McCoy: And I was like, Oh my goodness, yeah, I can't focus.
- 6:27April Ratchford: It was over, so I should have figured it out.
- 6:31April Ratchford: My sister was late diagnosed as well, but she is autistic and ADHD, like her youngest son, and her older two are also autistic.
- 6:42Khalila McCoy: I was gonna say I've heard before for women that ADHD often gets misdiagnosed or later on because you know, for women, they think it's something else.
- 6:51Khalila McCoy: Do you feel like it was the same thing for you guys, like as you were going through those things before you learned all the things that you should have, you know, should have known, but could have known about it?
- 7:01Khalila McCoy: Was it just you thought it was, oh, I'm just not interested, so I'm not paying attention, or I'm just distracted?
- 7:07April Ratchford: Yeah, because I it took me forever to pass college.
- 7:14April Ratchford: Like people are like, oh, you must be so smart.
- 7:16April Ratchford: And I'm like, no.
- 7:17April Ratchford: I went back to college at 35.
- 7:20April Ratchford: I had the I finally could like be focused and organized enough to get through college.
- 7:32April Ratchford: Whereas my sister was my opposite, she's got that ADHD portion where she can be like, she's misorganized.
- 7:40April Ratchford: She can do three computers at a time.
- 7:42April Ratchford: And I'm like, oh, I can't do all that.
- 7:46April Ratchford: But most of us are late diagnosed, and if we're kids of this 80s and 90s, you just you rolled with it.
- 7:55April Ratchford: You just had to adapt on your own.
- 7:59Khalila McCoy: Now, for your son, were you able to notice the his neurodivergency pretty early?
- 8:06April Ratchford: At the time I was a nurse, I didn't notice it, but my sister was in OT long before I was, and she looked at him, she's like, he's got autism.
- 8:14April Ratchford: I was like, no, no, he's just a little shy.
- 8:17April Ratchford: She's like, there ain't been a kid that watched Thomas the train like he does that isn't on the spectrum.
- 8:24April Ratchford: I was like, no.
- 8:25April Ratchford: But sure enough, she was right.
- 8:27April Ratchford: So he would flap, and so she would teach him how to put his hands in his pockets so he wouldn't flap.
- 8:32April Ratchford: He lined up his toys.
- 8:34April Ratchford: We didn't play, we just lined them up and carried them.
- 8:37April Ratchford: And I was like, kind of awkward.
- 8:40April Ratchford: But then when I tried to get him diagnosed, all they told me was he just got anxiety.
- 8:48April Ratchford: And I was like, anxiety?
- 8:50April Ratchford: What the he's not been on the planet long enough to have anxiety?
- 8:56April Ratchford: So I like that answer.
- 8:59April Ratchford: It took until he was 10 years old, until a psychiatrist looked at me.
- 9:04April Ratchford: He said, You're right.
- 9:06April Ratchford: Your son is high functioning, autistic.
- 9:08April Ratchford: And I was like, Thank you, Jesus.
- 9:11Khalila McCoy: Now that's a long time.
- 9:13Khalila McCoy: How do you how do you feel about that?
- 9:15Khalila McCoy: Because it seems like they almost kind of dismissed what you were noticing as a mom and a learning professional as well.
- 9:22April Ratchford: Well, I'm not gonna lie, I I I I throw shade at them all the time.
- 9:29April Ratchford: But I feel like too, a lot of times if you are African American or another race, they want to throw kids into oh, oppositional defiance, anxiety.
- 9:44April Ratchford: I'm like, he's presenting the same as his Caucasian peers.
- 9:50April Ratchford: What's so what is it because you think I'm a single mom and I don't have a job?
- 9:59April Ratchford: What is it?
- 10:01Khalila McCoy: Right.
- 10:02Khalila McCoy: So a lot of the questions and things that you kind of had to deal with to get to the point of diagnosis.
- 10:12April Ratchford: Yeah, and it's hard.
- 10:13April Ratchford: And I I tell parents all the time, I'm like, it does not matter where you come from.
- 10:21April Ratchford: It's gonna be in all cultures, all races across the globe.
- 10:25April Ratchford: They present similar, but you know, a lot of culture, you're gonna have to be a little more fine-toothed because sometimes you're not gonna catch it because in certain cultures, kids don't say no to food, they they eat whatever.
- 10:45April Ratchford: And people are like, oh, they don't have autism.
- 10:48April Ratchford: I was like, she's not speaking.
- 10:50April Ratchford: Please enlighten me of why she they're like, Well, she's eating.
- 10:57April Ratchford: I'm like, I don't care, she's from another country.
- 10:59April Ratchford: Is she gonna say no?
- 11:01April Ratchford: Her parents are gonna totally be different.
- 11:04April Ratchford: So that's why I feel like a lot of kids slip through cracks because people don't take that cultural context and mix what could be like early intervention.
- 11:21Khalila McCoy: Yeah.
- 11:21Khalila McCoy: Now I'll be honest, I don't know a lot about autism.
- 11:25Khalila McCoy: I am in the schooling system, so you know, I've worked with kids with autism and things like that, and we have an autism unit in our building, and I know the care and uh expertise that the teachers do to work with those students.
