Latest / Beyond the Diagnosis: Duchenne Perspectives
Through the Siblings' Eyes
When people think about Duchenne, they often think about the diagnosis, the medical journey, and the role of caregivers. But what is it like growing up with a sibling of someone living with Duchenne? In this episode, Luke Hains and Lydia Safford, who both grew up with brothers affected by Duchenne muscular dystrophy (DMD) share their experience. They reflect on how Duchenne has shaped their lives and decisions, the strength they've gained along the way, and the emotions they've navigated while supporting their brothers.
The skinny
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