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HSE Drugs Group recommends not covering Friedreich's Ataxia drug cost
The HSE Drugs Group has decided to recommend that a drug to treat Friedreich's Ataxia should not be paid for by the State.
Claire spoke to Director of the National Centre for Pharmacoeconomics Professor Michael Barry. Also Craig Coady who lost his 13-year-old son Rory to Friedreich’s Ataxia and his older son Paudie, who is 16 also has the condition.
The skinny
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