- 11:37Khalila McCoy: But I also know there's like a really large spectrum, right, for autism.
- 11:42Khalila McCoy: So how do you figure out that it is autism versus, like you said, a cultural thing or just a behavior of that specific child?
- 11:53April Ratchford: Typically it it should be, I think, two days of testing for these kids because they not only see a psychiatrist, they see a PT, an OT, a speech, and they work as a team to kind of read out all these things.
- 12:10Khalila McCoy: Right.
- 12:11April Ratchford: And I feel like parents inherently know that something is not ticking.
- 12:17April Ratchford: And some parents with the severe autism, which is now called level three, you can pretty much see the regression.
- 12:26April Ratchford: But with level one and level two, it's such a spectrum in between those things that, you know, one might be one way, the other might be the other way.
- 12:40April Ratchford: Like my son had difficulty transitioning, but my niece and nephew didn't.
- 12:47April Ratchford: They could they transitioned and did fine.
- 12:50April Ratchford: He had, he was like, I don't know what I'm I'm like, oh god.
- 12:56April Ratchford: You're gonna be that one.
- 13:00April Ratchford: Okay.
- 13:00April Ratchford: I see.
- 13:03Khalila McCoy: Yeah.
- 13:03Khalila McCoy: What are your thoughts on parents who struggle with that diagnosis and are like, no, they're fine and don't get into that early intervention?
- 13:18Khalila McCoy: How would you support them or encourage them to let, you know, that worry or whatever it is, how would you encourage them to let that go so their kid can get the help that they need?
- 13:30April Ratchford: So I'm pretty twent and I'm I'm that rogue therapist that will say it to them and be like, your kid has autism.
- 13:40April Ratchford: And I'm like, you can't sit there and say he's gonna be this way when he grows up because you don't know.
- 13:49April Ratchford: And then I tell him, I'm autistic, I have two degrees.
- 13:54April Ratchford: My entire family isn't autistic.
- 13:57April Ratchford: We don't know what that 11-year-old's gonna be.
- 13:59April Ratchford: We're still waiting.
- 14:00April Ratchford: So people treat it like it's a life sentence, and I'm like, it's not, but I think the fear is is because there's nothing there after school.
- 14:13April Ratchford: They're like, what happens after that?
- 14:15April Ratchford: And everybody does this.
- 14:17April Ratchford: Parents don't want to hear that.
- 14:20April Ratchford: They want the next step.
- 14:22April Ratchford: They're like, I know he can go through school and get help in school, but what about after school?
- 14:27April Ratchford: And when he's an adult, and everybody's like, so it's a real fear because they're already panicking the worst case scenario.
- 14:38Khalila McCoy: Right.
- 14:38April Ratchford: And then here we are just figuring out they're becoming adults.
- 14:43April Ratchford: I'm like, so y'all didn't think they were gonna grow up.
- 14:46Khalila McCoy: I didn't Yeah.
- 14:48Khalila McCoy: And I will say it's hard to hear because, like I said, I am in the educational space.
- 14:52Khalila McCoy: I'm in um elementary school.
- 14:54Khalila McCoy: And we get all kids who go through testing and things like that, and we'll sit the parents down and say, you know, they need an IEP or something.
- 15:01Khalila McCoy: And the parents will ask, like, oh, well, if I do this, if I put them in special education, will they be able to go to college?
- 15:08Khalila McCoy: And we always say, Yeah, of course they'll be able to go to college and they'll get some support all through elementary, through middle school, through high school, and things like that.
- 15:15Khalila McCoy: And yes, they'll be able to go to college.
- 15:17Khalila McCoy: But it's interesting hearing now, like, you'll go to college, but what happens when you get there is completely different.
- 15:24Khalila McCoy: Right.
- 15:24Khalila McCoy: Because that's kind of discouraging in a way to hear.
- 15:28April Ratchford: Because, like, if I had known that there were actual colleges out there that had autism-specific supports for autistic students and ADHD specific supports out there, I wouldn't have sent my kid to a regular public school.
- 15:43April Ratchford: And parents don't know that.
- 15:44April Ratchford: I didn't know that until I started doing my podcast.
- 15:48April Ratchford: And I was like, wait, they have these things?
- 15:52April Ratchford: Why don't I know this?
- 15:54April Ratchford: I'm a therapist.
- 15:55April Ratchford: Why was this not taught to me?
- 15:57April Ratchford: Why do I not know any of these things?
- 16:00April Ratchford: And and I tell my story to give parents hope because yes, my son did fail out at 19, but he was able to hold a job for two years.
- 16:11April Ratchford: I wasn't gonna let him sit and play video games.
- 16:15Khalila McCoy: Well, that's good.
- 16:16April Ratchford: He can shower himself.
- 16:18April Ratchford: Now, does he drive?
- 16:19April Ratchford: No, he still has anxiety about driving, which I don't care.
- 16:22April Ratchford: Drive or not drive.
- 16:23April Ratchford: But he has now completed his first year at Marshall University.
- 16:29April Ratchford: He's on his own.
- 16:30April Ratchford: Okay.
- 16:31April Ratchford: He is carrying a 2.5.
- 16:34April Ratchford: He got a 3.3 last semester.
- 16:38April Ratchford: He's in his summer school.
- 16:40Khalila McCoy: Okay.
- 16:41April Ratchford: He's a sophomore now.
- 16:43April Ratchford: So after next year, he'll be a junior and he's ready to get out there and travel the world.
- 16:49April Ratchford: He wants to be a foreign exchange student.
- 16:51April Ratchford: You just have to be on their timetable and not the rest of the world.
- 16:56Khalila McCoy: Right.
- 16:57Khalila McCoy: Yeah, I like that.
- 16:58Khalila McCoy: Now, what type of supports do you feel like they were providing that was different?
- 17:05April Ratchford: So at Marshall, I didn't realize they keep their school calendar a lot for the their neurodivergent population.
- 17:15April Ratchford: Like my son doesn't have to go home on breaks.
- 17:18April Ratchford: He just has to tell them I'm staying in my dorm.
- 17:21April Ratchford: Or if he's only coming home for two weeks, to stay on his routine.
- 17:26Khalila McCoy: Okay.
- 17:27April Ratchford: So they don't shut down like other schools did.
- 17:30April Ratchford: And I was like, this is freaking fantastic.
- 17:32April Ratchford: My son didn't come home for spring break.
- 17:36April Ratchford: He didn't come home for fall break.
- 17:37April Ratchford: He only came home for two weeks on his winter break so he could go right back and get back into his routine.
- 17:46April Ratchford: And it's a small campus and they provide a lot for their neurodivergent community.
- 17:54Khalila McCoy: Mm-hmm.
- 17:54Khalila McCoy: Now you said that's not widely known, right?
- 17:57Khalila McCoy: That schools provide that type of support as well.
- 18:01Khalila McCoy: So how I mean, other than like you said, you had your podcasts.
- 18:05Khalila McCoy: So now I guess people can listen to your podcast to find out more.
- 18:08Khalila McCoy: But is it something when you're applying for schools that you should that should be asked?
- 18:14April Ratchford: You should ask, like, because not all schools are going to have autism-specific supports.
- 18:21April Ratchford: They do have student support services, but that's like all-encompassing everybody with a disability.
- 18:29April Ratchford: And that really doesn't cater how autistic brains and ADHD brains work.
- 18:35April Ratchford: So there's certain schools that have it, certain schools that don't.
- 18:42April Ratchford: Every school has their own rule about getting in.
- 18:45April Ratchford: Right.
- 18:46April Ratchford: Like my son tried to get into the autism-specific support program because they only have limited to seating because it's such a tight group and they're a lot of one-on-one.
- 18:58April Ratchford: And he just didn't get in, but he went and he's like, Yeah, I don't really need it.
- 19:05April Ratchford: I just need extra time on my tests.
- 19:07April Ratchford: And away he went.
- 19:09April Ratchford: He gets his own tutors, he goes to the library, he's learned how to navigate the computer system, and now he's like a regular student bussing and cussing about professors.
- 19:26Khalila McCoy: Did he kind of have to do that on his own?
- 19:29Khalila McCoy: Like, were you able to be there, or is like a person who they buddy him up with?
- 19:35April Ratchford: No, he pretty much they do have buddy systems that you can interact with.
- 19:40April Ratchford: My son is not about that program.
- 19:42April Ratchford: Okay.
- 19:42April Ratchford: And then he would call and say, Hey, what do I need to do to do this?
- 19:48April Ratchford: And I'm like, you need to go to student accessibility and get your stuff together because you're an adult.
- 19:54April Ratchford: He's like, fine.
- 19:55April Ratchford: So if he'll go do it.
- 19:57April Ratchford: And then, you know, the office of disability, all these things.
- 20:02April Ratchford: He knows where to go.
- 20:04April Ratchford: Now he may not know where the buildings are.
- 20:06April Ratchford: And I'm like, look on your map.
- 20:07April Ratchford: Because the map doesn't always work.
- 20:08April Ratchford: I was like, it's called Google.
- 20:10April Ratchford: Google the help.
- 20:12April Ratchford: But he's done well.
- 20:15April Ratchford: He's made friends.
- 20:16April Ratchford: He's learned how to ride a bus by himself with friends.
- 20:21April Ratchford: So I'm pretty proud.
- 20:24Khalila McCoy: Tell us about being a mom far away while your son's going through that.
- 20:29Khalila McCoy: Like you said, getting on a bus by himself.
- 20:32Khalila McCoy: Like, did you know he was doing that the first time?
- 20:33Khalila McCoy: Were you nervous for him?
- 20:35Khalila McCoy: I had no idea.
- 20:36Khalila McCoy: He just called me.
- 20:37Khalila McCoy: He was like, hey, I'm at Walmart.
- 20:38April Ratchford: And I was like, how'd you get to Walmart?
- 20:41April Ratchford: He's like, I took the bus with my two friends, and we can't find the umbrellas.
- 20:44April Ratchford: Where do you find those?
- 20:45Khalila McCoy: I was like, that's the question.
- 20:50April Ratchford: I was like, it's in the purses.
- 20:51April Ratchford: She's like, thanks, bye, click.
- 20:52April Ratchford: So, and I will say that for a lot of autistic parents, like, you know, they're succeeding when your phone isn't ringing 20 times a day.
- 21:07Khalila McCoy: Okay.
- 21:07April Ratchford: So I rarely hear from him unless he's got a complaint or he wants to use his credit card and he's like, Can I use my credit card?
- 21:15April Ratchford: I was like, what's it for?
- 21:16April Ratchford: It's like, I just want DoorDash in Chinese.
- 21:19April Ratchford: I don't care.
- 21:20April Ratchford: You can use it.
- 21:25Khalila McCoy: Now what about the people who are adulting without going to college and things like that and going into the workforce?
- 21:33April Ratchford: So I'll give a piece of advice.
- 21:35April Ratchford: Just because it makes you a lot of money doesn't mean it's for you.
- 21:40April Ratchford: Because unfortunately, the world is still very neurotypical.
- 21:45April Ratchford: They want to fit you in the box and you've got to roll with the flow and you're you've got to work for your nervous system.
- 21:54April Ratchford: Like if you know you hate people, customer service is not for you.
- 21:59April Ratchford: It's called Go Work in a Warehouse where you're by yourself, you can do your job and leave.
- 22:04Khalila McCoy: Right.
- 22:05Khalila McCoy: There's some neurotypical people who need to remember that too.
- 22:10April Ratchford: You don't like people.
- 22:10April Ratchford: This is not your thing.
- 22:12April Ratchford: Or if, you know, you know you want to be social and you want to help people, but you don't know if you're going to like it.
- 22:20April Ratchford: You don't have to stay and give it 30 days.
- 22:25April Ratchford: If it's like crappy and you're like, this is not for me.
- 22:28April Ratchford: There are other jobs out there.
- 22:30Khalila McCoy: Yeah.
- 22:31April Ratchford: And they can ask for, you know, boat rehab does help with coaching and things.
- 22:36April Ratchford: But I'm going to tell you, it's not that quickest on the planet.
- 22:42April Ratchford: Here in Kentucky, it might be quicker other places.
- 22:45April Ratchford: But they just have to know what they can and cannot do.
- 22:52April Ratchford: What's your strengths?
- 22:53April Ratchford: List them out.
- 22:55April Ratchford: Don't focus on your weaknesses.
- 22:59April Ratchford: And that's not going to get you even nowhere.
- 23:01April Ratchford: Focus on what you can do.
- 23:03Khalila McCoy: Right.
- 23:03April Ratchford: And start small.
- 23:05April Ratchford: And parents need to learn that just because they're not out of your house by 18, 19, 20, I wasn't out of my mother's house until I was like 26.
- 23:15April Ratchford: So let them stay, let them learn, let them fall on their face.
- 23:21April Ratchford: They will be fine.
- 23:24Khalila McCoy: Right.
- 23:25Khalila McCoy: Now thinking about somebody who either is a friend or coworker with somebody with autism, what are some things?
- 23:34Khalila McCoy: And I know, like I said, it's a spectrum.
- 23:35Khalila McCoy: So everybody's a little bit different, but just to make sure that you're, you know, treating that person, you know.
- 23:41Khalila McCoy: So sometimes with someone's neurodivergent, we almost baby them at times, right?
- 23:46Khalila McCoy: Or we go to the other extreme of trying to ignore them or being rude.
- 23:50Khalila McCoy: I'm not saying we as, and I do that, but you know, I mean, there's that those are extremes of how people can be treated.
- 23:56Khalila McCoy: So in that, where would that middle be of truly understanding that person and working with them?
- 24:03April Ratchford: It's patience and respect.
- 24:05April Ratchford: So if they're your coworker, just say, hey, do you need any help?
- 24:13April Ratchford: If they look lost.
- 24:14April Ratchford: If they're not getting it really fast, understand it's not because they can't get it.
- 24:21April Ratchford: It's just maybe somebody's not explaining it in a way that they understand.
- 24:26April Ratchford: Right.
- 24:27April Ratchford: Like, it's very simple.
- 24:29April Ratchford: Like sometimes it just takes a different way of saying things.
- 24:32April Ratchford: Like, I didn't understand anatomy and physiology, and I went to my sister, I said, explain this in April terms.
- 24:38April Ratchford: So she would have to like do a whole language change.
- 24:42April Ratchford: And I was like, Oh, why didn't they just say that?
- 24:44April Ratchford: She was like, because you're a little different.
- 24:47April Ratchford: I was like, okay.
- 24:48April Ratchford: But just be friendly.
- 24:53April Ratchford: Understand they're not gonna trust you on command.
- 24:59April Ratchford: You have to earn their trust.
- 25:01Khalila McCoy: Right.
- 25:01April Ratchford: And they have to feel safe.
- 25:03April Ratchford: Nobody's on that's neurodivergent.
- 25:06April Ratchford: If they don't feel safe around you, they're not gonna open up.
- 25:09April Ratchford: So don't take offense.
- 25:11Khalila McCoy: Right.
- 25:12April Ratchford: Just let them blossom.
- 25:15April Ratchford: Just be friendly and open.
- 25:18Khalila McCoy: Mm-hmm.
- 25:18Khalila McCoy: Now I know you work with a lot of adults who are kind of transitioning into the real world, if you will.
- 25:25Khalila McCoy: What has been the most difficult thing that you've come across for them?
- 25:33April Ratchford: I'm gonna say parent expectations because it it hits all of us because we know how smart our kids are.
- 25:42April Ratchford: We know they're bright.
- 25:43April Ratchford: But it doesn't mean college is always gonna be the thing, or you know, they're gonna be doctors or weird physicists or what whatever you have.
- 25:57April Ratchford: Meet them where they are.
- 25:59April Ratchford: Just meet them where they are, and you're gonna have to understand that they're adults now.
- 26:05April Ratchford: They are young adults.
- 26:07April Ratchford: You have to ask them what do they want?
- 26:12April Ratchford: Like, I don't have power of returning of my son, which people are like, oh my god, I'm like, I'm gonna be dead one day.
- 26:20April Ratchford: So he's gotta learn to navigate all of these things on his own.
- 26:25April Ratchford: And does he like to do it?
- 26:28April Ratchford: No.
- 26:29April Ratchford: Does he always know how?
- 26:31April Ratchford: No.
- 26:32April Ratchford: But I'll get on three-way with him.
- 26:33April Ratchford: I was like, call whoever you need to call and I'll help you through it.
- 26:36April Ratchford: And he does it.
- 26:38April Ratchford: He hates, he hates calling the insurance people.
- 26:41April Ratchford: He's like, I'm like, welcome to the real world.
- 26:45Khalila McCoy: Yeah.
- 26:47April Ratchford: But let them do for themselves.
- 26:50April Ratchford: Teach them one thing at a time.
- 26:53April Ratchford: They will get it.
- 26:54Khalila McCoy: What are some of the things emotionally that you've seen they struggle with as well?
- 27:02April Ratchford: That their maturity doesn't always match their age.
- 27:06April Ratchford: Just because they're 18 doesn't mean they they're mature at 18.
- 27:11April Ratchford: Right.
- 27:12April Ratchford: Their maturity level could be anywhere from 13 to 15.
- 27:15April Ratchford: And that tears a lot of parents up.
- 27:18April Ratchford: And I'm like, you've got to remember, just because they're 18 doesn't mean this autism thing just quickly just goes away.
- 27:27Khalila McCoy: Right.
- 27:28April Ratchford: The neurotypical brain doesn't mature until 25.
- 27:32April Ratchford: So I'm gonna say I was 30 before I got it together.
- 27:38April Ratchford: I was like, oh, but I was 26 when I had my kids, so it's a good thing he survived.
- 27:44April Ratchford: Yeah.
- 27:46April Ratchford: But you've got to understand that their maturity will come.
- 27:51April Ratchford: It just comes a little bit later.
- 27:53April Ratchford: Like my son turned 18.
- 27:56April Ratchford: I was like, oh, I see, we have not got it together.
- 28:01April Ratchford: But now he's 24 and some of that maturity has kicked in.
- 28:05April Ratchford: He's like, okay, I can do this.
- 28:09Khalila McCoy: Right.
- 28:09Khalila McCoy: How have you seen that ref um affect his relationships?
- 28:14Khalila McCoy: Because you talked about before, relationships are different, be it friendships or intimacy.
- 28:20April Ratchford: Um, he has a boyfriend.
- 28:22April Ratchford: They are both, I guess, gonna be video game designers.
- 28:27April Ratchford: Okay.
- 28:28April Ratchford: And so his boyfriend goes to online school, and I was like, that is not your option.
- 28:34April Ratchford: You don't learn very well that way.
- 28:36April Ratchford: You need some people.
- 28:37April Ratchford: So he's at school, and every now and then he'll ask a question.
- 28:42April Ratchford: He'll be like, So what do I do if he's just constantly trauma just dumping?
- 28:52April Ratchford: I was like, put a boundary up.
- 28:54April Ratchford: Yeah.
- 28:55April Ratchford: Cut it off.
- 28:56April Ratchford: I'm like, you are now an adult, you can put up your boundaries, you they can either like it or not.
- 29:02April Ratchford: And he's pretty blunt.
- 29:04April Ratchford: So people ask, do you want my I want your opinion?
- 29:09April Ratchford: He I was like, listen, before you open your mouth, you make sure that do you want the real truth that I'm gonna say, or do you want me to lie to you because I know who you are?
- 29:23Khalila McCoy: Is his boyfriend neurodivergent as well?
- 29:26April Ratchford: Yes.
- 29:26April Ratchford: I'm like, y'all are just a lot.
- 29:32Khalila McCoy: Now, do you find with the people you work with, is it typical that two not neurodivergent people will because I know obviously some don't, but is that typical?
- 29:40April Ratchford: Like they usually kind of bond together because of everything that they've gone through, or I think so because they feel like that person understands them.
- 29:49Khalila McCoy: Right.
- 29:50April Ratchford: So I don't know how people just find each other because sometimes when you're in your 50s and you just run into somebody, you're like, Oh, you're neurodivergent too.
- 30:00April Ratchford: And they're like, What do you mean?
- 30:03April Ratchford: I was like, you didn't know the ADHD, because I know my boss, I worked for it.
- 30:13April Ratchford: I was like, girl, if you don't get some meds for your ADHD, he's like, it's fine.
- 30:17April Ratchford: I have 9,000 things going on.
- 30:19April Ratchford: I was like, you wear me out.
- 30:22Khalila McCoy: Do you find in the relationship when it's too neurodivergent people, is it typically more difficult, or is it as any relationship would progress?
- 30:35Khalila McCoy: Because like it's like you said, he's still in different maturity, and they both might be, they're both learning different things.
- 30:41Khalila McCoy: Does that usually strengthen them as they go forward versus like when you have a neurotypical person who's trying to understand the differences and support them?
- 30:51Khalila McCoy: Does it does that make sense what I'm asking?
- 30:53April Ratchford: Yeah.
- 30:53April Ratchford: Okay.
- 30:53April Ratchford: It really comes down to anybody's relationship is communication and being comfortable who you are and where you are and letting that person know.
- 31:03Khalila McCoy: Okay.
- 31:04April Ratchford: But, you know, every neurodivergent person is different, like ADHD and autism different, or if they're both ADHD and autistic, and this is ADHD, it could be one big mess if there's no communication.
- 31:22April Ratchford: Um just like any neurotypical couple, it could be communication issues.
- 31:29April Ratchford: But I feel like when it's neurotypical with a neurodivergent, neurotypical have to understand all those sensory issues that they probably never encountered.
- 31:41April Ratchford: Whereas to neurodivergent people, they could be like, hey, I don't like noise.
- 31:46April Ratchford: And the other one's like, Who here's some head counseling, noise with my friends.
- 31:53April Ratchford: And they can work it out, not offended.
- 31:56April Ratchford: But neurotypical people tend to be like, I don't understand.
- 31:59April Ratchford: Why do you do this and do this?
- 32:01April Ratchford: And I'm like, And you you don't really have the answer.
- 32:08April Ratchford: You're like, that's just my nervous system.
- 32:09April Ratchford: That's what it's wired.
- 32:12Khalila McCoy: Yeah.
- 32:12Khalila McCoy: As you're working with your different clients and your own experience, what are some of your favorite experiences or your favorite things working with the different people you've met?
- 32:24April Ratchford: Listen, it's always a fun household.
- 32:27April Ratchford: Uh, when my niece, nephew, my son get together because they like playing college games and you're watching all these autistic people play Uno like it's fades.
- 32:40April Ratchford: Like they just, it's like, I'm like, it's Uno, why are y'all just slamming carts down like it's fades?
- 32:48April Ratchford: And they're like taking shots, and I'm like, these are adults.
- 32:53April Ratchford: I was like, were we like this?
- 32:56April Ratchford: I look at my sister, I was like, did we do this?
- 32:58April Ratchford: And she was like, probably worse, but we forget they're like, oh yeah, they're still in their 20s.
- 33:07April Ratchford: They're just like weird things.
- 33:09April Ratchford: Or um, it's always nice to see other neurodivergent entrepreneurs that I interview that you can clearly see they're not comfortable with people, but they have a lot to give and want to help others.
- 33:25April Ratchford: And I'm and ask my advice, and I'm like, oh God, love you, you're asking my advice.
- 33:32April Ratchford: But a lot of the times it's really guesswork because there's not a lot of research on adults through the autism spectrum and how they age, comorbidities, because all the research is primarily kids.
- 33:53Khalila McCoy: Are you starting to see more research come out about that?
- 33:57April Ratchford: There's only been one grant in the country.
- 34:00Khalila McCoy: Wow.
- 34:01April Ratchford: Granted for research study of autistic adults.
- 34:06April Ratchford: So hopefully in the next year.
- 34:10April Ratchford: And if everybody's gonna be like, are you is it gonna be you?
- 34:12April Ratchford: I'm like, no.
- 34:13April Ratchford: I know my lane and it's not research.
- 34:18Khalila McCoy: Okay.
- 34:20April Ratchford: I've just that's a long study, and my attention is not that great.
- 34:25Khalila McCoy: Yeah.
- 34:25Khalila McCoy: So if there's not a lot of research, there's not a lot of resources out there, then how are you helping people?
- 34:31Khalila McCoy: Is it more just from your experience and then just like you said, that patience and taking the time to truly know them and moving forward with that?
- 34:40April Ratchford: That in you start in the autism world, you start to learn who has developed things for autistic adults, um, navigating them to neurodivergent coaches or therapists.
- 34:53April Ratchford: And the great thing about COVID is we can do anything virtually.
- 34:59April Ratchford: So the option is there.
- 35:01April Ratchford: It's just unfortunate that you know, not a lot of autistic adults are earning a lot of money.
- 35:10April Ratchford: So getting them those supports are really hard.
- 35:15April Ratchford: And I see eventually my hope before I leave this planet is to start a foundation just for autistic young adults from 18 to 34.
- 35:30Khalila McCoy: Okay.
- 35:30Khalila McCoy: Why 18 to 34?
- 35:34April Ratchford: Usually that's the range of young adulthood.
- 35:36April Ratchford: Okay.
- 35:38Khalila McCoy: I see what you're saying.
- 35:38Khalila McCoy: Okay.
- 35:38Khalila McCoy: So then they'll be able to continue with what they've been supported with at the beginning.
- 35:43Khalila McCoy: Okay.
- 35:44April Ratchford: Yeah, and if it grows more, that'd be great.
- 35:46April Ratchford: But and maybe people will realize, oh, you need to look at the other part of the lifespan as they age, and maybe more supports will come out.
- 36:03April Ratchford: I keep seeing more and more actors figure out they're autistic, and I'm like, you didn't know.
- 36:08April Ratchford: Weird.
- 36:12Khalila McCoy: But like you said, no one's telling them, you know, what it is or what they're seeing, and they just assume it's something else.
- 36:20Khalila McCoy: Very true.
- 36:21Khalila McCoy: Yeah.
- 36:22Khalila McCoy: So are you an author as well?
- 36:27Khalila McCoy: Am I an author?
- 36:29April Ratchford: Absolutely not.
- 36:30Khalila McCoy: Okay.
- 36:31April Ratchford: I wish I had the patience, maybe down the road.
- 36:35April Ratchford: Uh-huh.
- 36:36April Ratchford: Once my kid figures out his life and whatever he's going to be successful at, and then I can write a book.
- 36:44April Ratchford: But until then, I just podcast my little butt off and hopefully it helps parents and clinicians and autistic adults.
- 36:55Khalila McCoy: Yeah.
- 36:55Khalila McCoy: So tell us a little bit more about your podcast.
- 36:58April Ratchford: So it's called Adulting with Autism.
- 37:00April Ratchford: I started it two and a half years ago.
- 37:03April Ratchford: It primarily helps with, you know, mental health, relationships, understanding your brain, how, why you think the way you do careers, if school is for you or not, just a safe space for them to be like, oh, I'm not by myself.
- 37:22April Ratchford: This is not an uncommon thing.
- 37:25April Ratchford: So they know they're gonna melt down in adulthood.
- 37:28April Ratchford: You're gonna have autistic burnout if you don't take care of yourself.
- 37:32April Ratchford: And, you know, trying to connect them with resources, you know, like books that could be read, or, you know, coaches that are um more skilled than I am.
- 37:48April Ratchford: But that's what I do for them.
- 37:51April Ratchford: My son asks me every day because he's like, Are you famous yet?
- 37:56April Ratchford: And I'm like, No, no, but I am not famous.
- 38:02Khalila McCoy: Does he want you to be famous?
- 38:03April Ratchford: Yeah, he's like, you should be making lots of money.
- 38:06April Ratchford: I'm like, this is not how any of this works.
- 38:08April Ratchford: This is not how none of this works.
- 38:13Khalila McCoy: Hey, you never know.
- 38:14Khalila McCoy: I mean, I've seen you have a really big following.
- 38:16Khalila McCoy: And like you said, not a lot of people are talking about this, so you are definitely filling in a gap there.
- 38:22Khalila McCoy: So even if you don't become famous, you're gonna be famous for those people, right?
- 38:26Khalila McCoy: You mean a lot to the people that you're supporting and helping and finding along the way.
- 38:31April Ratchford: Yeah, it's it's nice because I'm it's like a big family group.
- 38:36April Ratchford: And I'm like, got a question.
- 38:38April Ratchford: You can always find me.
- 38:40April Ratchford: Or I'll point you in the right direction.
- 38:43Khalila McCoy: Yes.
- 38:44Khalila McCoy: So how can people find you?
- 38:47April Ratchford: So the best way to find me is on my website, adultsingwithautism.com.
- 38:52April Ratchford: It has all my socials, um, a free guide if they would like it.
- 38:57April Ratchford: I have autism awareness shirts for young adults.
- 39:05April Ratchford: There's no rainbows or horses or unicorns.
- 39:07April Ratchford: No, y'all aren't into that.
- 39:10April Ratchford: So it's mostly words like not masking just magic or autistic, authentic, unapologetic things that kind of make them feel like, yeah, I'm good with this.
- 39:25April Ratchford: Or make proud of who they are.
- 39:27April Ratchford: Frequency, just so they're like, yeah.
- 39:32Khalila McCoy: Do you find saying that about the shirts makes me interested?
- 39:36Khalila McCoy: Do you find that it's often hard for them to go out into the world and just appreciate who they are?
- 39:44Khalila McCoy: Is there a lot of that in the doling world that kind of that we all have, right?
- 39:49Khalila McCoy: Like, oh, maybe I'm not good enough, or you know, people are gonna look at me weird.
- 39:53Khalila McCoy: Do you find like that's a big part of the support that you give?
- 39:58April Ratchford: A lot of the times, especially if they're later diagnosed, simply because it really wasn't talked about as much as it is now.
- 40:07April Ratchford: Now it's like this buzzword, like you hear it everywhere.
- 40:12April Ratchford: So neurodivergency, neurospicy.
- 40:17April Ratchford: So people aren't as afraid to talk about it like they were like maybe five, 10 years ago.
- 40:25April Ratchford: So, like my son will stuck around on campus and look at people, and he's not afraid to say, Yeah, I'm autistic.
- 40:34April Ratchford: Get out my face.
- 40:36April Ratchford: So I'm like, you don't really have to, he's like, You don't have to tell them that.
- 40:43April Ratchford: I was like, listen, don't be a dick.
- 40:46April Ratchford: Right.
- 40:47April Ratchford: Yeah, just now if we could just get like therapists and other pensions to tell kids, hey, it's fine that you know your handwriting's gonna suck.
- 41:08April Ratchford: Let's focus on what you're good at and help them prep that way.
- 41:13April Ratchford: Because I was like, I look at my son's writing every day and I'm like, you didn't read that.
- 41:21Khalila McCoy: I'm glad you typed.
- 41:22Khalila McCoy: Right.
- 41:23Khalila McCoy: So now you're a clinician.
- 41:27Khalila McCoy: Are you do you work for like a hospital or a school or do you have a practice that you're with?
- 41:32April Ratchford: Fun fact, I am a long-term care rehab therapist.
- 41:38April Ratchford: Okay.
- 41:38April Ratchford: I do have people reach out to me and they're like, Do you think you can mentor a coach?
- 41:45April Ratchford: And I was like, I don't know, because I work a full-time job too.
- 41:49April Ratchford: So but if they ask for my advice, I try to give as much as I know because really in this field, it's really a trial and error as an adult.
- 42:05April Ratchford: Because they're not gonna feel be the same as they were as kids.
- 42:09April Ratchford: You change as you grow, and your experiences change who you are.
- 42:14Khalila McCoy: Right.
- 42:18Khalila McCoy: So tell us what would be the biggest takeaway that you would want either a parent to have or just a listener to have from what you've shared and what you are doing in the experience.
- 42:31Khalila McCoy: What could we take from this conversation to help us rise in our own lives?
- 42:36April Ratchford: You are never alone.
- 42:37April Ratchford: There is always community for you.
- 42:40April Ratchford: Even if it's online, there's a community for you.
- 42:46Khalila McCoy: Yeah, I like that.
- 42:47Khalila McCoy: And you're definitely growing a big community.
- 42:49Khalila McCoy: And like I said, I will link your podcast in our show notes.
- 42:54Khalila McCoy: I've listened to a few of the episodes, and there's a lot that I could learn from and apply to my own life as well.
- 43:00Khalila McCoy: So I think people are people, right?
- 43:02Khalila McCoy: And we still need that community.
- 43:04Khalila McCoy: We still need to learn to be patient and to be kind.
- 43:06Khalila McCoy: And like I said at the beginning, I like how you just reframe it's just that perspective, how you look at life.
- 43:10Khalila McCoy: So I appreciate what you're doing, and I really appreciate your time today sharing that.
- 43:16Khalila McCoy: Thank you so much for having me.
- 43:19Khalila McCoy: April left us with such a powerful reminder.
- 43:24Khalila McCoy: You are never alone.
- 43:27Khalila McCoy: There is always community for you.
- 43:30Khalila McCoy: And the beautiful thing about community is that it doesn't have to look one specific way.
- 43:36Khalila McCoy: It can be made up of people with different strengths, different perspectives, and different ways of experiencing the world, all bringing value in their own way.
- 43:45Khalila McCoy: When we understand that, we begin to show up differently as parents, educators, coworkers, and friends.
- 43:52Khalila McCoy: We learn how to walk alongside others and meet them where they are.
- 43:57Khalila McCoy: I highly recommend April's podcast.
- 44:00Khalila McCoy: As I mentioned, there's a lot to learn from her show, even if you are not an adult with autism yourself.
- 44:05Khalila McCoy: I asked her what her favorite episodes were, and she shared her top three.
- 44:09Khalila McCoy: I'll add them to the show notes so you know a great place to start listening.
- 44:14Khalila McCoy: If you or someone you love needs support because of neurodivergence, take time to explore what resources your state offers.
- 44:22Khalila McCoy: It can be frustrating and sometimes discouraging, as April shared, to find the right programs, but many do exist.
- 44:29Khalila McCoy: And the more we share our experiences, ask questions, and talk openly about neurodivergence, the more awareness we build.
- 44:37Khalila McCoy: My hope is that conversations like this lead to better systems, better access, and better support for every family navigating this journey.
- 44:45Khalila McCoy: Thank you so much, April, for being on the show today and for sharing your passion in your heart.
- 44:52Khalila McCoy: And thank you, friend, for joining me for another episode.
- 44:55Khalila McCoy: I am so happy you are here today.
- 44:58Khalila McCoy: As you move through the rest of your day, I hope you take a moment to listen a little louder to yourself, to the people you love, and to the things that connect us and ways we sometimes forget to notice.
- 45:10Khalila McCoy: I'll meet you back here next time.
- 45:12Khalila McCoy: See you bye.